Category Archives: Myeloma

Midweek Musings

Posted in Blood test, budgets, California, cooking, Myeloma, Uncategorized by

I plan on going to the pool this morning. I actually woke up and felt like going, which, based on how I felt this last week, says something. So, I’ll head down around 7:30 and be in the water by 8:15 after parking and going in.

After that, I plan on going to Costco. At least that’s the plan. I do have to go to Sacramento tomorrow, so I could go after my doctor appt. I don’t need a lot of things, but I wanted to get some turkey burgers and a few other proteins. We’ll see, that’s optional right now.

My kappa light chains came back with the biggest increase yet of over 9 points. Which puts me in the low 30’s. Exactly at 34.4, which is my highest yet. I’m bummed about it, but whatcha gonna do? He doesn’t seem to concerned when he sent me them over the portal and said ‘stable’. Well, sure it’s stable but a big increase. There’s not much I can do til we see next month. So far, the trend has been increase, slight decrease, increase, etc. So until it is continually going up and shows a pattern, it’s just hang in there. Sigh, I hate this shit.

Anyway, last night I cooked up some salmon and made a feta cucumber salad. It was good. I miss my after-dinner popcorn or snacks, but I am trying to hold strong. I’m having some nuts(protein), and that seems to help.

A few of my orchids. I still don’t have any new spikes on the other plants, so I may have to YouTube it and see what I can do.

I’ve made up my July budget. Looks ok for the most part. I’ll keep whittling away at the cc and hopefully make some progress there. Since I have no other income, I guess it’ll still be a few more months till it’s done. That’s ok, overall, as long as I feel like I’m making some progress. July, August, and September don’t have any annual bills( at least that I know of), so that will help. I think the annual bills will start again in October, with auto insurance, house insurance, and property tax(Dec).

After I’m home, I need to do some dusting and putting things where they belong!!

Simple Sunday

Posted in Blood test, budgeting, budgets, California, cooking, Credit cards, Myeloma, Uncategorized, Walking by

Yesterday was a nice day, starting with a walk around 6:15 a.m. Then my son came up with his partner, and they brought Noah’s bagels, so we had a nice brunch. Then he got to work using the chipper to get rid of the tons of bags of pinecones B was collecting!!! He also moved all the redwood boards to the carport.

I can tell this is a drop-in-energy day due to the dex wearing off, so I’ll keep the day easy. We’re going down to Ikea for the morning, as my daughter wants to get a Billy shelf. IKEA is always fun. I also need to stop at the store, but I may do Trader Joe’s, as it is right off the freeway. I would do that on our way home. I need milk and cream and a few salad packs. Maybe I’ll check out a ready-to-cook meal like salmon.

Last night we had blueberry pancakes and eggs for dinner. Tonight, I’m not sure. I feel like some beans so I might start them in the crockpot before we head out.

I have labs tomorrow, but they are at 8:30, so that’s too late to go to the pool or the gym, so I’ll just come home and do regular Monday things. Hopefully, the Dex is doing its job, and I won’t have an increase (at least not much) in my kappa light chains. After labs, I’ll drop our ballots off at the Records office, which is just up the street from the lab.

I did my budget for June, and it is very tight. I’ll make it, but won’t be able to pay as much on my CC. Oh well, it’ll get done. I don’t have any more big bigs for a while, so that will give me a chance to catch up. I already paid the AAA membership, but Costco’s comes out in June. I’ll check if it’s on auto pay because I can’t remember if I did that. Other than that, I think the next few months there are no annual bills.

Mr Peabody is back!!

Stuff

Posted in California, decluttering, home stuff, minimalism, Myeloma by

First, I want to thank a blog reader who made a donation on Buy me a coffee. It’s always such a pleasant surprise to have that happen. So thank you for that. Writing my blog since 2012, so 14 years have been good for me. It keeps me focused, and I can look back at when things did happen. When I started, my main focus was offering information that I found useful concerning Multiple Myeloma. Since I still have Myeloma and am in active treatment, that is still a focus, but not the only one.

