Friday things…

I’m using up the dex energy to paint trim and the french door in the bedroom. Most of it done. I’m planning on painting the window trim as well and got most of one window done. I’ll do the rest tomorrow.

I’ve got the pizza dough in the bowl doing a first rise and then I’ll put it in the fridge till later.

I’ve been very frustrated about not getting ANY camping spots at all. It seems everyone in the universe now want to go camping. I’m in reserve america at 6:55 am and clicking reserve right up to 7 when it opens up and POOF they are ALL gone. I’m guessing people with faster modems or computers are just beating my Mac. Well, we might not be getting to Tahoe again this summer except for day trips.

I did order the garden shed from Costco at $999. It will be at least 3-5 weeks before delivery so that’s into April I’m guessing. I think it will be most useful.

My labs came back AMAZING. Get this. After one round of Velcade my kappa light chains went from 660.6 to 45.6. Ratio went from 60.1 to 3.65. Even my Dr was impressed. So this cycle who know but it is good news that the myeloma cells do not like VELCADE!!! I know it probably won’t always be this hopeful but for now it is and that’s all we really have in the end anyway, is this day and this moment.

Simple Sunday

We were supposed to have a PGE blackout tomorrow but it seems that the last message I got said it may not happen. We are supposed to have 70 degree weather and some wind. JFC, this is December 6, where is the rain?? I guess we would be ready. We do have what we need and our heat is mostly wood and propane so it would be ok. I just hope we get some kind of rain soon.

This week is the kitchen zone for Flylady followers. It is my biggest zone and takes the longest. Still, clearing your counters and keeping your sink clean will go a long way.

I have a Tartine bread dough started and will do that tomorrow. I used up most of the pieces I had frozen so I’m ready to do a fresh batch.

We been having fun opening the Bon Maman advent jams. They are the cutest little jars which of course I am saving for?? Well, I’ll think of something. Seeds? spices?

I’m planning on making a curry for dinner in my new Staub. I ‘ll make some rice to go with it and also a tofu curry.

Tomorrow I have my labs and I am bracing for the worst. I think if it is under 600mg/L I’ll be happy. Well, not happy but ok. If the same pattern emerges though it will probably over 600. Guessing almost 400mg/L now, so adding 50% ( that’s what it’s done,) will take it to 600 or so. maybe I’ll be lucky though but who knows.???

Well, off to do the first fold on the Tartine bread.

Simple Sunday

For some reason, I got a bee in my bonnet. so to speak, to clean out and paint our ONE closet. It is a good size, 4×6. I always wanted to make this a half bath with a small shower but that would mean digging up our septic and putting a bigger one in. That expensive just isn’t on the table anymore( unless we win the lottery, and since I don’t play, that’s not happening).

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So we need to get a roller to do most of it. The Hardware store doesn’t open till 9am( here in town, not Home Depot). I have 1/2 a gallon of white and that may or may not be enough. We’ll start with the ceiling and then the clothes side. I’ll consider going into Home depot for more Behr paint or I’ll go tomorrow and finish the pantry side.  Getting the clothes back in would take priority as they are on the bed and the couch right now.

If nothing else it will get the dust bunnies out and freshen up the space which hasn’t been done, like ever.

Also here are the mylar bags filled.

 

These are really nice bags if you’re interested. The came from TheEpicenter in Oregon. They have a zipped part as well as the normal heat part. I read it can be tricky to do the heat but I had no problem. The oxygen tabs in them should pull the oxygen out in 48 hours. Some are already showing that but others seem the same. No matter they are sealed.  I already ordered another 20 bags since a few months ago you couldn’t even get these.

Tonight I ‘m making tofu burgers with macaroni salad.  I need to go to the store and pick up some burger rolls later.

Tomorrow are my labs. It’s been 8 weeks so we’ll see what they show. As I said before Myeloma just doesn’t disappear  so with my numbers increasing it’s a matter of time before I start Velcade and Dex.

