It was a rainy day and I had to drive to Sacramento for my oncology appt. The drive was slow but not too bad. My appt went well. I’ve had Dr. Laptalo as my medical oncologist since I was diagnosed in 2005. He was a fellow then and then later board certified. He’s a good person and I trust him. Again, it’s really just waiting till my numbers are higher to start anything. That’s ok. He did recommend I have the colonoscopy after the diverticulitis bout. So I will schedule that for January or even February. I had him look at my CT scan with contrast and he said there was nothing unusual. So that’s good.
Then I came up to Rocklin and went to Walmart to exchange the flannel shirt I had picked up by accident in XXL. That is way too big for B. Then home.
Tomorrow I have a gym day and then some errands. I need a candy thermometer to make the peanut brittle and I need to go to the bank.
I am feeling somewhat frustrated with the house and it starts to feel really small this time of year. It’s usually when I start looking at decluttering more or at least moving some things around so there is more space. Winter/rainy days do make things seem closed in. Well, that too will pass.
Dinner is veggies and one of the cheese fondues. It’s not the one I usually buy so I thought I try it tonight.
A calm and rainy day ahead. Rain is indicated for most of today but at least it’s not too cold yet. We managed a walk in the park yesterday between storms and it was pleasant. I’m not used to being there in the late morning so things looked different:)
Yesterday, the baking bug hit and I made some chocolate chip cookies, the dough for sugar cookies( in the refrigerator now) then I prepped dinner, which was chicken with mushrooms and finally assembled two casseroles of enchiladas for tonight’s dinner.
The week ahead is not too busy. B has clinic on Tuesday and then after that, we’re going to shop Trader Joes. I plan to do Costco later in the week. I plan o getting what we need for Christmas dinner. Our tradition is fondue Christmas eve and then cheese lasagna Christmas day.
Today is a gym day.
Plus it’s the kitchen zone for those that follow Flylady. I’ll do some today and some tomorrow. It’s raining so no walk this morning.
It’s raining and I’m not walking and it’s 5:30 am. I haven’t bought the Frogg Toggs yet so I don’t have any rain gear. I guess I’ll get my ass in gear and do that this week as I don’t mind the rain as long as I’m covered up.
It hasn’t been a great week. I had some pain in my side last week and it turned out to be a mild case of diverticulitis. So now I’m stuck on antibiotics which wouldn’t be so bad but there’s 2 and one is one that is NO alcohol(wine for me) as it will give you a violent reaction. So not fun for me as I love my ritual of wine in the evening. Well, maybe change is good.
Then my CBC and CMP came in and they were all fine. Unfortunately, my Kappa light chains went up another 11 points to 55.7 and Lambda went down so that means the ratio went up( not good) to 5. 1. I’m not freaking out but it’s clearly not a good sign. Treatment is out there again the question would when is my doctor going to think it should start. He still seems to think my numbers too low. They are low and I don’t want to start Velcade soon but time is ticking and I don’t want to have fractures or let my numbers get too high. Granted they are still low as when I started treatment before they were over 1000mg/L. I guess it’s just wait and wait some more.
I did do quite a bit of house tidying this morning. I decided I needed to do something or I was going to go stir crazy. So I swished and swiped the bathroom, tidied my office area, mopped the kitchen floor and washed some of the entryway windows. I plan to go out and put on the gas heater and clean the sun porch.
Well, on that depressing note I’ll close.
It is rainy, rainy and rainy. The temperature is dropping too. My daughter is planning to work on Tuesday but I think the freeway will be closed and travel to Truckee unlikely. I guess we’ll see.
Today B has platelets and I’m going to go to the gym. This infusion goes relatively quickly.
We got quite a few applications from the Social worker to fill out for assistance such as PGE’s medical rate, handicap placard for when he’s going to the hospital and afterward and an American Cancer one that might have some assistance. We’ll see how any or all of that goes. I’m still planning to do a GoFundme but just haven’t gotten around to it. Based on what the social worker said the month housing will be around $2000. Plus we will have to cover the expenses of the bone marrow retrieval( plane flight, hotels, etc). That’s if there’s a match.
