Simple Sunday or same old same old…

We walked as usual. Lovely, early and no one around in the park. My favorite time.

Then I came home and put on jeans( which barely fit now) ugh:(, zipped into Auburn to go to Safeway.  No traffic except a few semis on I -80.

Safeway was not busy but there were no veggies at all, no dairy like yogurt, etc. I got most of what I needed. Ramen, bread, butter, cookies, deli stuff, salad pack, milk, cream, and some other stuff. But I was planning on bananas, cabbage, avocados, broccoli, etc. So I may go down to Holiday  Market later in the week. For now, we can have salad and we do have chard in the garden.  So all in all a good trip.  Most everyone had masks and gloves on but a few old men did not…. maybe they think the order from Placer Co. chief Medical officer doesn’t pertain to them like the imbeciles that are Trumpers protesting the sheltering in place order.  Darwin anyone??

Last night I made a split pea soup from the Palouse split peas. It was delicious. Palouse is a small family-owned company and I was able to get 5lbs of lentils and split peas. If you need these try ordering from them. They arrived very quickly and the price was @ $15 for the 5 lbs. I think.

Tonight’s dinner is unknown. My son wants to cook something so we’ll see. He’s a great cook and enjoys doing more gourmet stuff than I do.

The chickies are getting big and eating a bunch. We’re taking them outside and they are in a fenced area so they can run around. They seem to like that. They still need a heat lamp but our weather is supposed to warm up so they will move out to the sunporch this week.

Barclay’s labs have come back way better. Platelets have gone up and so did his hemoglobin.  The took him completely one of his drugs, Dapsone, so this may be why his numbers were dropping. So good news there. Also, UCD med center did give us a grant on one set of bills from last August. At least we think they did as we haven’t gotten any official letter from them but the billing shows the $1300 that was going to be due is not showing. Now only the last $500 is on there. So that’s cool, I hope.  Hopefully, there’s no surprise. I would like to have a letter that states that though.

The Flylady zone is in the bedroom, which, I’m about to get up and go do.

This week I’m planning on washing all the outside windows with the Outdoor Windex. You attach it to a hose and spray. I’ve been using this method for a few years and it works great.

 

My doctor’s appt is at the end of the month and I’m planning on it being a video appt. I’ll have to wait till I get directions on how to do it though.  I did read another Myeloma patients take on ratios and I think he was referring to one of the major Myeloma treatment centers, where one of the criteria is a ratio of 100. That’s what my doctor keeps saying but when my ratio was up in the 70’s I was in treatment with Revlimid. Oh well, mine is still under 10 so, that’s something I suppose.

 

 

Another sad day…

We lost Finnie yesterday.

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4BC83E01-6F8F-4B89-835A-B8DAA105BC0A.jpegAlmost a month exactly from when Ollie died. Finnie seemed to be doing okay. We took him to the vet and he did a round of antibiotics but over this last week he got worse. We’re not really sure what it was but he was acting very weird and then confused and not very aware of things. So we called the vet and he went to kitty heaven. It’s been a hard last 9 months with both dogs and now both our cats. The cats were 17 years old and were adopted together so maybe they were so bonded or something. Anyway, it’s lonely in the morning without them yowling for cream and food. I’m sure we will get some kitties down the road but not for a while yet.

I think pets teach us so much about life and death. Plus they are just present. A lot to be learned from that alone.

The weather is still blah. Not sunny not rainy. Just grey. We walked this morning and only the one other dog walker was there so that was nice.

My labs came in and it’s okay. My kappa light chains went to 110mg/L so an 18 point increase and Lambda went down to 12mg/L. Looking back over my labs since 2015 my Lambda never did go out of normal range but that’s because my myeloma is kappa. So now the ratio is up to 9.23mg/L  So going up.

I’m planning to not go down to Sac at the end of the month but the assistant said we could do a video conference so that’s what I’ll do.  Really nothing different is going to be said until he’s ready for me to start treatment.  Sigh:(

I’m going to make some cookies today and then move some pantry stuff. My order of flour should be showing up today. That’s a good thing as I’m starting a Tartine bread leaven and will need the flour tomorrow.

 

 

This is all very weird.