Minimalism has played a huge part of my journey and now that “I’m older than that now, ” I can see how much it supports me. I still use Flylady as my weekly focus but really, each zone only takes a small amount of time. Even the kitchen, which is my biggest time factor, I can get through in 30 minutes. I’m still decluttering, and I know I’m close to that sweet spot of having only what is beautiful or useful in the house.

Here’s a good example: I have had the same linen sheets for about 4 years. They are on my bed 7 days a week. When I wash them once a week, they go right back on because I only have the one set. But I also have a linen comforter cover I bought for Rubi, the trailer. But it’s been stuffed in a drawer since I cleaned out the trailer. I kept thinking oh, I can use this for something but really it’s bulky, and I’m not the kind of person to wrestle putting on a cover on a queen-size quilt. So it’s now it’s way to the Goodwill. I don’t want stuff just in case!!

I also write about living a simple life and my love of cooking and reading. Those are so much a part of me. With the biggest part of me, my husband, now gone, I’m still working on living a simple life, but alone. So much of my life, really my whole life since I was married at 18 and left home, has been with him. Now at 73, here I am. I’m slower, and my body is stiffer, that’s for sure, but I still do those things I love. I imagine a time will come when I won’t drive to Roseville to swim, or go to the big gym, or even go much down the hill unless someone is taking me. But that is not this day, and I am very grateful for that.

This week is the bedroom zone, and once again, it’s my nemesis, the closet, that I will straighten out. Otherwise, this zone really takes care of itself since there’s not a lot in there. I think I’ll pull out the steam mop and do the floors. I need to put up the blackout curtains as the sun is now coming directly into that room in the afternoon. It does make a difference.

Well, I’ve rambled on enough. I’m still stressed about my upcoming sleep doctor appointment, but I guess, like everything, I’ll take one day at a time.

Simple Sunday and almost the end of March!

Posted in budgeting, budgets, California, cancer, cooking, decluttering, home stuff, Myeloma, swimming by

The park was nice this morning. I was the only one. I’ve been getting there at 6:30, so it’s not dark at all, but light enough to walk without a flashlight. Sunrise is 6:51 am, so very light.

Yesterday was a busy day. My daughter took down the shelf in the closet( our only closet) and repositioned it, and raised up my clothes bar.

It’s much more accessible now, and there’s plenty of room under my clothes for some banker’s boxes. The other side still needs some reorganizing. I keep my canning jars there, Christmas stuff, and 4 baskets that hold my clothes( undies, socks, workout pants. I’d like to get all the Ball jars together and put them on my Ikea shelves, which serve as my pantry, but I’d have to rearrange to make that happen.

I’ll spend some time today organizing that. I’m planning on giving away another case of quart ball jars. I might get out the paint( Benjamin Moore Simple White) and touch up the walls.

I also took down one of the velvet curtains and put up the summery ones. I had to iron them first and only got one pair done, so today I’ll iron the other one.

I made up a cabbage salad from Ella Mills new cookbook. We didn’t have it last night, but we will tonight. She’s a vegan but her recipes are quite good and I got some good ideas from it.

I’ll take some after photos if I remember.

I plan on going to the Auburn gym this morning and then dropping off a load at Goodwill. These days, I don’t have huge amounts, as most of my decluttering is done. But there’s always something.

This coming week is my Velcade and, of course, back on Dex. I guess we’ll see if it drops my kappa number, and then we’ll know that dex is important in my treatment plan. I’ll just have to relax with the dex and not go anywhere. 🙁

I think I’ll try to at least get a swim in. After Velcade, I could go to the gym to do weights, but I’ll wait and see how I feel. Other than that, it’s a normal week.

20 years ago

Posted in Bone marrow transplant, bread, California, cancer, Multiple myeloma, Myeloma, swimming, Uncategorized by

March 1, 2006, I received my stem cells back. It’s a very anticlimactic moment that goes very quickly. One IV bag. But what it takes to get there is very involved and stressful. A few days prior, I was given Melphalan, which kills everything, and that’s what really takes your body down. Then it usually takes around 10 days for the ‘new cells’ to start to take hold.

