My labs…

Hurray, they are in the normal range and even went down ever so slightly.

Kappa light chains at 18.9 mg/L

Lambda at 13.6mg/L

ratio 1.39

the ratio is actually what is important. So I’m still doing great there.

One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food.  I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away.  Still, after this amount of time, I’ll just back off some.

I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed.  I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.

I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.

Today is a gym day for me.

B has his pulmonary test scheduled and my daughter will take him to Roseville.

Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.

The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.

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Five on Friday or a few more…

It’s been a whirlwind week ending today with us being out ALL day at the Roseville Hospital for the port placement. Poor B, no water or food till after the procedure so that’ll be @ 3 pm. Plus, I get to drive in crazy Friday traffic down there which will NOT be fun.

Oh well, it’ll be over soon and then onwards…..Actually having the port will be wonderful as he won’t need peripheral IV’s.

Rain today but clearing for a few days. It’s wet and damp and chilly outside.

First, off this morning, I’ll take B to infusion for platelets. His platelets need to be over 50 so they can do the surgery. So actually we won’t know that till later.  Then I’m going to come home feed the dogs and give them some time out and then head back into town.

I have Christmas dinner all planned I just need some manicotti noodles for the manicotti.  Plus a baguette for garlic bread.

We’re still trying to figure out if B will continue on PTO or what.  He’s officially off till new years but after that is the decision to work some from home and do some local stuff or keep putting in for the PTO.  Honestly, it’s a tough choice.  Work would help give him some focus but then there’s also a lot of stress with labs, infusions and then the next chemo session will be January 10.  So, I guess the best thing is to keep filtering the information and then make a decision by January 1st.

Dinner is a complete unknown as we’ll be home later. We had a pizza lunch the other day so I wouldn’t buy a pizza. Maybe spaghetti???? I’ll think about it later.

Our son is down in Yosemite till tomorrow but with the government shut down possible they will close the park. So I’ll need to text him as to whether they should leave today.

 

Oh, great news for my labs…

kappa light chains 15.5

lambda light chains 12.3

ratio  1.26

 

so Hurray, one less thing to worry about right now.

 

 

 

 

 

Are we confused yet???

What a strange couple of days it has been. I have taken most of it in stride but that doesn’t mean I’m not pissed off about it.

So first, on Tuesday I head down for my appointment with the Legal Help at the Santucci Justice system. I’m optimistic I’ll get the answers I need. So I get in and start explaining to the legal aid about my birth certificate etc.  So I have booked marked where my questions are on the pages and …so this is where my birth name goes….yes….well and this is what it’s changing to…yes…. oh wait, I better go check on that. .. . !0 minutes later she returns and says the person upstairs’ says “you cannot change a name on a birth certificate except for adoption or paternity”…….Whoa, I say that is not correct. ….. Back up she goes with my paper work.Down she comes in 10 minutes no wiser.  The lady behind me starts chiming in that yes, I can change my name but what are the legal implications for SS, drivers license etc. So I am at that point totally confused. They are both confused. So the one says, ” you better go see a lawyer” JFC*** Really?  So I leave muttering under my breath.

 

So now, I’m just thinking about it. I can see changing the birth name. But how does that affect my other things? It shouldn’t. But I’d still like to talk to an attorney just to be sure. So I’m going to wait till next week and then see if I can get a consultation with one in Auburn. This is really turning into a 3 ring circus.

I went down to Sacramento for my oncology appointment. All looked good and I asked if I could do labs in 6 weeks and then in 6 more weeks and see him right after Christmas. I really didn’t need to go today but I felt obligated to keep the appointment. Plus I was dring the old van so that makes me a little nervous in all that traffic.

So then I’m talking to him about the patient portal. He says it looks like you haven’t signed up. So I say that I have. Hmmm, something is not right. So I get home sign in and it’s the same one I did sign up for but my records aren’t there except for 2015. Which is what I saw last week.  So I decide to call the help number and finally after waiting 15 minutes, the rep says. Oh, that’s for hospital records( so in 2015 is when I had my sedated bone marrow biopsy). The other patient portal is for the doctor’s office. God damn, how come they didn’t know that at the office there.  So now I need to call them and make sure it’s clear that there is a difference and I still want my labs.  I still feel something is off about it but till I know more there’s nothing to do.

So overall, it’s kinda been a stressful week.  Or at least weird.

We had incredible thunder and lightning and heavy rain last night. It was quite a show. The ground is saturated. But at least we won’t have to do anymore watering. Our bill went down to $99. But that’s still more than I’d like it to be in September.

 

Good news and other things.

I finally got my lab results. Kappa light chains went up a point to 14.3, Lambda went up a point to 12.3, the ratio (important) went down to 1.16. So I am still in a great remission and I couldn’t be happier.  Another month to add to remission. YAAAAAY!!!

I also had my mammogram and it was all good.  I skipped last year and probably will skip next year too.  They used the new 3 -d imaging and it really was remarkable technology.

I had my flu shot and did have a fever reaction( not unusual). Thankfully it was at night and didn’t last too long. I usually do have a slight fever, but this was chills and then a stronger fever.  Perhaps the strain was different and my immune system reacted. It wasn’t the dose for those over 65 as the pharmacy hadn’t received those yet.

So the continuing saga of my name change. I decided to go down to the Legal Clinic in Roseville for advice on how to fill in the forms. So I read it’s only open 9-12. So off I go. I get there( after getting completely lost), and go thru security and the deputy asks if I have an appt. So I say no, I thought it was all walk-in.  Oh well, after looking around at the masses waiting with appts, I just let came home and booked the appointment for this coming week. So another trip to Roseville.  Then to file it’s almost $500 and it has to be published in a paper for 4 consecutive weeks. So it’s going to be a while.

