Friday things

I guess we’re never going to see blue skies this summer. It’s all hazy and smoke filled from the Caldor fire over near Placerville. That’s about an hour away from us over Hwy 49. The Eldorado National forest is all closed and many parts of the Pacific Crest trail is closed. What a summer.:(

I’m going in for my labs in about 45 minutes. I should have the important tests back by next Wednesday when I see my doctor. I guess it’s just a waiting game. I have a feeling that my remission is going to be short lived but who knows. It’s just a feeling.

I went to the farm stand yesterday and bought tomatoes, pickling cucumbers, radishes, lettuce( I was surprised by that), and local bread. It came to $31. I’m okay with paying more since it is all grown right there in the fields. They actually had some lugs of tomatoes out for $20. so I may do that next week.

Last night I made a NYT recipe for corn chowder. It was delicious.

The bread was the one I bought from our local baker. The jalapenos are from our garden and we do have tons. This weekend I’ll probably do 2 more jars of refrigerator jalapenos.

I don’t plan on any grocery shopping till next week or later. I need to write a list of what I want/need to get.

I plan on swimming tomorrow as normally I’d go today but with labs that’s not happening. After my labs we’re going to look at a truck. It’s becoming clearer that we will have to have a truck to pull the Rubicon. Things are pretty high priced but I saw some used under $30K. Expensive,but there’s not a lot of choice here. So we want to check out Toyota Tundras and Chevy Silverado’s. I think that will give us a good idea of what we’re after.

Simple Sunday

Our skies are still smokey and the sun is a red orb in the sky. It did clear up yesterday afternoon but it’s back in this morning. We had a good walk though although ‘he who shall not be named was there’. My God!, He is always there. I don’t think he’s taken a day off in the last year. Even I, OCD that I am, try and take a rest day.Oh well, he doesn’t bother us(right??after all that)… and does stay out of the way.

I went to Safeway to get the rest of the camping food for B and Sachi. One night spaghetti with garlic bread, the next night tofu burgers. It should be easy for them to handle. Then we went to Starbucks to get a pound of coffee ground for the press. It’s easier than trying to grind a large jars worth of coffee. We shared a tall Italian Roast coffee.

I finished the bathroom zone. I had bought new shower curtains last week so I put them up. With a claw foot tub, our shower needs 2 curtains to go around the ring at the top. I replace them about 3x a year due to mold issues. This time of year with everything so dry there isn’t much of a problem but in the winter it is more so. Still I cut the bottom off @3 X as well and wash in bleach.

I ordered the new Rosamunde Pilcher’s book.

She is one of my favorite authors. Will see if I like it. I have no qualms about returning a book if I don’t like it. I’m sure Amazon doesn’t want you doing this often but I have when I’m not happy with a book or a purchase.

This coming week will include swimming 2x, my labs on Friday , and taking Buggie in to check this wiring issue. The running lights on the left are not working and even after changing the fuses and bulbs it’s still not working. So we need to get it fixed as we drive out in the near dark at 5:45 am and the lights are not on. The brake lights work fine though. B needs to try and reschedule his IGIV for sooner as he is really feeling the fatigue. The anti-rejection drug he is on is causing his immunoglobulins to drop too low. Unfortunately, he will need to be on this drug a while so this is the treatment. At least it works. The cost is shocking at $41,000. Really?? I guess you’d just die if you didn’t have insurance.

I’m thinking seriously of painting our floors in the front room and bedroom white. I’ve always wanted white floors, very Scandish. But it would require some logistics as we would need to do half or a third at a time so we can access the bathroom and my daughter can get out of her room. Plus what I read is that it takes at least 2 coats maybe 3. We’ll see how it goes when the weather is cooler. It’s too hot now to do anything.

I think what I’ll do first is go to the Benjamin Moore paint store and find out about paints that can be put on a floor. Is it just regular paint and then a coat of varathane over it?? I’ll check.

Simple Sunday

We finished painting the kitchen in the semi gloss Benjamin Moore, Simply White. I thought it had been semi gloss before but it must have just been eggshell. For our kitchen semi gloss is best as our stove hood is not the best and grease does get on surfaces. Even doing the once a month kitchen zone when I wipe all the shelves it still builds up. So that was a good choice. We’re going to add another shelf to the one wall and I just ordered the bracketts. They’re not cheap as they are hand forged but they are nice looking. Then I will put my 1 gallon Ball jars there. Things are still disorganized as a couple of shelves are still drying so I can’t put stuff back yet. But tomorrow I will.

