Saw the oncologist yesterday and all is well in myelomaville.
My Labs are almost identical to last time so that’s a relief. I’ll have labs in 6 weeks and then 6 weeks after that and then have an appointment with him.
Very exciting to still be doing well and in remission.
We went to Trader Joes after the appointment and stocked up on lots of goodies. I even bought a couple of frozen pizzas just so when on some Friday night pizza I don’t feel like making it. I also bought a cauliflower crust to try for a gluten-free one. I stocked up on a few spices I needed and olives ,tomato sauce, and nuts.
I do wish there was a TJ’s closer, but since we’re coming back from Sacramento, it’s right off the freeway so quite convenient.
I might go to the gym since yesterday I didn’t go but I may just stay home and putter around. I have some sweet potatoes cooking for lunches or dinners. Plus I made a small chopped veggie tray for snacking.
Tonight is pizza night.
I’m am so excited for my new lab results. They are great and went down. Ratio excellent.
A wonderful early Christmas present to me.
Another bird picture by my daughter. A woodpecker.
dinner is crockpot pintos.
Here was last nights dinner
Sauteed rainbow chard and rice.
Today was my regular oncology appointment in Sacramento. I drove down in B’s Santa Fe since it was supposed to rain and I didn’t want to risk the ‘ole pink van’. But I think she would have made it just fine. But still, it’s nice to drive a newer car!
All is good in Myelomaville. He doesn’t seem too concerned about the small increase. Still Normal and for now that’s all I can really focus on. But I did ask for another blood test in December and then not see him again till January. Unless something unusual occurs this will work and then I can obsess about it or not. (I’ll try not too even if there is another increase).
Right now it’s pouring out so at least I didn’t have to drive in that.
Dinner is a big question mark?????? It’s usually crockpot Thursday but I forgot to put anything in this morning so now I’m stuck with what’s for dinner. The most likely scenario is pasta with butter sauce. Maybe grilled cheese??? I guess I’ll figure it out in 3 hours time.
Yesterday, I made a lovely cauliflower cheese soup, maybe that used all my creativity for the week.
That’s the cauliflower cheese soup in my almost 30-year-old Le Creuset dutch oven. If you’re going to buy a dutch oven go for the best you can afford or save up until you can afford a Le Creuset. The inside is browned from making the bread and I’ve tried cleaning with Barkeepers but it just doesn’t budge. Any ideas?
This is my other Le Creuset which is also 30 years old and is still clean in the inside as I’ve only used this one for things like the above which is chicken and sweet potatoes a few onions and mushrooms.
I LOVE Le Creuset!!
First, I googled Ipad issues and got it back working. Whew… I really didn’t want that expense right now. If it happens to you, you press both the home button and the power button simultaneously and wait for the apple icon to appear. It actually worked and I’m using it again with no apparent issues.
The time in between.
It’s a weird place as a cancer patient to not be in treatment and yet still be a cancer patient. I am very grateful to have this time off all chemotherapies and even Zometa. But I still have Myeloma. It’s not going to just go away or even get cured. It’s just there lurking. So, I certainly think about it but not obsessively. When I was first diagnosed I obsessed and even well into my treatments after my first relapse I still obsessively thought about Myeloma. So now, I do think about it and what it means just not ALL the time. It’s nice to have the space in between to breathe and live. I’m trying to use this time to get stronger by going to the gym and of course, still walking. Plus, working on different projects to fill my time.
But, it’s still a place in between treatments and no treatment and eventually treatment again. I’m pretty sure everyone who has cancer whether it’s been cured or it is ongoing can relate to how do we deal with the time in between those treatments. I try and enjoy every day no matter what. I try and stay positive about life issues no matter what. Sure, I still get upset at the whole political thing but there’s not much I can change about that. But I can change my daily routines and strive to be better mentally prepared and emotionally when the time comes to resume treatment.
I remember those first 17 radiation treatments. Every day except weekends. I certainly was on auto pilot. I didn’t go out much or do much. I was depressed and didn’t feel well. It was my family that kept things going and I just glided. I think it was that way all the way up to my Stem Cell Transplant. It was a rough time and the time in between was not fun, interesting or positive. It was difficult, dark and depressing. Looking back I just wasn’t dealing with things and now I can say, I’ve learned a lot and come a long way in how I deal with my cancer. But, the time in between has gotten better, lighter and brighter.
So even if it’s a week between chemo appointments or one month or one year, enjoy the time in between as best you can.