So we are home and not going out. I guess since it rained all day yesterday and right now it’s snowing I guess that’s ok.

My son was told to work from home. And my daughter is a librarian at Sierra college so I’m assuming they will tell her today to work remotely.

Our last kitty, Finnie, is sick with what seems like a cold but we can’t take him to the vet as it’s too risky for us so I hope he can recover on his own.  It would almost be too much if he dies on us.

I emailed my sister in Connecticut who has lung disease and she’s on quarantine as it’s very dangerous for her. She sounded good though. Her family is huge so hopefully, the grandchildren aren’t coming over.

We walked yesterday a little and then it starting pouring so we cut it short. I really needed to get out and walk so that was too bad. I will try again today if it’s pouring or snowing or whatever.

B has labs tomorrow so he needs to call and make sure he can go in to do them. He’ll need to glove up and put a mask on though.

This week is the bathroom zone if you want to follow Flylady. I had B clean the air vent and that was needed. I also cleaned as best I could behind the clawfoot tub. I can’t really reach it so I rubber banded a washcloth to a Swiffer thing and that seemed to work.

Still raining right now so no walk yet.:(

 

Friday Stuff

Happy Valentine’s Day!

We don’t do much special since I hate crowds and would not even consider a dinner out on VD day. I did buy some nice carnations at Safeway and some roses at Costco so they are on the table looking pretty.

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It’s been a maddening week trying to get a camping reservation. Every single morning ( including today) I have been on the computer at 7am on the dot( watching the second hand) to reserve a spot and absolutely NO LUCK!

There are so many people trying to get reservations for August that it’s almost impossible. Today, I’m trying for 5 different spots and not sure if that will slow down the computer. But if I don’t do the 5 then there’s no chance. I’ll update after 7am.

NOPE>>>>>NADA>>>>>ZILCH

Let’s see what else. Barclay had to go back down to UCD med center to pick up an immunosuppressant drug because he’s had skin itching and slight rash.  That’s the one he’s been off of since December so they don’t want any GVSH happening.  We’re also dealing with medical bills from August that the Cobra was supposed to cover and they don’t have it straight. I’m ready to just chuck it and make payments. We’ve been trying to get this squared away for months and they just aren’t getting it.   They keep saying he had 2 insurances but he didn’t an only had the Cobra. What a PITA>!

I’ve applied to the LLS for my grant for 2020 and that will pay my AARP supplemental insurance.  They do such an amazing job and I’m grateful for the grant. If I ever have to go back on Revlimid they would help with that co-pay as Revlimid is a tier 5 drug and runs about $20,000 a month. With insurance you need to go thru the donut hole and then still it runs about $1500 a month.  I can’t see me going back on Revlimid but who knows.

Speaking of which, my labs came back very disappointing. They almost double!! ( well the Kappa light chains did) so that is a very bad thing.  I see my doctor next week so I’ll see how he sees this change. My ratio went up too but still is overall low at 6.58 mg/L. It’s the ratio that is more important. Still, it freaks me out that myeloma cancer cells are activating and multiplying. WTF….  well, I knew it would happen sooner or later as Multiple Myeloma is incurable but can be held in check.

Today I’m just planning on staying home and doing somethings around the house. I need to mop the kitchen floor and wipe the bathroom.

Tonight I think I’ll make a pizza Margherita although I ‘d need to run to the market for some fresh basil.

Stuff

What a week!

The colonoscopy went fine although there were polyps so I will need to do another in 3 years? 5? not sure, as I haven’t gotten a message from the doctor yet. Oh well, the best-laid plans of mice and men:(

Now I’m feeling under the weather. I think my body just saying enough already and to rest. On top of the 2 days of jury duty last Thursday and Friday, then the colonoscopy prep on Monday and then out the door Tuesday at 6:30 am, all a bit much for me.  So today I’m just going to take it easy and drink lots of lemon water.

I am going to make marmalade although no one locally has Seville oranges. I’d probably need to go to Whole Foods down the hill and I’m not doing that.

The budget is set for February and I did take cash for groceries for the week.   I’m going to budget $125 a week. I went to Target yesterday and bought slice cheese and a few other things but other than that haven’t spent any extra money.

