Feeding the geese

imageWe started bringing some cracked corn for the geese this winter. It seemed a nice thing to do. There are 12 domestic geese, lots of little ones and the migratory Canadian geese.

But it’s been fun to see them wait for us in the morning. Except this morning there was a jogger, a very grumpy jogger who yelled at me “did I feed the geese”, yes, well he says “they almost bit me as I went by” i said yeah they have babies go around them. He then used a number of explicatives saying he was going to grab one of the geese and smash it to the ground. Oh… Okay, nice… So his point was feed the geese away from the path. Okay, but you just need to go around them anytime they’re on the path because the mother geese will hiss and probably bite if you are too close.

Well, tomorrow I will feed the geese away from the path. Geez, talk about a nasty encounter.

Well, that’s the talk from the walk this morning!

Chore day!

I’m off today so I’m going to get some chores done, I hope.

First, I need to mKe pizza dough for Friday night.

Then finish ironing and cutting the curtain in my daughters space.

Then I need to go to town to pick up prescriptions and a few items at Target( yeah we’ll see how that goes),then back home to do a few more things. I read on line about cleaning stove grills with ammonia so I might try that.

I’m more than half way or close on taking pomalyst. Overall I feel pretty good. Actually I’m feeling better in some ways. I hope the FKL go down. That would be exciting.

We are have spectacular 80 degree weather , very nice. I think I’ll BBQ tonight. Probably burgers. My son wanted bison burger so I guess I’ll try that… Hummm may be a tofu burger for me.:)

my new walking shoes showed up and I put the orthopedics inserts in. The shoes are a little stiff so I only did 2 rounds.

I’m still working on a financial plan to set aside money for B’s motorcycle. We’ll see how far I get. I can be focused when I need to be but first we need to pay those medical co pays.

Budgeting and life

We’ve had so many medical copays that have been somewhat unexpected. Now we owe another $500 on my sons wisdom teeth. Thought since we had paid the copay in December we were good. But the insurance only paid so much. Then after I’d seen the foot doctor she wanted me to order the orthopedic inserts. So they came in at a tune of $350. So lots of things like that. For us ,it’s hard to have anything extra as we generally only have what we need. Fortunately, we finally maxing out our 401 but even that might be too little ,too late. But I’m hopeful.

Plus, having myeloma and a limited life expectancy makes it difficult too. How do you decide to use money for ,let’s say a vacation, or whatever, if you know in retirement you’ll need every penny. Then on the other hand if I’m not around what difference does it make.

One of our oldest  (time wise)survivor of myeloma ( 20+) just died. It’s very upsetting as most of didn’t know he was even unwell. I’m 10 years out. What does that say to me. I don’t know really. I’d love to buy that motorcycle for my husband today, but should we use that money when we really don’t have a lot. Or is life too short to not too. I really don’t know. I guess it’s just one foot in front of the other.

On another note , Aprils been ok , food wise we did good, still around 700 and that includes non food.(cat food, TP, wine, etc)

household was way up because of spring. Get us in Home Depot and its a candy store. We have bought quite a few plants to try and put in a drought resistant garden. Gas, is normal. B got a bonus so that has helped a lot with getting things caught up.

Well, I’m off to the library, my daughters off to work( she now drives an hour to get there), my son is off to college for the day, and B is heading up the state to work.

I’ll get home later and finish some chores. we’ve washed my daughters cotton drapes but they need ironing. I did one set yesterday, and they came out ok. Since its a cotton it was hard to get all the wrinkles out.

Also, she has a lot of lettuce and peas I want to pick so their not wasted.

Sunday simplicity

An early-morning walk is a blessing for the whole day.

Henry David Thoreau
Read more at http://www.brainyquote.com/quotes/quotes/h/henrydavid108393.html#RUMZOIsd0kxuPhoG.99

Thoreau has been a big influence in our lives. We have always tried to live with many of his thoughts. As Quakers in the 1970’s we definetly lived according to those queries. So a nice quote my husband sent me the other day.

Today is dex day, but we’re still going to Costco early. He’ll drive as I don’t drive on dex day. My judgement is just off. I have a pretty big list of stuff some expensive like Zantac, face cream etc. I may want to go over to Whole Foods too for a few things. Mostly bread. I haven’t been making bread lately so since I love good bread I may go there.

