Yesterday we went to clinic and everything looks good for Barclay. Nothing new or unusual. One of his anti-rejection drugs has been hard to regulate and its number was up again, but the doctor said to keep on the same dose. Actually, his energy level is noticeably increased and his overall demeanor is more present!!! He is now at almost day 80post transplant.
From there we went to Corti Bros. and I got some French prosciutto and some steak that ‘Mike’ the butcher recommended for kabobs. So that was really fun.
Then we hit up Trader Joes for some more groceries. This is the TJ’s near UCD med center in the beautiful Tahoe Park area. It’s a really nice store. So taking away the 2 bottles of French wine I bought I came in at $90. So my grocery budget of $125 for the week is about $20 over. Not too bad.
Here’s the birthday boy!!! He didn’t get his height from his father that’s for sure!!!
Unfortunately, we walked out of clinic and totally forgot to get the prescriptions. So, my daughter or I will need to drive down since he doesn’t have enough to get to next Tuesday. Bummer, but I do need toilet paper at Costco so I/she can do that too.
Today is my sweet boys birthday. 25 years ago he came into this world. What an absolute joy he was.!!! He’s a fine young man. Very talented and handsome too!!! So I’m doing BBQ chicken and those steak kabobs. For the veggie, I’ll make tofu kabobs with veggies.
I’m planning on going to the gym this morning and then the bank.
Wowza, it is hot!
We’re hitting the 101 mark today and I have the coolers on already at 75.
I just finished the LR zone and am deciding whether to go to the gym. I don’t want to aggravate my rib pain. Plus, I’m trying to decide whether this merits an x-ray. If it’s a pulled muscle then it’ll slowly get better. If it’s a rib fracture, the question would be why? So, I think I’ll wait and see how it is tomorrow. I told my husband, that I’m pretty sure this happened last year but can’t find any notes relating to it.
I’m making a new recipe tonight ‘Roman Chicken’ that’s from Food Network. Mostly it’s just chicken, peppers, capers, onions and tomatoes. Not sure what makes it “Roman” but I’ll try it.
I finished a good mystery by Baldacci; ” The Fix”. It was a good spy mystery. Now I don’t have any books left so I may need to go down to the pet bookstore and see if there’s anything there.
It’s now later, and I decided NOT to go to the gym. Sunday is my favorite day there as all the regulars aren’t there. Plus there are no jump around classes although there is a yoga class.
B has two appts this week. Getting his orthopedic boot on Monday and Tuesday is clinic. His counts all went down a little but I guess that’s to be expected.
It’s been a nice week overall except for the heat. It’s supposed to be the hottest today and tomorrow. I do not do well in the heat. No motivation.
I also pulled a muscle in my ribcage although it could be an old rib fracture acting up. Either way, I limited my activity level. I don’t think it could be a new rib fracture(myeloma-related) as my numbers are still so low and just barely out of the normal range. But all things are possible. Besides, what can you do? I’ll check with my doctor when I see him in August about some Xrays. Rib fractures are very common with Multiple Myeloma so I suppose it’s possible.
I’m going to go to the gym and just use the Treadmill and then we need to go to the feed store. I do need a few things from Target but I’m resisting going as I haven’t been in there since before I went to Sacto. But I do need new shower curtains:(
I made homemade falafels last night and they were yummy. here’s the link
I use Downshiftology’s recipes a lot and they are always delicious. My daughter made the Tziki and it was grated cucumber instead of chunks and delicious. Plus there was tahini sauce which I love.
Tonight is pizza night but I think it’s too hot to turn the oven on so we will order something.
Another good week.
The doctor’s appt went well and he’s graduated to doing clinic just once a week. That’s really great. His labs all look good and the prednisone is controlling the diarrhea. I’m pretty sure it was a mild case of Graft vs Host in the gut but it’s under control now. He will slowly taper off the prednisone next week.
I used the IP again and made polenta and the next night did chili. I guess as long as it’s under my Heywood Cabinet and not taking up real estate in the kitchen, I’m okay using it for certain recipes. Polenta in the Instant Pot is particularly good if you haven’t tried that. When you made polenta on the stovetop it is hands-on stirring for about 30 minutes. So this is a really great way to make it and it is very creamy. I put it in a loaf pan and chill and then cut in slices and fry with a little tamari and then I top with cheese. So I’m glad I didn’t just get rid of it without giving it some time. Time is an amazing thing!
I’m going to Costco this morning for a few things and to bring my receipt where I was double charged. I feel kinda weird about it but I’ll try.