Lots to consider and think about. But one day at a time and one foot in front of the other or just keep walking:)
This week is the kitchen zone and I may start that when I get home from town or I’ll start tomorrow. One thing about simplifying and decluttering, cleaning goes much faster when you have less. I’m still loving the open shelves and love the bright white. Even if and when we do a remodel I would keep open shelving. It makes things more organized since you can see what’s there. The things in the metal bins are organized such as tea, coffee, spices, so I know which one is which. I think it’s working out great and I’d encourage you to try if you’re looking for a change up in your kitchen. Initially, I did freak out and it took 3 coats to paint the shelves but it was worth it.
We don’t have cable so I’m not sure if we’ll find the super bowl to stream but honestly, I don’t even have a clue about the 2 teams. But the ads are always great and quite clever.
Well, off to town in the rain:( I really hate driving in the rain.
Well, it has stopped raining for now, and so far no snow. So that’s good news. I’m going to the gym this morning to make up for my workout yesterday.
I shopped yesterday at the Holiday market here in town, so I don’t need any groceries. As I mentioned before, we are so lucky to have such a great organic market plus a great deli. They also carry Smart Chicken which is the only chicken I will buy. They also have a great wine section and carry Boars Head cheese and meats so really a win-win.
The second zone this week is the entry ways and right now the sun porch is quite messy with rain gear and fire wood and misc. Since it’s cold out there, it’s just going to have to stay that way till it warms up a little. The front entry is also messy with just debris from the storm. That’ll have to wait to be swept till the storm moves out Sunday.
I have one load of laundry to do and a quick vacuum.
I completely forgot to update my Light chains results. I finally got them this week and they are all NORMAL!!! The ratio is 1.1 so that’s great news!! So Happy!!!Yay!!!
Tonight is a homemade pesto pizza with pine nuts.
I went for my walk, as usual, but in the rain. It wasn’t too bad as I do have rain gear I wear. ( Frogg Toggs). If you’re equipped it’s okay. My North Face hiking shoes are gore-tex so my feet stay dry. If the wind is blowing then it’s harder but it wasn’t too bad this morning. We are 90 days away from hitting the 5-year mark of the JKW project.
The rest of the week still looks rainy and cold with more snow forecast for the end of the week. WTF, this is not normal. We always have some cold weather but this just seems like its going on and on. Oh well, I guess just enjoy it as much as you can.
Today is a relaxed puttering day. I’ve made some turkey chili for tonight and it’s simmering away. I hardboiled some eggs for snacks or lunches. Then yesterday I made hummus in my old Waring Blender. I got this blender back in the 80’s. So I thought gee, I wonder if this would make the hummus as creamy as the pictures from the Vitamix blender. And I ‘m happy to say it did. I’m still going to check out the Vitamix as I think making nut butter would be cool. Any recommendations a model?? Costco has a few models so I’ll look there first.
Then I’m doing 1x laundry and a few Monday chores around the house.
I have gotten back some Labs and they look good. My CBC panel looked great and the SPEP test came back normal but I had to e-message the doctor as I pretty sure the light chains got lost somewhere. Maybe today.
I -80 still had westbound traffic closed last night so my daughter spent the night in Truckee. The mudslide was still unstable so they were detouring cars to Nevada City. The night before it took her 4 hours to get home. So, fortunately, Dad has points at Best Western, so she stayed for free. The doggies missed her. And her cat Ollie.
It’s cloudy again and the rain is supposed to move in tonight. Ugh, I’m sick of the rain.
Walking has been nice without rain gear and an umbrella. Sunrise is getting earlier and earlier. Today it was 6:56 am. We are getting to the park earlier too and it’s light. We haven’t walked in the dark in a few weeks.
We had a nice homemade Valentines dinner a la Julia Child. I made JC’s crepes and did a florentine filling with spinach, mushrooms, and goat cheese/ cream cheese filling topped with a cheese sauce. Then I made an old fashioned chocolate cookie wafer refrigerator cake. (Basically, cookies and whipped cream). Nice. Actually, we’re having the leftovers tonight so I’m not cooking.
