Simple Sunday

We were up and out at 7:30 to get to the infusion center and then I came straight home to do my Sunday chores.

I did the bathroom zone, vacuumed, tidying the kitchen counters and did some emails.

Then I went back to town to go to the gym and Target. B has to have blood and platelets plus the Dacogen so it’ll be a long day for him. Either my son or daughter will go get him around 3 pm.

I don’t think I’ve mentioned that I did get an Instant Pot and have really liked it so far.  I’ve done rice a few times, a chicken salsa recipe, a whole chicken, and last night I did spaghetti. The spaghetti sounds weird but actually, it was quite good. Plus, I sauteed the ground beef in the instant pot then put the spaghetti is and then homemade sauce.  It was really quite delicious.

Today I’m going to do brown rice and I may try hardboiled eggs too.  The whole chicken was very moist but I think overall I’d prefer a roast chicken. The time factor though is pretty amazing. I think since it’s really a pressure cooker the flavors are locked into whatever you are cooking.  I wouldn’t say I absolutely love it yet, but I have enjoyed the things I’ve made. I haven’t tried beans yet and for me, that’s probably the deciding factor.

This coming week shouldn’t be too bad with appts. B has chemo tomorrow( the last of this cycle), then Wednesday I have the appt with the Medicare person, so that’s it overall except B’s labs.

The weather is supposed to be cold and rainy/snowy so I’m not looking forward to that.

All I can say is “WOW”

My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.

I am so grateful for everyone’s generosity.  I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.

Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.

The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.

I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.

The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills.  So I guess our electric bill will be sky high too.

Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:

  • 1x laundry a day washed, dried and put away.
  • counters kept clean
  • dishwasher emptied either after it runs or in the morning
  • tidy each room
  • make bed
  • wipe bathroom
  • do a daily budget
  • in the morning check what appts are for the day
  • I also plan dinner what I’m making in the morning

It really does help to keep routines and to simplify things.

Well, I’m off to do a few of those things now as we were out all morning.

 

 

 

 

 

Simple Sunday

A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.

Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.

Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.

Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.

This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in.  So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.

Off to tidy up and then read.

Oh, I’m reading the last Henning Mankel book,’After the fire’.  His writing is just amazing. It is so clear and precise. Yet, very poetic.

Friday Stuff

I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.

Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.

Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.

 

I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.

The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener.  But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.

If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker.  It was superb!!!

Well, off to town.

 

 

 

Here in soggy California

So still raining, but today is supposed to be sunny and then back to rain. UGhhhh, I really do get sick of it. Plus the yard looks rather sad and really needs some picking up. I did clear off the patio the other day as it looked like everything had been tossed on the patio table in hopes of someone tossing it. That turned out to be me. It all still looks forlorn and I’m seriously thinking of hitting up Home Depot for some kind of winter flower or plant to spruce it up. Anything to bring a little cheer to the front door area. Our entry is weird enough that the front door is on the side of the house and we have a gate from where we park cars that we walk thru so the angle is always weird. Plus the patio is right there and that adds to the visual clutter.  The original front door was where the porch was that we rebuilt and enclosed when we were remodeling. It’s all done with 2x 6s so it’s code but it wasn’t in our final.  I suppose if we ever were to sell we’d need to do something but that’s neither here nor there yet.  so that door which was the main door also was placed weird that it faced the lawn that was there and not a driveway either.  So now that door goes into the front room and the other room is my office. But originally that was daughters room. It’s actually quite cozy with french doors on one end. The floor is wide planked pine that B put down over the concrete floor that was there.  I suppose if we ever had money a proper remodel would be nice.

Anyway, enough rattling on about that.

So far this week, we’ve had the oncologists/hematologists appt and that went well. She took pictures of poor B’s mouth. We asked for a pain prescription and about other stuff and she was very thorough. From the second BMB, there were no other FISH (genetic anomalies). So it looks like it’s the 7 q deletion plus excessive blasts( that’s the bad part). She’s also hoping that after this second round of chemo the good cells will start winning over the bad cells but that remains to be seen.  He had another transfusion on Monday and starts chemo today. So the next 5 days will be constant. Hopefully, though, it will go smoothly. His counts are so low that risk of infection is there. So far he’s done fine except for the mouth sores.

I had my DEXA scan and shall see how the bones are in a week or so. Honestly, who cares at this point if I’m pre-osteoporosis.  Or maybe it’s there already.  I would just have to see what the doctor says about what to do with medicine.  Because I’ve had so much Aredia and Zometa, that can actually affect the bones sometimes in a negative way after years of treatment. So we’ll see.

I finished watching the ‘Tidying up with Marie Kondo’ and it was really fun to watch. Amazingly, B did all his clothes, which were not a lot, but still, his drawers and closet look absolutely great!!! If you can watch it, I’d highly recommend it. I do think there are other methods of decluttering that are just as good or for some better. Some people do room by room and that works too. I think because I had done so much decluttering starting with Fly Lady, that when I got to Marie Kondo’s method it wasn’t overwhelming. But if you haven’t, I could see getting out every book you own would be daunting.