Then flylady zone is the living room and entry. Our front room is also where our table is so its all one. Not much to do except dust and vacumm. I could declutter a few DVDs like mad men that no one is ever going to watch again but that’s about it.

On a completely different stream of thought , 2 bloggers I follow have had, I’m assuming, some negative comments and have closed their blogs. It’s by invitation only. I’m not sure but since I do read both I kinda got the jist of what it was about but I’m saddened that this has to happen. I don’t get enou gh traffic to get much in the way of comments so I’m not sure how I’d react. But some stuff said was pretty unnecessary.

I’d like to hear anyone’s comments on this as it bothers me. Maybe people just get tired of the negativity.

,Once in a while I’ll post a comment that says something against what the person is saying, but only in a nice way. For instance, I like the blog Ourfreakingbudget.com. She was writing about how you can shop Whole Foods with out spending your whole pay check. And supporting trying to buy organic as much as possible.

so this person comments , that organic is not regulated and has pesticides, is essentially bad for the environment, and that GMOs are kinda a hoax. I almost fell over. So I did comment that this person really needed to get the facts. Organic is highly regulated and cannot use pesticides, and whoa.. Gmos by Monsanto is a very very scarey thing. We’ve been doing the organic thing since 1970 so I think I do know something about it. My husband also works for the largest natural food distributor in the organic or and is a spokesperson against GMOs.

So I hope I didn’t offend anyone but I truly was shocked someone thought these thing. What do they feed their kids????

Now, I admit I don’t always do organic and I do once in a while get an In and Out Burger. But most everything is organic or natural.

Well, maybe this is a dex driven post, so I’ll quit.

But, I’m saddened people have to close their blogs that I enjoy over some weirdness.

Wednesday stuff

Well, I made it thru the dex craziness. Sunday was hyper mode. But I did get a lot done. Sunday night was tough though, my face was really red and I didn’t sleep most of the night and that was even with 2 Ativan. But Monday was better,and I did some cooking and decluttering.

Today, I’m off to drop things at goodwill and I’m going to stop in the SPCA book store.

Im also trying a new recipe for a pork roast on the bbq. Not sure how this will come out but pizza can be our back up.(ha, ha).

Most everything house wise is done and I need to maybe do one load of laundry. Plus, I want to do some budgeting and see how the numbers were so far in the month. Food is probably over budget, but we will see. Also, we always spend more in spring on gardening stuff. This year we’ve rotolilled the surrounding yards and now it’s a dust bowl, so we’re trying to do drought resistant plants. Water is a big issue here in California.

We have lettuce and peas in the garden so we’re having nice salads.

Simple Sunday

We didn’t get up as early as I like but it’s Sunday so it’s okay. We are closing the gap on the JKWP to the 2 year mark. Today is 690, ,so 10 days to 700 and then where on our way to 2 years OF WALKING EVERY FREAKING DAY NO MATTER WHAT. Although there have been a few very short walks still it’s a walk.

So I’ve done the bathroom wipe down, the bedroom zone and I’m going to dust. With the windows open the dust / pollen is really coming in. Then a vacuum .

I need to go get my prescriptions and just a few groceries.

Then if I haven’t fallen in a heap, I may paint the one window sill that still needs it.  Or I may go out to the barn and look for stuff to get rid of. ( this is probably a little too hopeful)!!!

Saturday stuff

We’re home and had a great drive. Not a lot of traffic thru San jose ,so that was nice. We made good time at 3 1/2 hours. We had seen a number of great small hardbody rvs that we’re going to check out. That should be fun.

i started the pomalyst last night. We shall see how it goes and tonight is 20 mg of dex. That I’m not looking forward to. For those who don’t live in Myelomaville, pomalyst is the next generation of  Revlimid. So it’s a more refined drug to attack the myeloma cells. It also was just approved a few years ago. These drugs are extraordinarily expensive.mif you didn’t have insurance, well let’s just say that would be bad. One month supply ( 21 days) runs $10,200. Not kidding. So I have high hopes it will bring my light chains down .

Im off to the library to work and glad to be back. With my GI issues , I’m not going to bring lunch just maybe an apple. See how that goes.

i also still need to paint the shelves in the kitchen with the semi gloss, but I’d probably do that tomorrow.