I didn’t really eat, but the diarrhea was very real. I remember it was a very rainy and stormy March because I would look out the window, and the rain was going sideways. Barclay was there every day, bringing me clean clothes, at least bottoms. I spent 17 days there in the BM transplant unit at Sutter in downtown Sacramento.

He took care of all the hospital stuff and home stuff. What a guy!! So history, and through that and then Revlimid, Pomalyst, and finally Velcade. And here we are.

This week is my Velcade shot, but I won’t be taking the Dex. It’ll be interesting to see my labs. Will they go up a lot? Well, we won’t know till we do.

I’m so upset at the useless war tRump is doing. He’s like a madman for war or killing, or both, really. When does it stop? Where is the country headed? It scares me, that’s for sure.

I plan on going to the gym this morning. I haven’t been for the last 2 Sundays, so I want to do that, and the VW needs gas. If I’m super ambitious, I’ll go to the car wash too.

Then home stuff is bake the sourdough loaf, tidy things up, and do the LR zone. Next Sunday is Spring Forward with daylight savings. I just wish they would change the law and it would just be one time.

I know I’m not going to the pool tomorrow or Tuesday, as there was a notice up of Roseville Parks and Rec having meetings in the building, and parking was going to be limited. So probably on Wednesday, I’ll go down.

Other than that, same old, same old.

Thankful Thursday

Posted in Blood test, budgets, California, cooking, Myeloma, swimming, Uncategorized by

I seem to have a few really good nights sleeping and then a not-so-good one. There doesn’t seem to be much rhyme or reason, but I am thankful for the nights I do sleep well with minimal disturbances. Using the CPAP has been an interesting experience, and overall, I’m quite pleased with the results. There is no snoring with the machine at all. So that was solved. (That’s a sign of sleep apnea.) I’ve had almost no ‘disturbances’, which is how they calculate sleep apnea, and my blood oxygen has improved, although only slightly. I would still like to try Zepbound, but I’m not sure I could afford it. I know that my prescription plan doesn’t cover it, so it would have to be direct from the drug company. Well, I’m not there with that yet, maybe next year.

I am so thankful we live above the fog. It has been socked in in the valley and even through Auburn. As soon as you hit my exit, it clears to brilliant blue skies. And the temperature is at least 10 degrees warmer here. Unfortunately, I have to go to Sacramento today for my doctor visit, but hopefully that will go quickly. My labs just came in, and my kappa went to 23.9, so up a little, but the ratio came down to 1.85, so there’s some good with that. Overall, I’m pleased it didn’t jump higher.

I was able to get a swim in yesterday, and thankful I had a lane all to myself( a rarity). i do wish I were getting there more, but it seems there’s always something that happens, and I don’t want to drive that extra day. Like tomorrow, I know I’m going to want to stay home as I will have been out 2 days in a row. (sigh)

I am NOT thankful the cat threw up all over my Apple keyboard. 🙁 bad cat!!!

I’m thankful for all the wonderful Christmas B, and I had both alone and then with kids. I remember our first Christmas together. So, I was a freshman at the University of Arizona, and he was a sophomore. I think we did a few gifts that were of the hippie variety, and then our Christmas Eve dinner was brown rice with nuts and raisins in teak bowls. My mother actually sent us those bowls. Then Christmas day, I used our neighbor’s oven to bake a lasagna. Our little apartment didn’t have an oven. That’s how the tradition of the lasagna started. Good memories.

Simple Sunday

Posted in California, cancer, meal planning, Myeloma, velcade, Walking by

I woke up at my regular time, and the clocks were back an hour. Based on the light, I went out to walk at 5:50, which yesterday was 6:50. I liked it as no one else showed up. It’ll be this afternoon that I won’t like it at 4, when yesterday that was 5. But every year we go through this and adjust.

My son visited yesterday and took a big load of wood to the dump. He thinks maybe 2 more loads and it’ll be gone. A good accomplishment. I went to the store and picked up sandwiches for us all and that was nice.

