What a strange couple of days it has been. I have taken most of it in stride but that doesn’t mean I’m not pissed off about it.
So first, on Tuesday I head down for my appointment with the Legal Help at the Santucci Justice system. I’m optimistic I’ll get the answers I need. So I get in and start explaining to the legal aid about my birth certificate etc. So I have booked marked where my questions are on the pages and …so this is where my birth name goes….yes….well and this is what it’s changing to…yes…. oh wait, I better go check on that. .. . !0 minutes later she returns and says the person upstairs’ says “you cannot change a name on a birth certificate except for adoption or paternity”…….Whoa, I say that is not correct. ….. Back up she goes with my paper work.Down she comes in 10 minutes no wiser. The lady behind me starts chiming in that yes, I can change my name but what are the legal implications for SS, drivers license etc. So I am at that point totally confused. They are both confused. So the one says, ” you better go see a lawyer” JFC*** Really? So I leave muttering under my breath.
So now, I’m just thinking about it. I can see changing the birth name. But how does that affect my other things? It shouldn’t. But I’d still like to talk to an attorney just to be sure. So I’m going to wait till next week and then see if I can get a consultation with one in Auburn. This is really turning into a 3 ring circus.
I went down to Sacramento for my oncology appointment. All looked good and I asked if I could do labs in 6 weeks and then in 6 more weeks and see him right after Christmas. I really didn’t need to go today but I felt obligated to keep the appointment. Plus I was dring the old van so that makes me a little nervous in all that traffic.
So then I’m talking to him about the patient portal. He says it looks like you haven’t signed up. So I say that I have. Hmmm, something is not right. So I get home sign in and it’s the same one I did sign up for but my records aren’t there except for 2015. Which is what I saw last week. So I decide to call the help number and finally after waiting 15 minutes, the rep says. Oh, that’s for hospital records( so in 2015 is when I had my sedated bone marrow biopsy). The other patient portal is for the doctor’s office. God damn, how come they didn’t know that at the office there. So now I need to call them and make sure it’s clear that there is a difference and I still want my labs. I still feel something is off about it but till I know more there’s nothing to do.
So overall, it’s kinda been a stressful week. Or at least weird.
We had incredible thunder and lightning and heavy rain last night. It was quite a show. The ground is saturated. But at least we won’t have to do anymore watering. Our bill went down to $99. But that’s still more than I’d like it to be in September.
Such good news!!!!
My kappa light chains went down almost 2 points.
Lambda light chains stayed just about the same.
The ratio went down to 1.18. The ratio is a very important piece of the whole equation.
So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.
It is so amazing and I am so grateful and happy.
Time to celebrate!!!
It’s a little cooler at 93 degrees. I’m still running the window coolers so I can only imagine how high the electric bill will be especially since there’s an excessive heat warning for the middle of the week.
I went to the gym and it was nice and mostly empty.
This week is my 2-month labs. I know my oncologist is in Europe for 2 weeks so he won’t get my labs back to me so I’ll need to call his nurse for the results or wait. I don’t have any particular sense which way it will go. They have been creeping up so I guess there’s that. I’m not sure one ever gets over the anxiety of labs once you’ve had cancer. You wait for them with bated breath. But in the end, there’s not much you can do but accept what the results are. I feel pretty good so there’s that.
My son fixed the AC in my old van so it’s blowing cold again. He didn’t fill the thing all the way with the R 124?? so I’ll buy another can of that tomorrow.
I’ve prepped a big salad for dinner and I’m going to grill some salmon. I might add in a carb but not sure what yet. This week with B gone to Minnesota, I’ll keep the menus easy especially since my daughter doesn’t get home till 7. Maybe sandwiches, tacos, pancakes?? We’ll see. Nothing too heavy as it’s too hot to eat heavy foods.
I gave away 2 sets of Fiesta ware to my brother, so that’s more out the door. I gave him the peacock blue color and the dark blue. I wasn’t in love with either color although the dark blue is pretty. I still have plenty of other colors to use. I was going to give them to the Cancerthrift but then realized I had given him 2 sets a few years ago so this would make 4.
This week I might do a little more reorganizing the pantry. I was thinking of taking everything off the stainless steel restaurant shelves and reorganize that way. We’ll see.
This week is the bedroom zone in Flylady, so I’ll work on tidying the closet. Plus it does hold my pantry back up items.
Overall, it should be a quiet week except hot!!!