New brighton state beach

Well, it is pretty spectacular here. Around 75. NBSB is in Capitola , which is around 5 miles from Santa Cruz. We actually like Capitola better although Santa Cruz is fun and we may take the bikes there tomorrow as they have the beach trail that goes for almost 10 miles. Of course, I can’t do that but I could maybe do 3-4.

We went the best bakery ever called Gayles. If you are in Capitola ,don’t miss it. It is divine. Then target for a outside table and then the Nob Hill grocery store. Lots of fun. We’re going to walk down to the ocean in a while. This camp ground sits on the bluffs , so the beach is down.

image imageI’ll try and get some pictures off my iPhone. I start my new drug on Friday so I’m glad im here today. Still have some sort of IBS kinda thing. Not sure what it is but I’ll have to ask the doctor is it related to ? My gastro issues have been a problem all along but this is slightly different with no warning I need to go. Anyone know if this is Irratile bowel syndrome . It is odd and I hope it’s just a phase.

Well, on a happier note wine and cheese before dinner.

A new week!

image image imageThis should be fun week for the most part. Today I’m off and doing flylady stuff, and continuing tidying up after the painting. The ‘porch/office/entryway is done. We ended up not doing the ceiling since we ran out of primer, but the pine still looks good. I simply love the ‘simply white’ paint. Everything looks clean and bright. Plus, we ordered a smaller pantry unit from Costco on line. It’s basically the same one as we had but only 3 feet wide and we’ve moved it in the kitchen. So it all looks great. We moved the Heywood with my Tepco in our dining area. I’ll post some pictures.

then Tuesday I work till 1 and then we leave for new brighton beach with the tent trailer. The weather should be beautiful. I’m not packing a lot of food stuff because we’ve learned it’s just easier to hit the grocery store where we go, and Santa Cruz has trader joes plus other great bakeries.

We’ll be gone till Friday so nice. Then I start pomalyst on Friday so not fun. I’m always a little freaked at starting something new, but since it’s similar to revlimid ,I hope it’s ok. Then my Dex will be back at 20 mg so not fun but, I’ll just have to get thru.

I’ll try and add the pictures today.

Dr. appt day

I’m off to see my oncologist this morning. It’s a later morning appt ( which I don’t like) but today it’ll be fine.

My labs came back with low WBC , low RBC, slightly low neutrophils, so all that adds up to being tired a lot. Plus, the not so good news is my kappa light chains jumped up, so definetly not good. The ratio though is 59% between kappa and Lamba so, still below the 100 mark . But that it’s going up is a concern, plus I seem to be having more aches in my ribs and that right leg. I don’t want an MRI now but if it continues I will need to make sure there aren’t lesions ready to cause a fracture. I called UCSF about the specialist Dr. Wolf. It’s a lot of sending records etc, and too much for me but I will ask my doctor to do it, I think.

I’d like to change my treatment since I don’t feel the revlimid is really helping the KLC , but I’ll see what he says today. I’ll do an update later.

on other fronts, I called to make arrangements for payments on the $2000 co pay, so that’s set up, but more bad news is the doctor who did the bmb will still bill me. So more bills will show up. What a bummer and really how do we handle this.

I’m definetly depressed by it all but what can you do. I guess next time, I’ll suffer thru the office one.

On a happier note, the kitchen is all painted, we moved the pantry shelves, and now I started the primer in the other front area. I can only do so much, so I’m hoping my husband can finish the primer this weekend and then I can start the ‘simply white’ in there. It looks good even the little I did. I think  I’m going to check ikea for stools with backs. I use a wooden one with no back. It’s fine for a while then gets hard to sit at.;

I’m pretty sure I can find something inexpensive at IKEA. It’s so great to paint and clean up areas. I don’t have a lot to declutter, just freshening up.

Well, I’ll update later.


it it all went pretty good! We’re going to switch to pomalyst. So I have to fill out the paper and sign.

Hopefully, not much different than revlimid. But hopefully drops those light chains. He still reiterated that we could keep going on rev, and go back to 20 mg dex, and just keep watching. But, I feel it’s time to get at this.

He said fine with Dr. Wolf referral and I said I wait till next month.