We’re off to Sacramento for Clinic and Labs. B still has diarrhea going on but the Predisone and Imodium should help. We think this is a small Graft vs Host going on since he is now off one of the anti-rejection drugs, Mycophenolate. At least it isn’t getting worse. So, all in all, that’s good.
I had thought to stop at Costco on the way home and I still may do that. It kinda depends on how long we’re at clinic. I really need to get my receipt in there as I was charged twice for 2 things. That’s always awkward as I feel like ‘will they believe me’?? But, like I said, it depends on how I feel and what time we leave Sacto. B just has to sit in the car, so that is something to consider too.
I filled out my LLS reimbursement form using SS for the first time. I probably did it wrong and they’ll kick it back. I found, after I submitted, their list of what was needed and I didn’t copy the cards just the payments, so that’s probably what they’ll need. They can be quite fussy about it but then again, they are giving me money, so I guess it needs to be done to the letter. I’ll just wait and see 😦
I started emptying the tent trailer and put some things in the barn. I’d like to completely empty it and wipe it down and then evaluate its condition. B likes to take his naps out there so I don’t think we’ll close it completely down.
Well, I guess it’s time to get going!
I thought I’d do a quick review of this vacuum. We needed to get something different than the little mighty mite vacuum. BTW, the mighty mite is a great little vacuum. But their design changed and quality from when we bought the first one a long time ago.
It’s at Costco for $299. regularly $379. So $80 off.
I just checked the website and they are sold out online. It must be a popular item. So, it is very powerful and really sucks up the dirt. Actually, it has continued to suck up dirt from the small area rugs we have. I’m thinking it may be time to replace that living room rug as it was originally just a remnant someone gave me. It is a good size though at 8x 11.
I also used a few attachments and they are good to get into hard to reach areas. I didn’t put the attachment on the ‘stick’ end so I ended up leaning into corners so I won’t do that again.
So far, I like it and I like the cordless aspect a great deal. It’s easy to move around and it seems very well made. I also like it hangs on the wall and is out of the way.
It’s Monday, so it’s home blessing day which means dusting, cleaning mirrors, vacuuming, and towel day( to wash). I also try and make up some menu plans for the week.
We need to be out by 6:30 so we can get his labs by 8:00 am in Sacramento and then clinic is at 8:30am with the NP. I think we will be out quicker this time.
Speaking of labs my numbers came back with another increase:( So Kappa is at 25. Lambda went down to 11.3 but with that, the ratio went to 2.25. It’s still not alarming numbers and only slightly over high normal but it is a trend for sure. High normal for the ratio is 1.65 so .6 over. I’m sure my doctor is not worried at this point and I see him next week so we can talk.
Anyway, this is a good lesson for me to not obsess and just know treatment will resume at some point. I’m actually proud of myself for not being too nuts about it. I guess that’s a good thing?
After clinic, I’m going to the gourmet store called Corti brothers. When we first moved to California in 1975, we would shop at the other Corti bros location. I had just started graduate school at Sac State and we practically lived in Sacramento. We were living in Foresthill(the same area we’re in today but not the same direction) and I was driving down 2-3 times a week. Back then there was little traffic on I-80 at night and during the morning. Now any time of day I -80 is crazy. Anyway back to Corti Bros. So when I was at Kiwanis house and shopping over at Save Mart, I looked over and saw the sign for Corti Bros. I wasn’t planning to go in till the person who owns the RV said ‘Hey, you should go into Corti Bros. ” So I did and first, the deli is amazing and I discovered they have the French ham I have always wanted to try. Of course, I thought I’d have to go to France but no, here it was. It was amazing. Since I do love cooking and food, it’s a fun store to look around in. Today, I’m getting some olives from their amazing olive bar and some special burger blend for 4th of July.
All in all, it should be a good day!
First things first, TODAY is my 14th year since diagnosis. I was standing in our driveway and Barclay took the phone call from the awful doctor. Doesn’t matter, here I am!!!! So onward. Next week I get my labs in the middle of all this and we’ll see what my numbers do. Up or down??? I’ll deal with it one way or another.
It’s the weekend and B has no labs till Monday so we can relax. I’m heading over to Ikea as they charged me for 2 paring knives but I only bought one. I’m not sure how that will work but I’ll try. Plus I bought this darling fold out bed for our daughter to sleep on here but then discovered that the couch does fold down to a bed. Okay, Barclay figured it out I just kinda looked at it and didn’t connect the dots. Oh, well. So I will return that(insert sad face as it’s really cute). But I don’t need it now and then at home I’d have to store it so, decision made.