We’re headed for a very nice week so I’m planning on a few BBQ meals on the new Weber. Since I’m doing the freezer challenge, I’ll plan on burgers and chicken at least once. I need to work on the monthly menu plan for April too.

I plan on having labs next Friday since I see my doctor on the following Wednesday. The light chain tests take 3 days minimum so I need to do it earlier than I normally do( which is Mondays). Then April will start Round 4.

B and my daughter haven’t started building the garden shed yet so that will probably be the project for this week. Mavis over at ‘one hundred dollars a month’ blog was writing about what containers to use for gardening and she mentioned the big galvanized bins. A couple of people said they work great and there’s less bending involved. I thought I’d check out how much they are. Most of our raised beds are 2×12 boards and they do break down eventually.

Flylady zone is the bedroom. I’ll do that tomorrow.

This looking down the driveway from the barn. Our neighbors now have their tent trailer up there. The sunroom is where we have our 4pm wine and cheese and listen to jazz or NPR.

Friday things…

I’m using up the dex energy to paint trim and the french door in the bedroom. Most of it done. I’m planning on painting the window trim as well and got most of one window done. I’ll do the rest tomorrow.

I’ve got the pizza dough in the bowl doing a first rise and then I’ll put it in the fridge till later.

I’ve been very frustrated about not getting ANY camping spots at all. It seems everyone in the universe now want to go camping. I’m in reserve america at 6:55 am and clicking reserve right up to 7 when it opens up and POOF they are ALL gone. I’m guessing people with faster modems or computers are just beating my Mac. Well, we might not be getting to Tahoe again this summer except for day trips.

I did order the garden shed from Costco at $999. It will be at least 3-5 weeks before delivery so that’s into April I’m guessing. I think it will be most useful.

My labs came back AMAZING. Get this. After one round of Velcade my kappa light chains went from 660.6 to 45.6. Ratio went from 60.1 to 3.65. Even my Dr was impressed. So this cycle who know but it is good news that the myeloma cells do not like VELCADE!!! I know it probably won’t always be this hopeful but for now it is and that’s all we really have in the end anyway, is this day and this moment.

Simple Sunday

We were supposed to have a PGE blackout tomorrow but it seems that the last message I got said it may not happen. We are supposed to have 70 degree weather and some wind. JFC, this is December 6, where is the rain?? I guess we would be ready. We do have what we need and our heat is mostly wood and propane so it would be ok. I just hope we get some kind of rain soon.

This week is the kitchen zone for Flylady followers. It is my biggest zone and takes the longest. Still, clearing your counters and keeping your sink clean will go a long way.

I have a Tartine bread dough started and will do that tomorrow. I used up most of the pieces I had frozen so I’m ready to do a fresh batch.

We been having fun opening the Bon Maman advent jams. They are the cutest little jars which of course I am saving for?? Well, I’ll think of something. Seeds? spices?

I’m planning on making a curry for dinner in my new Staub. I ‘ll make some rice to go with it and also a tofu curry.

Tomorrow I have my labs and I am bracing for the worst. I think if it is under 600mg/L I’ll be happy. Well, not happy but ok. If the same pattern emerges though it will probably over 600. Guessing almost 400mg/L now, so adding 50% ( that’s what it’s done,) will take it to 600 or so. maybe I’ll be lucky though but who knows.???

Well, off to do the first fold on the Tartine bread.

Simple Sunday

For some reason, I got a bee in my bonnet. so to speak, to clean out and paint our ONE closet. It is a good size, 4×6. I always wanted to make this a half bath with a small shower but that would mean digging up our septic and putting a bigger one in. That expensive just isn’t on the table anymore( unless we win the lottery, and since I don’t play, that’s not happening).

4E43A151-8540-4A7D-875F-0C64D31FC3BE.jpeg

E65AC179-127E-4A64-B91F-A205A62DE455.jpeg

CA76EF9A-B5C5-46FB-A53D-C52571047B53

1445ED3E-EC58-472B-A3E4-BD6E1861DBDA.jpeg

So we need to get a roller to do most of it. The Hardware store doesn’t open till 9am( here in town, not Home Depot). I have 1/2 a gallon of white and that may or may not be enough. We’ll start with the ceiling and then the clothes side. I’ll consider going into Home depot for more Behr paint or I’ll go tomorrow and finish the pantry side.  Getting the clothes back in would take priority as they are on the bed and the couch right now.

