Simple Sunday

Whew, jury duty was brutal. We ended up a hung jury as one juror was deadlocked. I at first was on the not guilty side and then after reviewing all the evidence went with a guilty verdict. But it didn’t change the outcome as a mistrial was declared. Not sure how the lawyers proceed but that’s not my worry. I was completely wiped out by the end.

It’s raining here quite hard so no walk today. The Frogg Toggs I got for Christmas needs to be returned as they don’t fit quite right. So no walking today unless it lets up( just checked weather and no letting up).

I’m planning on going to the gym today as tomorrow is my prep day for the dreaded colonoscopy.  I’m sure I’ll get thru as I’ve clearly been thru worst.

I need to get my labs done this week too and think I’ll plan on Thursday.  I see my doctor in February(middle) so there’s time but I like to know my results before. If it continues as it has been my rise should be around 11 points taking me to @ 65mg/L Kappa light chains. The ratio will probably go up to. I actually feel ok but Myeloma is tricky that way and that’s why some people don’t get diagnosed till a fracture like I did. Well, no sense worrying about that now.

Yesterday I made lovely baked potato soup. It came out great. I used the Vitamix to blend and it came out very smooth. Tonight I’m making breakfast for dinner to keep it light. Just scrambled eggs, maybe pancakes and/ or toast. I might do some of Adelle’s chicken sausage as I need to use that up.

 

Simple Sunday

It’s been a nice week although weird again with the holiday in the middle of the week. I kept thinking Thursday was Monday. Oh well, it seems that we’re back on course and today is Sunday.

We did a shop a Costco on Friday and didn’t overdo it. I bought extra coffee and TP so we won’t need to ‘run’ down there for those things. We are eyeing a new TV though. Ours is about 8 years old and still works but the sound quality isn’t the best. There are some sales for the super bowl so if I think we can swing it, I will.

B’s last SDI was this last week too. He did get a notice to have his doctor fill out a form about not returning to work, so I’m not sure if they would extend his benefits to use up the little he has left or if it’s just paperwork. What I read is the maximum award is 12months, so we’ll see. We’ll try and do that next week although he sees his doctor on Tuesday and I’m sure it won’t be in the mail by then.

This month will be the big test of how we do without the SDI. I know it’s going to be an adjustment. But at least we have no big bills in January just the car tags for the old van. Still, that’s $150. I have been saving quite a bit of the SDI so that I know I won’t be adding to the savings.

Also, we had to call on his Cobra as, just as expected, the Noxafil prescription came in at$1200.  This amount was the Medicare Part D prescrpiton plan that I’m not planning on using that’s why we’re paying the Cobra amount. I am not paying that much money when last month it was 0.00 co-pay.  So he called and the Cobra payment letter was just going out. So we did it online and then now we have to wait for it to get activated by the prescription plan. After that, we still don’t know what the co-pay will be since we haven’t reached any yearly deductible.  It’s all unsettled right now but next week we should know and hopefully, it’ll be resolved.

Plus we know that within a few months Noxafil will be reduced or eliminated so then we will cancel the Cobra and just use the Medicare Part D as all his other drugs are Tier 2. I think it’s only Noxafil that is Tier 5. What a Fucking scam is all I have to say.

Today is a gym day and we will go for our walk shortly.

Flylady zone is the kitchen and I’ll start that today but finish tomorrow.

I made a new recipe last night from another blogger( Teresa Kasner)

She lives along the Columbia River in an old beautiful farmhouse. Her pictures are outstanding. So the recipe was for Chicken with potatoes and spinach in a creamy parmesan sauce. It was good.

This week is Clinic for Barclay and our overnight trip. Plus whatever stress with the prescription stuff comes up.:(

I started a list of projects for the year and we’ll see how far we get.

  1. to drop the wood stove to floor level so that the footprint is lower and less of an eyesore. We built the platform specifically so we wouldn’t be bending to put wood in but it does take up a lot of floor space. This won’t cost a lot except added stove pipe( which is pricey) but we won’t need a lot. And some stone for the floor. Our woodstove is quite efficient and we will keep it for a few more years. Eventually, we will put in a gas/propane stove. But that’s maybe 5 years out still.
  2. We will be replacing windows in my daughter’s room. This will be maybe @ $1000 as it will be 2 windows replacing one large one. The Anderson windows we bought last summer are great and very energy efficient. So that ended up @ $800( I think).
  3. I’d like to also replace the bathroom window. Same size but just more energy efficient. All the windows in the house we’re replaced when we remodeled but they are now 25 years old so an upgrade will be nice.
  4. I don’t think we will get to any bathroom remodel this year.
  5. I think we are going to try and redo some of the kitchen. The biggest thing is the counters and sink( pipes underneath) really need to be redone. Getting a new pantry system from Ikea will be first on the list as that will be freestanding.

There’s always garden work and yard work. That’s kinda ongoing.

Barclay’s official retirement date is January 30. That’s 25 years. It’s hard to let go of, I think, because of the way it all happened with him getting sick. But how incredibly lucky we are for modern science that has given him a new chance without cancer. Even I can’t say that, although I have been extraordinarily lucky that my Myeloma has responded to treatment. Well, it is what it is.

AE52C58B-6FCA-47BF-BA64-620BDBE3330C.jpeg

61FBB322-7A10-4DAC-98FD-9E0EC2D84FEF.jpeg

8B49F1D0-3CCA-4332-BD04-A78B50242DC9

This was our dinner the other night. A small piece of filet mignon and a Beyond Meat sausage( which are delicious BTW).