Being off Facebook has been overall easy. Once in while I miss reading what people are up to but not a whole lot.

 

Off to paint!!!

Simple Sunday or same old same old…

We walked as usual. Lovely, early and no one around in the park. My favorite time.

Then I came home and put on jeans( which barely fit now) ugh:(, zipped into Auburn to go to Safeway.  No traffic except a few semis on I -80.

Safeway was not busy but there were no veggies at all, no dairy like yogurt, etc. I got most of what I needed. Ramen, bread, butter, cookies, deli stuff, salad pack, milk, cream, and some other stuff. But I was planning on bananas, cabbage, avocados, broccoli, etc. So I may go down to Holiday  Market later in the week. For now, we can have salad and we do have chard in the garden.  So all in all a good trip.  Most everyone had masks and gloves on but a few old men did not…. maybe they think the order from Placer Co. chief Medical officer doesn’t pertain to them like the imbeciles that are Trumpers protesting the sheltering in place order.  Darwin anyone??

Last night I made a split pea soup from the Palouse split peas. It was delicious. Palouse is a small family-owned company and I was able to get 5lbs of lentils and split peas. If you need these try ordering from them. They arrived very quickly and the price was @ $15 for the 5 lbs. I think.

Tonight’s dinner is unknown. My son wants to cook something so we’ll see. He’s a great cook and enjoys doing more gourmet stuff than I do.

The chickies are getting big and eating a bunch. We’re taking them outside and they are in a fenced area so they can run around. They seem to like that. They still need a heat lamp but our weather is supposed to warm up so they will move out to the sunporch this week.

Barclay’s labs have come back way better. Platelets have gone up and so did his hemoglobin.  The took him completely one of his drugs, Dapsone, so this may be why his numbers were dropping. So good news there. Also, UCD med center did give us a grant on one set of bills from last August. At least we think they did as we haven’t gotten any official letter from them but the billing shows the $1300 that was going to be due is not showing. Now only the last $500 is on there. So that’s cool, I hope.  Hopefully, there’s no surprise. I would like to have a letter that states that though.

The Flylady zone is in the bedroom, which, I’m about to get up and go do.

This week I’m planning on washing all the outside windows with the Outdoor Windex. You attach it to a hose and spray. I’ve been using this method for a few years and it works great.

 

My doctor’s appt is at the end of the month and I’m planning on it being a video appt. I’ll have to wait till I get directions on how to do it though.  I did read another Myeloma patients take on ratios and I think he was referring to one of the major Myeloma treatment centers, where one of the criteria is a ratio of 100. That’s what my doctor keeps saying but when my ratio was up in the 70’s I was in treatment with Revlimid. Oh well, mine is still under 10 so, that’s something I suppose.

 

 

Another sad day…

We lost Finnie yesterday.

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4BC83E01-6F8F-4B89-835A-B8DAA105BC0A.jpegAlmost a month exactly from when Ollie died. Finnie seemed to be doing okay. We took him to the vet and he did a round of antibiotics but over this last week he got worse. We’re not really sure what it was but he was acting very weird and then confused and not very aware of things. So we called the vet and he went to kitty heaven. It’s been a hard last 9 months with both dogs and now both our cats. The cats were 17 years old and were adopted together so maybe they were so bonded or something. Anyway, it’s lonely in the morning without them yowling for cream and food. I’m sure we will get some kitties down the road but not for a while yet.

I think pets teach us so much about life and death. Plus they are just present. A lot to be learned from that alone.

The weather is still blah. Not sunny not rainy. Just grey. We walked this morning and only the one other dog walker was there so that was nice.

My labs came in and it’s okay. My kappa light chains went to 110mg/L so an 18 point increase and Lambda went down to 12mg/L. Looking back over my labs since 2015 my Lambda never did go out of normal range but that’s because my myeloma is kappa. So now the ratio is up to 9.23mg/L  So going up.