So off to the gym today, drop B off at infusion and then go get chicken food.

Last night I made a Thai Chicken soup and it was delicious.  If you have leftover chicken and a can of coconut milk, I’d highly recommend it.

 

Simple Sunday

So far the no-spend month is going fine. I’ve been to the store a few times but nothing extra. I need to go to Costco this week for TP and some fruit and greens for the Vitamix but that’s all(I think).  I’d like to hold off as much as possible but I’ll be down in Roseville on Wednesday for a Dexa scan. So, that maybe when I go.

Things have been rainy and windy here. It looks like the next 10 days are rained filled. I walked this morning and it was quite lovely and it only started sprinkling when I left.

I made a yummy split pea and ham soup last night. I didn’t make a vegetarian one as B isn’t eating much. Once again, I made him some scrambled eggs.  I don’t make Split pea often and this one turned out quite delicious. There’s some to freeze and maybe lunch today.

Tonight I’m making chicken parmesan and some pasta. No salad as I bought a clamshell pack at Grocery Outlet and it was all funky so I gave it to the chickens.

This week is the kitchen zone. So I’ll start that today. Plus it is sheet day. We only have one set of sheets so I wash and dry them and put them back on the bed on Sundays. I am going to get some new sheets but just not sure when. I was waiting for Target to put the linen/cotton blend on sale but so far haven’t seen it.

This week is full of appts which I do not like. But they are necessary and B starts his next round of chemo on Thursday so that means out every.single.day.  I’m sure my daughter and son will help with the driving when they can.

 

Oh geez, I forgot to update about my damn birth certificate. They returned it (after 6 weeks) REJECTED because the second page of the decree was not included. The clerk had told me, it wasn’t generally ever asked for. Plus they wanted our original certified marriage license WTF I don’t know.  This has been one of the biggest BS things I have ever been thru. So on a whim, I drove down to Roseville to the justice center and expected to wait hours till I could get to the recorders window. Much to my surprise, I sat down after taking the ticket, and I was called in about 2 minutes. I told the clerk what I needed and she said sure. She said it’s rare anyone cares about the second page. So I got what I needed, came home went to the post office to get Priority envelopes (again) and loaded it up and sent it off. I would hope this does it but I’ll keep you updated(probably in another 6 weeks???) What a PITA…..

Well, off to the kitchen zone…

 

Wintery days

It is very cold and windy here but the sky is bright blue. Very California-y winter day.

We had a lovely Christmas and although I was going for complete minimalism, that didn’t exactly happen. But I think it was just the right amount of gifts and they were lovely. I received some new silicone spatulas( much needed), the DVD of Gone with the Wind, of course, the Vita-mix which I am absolutely loving and a Vitamix cookbook plus Ina Garten’s new cookbook too.

Gone with the wind by Margaret Mitchell was a book that shaped my outlook on life as an 11-year-old. Not the racist part of slave owners but the struggle to keep what was of value.  I was telling my children, that we actually went to NYC to see the movie at Radio City Music Hall. At least I think it was RCMH, not completely sure.  I must have read the book 10 times growing u along with A Tree Grows in Brooklyn.  Both were huge influences on me.

Anyway, then we had a great lasagna, cheese manicotti, a salad, and bread.  B is not drinking any alcohol with his treatment stuff so my daughter and I shared a nice chardonnay.

His numbers have been tanking and it’s mostly due to the chemo which is good that it’s working but until the good cells out do the bad ones, he will need more transfusions, unfortunately.

 

I drove down to Sacramento for my oncology appt and traffic was practically nonexistent and I made it in record time. All my labs are normal so I’ll see him again at the end of February. He was informative about MDS and did encourage us to have the brothers checked for being a possible donor. He said it’s a simple blood test to check that first. It will give B the best chance of success if one of them is a match. I guess we will swallow our pride and ask although I said that doesn’t mean I want to have them in my life. So we shall see.

It also appears the best route for working is not working and going on disability so we will do that next week.  At first, I thought B could work between appts but there is no letting up right now with needing transfusions and platelets. Plus he can’t risk being around anyone who might be sick.  So hopefully it goes quickly and smoothly which I think will happen.

Tonight I’m making a spinach soup using the Vitamix and it came out silky smooth. The recipe is one of made many times from the mystery cater stories by Diane Mott Davidson. I tell you, if you’ve thought about one and are undecided, I can tell you it is really amazing. Plus I’m baking potatoes and 2 small pieces of wild Alaskan sockeye salmon.

The tree is down and the ornaments away. The little live tree I’ll have B move this weekend as he will need the dolly to move it.  So, the house is back to it’s clean and tidy self.