We were thinking of going to the coast but now it looks like it’s going to be a little too cool so probably not. Cool is around 50degrees.556B21DA-3A6C-409A-855E-C00C782CA2F6.jpeg

This was one of my Christmas presents as I’ve always wanted a French candle. Clearly not frugal but lovely. Would I get another, No! It had a lovely fragrance but the cost didn’t really justify that. Well, now it’s a pen holder. I also have always wanted a Jo Malone orange blossom candle. it’s in the same price range so probably not.

I have an appointment for my labs tomorrow. Oh, joy another test. Probably not good news so, WTF, right?

Simple Sunday

Whew, jury duty was brutal. We ended up a hung jury as one juror was deadlocked. I at first was on the not guilty side and then after reviewing all the evidence went with a guilty verdict. But it didn’t change the outcome as a mistrial was declared. Not sure how the lawyers proceed but that’s not my worry. I was completely wiped out by the end.

It’s raining here quite hard so no walk today. The Frogg Toggs I got for Christmas needs to be returned as they don’t fit quite right. So no walking today unless it lets up( just checked weather and no letting up).

I’m planning on going to the gym today as tomorrow is my prep day for the dreaded colonoscopy.  I’m sure I’ll get thru as I’ve clearly been thru worst.

I need to get my labs done this week too and think I’ll plan on Thursday.  I see my doctor in February(middle) so there’s time but I like to know my results before. If it continues as it has been my rise should be around 11 points taking me to @ 65mg/L Kappa light chains. The ratio will probably go up to. I actually feel ok but Myeloma is tricky that way and that’s why some people don’t get diagnosed till a fracture like I did. Well, no sense worrying about that now.

Yesterday I made lovely baked potato soup. It came out great. I used the Vitamix to blend and it came out very smooth. Tonight I’m making breakfast for dinner to keep it light. Just scrambled eggs, maybe pancakes and/ or toast. I might do some of Adelle’s chicken sausage as I need to use that up.

 

What’s next?

This is a busy week with appt’s almost every day.

Today I have an appt at DMV, yes, the dreaded DMV, to get my license renewed and try and get the real ID. The real ID requires a certified birth certificate and lots of other proof pf residency things. One reason I persisted in the NYC birth certificate debacle is I knew that this was coming. So we’ll see how it goes and I’ll report back.

Tomorrow is clinic and labs and my daughter has volunteered to drive.

Wednesday I see my oncologist so I didn’t want to have to drive 2 days in a row. I’m going to go over my old lab results when my light chains were over 1,000 mg/L. I just want to hear his assessment of when to be more concerned. I’m guessing he’ll say the same thing, that when my numbers are much higher.

Then Thursday is open.

Friday is back down to the urologist for an endoscopy to see if there is any blockage or how does the prostate look? It is an office procedure so no sedation.

We also need to get the oil changed in the car and will do that Thursday. B said he’d go. So that would be his first time out driving the Santa Fe in a while. He’s definitely able to do that now and isn’t shakey. So progress!

The zone this week is the living room and I finished that yesterday. Since our front room is small and there’s not a lot of clutter I was able to finish it in about 15 minutes. I washed windows, dusted, checked my plants and washed the mirrors. That’s about it. I do look regularly what to declutter but right now I’m content with what’s in the bookcase and also the Heywood hutch. In the Heywood is my pinecone ware so that stays. I do love looking at it and using it too!

Simple Sunday

A nice Sunday morning with cooler temperatures.

Getting ready to do the bedroom zone.

Plus its sheet day.

Yesterday I did a Walmart grocery pick up. I don’t shop Walmart but was interested in the pickup and I had a $10 off code. I bought quite a few organic items and them some pantry stuff I wanted. I was surprised at how easy it was and I didn’t have to go into the store. I’m not sure I would do it a lot but I have to say the prices were quite a bit less than Safeway.  Organic Valley milk was almost $2.00 less than Safeway. So were the Morningstar items. So those are big savings.  I also went to our little organic farm down the road and got $20 worth of veggies. The corn was excellent.

I’ll have to see how I feel about it over the next week.