I’m planning to not go down to Sac at the end of the month but the assistant said we could do a video conference so that’s what I’ll do.  Really nothing different is going to be said until he’s ready for me to start treatment.  Sigh:(

I’m going to make some cookies today and then move some pantry stuff. My order of flour should be showing up today. That’s a good thing as I’m starting a Tartine bread leaven and will need the flour tomorrow.

 

 

This is all very weird.

So we are home and not going out. I guess since it rained all day yesterday and right now it’s snowing I guess that’s ok.

My son was told to work from home. And my daughter is a librarian at Sierra college so I’m assuming they will tell her today to work remotely.

Our last kitty, Finnie, is sick with what seems like a cold but we can’t take him to the vet as it’s too risky for us so I hope he can recover on his own.  It would almost be too much if he dies on us.

I emailed my sister in Connecticut who has lung disease and she’s on quarantine as it’s very dangerous for her. She sounded good though. Her family is huge so hopefully, the grandchildren aren’t coming over.

We walked yesterday a little and then it starting pouring so we cut it short. I really needed to get out and walk so that was too bad. I will try again today if it’s pouring or snowing or whatever.

B has labs tomorrow so he needs to call and make sure he can go in to do them. He’ll need to glove up and put a mask on though.

This week is the bathroom zone if you want to follow Flylady. I had B clean the air vent and that was needed. I also cleaned as best I could behind the clawfoot tub. I can’t really reach it so I rubber banded a washcloth to a Swiffer thing and that seemed to work.

Still raining right now so no walk yet.:(

 

Friday Stuff

Happy Valentine’s Day!

We don’t do much special since I hate crowds and would not even consider a dinner out on VD day. I did buy some nice carnations at Safeway and some roses at Costco so they are on the table looking pretty.

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It’s been a maddening week trying to get a camping reservation. Every single morning ( including today) I have been on the computer at 7am on the dot( watching the second hand) to reserve a spot and absolutely NO LUCK!

There are so many people trying to get reservations for August that it’s almost impossible. Today, I’m trying for 5 different spots and not sure if that will slow down the computer. But if I don’t do the 5 then there’s no chance. I’ll update after 7am.

NOPE>>>>>NADA>>>>>ZILCH

Let’s see what else. Barclay had to go back down to UCD med center to pick up an immunosuppressant drug because he’s had skin itching and slight rash.  That’s the one he’s been off of since December so they don’t want any GVSH happening.  We’re also dealing with medical bills from August that the Cobra was supposed to cover and they don’t have it straight. I’m ready to just chuck it and make payments. We’ve been trying to get this squared away for months and they just aren’t getting it.   They keep saying he had 2 insurances but he didn’t an only had the Cobra. What a PITA>!

I’ve applied to the LLS for my grant for 2020 and that will pay my AARP supplemental insurance.  They do such an amazing job and I’m grateful for the grant. If I ever have to go back on Revlimid they would help with that co-pay as Revlimid is a tier 5 drug and runs about $20,000 a month. With insurance you need to go thru the donut hole and then still it runs about $1500 a month.  I can’t see me going back on Revlimid but who knows.

Speaking of which, my labs came back very disappointing. They almost double!! ( well the Kappa light chains did) so that is a very bad thing.  I see my doctor next week so I’ll see how he sees this change. My ratio went up too but still is overall low at 6.58 mg/L. It’s the ratio that is more important. Still, it freaks me out that myeloma cancer cells are activating and multiplying. WTF….  well, I knew it would happen sooner or later as Multiple Myeloma is incurable but can be held in check.

Today I’m just planning on staying home and doing somethings around the house. I need to mop the kitchen floor and wipe the bathroom.

Tonight I think I’ll make a pizza Margherita although I ‘d need to run to the market for some fresh basil.

Stuff

What a week!