The fall weather is definitely here and we even have a chance of rain next week. It’s also way cooler today.  WE’ll need to have some small wood for the wood stove ready as I think we will need ‘a twinkly fire’ as I call them.

Our neighbor’s house is for sale at $399,999. It’s a 3 bedroom 2 bath. It’s on the smaller side of 1400 sq feet although that is a lot bigger than ours. It’s a nice piece of property but not a lot of usable land it’s mostly a hill. But I think it will sell quickly as we are right in town within walking of the PO, store, cafe, park etc. I just hope it’s not obnoxious neighbors.  The man who lived there( and is now dead), was a real asshole. He tried sueing all the neighbors( not us) because the road is actually on his property but of course we all have easements. But there were many yelling matches with this man and the Sheriff was called in numerous times. As he got older and he did lose the lawsuit, he backed off but was still a complete jerk. In the end, the EMT’s were at his house 2-3 times a week before he finally went into care.  Well, it’s a new chapter and I guess we will see.

 

I’m making a minestrone with the very last of our tomatoes and zucchini and whatever else I can get in there. Plus I’m going to roast a chicken in the oven. I made another loaf of bread the other day and this time used 1/3 whole wheat and it was really nice. Having the bread knife so sharp I can slice real sandwich slices. Very exciting is this life of mine!!!-

Tell-me-what-is-it-you-plan-to-do-with-your-one-wild-and-precious-lifeMake Bread!! Walk!!! Cook!! Read!!! Drink Wine!! (not in that order, but maybe!!!

Five on Friday on Saturday!

The day sorta got away from me yesterday. IMG_1471.jpg

I made 5 small jars of salsa and 2 bigger ones. These were all our own tomatoes so that was a big plus.

I doubt we’ll get enough tomatoes for all the sauce I need for winter but I will get some. Based on last years supply I probably need about 18 freezer bags of sauce. I may try and can some but freezing is easier.

Then I decided to make up the sourdough leaven for a Tartine bread. I have the one loaf rising in the bread basket form and I’ll cook that in an hour or so.

My oncology appointment went well. I told him about the stress fracture and he did say ‘repetitive’ movement. So maybe it was just walking every day. Who knows?  My foot is still bothering off and on. Kinda weird. He suggested a DEXA scan so I will do that sometime this fall.  I did have one around 14 years ago that was normal. That was about a year before I was diagnosed with myeloma.

Then we headed to Costco and spent a small fortune. B bought a small or I guess it’s called ‘dorm ‘ refrigerator to replace the tiny funky one he had. It was a good deal at $130. Now we could get milk and OJ at Costco as there would room to keep them out in the barn.

Today, I’m making 2 zucchini loaves of bread from a Smitten Kitchen recipe. She said to use 2 loaf pans but it looked like it wasn’t very full but we’ll see how they turn out.  I plan on freezing one sliced so we can pull out a slice when we want one in the fall-winter. If the recipe is a good one, I’ll make a few more, maybe to give as gifts.

Tonight I think I’m going to make burgers/veggie burgers for dinner.

It’s very very hazy here from the Carr fire. Hopefully, it’ll clear out and the fire will get put out.

 

 

Tahoe Blue

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I actually haven’t seen this movie ‘The Fight Club’ but I do love this quote.

Note: that’s just a random thing I put in there, because I saw it the other day.

Tahoe Blue VODKA!!!

So here’s a funny snippet. The other morning I come out of the bedroom and it’s maybe 6:45 am ( of course I’ve been up for at least an hour), but my son sees me with the bottle of Tahoe Blue. He says” it’s a little early isn’t it”???

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Well, the funny thing is I reuse pretty bottles like this one to put water in and then water my plants!!!! So I had just finished the plants in the bedroom.

I don’t even drink Vodka although with all the Trump stuff going on I may start soon.

Today is my lab day. I figure I’ll call next week or maybe Friday as it does take 3 days for the SPEP test. All I can do is just wait and see. I feel good but that can be deceiving with myeloma.

I’m also going to do some weights at the gym and then stop at the market as I need half and half and a few other things. I’m trying not to shop till Aug 1 although that is a week away and I know I’ll need some fruit at the very least.

We are in a heat wave and today is supposed to be 102. Yikes!!!

Dinner is unknown at this point.

 

Cancer 2005

It was June 15, 2005, that I got the ‘official’ diagnosis over the phone. We knew, really before that, but it had to be official. The bone biopsy was done by a neurologist surgeon since it was on the spine. It was a pretty horrid experience. I didn’t feel anything but was conscious and I could feel the pressure.  Well, anyway, 13 years ago and here I am doing pretty great( apart from the stress fracture in my foot) which is doing better in the boot thing.

Time gives one perspective on most things, and this is no different.  I’m older, wiser, more informed than I was then. As I’ve said before, I didn’t really want to know much except what do we do now. It was later that I started getting all the info I could. Still, even the Myeloma Beacon didn’t come into being till 2009 maybe???  I learned so much from other Myeloma people and their experiences. Sadly, many of them are no longer here with us.

Life moves on no matter what. Death, sickness, political craziness(hopefully)will all change and move on to something else. It’s as it should be. It doesn’t make it easier or the pain any less, just different.

So, I lift a glass of sparkly and toast to me!!