I was able to book a night at Nevada Beach for B’s birthday. We may or may not take the tent trailer. Our old van can be used to sleep in so that’s an easier option. We found a nice 2017 Hummingbird RV by Jayco for a terrific price but it’s about 2 hours away. We were pretty gung ho about it but then backed off. I think since we really don’t have other camping plans this year we should save our money till next spring. It was a great price though. If we could see one locally it might make a difference.

It’s a gym day too and that’s it. Don’t need any groceries for a change.

The coming week is busy with 3 days of appts for B. We’ll get thru. After this week we should be on schedule for every 2 weeks. But there’s also my doctor appt and his BMB  early September so that will add some extra driving days. My daughter isn’t working yet so she’ll help with some appts which will be appreciated.

My labs should be in tomorrow. I’m guessing they went up and really there isn’t any more downward trends. So the question will when do we start Velcade again. Since my doctor is very conservative I may have to say I want to start when my Kappa light chains go to 100. It’s hard to know if I’m asymptomatic. But if it’s going the way it is it still may be a while. I went from 19.7 to 22.? to 25.? to ??? So 3 points a time. That’s every 6 weeks. The ratio at 2.33 so that’s above the high normal of 1.65

If I could hold off till next year, B will be in good shape and hopefully not need any interventions.

Who knows? Right?

Early morning

We need to be out by 6:30 so we can get his labs by 8:00 am in Sacramento and then clinic is at 8:30am with the NP. I think we will be out quicker this time.

  Speaking of labs my numbers came back with another increase:( So Kappa is at 25. Lambda went down to 11.3 but with that, the ratio went to 2.25. It’s still not alarming numbers and only slightly over high normal but it is a trend for sure. High normal for the ratio is 1.65 so .6 over. I’m sure my doctor is not worried at this point and I see him next week so we can talk.

Anyway, this is a good lesson for me to not obsess and just know treatment will resume at some point. I’m actually proud of myself for not being too nuts about it.  I guess that’s a good thing?

After clinic, I’m going to the gourmet store called Corti brothers. When we first moved to California in 1975, we would shop at the other Corti bros location. I had just started graduate school at Sac State and we practically lived in Sacramento. We were living in Foresthill(the same area we’re in today but not the same direction) and I was driving down 2-3 times a week. Back then there was little traffic on I-80 at night and during the morning.  Now any time of day I -80 is crazy. Anyway back to Corti Bros. So when I was at Kiwanis house and shopping over at Save Mart, I looked over and saw the sign for Corti Bros.  I wasn’t planning to go in till the person who owns the RV said ‘Hey, you should go into Corti Bros. ” So I did and first, the deli is amazing and I discovered they have the French ham I have always wanted to try. Of course, I thought I’d have to go to France but no, here it was. It was amazing. Since I do love cooking and food, it’s a fun store to look around in. Today, I’m getting some olives from their amazing olive bar and some special burger blend for 4th of July.

All in all, it should be a good day!

 

Things are going great!!

First things first, TODAY is my 14th year since diagnosis. I was standing in our driveway and Barclay took the phone call from the awful doctor. Doesn’t matter, here I am!!!!  So onward. Next week I get my labs in the middle of all this and we’ll see what my numbers do. Up or down??? I’ll deal with it one way or another.

It’s the weekend and B has no labs till Monday so we can relax. I’m heading over to Ikea as they charged me for 2 paring knives but I only bought one. I’m not sure how that will work but I’ll try. Plus I bought this darling fold out bed for our daughter to sleep on here but then discovered that the couch does fold down to a bed. Okay, Barclay figured it out I just kinda looked at it and didn’t connect the dots. Oh, well.  So I will return that(insert sad face as it’s really cute). But I don’t need it now and then at home I’d have to store it so, decision made.

It’s all going really well and so far and now it’s just waiting till we can go home. Although next week is labs one day, clinic the next and then repeat so going home isn’t too feasible.

Tomorrow both kids are coming down so we can have Fathers day here.  They are doing a great job keeping things going at home. Which, surprisingly, is a lot of work mostly due to having pets, chickens and large garden areas.

We are off for a small walk and BTW Sacramento is having a serious cool down so we are VERY comfortable…. Todays high is only going to be 84 so really nice.