My labs are in and I am so excited, happy and a little delirious. My kappa light chains went DOWN to 13.6 mg/L from 14.2 mg/L so very happy about that. The lambda light chains are at 11.4 so virtually unchanged. The ratio went down to 1.19. Believe me, I am beyond happy. It has been an amazing year for me. I know things will change as life changes but for now, I am celebrating. My doctor just smiles and nods his head since there’s not really a lot to talk about. I was all ready to talk about future treatment plans but hey, another day. so I won’t see him ’till September, labs will be pushed out a little farther than I’ve done, to around 9 weeks. I can handle it…. I can handle it … I can handle it… 🙂
We were out of there really fast and then headed up to Costco. Gee, the parking lot at 10 am was insane. the only thing I could think of is that people were trying to beat the heat. since it was a payday, we splurged on pool shock( a bucket for $65), a new lantern for the tent trailer, some trail hikers for B ( 19.99) and a few other thingsI can’t remember.
Then we got home by 12 noon. It was almost a 100 already.
Today is not as hot at around 98 degrees. Tomorrow even better.
I’m going to grill a marguerite pizza.
My CBC was great. All good there except the hemoglobin was still .5 above normal. He had wanted me to drink 8 glasses of water a day. I did pretty good but not 8 glasses. Maybe got to 5-6 a day plus tea. I guess hemoglobin has to do with the oxygen in your blood. So he thought maybe I wasn’t hydrating enough. I’m not worried at only .5 over normal. but I’ll see what he says in June. In other good news, my kappa light chains still normal but it went up 2 points. So from 12.6 to 14.2. So here’s that trend of going up. I know I’ll come out of the normal range at some point but for now, it’s still in the normal range even with the 2 point increase. My Lambda went up too from 10.9 to 11.5 so another increase. And the ratio went up to from 1.16 to 1.23 . In myeloma numbers, the ratio is most important so still an increase. These are all in values of mg/L for those that want that . I can’t say I’m not a bit disappointed because I am just a little but hey this is month 10 going into month 11 of no drugs andI’m still within normal ranges. Oh, the good news too, was no detectable M-protein. So that’s the great news. the light chain tests though are more sensitive to myeloma cell, so the increase does show a trend. But, for now, I will celebrate LIFE!! I feel good well except for the aches and pains of normal stuff. My one year of stopping Velcade is June 23. June is never a good emotional month for me as I was officially diagnosed on June 15 of 2005. Funny how we remember some things exactly. Oh well, I’m grateful for modern medicine and my doctor and park and the ducks and the everything. ( That’s supposed to be funny).
It’s been windy here and we haven’t sat out at dinner even though the temperature is nice. The allergies are kicking in when that wind blows. I’m hoping to BBQ tonight if the wind is gone.
Here’s a picture of Hobbles the duck. yesterday we couldn’t find him at the park but he was back today. Whew…he’s called hobbles because about 2 years ago he got injured somehow and was not using his one leg. Now he uses it but just hobbles. He’s our buddy in the morning.
Today is cloudy and it was sprinkling this morning as we walked. At the end of this month, we will only have 2 months left till we hit year 5 of walking every day. I’m thinking going into year 5, I probably won’t be as OC about having to walk as I just need to keep walking. I need to for a number of reasons. It feels good to get my blood circulating first thing in the morning but more important, I feel like arthritis is starting to impact me. I’m pretty stiff til I get going but even thru out the day I notice I’m stiffer getting up and moving. Not a good thing, and I may go see my PC doctor and ask if that’s what this is.
So today I went and got my blood tests. It’s been 6 weeks, so we’ll see hoe things are. It’s hard to say in terms of how I feel because I generally feel excellent. My doctor was watching my hematocrit numbers as they were just slightly high. He wanted me to hydrate more but I pointed out that started after I was in cycle 2 of Velcade so???
I had a great introvert day. I did have to call the insurance as they said I had a balance on my last labs. But I’ve never had a co-pay on my labs. so 45 minutes later the nice lady did resolve it for me. Other than that it’s just me and the quiet today. I did my FlyLady zone( the living room) and since there’s not a lot to do there it’s done.
I’m not sure what I’m making for dinner. I have left – over brown rice so maybe that. It’s not exactly what I feel like but then I don’t know what I feel like and that’s always the problem. So I’ll just wing it till it’s closer to dinner time. My daughter doesn’t get home till 7 pm so we’ll see. My husband is in San Diego working so…???