We’re adjusting to life without Bonnie. Rocky seems better than at first. He’s getting a lot of attention, so that helps.
I finished a few really excellent psychological thrillers by Dana French. ” In the woods” and ” Broken Harbor”. She’s a great writer but the stories are dark but compelling. I also picked up a few books at the book exchange at the Cancer clinic. First, this is a terrific idea to have a bookshelf for patients to pick up books and drop off. Kiwanis house has quite a few bookcases thru out their facility and I definitely used them. So I picked up Ernst Hemmingway’s ” A moveable Feast” which was published posthumously. I ‘ve never really like Hemmingway’s stuff but this was really great. It’s a collection of essays about when he lived in Paris in the 1920s. I would highly recommend it. It is a masterpiece of writing. I’m interested in going back an rereading some of his other books.
I dropped off about 8 books including some very new books I had bought but really didn’t want to keep. Flylady’s new book “CHAOS” was one. And some others too.
We received the first Cobra insurance bill and it’s a whopper. Part of the bill still has our son on for medical, but that will come off as of 9/1 when his Kaiser Permanente kicks in so there will be another very large bill in August as well. Big as in $1200. Yes, that’s big! But then it should drop by about $600, I think… we’ll see:(
It finally feels like things are getting back to some semblance of normal.
It has been busy to some degree and yesterday was a very long clinic visit with the doctor. There are a few things needing attention. His blood pressure is still low and seems to drop when he stands. The doctor thinks this is the Flomax, but since he needs that to get the peeing going the dose cant be lowered yet. So he needs to be extra careful getting up. Then he has a ‘drop foot’ happening in his right foot where it’s kinda lagging. This just started a few days ago. The doctor ordered an MRI asap, but that still is 2 weeks out. It may be a nerve or it may be a rare side effect of the anti-rejection drug, so it needs to be figured out. Well, no one said this would be easy. But overall, it’s all going better than expected.
Today, though, I’m going to do Flylady zone which is the living room. Always an easy zone for me but I may do it a bit deeper especially after the deep cleaning we got from the cleaning lady. Yesterday, I moved all my cookbooks into the LR bookcase as I want o see them together and what doesn’t fit I’ll get rid of. I’m also going to wash the couch covers. I’m guesstimating that I do this about 4 times a year. Since we just had the summer solstice that’s a good time.
I’m also going into the closet pantry and do some tidying up in there. It doesn’t need a lot but some stuff does need to be re-organized.
I’m not going into the gym or town at all today. But tomorrow I will go to Costco as coffee is needed and some other basic things. I’ll go early so as to be home just after my daughter leaves for her job. Someone is supposed to be with B 24/7 but an hour won’t be too bad.
I’m also putting a piece of pork in the slow cooker for pulled pork. I have some corn and I may do a small potato salad. Not sure if I have enough potatoes though.
We just had a nice one-mile walk. Don’t want to do too much yet. The park has been really busy even at 6am. I grumble about it:(
B is engrafted and has an immune system that looks great by the numbers. But there have been a few setbacks and the big one now is his not peeing. He’s been on Flomax for the last 2 years but during the transplant, they took him off it and that caused his lack of urinating. The problem is Flomax also lowers BP and he’s on a medication to lower BP so they didn’t want him to tank with extremely low BP. So now they have him on his normal dose of BP and they are still cathetering him. He was supposed to be released yesterday but still not enough peeing.
It’s also crazy hot in Sacramento, well 103 probably isn’t that hot for Sacto) but it’s the first triple digits of the summer.
The cooler in the RV works fine to a point and that point is about 100 and then it’s not cool cool in here but certainly ok. Tomorrow it looks like back in the ’90s, so not too bad.
We had the one-time deep clean lady do the house yesterday and my daughter said it looked great. Since I’m not there to do FlyLady zones this works out really well. I kinda wish I could see it though as it would give me an idea of what she might have had done differently. Anyway, I’m pleased that I did it and will consider it again maybe in 6 months.
I’ve been walking every morning my usual 30 minutes, so that’s nice.
If B gets out today then there will be a clinic/labs appt on Thursday. I’m still going to push to be allowed to go home though if this first week seems to go well. I just don’t see the point in being here that long when we can drive down here 2-4 days a week as necessary. But I will talk with the doctor on Thursday about it. I’m willing to stay thru next Friday at least.
I guess another option is I go home for a few days and have my daughter/son come to stay. I will look at that option after we know how he’s doing here and there are no surprises.
Well, I’m off to walk for a bit.