I forgot to take the put together picture but you put the mixture in the crepe and roll up. Then like enchiladas add the sauce on top. The mixture looks fairly wet but it wasn’t.
I thought of going to town and doing some errands but in the end just stayed home.
Okay, not very exciting. Raining, Raining, Snowing, Raining. I guess it’ll stop someday. Or is this another flood meant to sweep us away so we can start fresh without Trump as President. ( oh sorry) … Well, it is a thought.
So even my daughter who drives in the snow a lot can’t get to work as I-80 is a snowmageddon. It looks like she won’t make it tomorrow as it’s worse. I think this is only the 2nd time she hasn’t been able to drive up to Truckee.
I’m going out to the gym as we only walked a mile in the pouring freezing rain till I said,”ok, that’s it”. So I’m going to add some mileage on at the gym. WE’ve had 2 no spend days, easy when you’re just home. Today is a few groceries. Tomorrow, no spend. So hopefully it’ll make us more aware of our spending habits.
Dinner Tamales and Mexican rice and some leftover Chicken tortilla soup. Not exactly tacos but Mexican at least.
Well, we’re home and had a very nice time in Tahoe. It’s amazing how the drought has affected tahoe. It is the lowest I’ve ever seen. I do hope El Niño brings us much needed rain. We spent too much on food. I had planned breakfast at the condo but we ate out. Ouch! How much can breakfast be for 4 adults. . . Too much. But the place is great. And we walked in the morning although not super early. Even today we weren’t out till 6:30. Pretty late .
But the exciting news is it rained last night so every thing is nice and wet. Yeah!! My sister leaves tomorrow. Tonight we’re having spaghetti . Next week will be eat out of the freezer and I’m not planning on taking grocery money till I really need it.
I did get back my labs and nothing great but nothing went up. M protein went down a tenth .8 ok, not great. My kappa light chains went down to 930 from 1140 so 200 points. So I’m grateful but it did that before and then the next cycle went back up. I think I want big results and I need to be ok with stable. I see him next week and I’m sure he’ll say stable, we will do another cycle. Someone posted on the myeloma Beacon about doing pomalyst with krypolis and getting great results. I don’t think he’ll do that. But I’m reassured that at least things are stable. I guess we all want big results and m proteins at .0 and kappa light chains in the normal range but alas it isn’t always so.
today, I need to do some serious Flylady and then after Heidi leaves declutter and clean.
Here in northern california we’ve had some really awful fires in the Napa area. Over 400 homes have burned and many displaced families pets, horses, wildlife . Our air had been very smokey. But great news, this afternoon the weather has change. Cooler and we actually got rain. What a blessing.
In other news, tomorrow , I get another CBC panel to see what my neutrophils are. But the update isn’t good. At least in my opinion. My m spike remained at .9 , so that was good. But still on 4 mg of Pom , I hoped to get a response. And my light chains went from 890 to 1040. He wants to do another cycle, so I will, but honestly, I think Pomalyst really isn’t going to work for me. I’m not looking forward to the next line of treatment but , that’s what’s in store. I’d be pretty shocked if Pom drops my numbers this cycle.
So, we went to Ikea yesterday. Always really a fun place to look at all the arrangements they make and neat things. We got the doors for the Pax closet we bought years ago and well, never finished. And some curtains for my daughters redone room. If you need curtains at a totally reasonable price, IKEA is the place. Both pairs with 2 curtains were 29 each. That’s a great price.
Tomorrow, I’m dropping off a huge load to goodwill and then some items to the Cancer thrift store that are too nice for goodwill. One is a brand new spiralizer ,used a few times, and the other a brand new mandolin for vegies. After I cut my self on the mandoline, I decided it wasn’t the kinda kitchen tool I wanted to keep.
I can use a knife or a veggie peeler to make ribbons. ( which I don’t really do. )
It was Rosh Hoshannah yesterday at sundown. This is the Jewish new year. Of course we’re not Jewish but for some reason I like the Jewish holidays a lot. So L’Shanah Tovah!!! Happy new year.
I like to think this is the beginning of a new and healthy year. We shall see.