Today, I’m not going into the Auburn gym because my daughter and I are going down to my son’s place to visit and go to the farmers’ market. He has a lovely park that is right near the American River, and it’s quite nice, so we’ll go over there too.

This week I have Velcade and then my new lowered Dex. I didn’t notice a big difference, but maybe the Dex wore off sooner. Dex affects my breathing, and I did notice that the night I took Dex. It’s just a matter of getting through it. 🙁

I need to go to Costco too this week. I wanted to get some of their sale items. The chicken pot pies are on sale, which are good for an easy dinner. The Starbucks holiday coffee is on sale, too. Buying stuff when they have their sales is definitely a big savings.

Because of Velcade this week, I’ll probably only get to the pool and gym once. Also, I need to make an appointment for the Santa Fe as the service light switch isn’t working( it’s a computer chip, apparently.) I got it to scroll once, but then it stopped working again. So I need to do that this week. At least I don’t have any other appts.

We’re in for another beautiful day here in N Ca. The wet weather is expected to arrive by Wednesday. Also, I hope Prop 50 passes so we can redistrict some of these worthless Republicans.

I need to write up a menu plan for the week and what house chores I need to focus on.

Friday Things

Posted in budgets, California, cancer, cooking, frugalism, Halloween, Multiple myeloma, Myeloma by

Happy Halloween!!! Barclay loved to dress up for Halloween. We always took the kids to Auburn to trick or treat. It was fun! Those were the days, my friend, we thought they’d never end:(

I know I’m repeating myself, but this weather has been so nice this week. Sunny and temperatures in the mid 70s. Just lovely. I think the weekend is the same, and then next week starts to show rain again.

I watched Practical Magic the other night, and that is a fun movie to watch for Halloween. I’ve watched a couple of series on Prime. Margot is one and a few others. Nothing great, but it helps pass the evening hours.

I didn’t resubscribe to my Prime membership because my daughter offered to share her account. She pays way less being an educator. So that’s one less bill for me to deal with. Also, donating the Subaru has reduced my Allstate insurance, so that’s another savings.

I’m deciding in the next hour whether I’ll go down to the pool. I’d like to go, but there are some outside things I want to do while this weather is so nice. Plus, if I go to the pool, that’s kind of my energy output for the day, and then I don’t get a lot of other stuff done. Well, I still have an hour to decide.

I did pressure can pinto beans this week.

I ended up with 5 pints. It does take up the whole morning since pressure canning is time-consuming. I might do another round next week. We use the pintos the most.

I considered myself brave and went to Speedy to get the Santa Fe’s oil changed. Barclay always did this stuff, so it was kind of a big deal for me. Plus, I really dislike doing stuff like that, but, well, now I have to. Oil changes are so expensive now, like everything, I guess.

I need to go to Costco too, so I think I’ll plan that for next week. Next week is my Velcade injection, so I could do it after that. Also, this chemo will definitely give us a better picture of how much my numbers are going up. I looked back at what happened last time in MyQuest chart, and at this point my numbers started going from where they are now at 25, then to 30 something, and then they starting doubling. So this one will give us a better view of the trend.I don’t see Dr.L till December so we can figure it out for January. That is the exact time of when I changed treatments twice. It was in 2021 and then 2023. sigh:(

Frugal Friday and misc. stuff

Posted in Blood test, budgeting, budgets, California, cancer, decluttering, frugalism, Multiple myeloma, Myeloma, Uncategorized by

We ended up having a lot of rain!! But now it’s blue skies and the temperature is lovely. We should be having day temperatures in the 70s. We have some outside things to do, so that’s perfect. I need to paint the new gutter that S put up and tidy the patio up for winter.

I have a small pile to go to the thrift store and will probably do that on Sunday after the gym. I’m still going through different areas to find more things to add to the pile.

My son and his partner came over on Wednesday afternoon, along with the partner’s parents. They are lovely people, and I wish B could have met them. But they were here for the dad to check out my son’s Subaru. The dad is very mechanically minded. My son is giving( with my permission, as it is my name) the Subaru to him for free. They checked it out and will take it hopefully soon. As soon as that’s done I can take it off the insurance and that is going to save me over $700. I’ll call allstate as soon as it’s signed over.

