Another PG &E blackout

We had another PG&E blackout start on Wednesday around 2 pm and this one lasted till Thursday @ 4pm. We ran the generators and kept the freezer and refrigerator on for about 4 hours morning and 4 hours evening.

Now they’re saying there will be another tomorrow into Sunday. This is ridiculous. Yes, we want to be fire safe, but once again there were hardly any winds. Now, this weekend I did see 25mph winds so that is quite windy and I would agree with the shutoff.

Well, we made it thru and even enjoyed a good game of Scrabble with my daughter by candle/lantern light.

Yesterday was my oncology appt and it went ok. Nothing really new. He just said the same that we’ll wait till my numbers are higher. Now it would be more akin to wait and watch. I agree for now but we’ll see what my labs are in December.  Well, it is hard to be anticipating the what-ifs. Oh well, cancer has taught me to be more patient and what will be will be.

We did a small Costco trip this week for coffee and a few other things. Not a big shop. I also did the Walmart pick up. That had so things for the blackouts( more flashlights) but they were out of stock on those.

Today is a gym day and homemade pesto pizza for dinner assuming we have power. Most people it seems have bought generators and you can hear them going all around town. Our grocery store even got a commercial one so they could stay open.  We need to fill up gas cans and cars before this weekend and hope for no fires. The one over in the Sonoma area was started by a transformer so that is super scary.

 

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Midweek musings

I had a good doctor visit. As I mentioned, my numbers are going up (kappa light chains) but as he said it is slowly going up and I’m a long way to where I started out 3 1/2 years ago at 1010 mg/L kappa light chains. So I’m ok and not panicking. It went up 6 points to 31.7 so an increase. Lambda is in the normal range and looking back at my numbers, Lambda was always in the normal range. The ratio also increased to 2.66 from 2.33 so increase there too. When I went back to when I started Velcade my ratio at it’s highest was 68.25 mg/L so that says something about where I started.

All in all, I’m ok with it for now. It’s always weird to think cancer cells are in your body but one must be positive and philosophical at the same time.

We’re in for cooler temperatures which will be most welcome.

My daughter is drying some cherry tomatoes since we have so many and I really don’t want them to waste. Sundried tomatoes in the winter are nice additions to pasta.

Our last appt is Friday till next week. Driving to Sacramento has been awful with the traffic. Driving home has been a lot easier. I’m guessing with school starting and work there are more people on the freeway.

After next week, we are on a 2-week clinic schedule and that will be very nice.

 

Simple Sunday

Wowza, it is hot!

We’re hitting the 101 mark today and I have the coolers on already at 75.

I just finished the LR zone and am deciding whether to go to the gym. I don’t want to aggravate my rib pain. Plus, I’m trying to decide whether this merits an x-ray.  If it’s a pulled muscle then it’ll slowly get better. If it’s a rib fracture, the question would be why? So, I think I’ll wait and see how it is tomorrow. I told my husband, that I’m pretty sure this happened last year but can’t find any notes relating to it.

I’m making a new recipe tonight ‘Roman Chicken’ that’s from Food Network. Mostly it’s just chicken, peppers, capers, onions and tomatoes. Not sure what makes it “Roman” but I’ll try it.

I finished a good mystery by Baldacci; ” The Fix”. It was a good spy mystery. Now I don’t have any books left so I may need to go down to the pet bookstore and see if there’s anything there.

It’s now later, and I decided NOT to go to the gym. Sunday is my favorite day there as all the regulars aren’t there. Plus there are no jump around classes although there is a yoga class.

B has two appts this week. Getting his orthopedic boot on Monday and Tuesday is clinic. His counts all went down a little but I guess that’s to be expected.

 

Friday stuff…

It’s been a nice week overall except for the heat. It’s supposed to be the hottest today and tomorrow. I do not do well in the heat. No motivation.

I also pulled a muscle in my ribcage although it could be an old rib fracture acting up. Either way, I limited my activity level. I don’t think it could be a new rib fracture(myeloma-related) as my numbers are still so low and just barely out of the normal range. But all things are possible.  Besides, what can you do? I’ll check with my doctor when I see him in August about some Xrays. Rib fractures are very common with Multiple Myeloma so I suppose it’s possible.

I’m going to go to the gym and just use the Treadmill and then we need to go to the feed store. I do need a few things from Target but I’m resisting going as I haven’t been in there since before I went to Sacto. But I do need new shower curtains:(

I made homemade falafels last night and they were yummy. here’s the link

I use Downshiftology’s recipes a lot and they are always delicious.  My daughter made the Tziki and it was grated cucumber instead of chunks and delicious. Plus there was tahini sauce which I love.