It’s all going really well and so far and now it’s just waiting till we can go home. Although next week is labs one day, clinic the next and then repeat so going home isn’t too feasible.
Tomorrow both kids are coming down so we can have Fathers day here. They are doing a great job keeping things going at home. Which, surprisingly, is a lot of work mostly due to having pets, chickens and large garden areas.
We are off for a small walk and BTW Sacramento is having a serious cool down so we are VERY comfortable…. Todays high is only going to be 84 so really nice.
We had a quiet Memorial Day.
My brother died in Viet Nam in 1968 so I thought about him. He was a talented artist. What a waste. He also couldn’t get a deferment even though he had a heart problem and at that time was working full time to support my mother. I guess Donald Trump got the deferment for his bone spurs. I guess he had enough millions to pay off a judge. Well, I guess that tells you something about my brother being killed in Viet Nam and Donald Trump whining about a bone spur.
It was cloudy to start but then eventually the sun came out. We BBQ some burgers and I made some coleslaw. My daughter made us some strawberry shortcakes for dessert later. We generally don’t eat dessert so this was a nice treat.
I didn’t drive to Sacramento and missed seeing B. But I’m going down today and all the rest of the week except Friday. I think my daughter will go on Friday unless her new job starts. Her library interview is next week and this job she is doing is only temporary thru June.
Everything is lining up for us to have the RV. I just ordered some camp chairs as I don’t want to use the owner’s ones for risk of them being stolen or damaged. We needed new ones anyway.
Flylady zone this week was the living room. That’s an easy one for me as it is almost where I want it with functionality and minimalized. I try and do one thing in each zone that’s new or improved. So this time I moved the Ikea cart out and put it in my office area. It holds our wine bottles( which have been reduced to one Chianti, that we don’t drink very often) and we kept our silverware in Ball jars there too. So, I’m going to try it and see if we NEED it back or can the space just be open( white space). I guess we shall see. Right now in my office space, it has a plant on top and that’s it so, that probably isn’t very efficient either.
I’m planning on going to Sac Co-op this morning for veggies and olives from their olive bar. But it kinda depends on my mood as I get closer. Nothing is critical that I need so we’ll see. (How’s that for being indecisive??)
Dinner is chicken enchiladas!
Over the next two weeks, it looks like rain and cool temperatures. I get so used to it being like 75 or high ’70’s that I forget its still only May.
Still, we usually have all the coolers in the windows by now. B only put the living room one in and then our son or daughter will have to do the rest when B is in the hospital. But it looks like it’s going to stay cool all the way to Memorial Day. Our yard does look it’s best this time of year with all the roses, and perennials blooming.
A couple of projects are done. One was to paint the french doors( that we got free many years ago) Behr’s Ultra White. The hardest part was taping all the squares. Still, after 2 coats it looks fresh and clean. I must have painted one set before as the second coat on that set looks better than the other doors. But after 2 coats I was done.
Next year I can do a fresh up. Then B fixed one of the sunroom windows that actually is on a hinge to open for circulation. But it had some water damage and didn’t open so he took it off and rehung it. Cool!!
We also touched up the bathroom paint and it looks good enough I can hold off painting the whole thing till next year. In the past, I’ve tried to paint each room or a few rooms on rotation. But not this year. One thing though, going to a whole house inside color ( Benjamin Moores Simple white has been great.
Today B has a CT scan of his sinuses that they forgot to do in the last CT scan.( ah really?? forgot??? Then we have a load to take to the food bank.
And we’re on count down to Friday:(
Today is another nice day here in Northern California even with it being partly cloudy. quite nice at 77 degrees.
So far I have cleaned the clawfoot tub with Bar Keepers, made the pizza dough for tonight, started laundry( my daughter did), and cleaned the stainless steel appliances.
Next, I need to vacuum and maybe dust.
Yesterday we went to Home Depot and got some things for the yard. Two new chairs, some flowers, and soaker hoses and a timer. We’re going to try setting some things on a timer with the soaker hoses in order to conserve water. We are on town water and it is ridiculously expensive.
We went for a coffee at the newest place in Auburn called Pour Choice…
It was nice and the company was good:)