Early morning

We need to be out by 6:30 so we can get his labs by 8:00 am in Sacramento and then clinic is at 8:30am with the NP. I think we will be out quicker this time.

  Speaking of labs my numbers came back with another increase:( So Kappa is at 25. Lambda went down to 11.3 but with that, the ratio went to 2.25. It’s still not alarming numbers and only slightly over high normal but it is a trend for sure. High normal for the ratio is 1.65 so .6 over. I’m sure my doctor is not worried at this point and I see him next week so we can talk.

Anyway, this is a good lesson for me to not obsess and just know treatment will resume at some point. I’m actually proud of myself for not being too nuts about it.  I guess that’s a good thing?

After clinic, I’m going to the gourmet store called Corti brothers. When we first moved to California in 1975, we would shop at the other Corti bros location. I had just started graduate school at Sac State and we practically lived in Sacramento. We were living in Foresthill(the same area we’re in today but not the same direction) and I was driving down 2-3 times a week. Back then there was little traffic on I-80 at night and during the morning.  Now any time of day I -80 is crazy. Anyway back to Corti Bros. So when I was at Kiwanis house and shopping over at Save Mart, I looked over and saw the sign for Corti Bros.  I wasn’t planning to go in till the person who owns the RV said ‘Hey, you should go into Corti Bros. ” So I did and first, the deli is amazing and I discovered they have the French ham I have always wanted to try. Of course, I thought I’d have to go to France but no, here it was. It was amazing. Since I do love cooking and food, it’s a fun store to look around in. Today, I’m getting some olives from their amazing olive bar and some special burger blend for 4th of July.

All in all, it should be a good day!

 

Things are going great!!

First things first, TODAY is my 14th year since diagnosis. I was standing in our driveway and Barclay took the phone call from the awful doctor. Doesn’t matter, here I am!!!!  So onward. Next week I get my labs in the middle of all this and we’ll see what my numbers do. Up or down??? I’ll deal with it one way or another.

It’s the weekend and B has no labs till Monday so we can relax. I’m heading over to Ikea as they charged me for 2 paring knives but I only bought one. I’m not sure how that will work but I’ll try. Plus I bought this darling fold out bed for our daughter to sleep on here but then discovered that the couch does fold down to a bed. Okay, Barclay figured it out I just kinda looked at it and didn’t connect the dots. Oh, well.  So I will return that(insert sad face as it’s really cute). But I don’t need it now and then at home I’d have to store it so, decision made.

It’s all going really well and so far and now it’s just waiting till we can go home. Although next week is labs one day, clinic the next and then repeat so going home isn’t too feasible.

Tomorrow both kids are coming down so we can have Fathers day here.  They are doing a great job keeping things going at home. Which, surprisingly, is a lot of work mostly due to having pets, chickens and large garden areas.

We are off for a small walk and BTW Sacramento is having a serious cool down so we are VERY comfortable…. Todays high is only going to be 84 so really nice.

Simple Sunday

Today is another trip to the hospital but before I go down I will try and do my Flylady zone.

It’s the bedroom so that is generally not too involved. I did call a house cleaning service to check on a ‘deep’ clean and I’d like an estimate. If it’s reasonable I’ll schedule that for the first week of June.  Since sometime after that we will be down there at the RV spot( I hope).

There’s been a hiccup with that as the owner has had a medical issue come up. I sure hope it can be resolved but it is what it is. And his health comes first. We still have the ACS hotel as back up. We can’t book that though till we know the exact date, so it’s also hurry up and wait.

On another note, my labs came back and I’m not going to lie. It upset me. They went up 4 points out of normal range. 18.4 to 22.4. So 19. 6 is high normal. And the ration went up to 1.69 out of normal range. (1.68 is high normal). so there it is. I’m guessing I’m coming out of remission.  I’m not going to worry too much yet as it’s still a long way to treatment.  It could be 3-4 months maybe longer but clearly, myeloma cells are activating.  It’s fine really. I knew it would happen and I’ve had 3 great years. Still, with everything going on it’ll be another trial. I actually see my oncologist this coming week( yes, I know in the middle of everything else) so I can ask him. He doesn’t get too concerned as the increases have been slow.

Anyway, life goes on, one way or another.

 

Decisions…..

So yesterday was insanely busy.

We had to be out the door at 7:15am to get to the local oncologists’ appt. That went well. Then B had to go get his labs.

Then we decided to go get bagels at our local organic bakery because we were going to head to Sacramento to check out the Kiwanis house and we wanted to AVOID the 8 am traffic. So we relaxed and enjoyed our coffee and bagels.

We had no stops with traffic and got down to UCD med center in 45 minutes. First, we went and toured the Kiwanis housing and as expected the rooms are quite small and the shared kitchen just didn’t do anything for us. BUT, we toured the RV parking and LOVED it.  So there is a possibility of using a friends RV or if we moved quickly buy a used small one that we were planning on doing in the fall anyway.

We asked the social worker to put in the request so at least we have that in place. There’s no guarantee but hopefully, that would be a possibility.

Then while we were there the social worker called and said there may be a problem with B’s brother’s blood something that has an antibody in it so B needed to get a blood test for that ASAP. Fortunately, we were right there so we did that.

Next, we checked out the Marriot and that was crazy expensive even though very nice. There were two nights that the cost increased to $279 a night.  We ruled that out quickly.