Tonight is pizza night but I think it’s too hot to turn the oven on so we will order something.

 

My labs…

Hurray, they are in the normal range and even went down ever so slightly.

Kappa light chains at 18.9 mg/L

Lambda at 13.6mg/L

ratio 1.39

the ratio is actually what is important. So I’m still doing great there.

One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food.  I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away.  Still, after this amount of time, I’ll just back off some.

I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed.  I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.

I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.

Today is a gym day for me.

B has his pulmonary test scheduled and my daughter will take him to Roseville.

Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.

The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.

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Five on Friday or a few more…

It’s been a whirlwind week ending today with us being out ALL day at the Roseville Hospital for the port placement. Poor B, no water or food till after the procedure so that’ll be @ 3 pm. Plus, I get to drive in crazy Friday traffic down there which will NOT be fun.

Oh well, it’ll be over soon and then onwards…..Actually having the port will be wonderful as he won’t need peripheral IV’s.

Rain today but clearing for a few days. It’s wet and damp and chilly outside.

First, off this morning, I’ll take B to infusion for platelets. His platelets need to be over 50 so they can do the surgery. So actually we won’t know that till later.  Then I’m going to come home feed the dogs and give them some time out and then head back into town.

I have Christmas dinner all planned I just need some manicotti noodles for the manicotti.  Plus a baguette for garlic bread.

We’re still trying to figure out if B will continue on PTO or what.  He’s officially off till new years but after that is the decision to work some from home and do some local stuff or keep putting in for the PTO.  Honestly, it’s a tough choice.  Work would help give him some focus but then there’s also a lot of stress with labs, infusions and then the next chemo session will be January 10.  So, I guess the best thing is to keep filtering the information and then make a decision by January 1st.

Dinner is a complete unknown as we’ll be home later. We had a pizza lunch the other day so I wouldn’t buy a pizza. Maybe spaghetti???? I’ll think about it later.

Our son is down in Yosemite till tomorrow but with the government shut down possible they will close the park. So I’ll need to text him as to whether they should leave today.

 

Oh, great news for my labs…

kappa light chains 15.5

lambda light chains 12.3

ratio  1.26

 

so Hurray, one less thing to worry about right now.

 

 

 

 

 

Are we confused yet???

What a strange couple of days it has been. I have taken most of it in stride but that doesn’t mean I’m not pissed off about it.

So first, on Tuesday I head down for my appointment with the Legal Help at the Santucci Justice system. I’m optimistic I’ll get the answers I need. So I get in and start explaining to the legal aid about my birth certificate etc.  So I have booked marked where my questions are on the pages and …so this is where my birth name goes….yes….well and this is what it’s changing to…yes…. oh wait, I better go check on that. .. . !0 minutes later she returns and says the person upstairs’ says “you cannot change a name on a birth certificate except for adoption or paternity”…….Whoa, I say that is not correct. ….. Back up she goes with my paper work.Down she comes in 10 minutes no wiser.  The lady behind me starts chiming in that yes, I can change my name but what are the legal implications for SS, drivers license etc. So I am at that point totally confused. They are both confused. So the one says, ” you better go see a lawyer” JFC*** Really?  So I leave muttering under my breath.

 

So now, I’m just thinking about it. I can see changing the birth name. But how does that affect my other things? It shouldn’t. But I’d still like to talk to an attorney just to be sure. So I’m going to wait till next week and then see if I can get a consultation with one in Auburn. This is really turning into a 3 ring circus.

I went down to Sacramento for my oncology appointment. All looked good and I asked if I could do labs in 6 weeks and then in 6 more weeks and see him right after Christmas. I really didn’t need to go today but I felt obligated to keep the appointment. Plus I was dring the old van so that makes me a little nervous in all that traffic.

So then I’m talking to him about the patient portal. He says it looks like you haven’t signed up. So I say that I have. Hmmm, something is not right. So I get home sign in and it’s the same one I did sign up for but my records aren’t there except for 2015. Which is what I saw last week.  So I decide to call the help number and finally after waiting 15 minutes, the rep says. Oh, that’s for hospital records( so in 2015 is when I had my sedated bone marrow biopsy). The other patient portal is for the doctor’s office. God damn, how come they didn’t know that at the office there.  So now I need to call them and make sure it’s clear that there is a difference and I still want my labs.  I still feel something is off about it but till I know more there’s nothing to do.

So overall, it’s kinda been a stressful week.  Or at least weird.

We had incredible thunder and lightning and heavy rain last night. It was quite a show. The ground is saturated. But at least we won’t have to do anymore watering. Our bill went down to $99. But that’s still more than I’d like it to be in September.