Let’s see, my labs came in but I had to call the nurse to get the results. My doctor is on call for other doctors this week so he is slammed. My CBC is all the same and normal, Kappa light chains went up to 15.0, Lambda was the same at 11.1, the ratio went up just slightly to 1.30 ( from 1.27). So not bad but I’d rather the ratio be a little lower. But still all in the normal range. June marks 2 years of being off all chemo. What a lovely time it has been and I am grateful every day.
We zipped down to Costco at 9am to get a few things. Mostly coffee. Last week I had to go buy a pound at Starbucks and that was a rude awakening. So off we went. We filled up the Santa Fe, and then got thru Costco fairly quickly. I didn’t need a whole lot so it went quick. We also paid our membership which was due June 1st.
Tonight is a pizza night and I gave my son cash to get a Round Table. I had a coupon for a speciality pizza for $19.99 and we love their gourmet veggie. So a good deal.
We were going to go to the nursery and get some pots for me to re-pot some of my house plant friends but it’s raining so we nixed that. I guess we saved money by not going but I’ll still need to get some at Home Depot in the next week or so.
Yesterday I went out to the barn and declutter more magazines, some kitchen things I had put in a box for my son when he was going to live at SFSU( which he didn’t do), and other misc. It’s the start of a small thrift store run.
I worked on the budget and June looks okay. Still working on finishing the CC that we put Z’s tuition on. I’m okay with that. I’d like to target end of July to have it done.
I think that’s all I can think of.
We did feel bad for all the campers heading up to Tahoe for Memorial day weekend. It was pouring down rain and I’m sure it’s worse up there.
I still haven’t gotten my lab results so I’ll e-message my doctor today. My CBC and CMP should have been there yesterday and the light chains today. I can’t remember if this is when he was on vacation. But I’ll check in later.
It’s a cloudy sort of morning but no rain. It is supposed to rain on Friday but I guess we’ll see. Our gardens would like the drink of water.
I’m just staying home today and doing some house chores and tidying. Yesterday I did more meal prep and made polenta to fry up and a black bean and corn salad. Both are our favorites. I’m cleaning out the freezer so there will be some interesting meals. Last night though we had chicken enchiladas I froze a few weeks ago. I have a lot of bread that I’ll either give to the geese or do something with. A fellow park walker gives us free loaves of Truckee Sourdough. So we end up with quite a bit frozen.
My daughter has always an extremely talented artist. From sculptor to watercolors to this cool rock art that everyone is wanting to buy from her.
Well, off to start my morning routine.
It looks to be a lovely day in Northern California.
Our yard looks amazing with roses and flowers all around. This is one of the prettiest springs I can remember. Of course, we’re only a month away from the start of summer.
Today is a gym day and then just doing whatever. I really enjoyed my meal prep yesterday and our dinner was delicious. We heated up the lentil salad which was an excellent recipe from David Lebowitz’s ‘My Paris Kitchen’, and then had some of the wild salmon.
I go get my labs this coming week. I think this is the longest I’ve gone, almost 8 weeks, so I’m a little anxious but, heck, it’ll be whatever it’ll be with worry or not.
I’m in the bedroom zone this upcoming week. Pretty easy since we don’t have much stuff in there. What’s in your bedroom??? Try and kept it simple; a bed, dresser, maybe a plant or two. I do have a nightstand that I have to have to hold my pills I take at night and a glass of water.
Dinner will be the chickpea curry with rice.
a few more pictures I took…
I went for my walk, as usual, but in the rain. It wasn’t too bad as I do have rain gear I wear. ( Frogg Toggs). If you’re equipped it’s okay. My North Face hiking shoes are gore-tex so my feet stay dry. If the wind is blowing then it’s harder but it wasn’t too bad this morning. We are 90 days away from hitting the 5-year mark of the JKW project.
The rest of the week still looks rainy and cold with more snow forecast for the end of the week. WTF, this is not normal. We always have some cold weather but this just seems like its going on and on. Oh well, I guess just enjoy it as much as you can.
Today is a relaxed puttering day. I’ve made some turkey chili for tonight and it’s simmering away. I hardboiled some eggs for snacks or lunches. Then yesterday I made hummus in my old Waring Blender. I got this blender back in the 80’s. So I thought gee, I wonder if this would make the hummus as creamy as the pictures from the Vitamix blender. And I ‘m happy to say it did. I’m still going to check out the Vitamix as I think making nut butter would be cool. Any recommendations a model?? Costco has a few models so I’ll look there first.
Then I’m doing 1x laundry and a few Monday chores around the house.
I have gotten back some Labs and they look good. My CBC panel looked great and the SPEP test came back normal but I had to e-message the doctor as I pretty sure the light chains got lost somewhere. Maybe today.