Then we headed to the Cannabis place and B got some chocolates since smoking is not allowed with the transplant.

After that, we went to the Sacramento Co-op and joined as I plan to shop there while we’re down there and then even later go once a month. It is a beautiful store and I found a few items like cranberry beans I’ve wanted. ( they’re like pinto beans). Plus they have an olive bar!!

Finally, we headed up Hwy 50 to check out the Extended stay hotel and surprisingly we both thought it was okay even if it was the furthest away. ( 10 minutes or so without stop and go traffic). Not ideal but doable so we’re going to get the referral to the Cancer Society and put that in as a backup plan.

By this time it was close to one and we were pretty wiped out. I came home and took a nap.

We’re hoping there isn’t a problem with the antibody as that would mean back to square one with the National Donor Bank. We should know in a day or two and we see the transplant doctor next week so…

I’m heading out to the koffee klatch to see everyone for the last time probably till the end of summer so that’ll be nice. I think everyone is planning on being there.

Dinner is salad and chicken kabobs( marinated in yogurt). Maybe some grilled tofu too.

 

 

 

Beginning of the week.

I’m off to get my labs this morning. Even though I don’t see my oncologist till the end of the month, I wanted to get my labs at 6 weeks to see where they are or if they’ve changed.

Then I’m going to go pay our property taxes(bi-annually), and I have to go pay the car tags on the Santa Fe.

Then home to do Monday chores. I need to wash mirrors and the window in the entryways and the sun porch. But the sun porch is ALL windows so maybe not all today.

On a super positive note, I called the American Cancer Society about there partnership with hotels for our stay after B is released from the hospital and it all sounds great. He’s in the system and when he goes in then call and set up the tentative date for the hotel. Since it will be at a reduced price, even if we are a few days different, I’ll go and check in just to keep the reservation. So very good news there.

So yesterday, inspired by “The Home Edit”. I pulled everything out of the fridge. Then I cleaned all the shelves with the help of my daughter. I had gone to Target and got some plastic bins for specific things to group. I’m pleased with it all.

IMG_0614.jpeg

IMG_0613.jpeg

It looks all fresh and bright.

Today I might work on the kitchen pantry which is the restaurant shelving. It seems I haven’t found the best way to work things there.  But I think I’ll take everything out and see where I go with it..

Dinner is unknown…….

 

Simple Sunday or is it??

Well, it is going to be a lovely sunny day so I’m going to enjoy that. Our yard is looking so pretty with daffodilsUNADJUSTEDNONRAW_thumb_367.jpg, and the lawns turning bright green. Here’s the flowering cherry which is the prettiest bloom I’ve seen in a few years. Last year these trees were hit with a late frost and all the blooms died.

IMG_0612.jpeg

In the far background you can see some of the hoarders stuff across the fence! More daffodils.

IMG_0609.jpeg

Today is a gym day and B has platelets. I’m going to drop him off and then go over to the gym.

Sunday is sheet day so I’m doing those and since it’s so nice out, I thought I’d do our comforter as well.

There’s not a lot on the agenda for today so I guess that does make it a simple day.

I’m reading a new release in ‘home organizing’ called’The Home Edit’. 91xVeNilguL._AC_UL436_.jpg It’s nicely presented with lovely pictures. So far I’ve gleaned a few ideas about organizing stuff. Nice book, if you’re needing some help putting things together. I’m going to pull everything out of the refrigerator today and give it a good clean.

This week we are in the Entryway, dining room(which we don’t really have) and porches. I’m planning to wash windows sometime this week as well.

Update:

 

We went to town. I went to the gym and then was going to pick B up but he had a reaction(second time) to the platelets. So he had to stay and then they sent him to the ER.

He’s home now and all seems ok.

Dinner is roast chicken.

 

March has arrived!!

Well, it arrived and guess what? It’s still raining. (and snow in the Sierras)

We did have a break on Thursday and Friday so that was nice. Even though it was cloudy at least it wasn’t pouring down rain.

Thursday I saw my oncologist in Sacramento and it went well. I told him I was somewhat concerned about the 4 point jump but he didn’t seem worried and even gave me a look like. ..What??? it’s still n the normal range and your ratio is fine. So I did feel better.

Then I headed up to Costco for what I hope is the months shopping. I bought a huge amount and the car was loaded. But I got everything on my list. I did add in 2 more Orgain protein drinks( at almost $50) because B needs that to help keep his protein intake up. Plus you honestly can’t beat Costco’s prices on things like that.

Friday was just a gym day but it was really packed with people which I don’t like plus I see so many people NOT wiping equipment after they use it. Ahh…Why????

Today I’m taking B for labs and then just running over to the bank. I was going to go into Home Depot for some pansies or something for the entryways but with the rain, I probably won’t.  if you follow Flylady there was a second zone this week and that was the dining room and entryways.  So as I always like to freshen up the entryways with something, I thought some color would be cheerful.

Tonight I’m going to try an Instant pot pork chop recipe. So far everything I’ve made has been delicious. So we’ll see. I don’t usually cook much pork because generally I overcook it and it’s not all that good.  My daughter has made pork kabobs on the barbequed that have been very tasty though.

53270765_10218868313603079_1719697144312496128_n

FYI!!!