My daughter and I went to Costco yesterday to finish shopping for the stuff I didn’t get last time. Most of it was non-perishables like the smoke alarms( wow, they were expensive even on sale), TP, and laundry soap. water, and a few other things. From there, we went to my favorite pizza place for a slice of New York pizza. It was fun. I also got the car washed since Quick Quack was just across the street. Costco ended up a little over $300 but I need to break down non food and also long term items and see what the total was.

My food budget for the month came in at about $350, so I’m really getting the hang of not buying so much. The Costco trip I’ll be putting on next month’s budget, which starts next week.

In not-so-happy news, my labs came back with a 4-point increase, so myeloma is definitely on the move. I checked in with Dr. L, and we decided to go one more month and see what the next increase is. I’m disappointed, but it was to be expected at some point. I just wish I could have had at least some period of time with things ‘normal’ after B died. Well, at least I’m asymptomatic which is good. Also the ratio of kappa / lambda was the same so that’s good. The plan will be to try to do biweekly,depending on how next month goes, and if that doesn’t work switch to darzalex fast pro. I’ve made it 20 years with Myeloma and know I’m one of the lucky ones. Still reality sucks that I have to deal with this. 🙁

Mujō (無常)

Posted in bread, budgeting, California, camping, cancer, Death, husband, Myeloma, simplicity, Uncategorized by

The transient and ever-changing nature of things. As with Wabi Sabi, impermanence of things and the beauty in the imperfect.

Mono no aware, Mono no aware (物の哀れ): 
This term translates to “the pathos of things” and is an aesthetic appreciation for the transient nature of life. It involves a gentle sadness or wistfulness at the passing of things and a deep sensitivity to their ephemeral nature. That’s exactly how I feel in my life. It feels somewhat ‘unreal’ Barclay is not here with me to laugh with, joke with, travel with and everything in between. But I do take comfort in he’s not suffering anymore. It was a very difficult painful last 3 months of his life. Well, now to fall.

Fall is in full swing, here in N. Ca, I get the feeling of Mono no aware and Mujo, and wabi Sabi all rolled up together. We’ve had rain and cloudy days, as well as Tahoe-like days with big, fluffy clouds. I’ve had a few twinkly fires already, since the house stays cool even if it’s nice outside.

Just to back track a little here:

Barclay and I practised Zen Buddhism for many years after our Quaker roots seemed to fade away. However, Quakerism and Buddhism are very similar in fact. Both embrace simplicity and a WAY of life. Of course, Quakerism is rooted in a Christian context, and Buddhism in Eastern philosophy as taught by Buddha.

Right now, the impermanence of life is very real for me and maybe somewhat depressing. I am trying to embrace the Mujo concept because it does help me get through the day and realize that life does go on, and it will for me what whatever time I have left. Some of that is on my mind because of my rising kappa light chains and thinking about having to change treatments by January if they continue to go up.

I know that things will change, and I need to change too. But for now, I’ll try and take comfort in Mujo and mono no aware.

On a brighter note, my kids put together a very nice birthday for me. My son came and took a huge load to the dump( which I wanted done). We got a Round Table pizza, and my daughter had gone to Safeway for some small squares of cake to share. I didn’t have any champagne that day to celebrate, but I will soon.Turning 73 is not much different than 72 for me. The real change for me was at 70. Then I felt like I was getting old. Now, I’m old and just keep trying to do the things I love like swimming, walking, the gym and I hope some day in the near future doing some camping again. If i could afford the camper type van that’s what I’d do. We still ( my daughter and I) are going to check things out sometime in the spring. A small tent trailer is very doable, but I like the idea of self contained. Time will tell. Also, If I got one I’d get a loan so that the payment would be what we were paying for rubi. And we’d have the trailer as our trade in.

Well, I’ve rambled on a bit here, so that’s it for me. I do have the day home today after going to the gym yesterday, so I’ll do some tidying and make some sourdough bread.