If nothing else it will get the dust bunnies out and freshen up the space which hasn’t been done, like ever.

Also here are the mylar bags filled.

 

These are really nice bags if you’re interested. The came from TheEpicenter in Oregon. They have a zipped part as well as the normal heat part. I read it can be tricky to do the heat but I had no problem. The oxygen tabs in them should pull the oxygen out in 48 hours. Some are already showing that but others seem the same. No matter they are sealed.  I already ordered another 20 bags since a few months ago you couldn’t even get these.

Tonight I ‘m making tofu burgers with macaroni salad.  I need to go to the store and pick up some burger rolls later.

Tomorrow are my labs. It’s been 8 weeks so we’ll see what they show. As I said before Myeloma just doesn’t disappear  so with my numbers increasing it’s a matter of time before I start Velcade and Dex.

Being off Facebook has been overall easy. Once in while I miss reading what people are up to but not a whole lot.

 

Off to paint!!!

Simple Sunday or same old same old…

We walked as usual. Lovely, early and no one around in the park. My favorite time.

Then I came home and put on jeans( which barely fit now) ugh:(, zipped into Auburn to go to Safeway.  No traffic except a few semis on I -80.

Safeway was not busy but there were no veggies at all, no dairy like yogurt, etc. I got most of what I needed. Ramen, bread, butter, cookies, deli stuff, salad pack, milk, cream, and some other stuff. But I was planning on bananas, cabbage, avocados, broccoli, etc. So I may go down to Holiday  Market later in the week. For now, we can have salad and we do have chard in the garden.  So all in all a good trip.  Most everyone had masks and gloves on but a few old men did not…. maybe they think the order from Placer Co. chief Medical officer doesn’t pertain to them like the imbeciles that are Trumpers protesting the sheltering in place order.  Darwin anyone??

Last night I made a split pea soup from the Palouse split peas. It was delicious. Palouse is a small family-owned company and I was able to get 5lbs of lentils and split peas. If you need these try ordering from them. They arrived very quickly and the price was @ $15 for the 5 lbs. I think.

Tonight’s dinner is unknown. My son wants to cook something so we’ll see. He’s a great cook and enjoys doing more gourmet stuff than I do.

The chickies are getting big and eating a bunch. We’re taking them outside and they are in a fenced area so they can run around. They seem to like that. They still need a heat lamp but our weather is supposed to warm up so they will move out to the sunporch this week.

Barclay’s labs have come back way better. Platelets have gone up and so did his hemoglobin.  The took him completely one of his drugs, Dapsone, so this may be why his numbers were dropping. So good news there. Also, UCD med center did give us a grant on one set of bills from last August. At least we think they did as we haven’t gotten any official letter from them but the billing shows the $1300 that was going to be due is not showing. Now only the last $500 is on there. So that’s cool, I hope.  Hopefully, there’s no surprise. I would like to have a letter that states that though.

The Flylady zone is in the bedroom, which, I’m about to get up and go do.

This week I’m planning on washing all the outside windows with the Outdoor Windex. You attach it to a hose and spray. I’ve been using this method for a few years and it works great.

 

My doctor’s appt is at the end of the month and I’m planning on it being a video appt. I’ll have to wait till I get directions on how to do it though.  I did read another Myeloma patients take on ratios and I think he was referring to one of the major Myeloma treatment centers, where one of the criteria is a ratio of 100. That’s what my doctor keeps saying but when my ratio was up in the 70’s I was in treatment with Revlimid. Oh well, mine is still under 10 so, that’s something I suppose.

 

 

Another sad day…

We lost Finnie yesterday.

F91687D3-1467-493B-9FCB-E8FEFEE6F3D6.jpeg

 

4BC83E01-6F8F-4B89-835A-B8DAA105BC0A.jpegAlmost a month exactly from when Ollie died. Finnie seemed to be doing okay. We took him to the vet and he did a round of antibiotics but over this last week he got worse. We’re not really sure what it was but he was acting very weird and then confused and not very aware of things. So we called the vet and he went to kitty heaven. It’s been a hard last 9 months with both dogs and now both our cats. The cats were 17 years old and were adopted together so maybe they were so bonded or something. Anyway, it’s lonely in the morning without them yowling for cream and food. I’m sure we will get some kitties down the road but not for a while yet.