 

 

Another PG &E blackout

We had another PG&E blackout start on Wednesday around 2 pm and this one lasted till Thursday @ 4pm. We ran the generators and kept the freezer and refrigerator on for about 4 hours morning and 4 hours evening.

Now they’re saying there will be another tomorrow into Sunday. This is ridiculous. Yes, we want to be fire safe, but once again there were hardly any winds. Now, this weekend I did see 25mph winds so that is quite windy and I would agree with the shutoff.

Well, we made it thru and even enjoyed a good game of Scrabble with my daughter by candle/lantern light.

Yesterday was my oncology appt and it went ok. Nothing really new. He just said the same that we’ll wait till my numbers are higher. Now it would be more akin to wait and watch. I agree for now but we’ll see what my labs are in December.  Well, it is hard to be anticipating the what-ifs. Oh well, cancer has taught me to be more patient and what will be will be.

We did a small Costco trip this week for coffee and a few other things. Not a big shop. I also did the Walmart pick up. That had so things for the blackouts( more flashlights) but they were out of stock on those.

Today is a gym day and homemade pesto pizza for dinner assuming we have power. Most people it seems have bought generators and you can hear them going all around town. Our grocery store even got a commercial one so they could stay open.  We need to fill up gas cans and cars before this weekend and hope for no fires. The one over in the Sonoma area was started by a transformer so that is super scary.

 

Continue reading

Midweek musings

I had a good doctor visit. As I mentioned, my numbers are going up (kappa light chains) but as he said it is slowly going up and I’m a long way to where I started out 3 1/2 years ago at 1010 mg/L kappa light chains. So I’m ok and not panicking. It went up 6 points to 31.7 so an increase. Lambda is in the normal range and looking back at my numbers, Lambda was always in the normal range. The ratio also increased to 2.66 from 2.33 so increase there too. When I went back to when I started Velcade my ratio at it’s highest was 68.25 mg/L so that says something about where I started.

All in all, I’m ok with it for now. It’s always weird to think cancer cells are in your body but one must be positive and philosophical at the same time.

We’re in for cooler temperatures which will be most welcome.

My daughter is drying some cherry tomatoes since we have so many and I really don’t want them to waste. Sundried tomatoes in the winter are nice additions to pasta.

Our last appt is Friday till next week. Driving to Sacramento has been awful with the traffic. Driving home has been a lot easier. I’m guessing with school starting and work there are more people on the freeway.

After next week, we are on a 2-week clinic schedule and that will be very nice.

 

Simple Sunday

Wowza, it is hot!

We’re hitting the 101 mark today and I have the coolers on already at 75.

I just finished the LR zone and am deciding whether to go to the gym. I don’t want to aggravate my rib pain. Plus, I’m trying to decide whether this merits an x-ray.  If it’s a pulled muscle then it’ll slowly get better. If it’s a rib fracture, the question would be why? So, I think I’ll wait and see how it is tomorrow. I told my husband, that I’m pretty sure this happened last year but can’t find any notes relating to it.

I’m making a new recipe tonight ‘Roman Chicken’ that’s from Food Network. Mostly it’s just chicken, peppers, capers, onions and tomatoes. Not sure what makes it “Roman” but I’ll try it.

I finished a good mystery by Baldacci; ” The Fix”. It was a good spy mystery. Now I don’t have any books left so I may need to go down to the pet bookstore and see if there’s anything there.

It’s now later, and I decided NOT to go to the gym. Sunday is my favorite day there as all the regulars aren’t there. Plus there are no jump around classes although there is a yoga class.

B has two appts this week. Getting his orthopedic boot on Monday and Tuesday is clinic. His counts all went down a little but I guess that’s to be expected.

 

Friday stuff…

It’s been a nice week overall except for the heat. It’s supposed to be the hottest today and tomorrow. I do not do well in the heat. No motivation.

I also pulled a muscle in my ribcage although it could be an old rib fracture acting up. Either way, I limited my activity level. I don’t think it could be a new rib fracture(myeloma-related) as my numbers are still so low and just barely out of the normal range. But all things are possible.  Besides, what can you do? I’ll check with my doctor when I see him in August about some Xrays. Rib fractures are very common with Multiple Myeloma so I suppose it’s possible.

I’m going to go to the gym and just use the Treadmill and then we need to go to the feed store. I do need a few things from Target but I’m resisting going as I haven’t been in there since before I went to Sacto. But I do need new shower curtains:(

I made homemade falafels last night and they were yummy. here’s the link

I use Downshiftology’s recipes a lot and they are always delicious.  My daughter made the Tziki and it was grated cucumber instead of chunks and delicious. Plus there was tahini sauce which I love.

Tonight is pizza night but I think it’s too hot to turn the oven on so we will order something.

 

My labs…

Hurray, they are in the normal range and even went down ever so slightly.

Kappa light chains at 18.9 mg/L

Lambda at 13.6mg/L

ratio 1.39

the ratio is actually what is important. So I’m still doing great there.

One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food.  I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away.  Still, after this amount of time, I’ll just back off some.

I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed.  I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.

I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.

Today is a gym day for me.

B has his pulmonary test scheduled and my daughter will take him to Roseville.

Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.

The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.

annefrank1-2x.jpg