The colonoscopy went fine although there were polyps so I will need to do another in 3 years? 5? not sure, as I haven’t gotten a message from the doctor yet. Oh well, the best-laid plans of mice and men:(

Now I’m feeling under the weather. I think my body just saying enough already and to rest. On top of the 2 days of jury duty last Thursday and Friday, then the colonoscopy prep on Monday and then out the door Tuesday at 6:30 am, all a bit much for me.  So today I’m just going to take it easy and drink lots of lemon water.

I am going to make marmalade although no one locally has Seville oranges. I’d probably need to go to Whole Foods down the hill and I’m not doing that.

The budget is set for February and I did take cash for groceries for the week.   I’m going to budget $125 a week. I went to Target yesterday and bought slice cheese and a few other things but other than that haven’t spent any extra money.

We were thinking of going to the coast but now it looks like it’s going to be a little too cool so probably not. Cool is around 50degrees.556B21DA-3A6C-409A-855E-C00C782CA2F6.jpeg

This was one of my Christmas presents as I’ve always wanted a French candle. Clearly not frugal but lovely. Would I get another, No! It had a lovely fragrance but the cost didn’t really justify that. Well, now it’s a pen holder. I also have always wanted a Jo Malone orange blossom candle. it’s in the same price range so probably not.

I have an appointment for my labs tomorrow. Oh, joy another test. Probably not good news so, WTF, right?

Simple Sunday

Whew, jury duty was brutal. We ended up a hung jury as one juror was deadlocked. I at first was on the not guilty side and then after reviewing all the evidence went with a guilty verdict. But it didn’t change the outcome as a mistrial was declared. Not sure how the lawyers proceed but that’s not my worry. I was completely wiped out by the end.

It’s raining here quite hard so no walk today. The Frogg Toggs I got for Christmas needs to be returned as they don’t fit quite right. So no walking today unless it lets up( just checked weather and no letting up).

I’m planning on going to the gym today as tomorrow is my prep day for the dreaded colonoscopy.  I’m sure I’ll get thru as I’ve clearly been thru worst.

I need to get my labs done this week too and think I’ll plan on Thursday.  I see my doctor in February(middle) so there’s time but I like to know my results before. If it continues as it has been my rise should be around 11 points taking me to @ 65mg/L Kappa light chains. The ratio will probably go up to. I actually feel ok but Myeloma is tricky that way and that’s why some people don’t get diagnosed till a fracture like I did. Well, no sense worrying about that now.

Yesterday I made lovely baked potato soup. It came out great. I used the Vitamix to blend and it came out very smooth. Tonight I’m making breakfast for dinner to keep it light. Just scrambled eggs, maybe pancakes and/ or toast. I might do some of Adelle’s chicken sausage as I need to use that up.

 

What’s next?

This is a busy week with appt’s almost every day.

Today I have an appt at DMV, yes, the dreaded DMV, to get my license renewed and try and get the real ID. The real ID requires a certified birth certificate and lots of other proof pf residency things. One reason I persisted in the NYC birth certificate debacle is I knew that this was coming. So we’ll see how it goes and I’ll report back.

Tomorrow is clinic and labs and my daughter has volunteered to drive.

Wednesday I see my oncologist so I didn’t want to have to drive 2 days in a row. I’m going to go over my old lab results when my light chains were over 1,000 mg/L. I just want to hear his assessment of when to be more concerned. I’m guessing he’ll say the same thing, that when my numbers are much higher.

Then Thursday is open.

Friday is back down to the urologist for an endoscopy to see if there is any blockage or how does the prostate look? It is an office procedure so no sedation.

We also need to get the oil changed in the car and will do that Thursday. B said he’d go. So that would be his first time out driving the Santa Fe in a while. He’s definitely able to do that now and isn’t shakey. So progress!

The zone this week is the living room and I finished that yesterday. Since our front room is small and there’s not a lot of clutter I was able to finish it in about 15 minutes. I washed windows, dusted, checked my plants and washed the mirrors. That’s about it. I do look regularly what to declutter but right now I’m content with what’s in the bookcase and also the Heywood hutch. In the Heywood is my pinecone ware so that stays. I do love looking at it and using it too!