OMG….

Such good news!!!!

My kappa light chains went down almost 2 points.

Lambda light chains stayed just about the same.

The ratio went down to 1.18.  The ratio is a very important piece of the whole equation.

So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.

It is so amazing and I am so grateful and happy.

Time to celebrate!!!

Cancer 2005

It was June 15, 2005, that I got the ‘official’ diagnosis over the phone. We knew, really before that, but it had to be official. The bone biopsy was done by a neurologist surgeon since it was on the spine. It was a pretty horrid experience. I didn’t feel anything but was conscious and I could feel the pressure.  Well, anyway, 13 years ago and here I am doing pretty great( apart from the stress fracture in my foot) which is doing better in the boot thing.

Time gives one perspective on most things, and this is no different.  I’m older, wiser, more informed than I was then. As I’ve said before, I didn’t really want to know much except what do we do now. It was later that I started getting all the info I could. Still, even the Myeloma Beacon didn’t come into being till 2009 maybe???  I learned so much from other Myeloma people and their experiences. Sadly, many of them are no longer here with us.

Life moves on no matter what. Death, sickness, political craziness(hopefully)will all change and move on to something else. It’s as it should be. It doesn’t make it easier or the pain any less, just different.

So, I lift a glass of sparkly and toast to me!!

 

Saturday stuff

Friday came and went too quickly.

I had a plant disaster, where a plant that was is too small a pot and had some long  growth on it, caught on my leg and fell not once but twice. It dumped dirt all over the floor but the second time was worst as it fell into my file crate.  It took 2 vacuum bags to clean up and really set my day off to a frustrating start.

It was my goal to do a “Five Things Friday” but somehow it just got away from me. After my morning walk and house chores, I went to the gym.  I got there right before 10am and that’s one of the busier times. There were people on all the machines and the classes were in full swing.   Somehow I was able to find an empty treadmill and did around 18 minutes while watching some of the nightly shows. After I finished, I did my normal weight routine. After my workout, I felt like this.

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After the gym, I went to the pharmacy, and my prescription wasn’t there. So then I had to call down to the Cancer Center to find out where it was sent. After talking to the nice receptionist, she said it was at my Auburn pharmacy. But since it wasn’t there yet, I said just send it to Optum RX as they will be the ones to refill it anyway. I was somewhat annoyed but just went with it. But I was going to go to Goodwill and Home Depot but I just gave up on doing anything else and came home.

The town seemed so busy so I just gave up on doing anything else.

I made a nice mushroom onion quiche for dinner.

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I worked out in the garden a while clipping lemon balm, catnip, and oregano. They just grow so big and all over.

BTW, yesterdays doctor appointment went well. For you myeloma people, he said the new non -live shingles vaccine is a go. Plus the new bone strengthener, XGEVA, is now available and is an injection not, an infusion.  So that’s all good news. Plus, I don’t need to see him again till August. Yay!!  I’ll still get my blood work every 7 weeks or so.  I’m too nervous a person to wait a full 10-12 weeks.

 

 

 

Six years blogging…

I started this blog in April 2012.

I had relapsed from Myeloma 2 years earlier and was on Revlimid. I decided to start writing about my journey with cancer and life in general. I never was a journal/diary keeper. But writing blogs came to me quite easy.

I greatly enjoy writing this blog about the subtle nuances of my life.  And sometimes not so subtle…

Anyway, I’m up to 900 blog posts so sometime in the next 3-4 months I’ll hit 1,000 posts. That could be my next goal.

It’s still enjoyable and fun for me.

HDT quote

Being Grateful…….

Having survived now for 13 years with Mulitple Myeloma, I know how lucky I am.  I am grateful every day for my life with my wonderful husband and children.  My son was almost 11 when I was diagnosed and my daughter almost 20. So the many years I’ve had are remarkable. Graduations from High School and college.

Some people using the bullet journal method write down what they are grateful for each day. Some do it a little OCed.  I don’t need to write it down to be reminded that the sun comes up or it’s raining and I’m fortunate enough to see it and experience.

Especially since I am enjoying this remission period. My next labs are coming up in the first part of April. Who knows what they will bring but I can only hope they are still good. Although, I don’t “hope hope” like in praying or anything.  Because your blood will be what it is no matter what you hope for. It is what it is.  That was a hard lesson for me when I was first diagnosed.  It took many years to realize basically nothing I ‘hoped’ for essentially made a difference but still one needs to hope. I think it’s a human element.

My neighbor that I’ve mentioned before in my ‘Death decluttering’ blog, is with hospice now. She only has a small amount of time left. I talked with her the other day. One thing that struck me was she said,” this wasn’t how she envisioned her retirement”. She’s only 2 years older than me and was diagnosed with stage 4 ovarian cancer 5 years ago.  She made it longer than a lot of cancer patients.

I’m one of the lucky ones and believe me, I am extraordinarily grateful. Not in any religious sense, just grateful to have lived to see another day.

 

BE GRATEFUL

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Labs still great!!

Saw the oncologist yesterday and all is well in henrydavidthoreau1-2xmyelomaville.

My Labs are almost identical to last time so that’s a relief. I’ll have labs in 6 weeks and then 6 weeks after that and then have an appointment with him.

Very exciting to still be doing well and in remission.

We went to Trader Joes after the appointment and stocked up on lots of goodies. I even bought a couple of frozen pizzas just so when on some Friday night pizza I don’t feel like making it. I also bought a cauliflower crust to try for a gluten-free one.  I stocked up on a few spices I needed and olives ,tomato sauce, and nuts.

I do wish there was a TJ’s closer, but since we’re coming back from Sacramento, it’s right off the freeway so quite convenient.

I might go to the gym since yesterday I didn’t go but I may just stay home and putter around. I have some sweet potatoes cooking for lunches or dinners. Plus I made a small chopped veggie tray for snacking.

Tonight is pizza night.