I think pets teach us so much about life and death. Plus they are just present. A lot to be learned from that alone.

The weather is still blah. Not sunny not rainy. Just grey. We walked this morning and only the one other dog walker was there so that was nice.

My labs came in and it’s okay. My kappa light chains went to 110mg/L so an 18 point increase and Lambda went down to 12mg/L. Looking back over my labs since 2015 my Lambda never did go out of normal range but that’s because my myeloma is kappa. So now the ratio is up to 9.23mg/L  So going up.

I’m planning to not go down to Sac at the end of the month but the assistant said we could do a video conference so that’s what I’ll do.  Really nothing different is going to be said until he’s ready for me to start treatment.  Sigh:(

I’m going to make some cookies today and then move some pantry stuff. My order of flour should be showing up today. That’s a good thing as I’m starting a Tartine bread leaven and will need the flour tomorrow.

 

 

This is all very weird.

So we are home and not going out. I guess since it rained all day yesterday and right now it’s snowing I guess that’s ok.

My son was told to work from home. And my daughter is a librarian at Sierra college so I’m assuming they will tell her today to work remotely.

Our last kitty, Finnie, is sick with what seems like a cold but we can’t take him to the vet as it’s too risky for us so I hope he can recover on his own.  It would almost be too much if he dies on us.

I emailed my sister in Connecticut who has lung disease and she’s on quarantine as it’s very dangerous for her. She sounded good though. Her family is huge so hopefully, the grandchildren aren’t coming over.

We walked yesterday a little and then it starting pouring so we cut it short. I really needed to get out and walk so that was too bad. I will try again today if it’s pouring or snowing or whatever.

B has labs tomorrow so he needs to call and make sure he can go in to do them. He’ll need to glove up and put a mask on though.

This week is the bathroom zone if you want to follow Flylady. I had B clean the air vent and that was needed. I also cleaned as best I could behind the clawfoot tub. I can’t really reach it so I rubber banded a washcloth to a Swiffer thing and that seemed to work.

Still raining right now so no walk yet.:(

 

Friday Stuff

Happy Valentine’s Day!

We don’t do much special since I hate crowds and would not even consider a dinner out on VD day. I did buy some nice carnations at Safeway and some roses at Costco so they are on the table looking pretty.

D126A6A1-573C-4FEE-8D37-0AAA6677D393.jpeg

It’s been a maddening week trying to get a camping reservation. Every single morning ( including today) I have been on the computer at 7am on the dot( watching the second hand) to reserve a spot and absolutely NO LUCK!

There are so many people trying to get reservations for August that it’s almost impossible. Today, I’m trying for 5 different spots and not sure if that will slow down the computer. But if I don’t do the 5 then there’s no chance. I’ll update after 7am.

NOPE>>>>>NADA>>>>>ZILCH

Let’s see what else. Barclay had to go back down to UCD med center to pick up an immunosuppressant drug because he’s had skin itching and slight rash.  That’s the one he’s been off of since December so they don’t want any GVSH happening.  We’re also dealing with medical bills from August that the Cobra was supposed to cover and they don’t have it straight. I’m ready to just chuck it and make payments. We’ve been trying to get this squared away for months and they just aren’t getting it.   They keep saying he had 2 insurances but he didn’t an only had the Cobra. What a PITA>!

I’ve applied to the LLS for my grant for 2020 and that will pay my AARP supplemental insurance.  They do such an amazing job and I’m grateful for the grant. If I ever have to go back on Revlimid they would help with that co-pay as Revlimid is a tier 5 drug and runs about $20,000 a month. With insurance you need to go thru the donut hole and then still it runs about $1500 a month.  I can’t see me going back on Revlimid but who knows.

Speaking of which, my labs came back very disappointing. They almost double!! ( well the Kappa light chains did) so that is a very bad thing.  I see my doctor next week so I’ll see how he sees this change. My ratio went up too but still is overall low at 6.58 mg/L. It’s the ratio that is more important. Still, it freaks me out that myeloma cancer cells are activating and multiplying. WTF….  well, I knew it would happen sooner or later as Multiple Myeloma is incurable but can be held in check.

Today I’m just planning on staying home and doing somethings around the house. I need to mop the kitchen floor and wipe the bathroom.

Tonight I think I’ll make a pizza Margherita although I ‘d need to run to the market for some fresh basil.