Velcade, Round 3, shot #3.

So this finishes Round 3 and I get labs tomorrow so I should know by next Wednesday how it all looks. I will start Round 4 April 7th.

It was a quick trip down to Rocklin. All went smooth and I got my shot and was out by 10:15. I’m having some eye issues like I did before with watering eyes and getting some styes. I have an ophthalmic prescription ointment but it’s 6 years old at least. the nurse said still use it but it may not have quite the efficacy. Then get Dr. L to prescribe a new one. It is interesting how you ‘forget’ certain things with chemo and then it’s like ” wait , didn’t this happen before”.?

I decided to stop at the Humane society bookstore in Auburn and was glad I did.

Everyone has to wear a mask and everyone did.It was somewhat busy but I found a good stack of cookbooks to read and then more of the Sue Grafton. They actually had an ‘A is for Alibi”, her first, which is pretty hard to find. It was only released in paperback. So I’m set for books for a while.

I’ve actually read ‘Bella Tuscany’ a few times but it is a great location book about Tuscany, which I’m sure I will never see in my lifetime. And I have read the Berg book too. I really always enjoyed her writing.

Today is a no walk Dex day as I end up having shortness of breath so I’m going to lay low and read. I still need to get out my monthly menu planner sheet and start April.

Friday’s things…

This was the big day. I got my second vaccine. HIP HIP HOORAY!!!!

Barclay got his yesterday and only had a sore arm so I’m hoping that’s all I get. I will report back though.

I ordered raspberries, asparagus,,blueberry plants from Johnny’s. I decided that we should have an asparagus patch after all this time. It will take a few years to produce but that’s ok. We have lots of golden raspberries but last year when I tried to make jam it just didn’t come out very well. Maybe too many seeds even after I strained them out and the flavor fresh was great but not so much as a jam.

This week I made the Mediterranean white bean soup again and man, it is so good.

Then I made a big batch of granola.

I also whipped a batch of oatmeal chocolate chip cookies. I didn’t get a picture of them and now they are all gone.

Tonight is pizza night and we’re going to order out. I’m gonna leave it to my son to decide where he wants to get it. We don’t do take out very often so I’m okay with $30+ for pizzas although homemade is pennies on the dollar.

I need to do a shop in the next few days as we are out of a lot of things. I’m thinking Trader Joe’s as it’s been ages since we’ve been there.

Our neighbor( old Leo who’s 95) fell again in his house. His son was there so he called 911 but he did break his hip in 2 places. It’s unlikely he will come home again. We need to be ready with fencing along the driveway as once Leo is gone his son will put the house on the market. Our driveway is right along his property line and too close for us as we see his parking area( which is quite big). We are concerned that some ‘rednecks’ will buy it as it is not the greatest house or property. If we had the money we would buy it but sadly we don’t. Oh well.

I start my next round of Velcade next week. My doctor visit was good. He didn’t say anything about our ‘plan’ but there’s time yet. I figure this is round 3, so at least thru to round 4. All good.

Simple Sunday and my 15th SCT birthday!!

Yep, Tomorrow would have been day 0 of my stay at the BMT unit at Sutter Hospital in 2006.

I was in for 18 days ( I think) it may have been 17. The nurses and staff were amazing. They come in and do what needs to be done and then leave. Most days I just laid in bed but once a day I’d walk the hall with B just to move. Most of what I remember was it was raining outside a lot. I’d be awake at 3am and see sheets of rain going across the freeway. The reintroduction of Stem Cells is anti climatic. It’s a bag that’s feed into the IV and it’s done. The worst Chemo has already been done a few days before. After the Stem cells, it’s just hurry up and wait for your numbers to plunge to zero and then slowly your immune system starts to reboot. It’s about day 11-14 you start to see the change.

Well, I had 4 years of remission before I relapsed and went on Revlimid. That was in 2010. So I’m pretty lucky. Many of ‘old crowd’ of myelomers are gone and sadly so. I’m grateful everyday to be here to enjoy the life I have.

Simple Sunday news.

We had a lovely walk with NO one in the park but us and the geese. My feet still bother me but walking actually seems to help the neuropathy. Sunrise is so early that we are getting there at 6 but it’s already light. I’m thinking next week to try and back it up to 5:45 am but we’ll see. With daylight savings in march 6am will be 7am so definitely not walking that late.

I’m making a King Arthur batch of lemon ginger scones. They are baking.

I”m going to put a turkey breast in the crockpot for dinner. I’m hoping it comes out ok, if not I have tofu I will make anyway. My son isn’t crazy about turkey so the tofu will be an option.

We have a Home Depot order to pick up but my daughter and B will do that soon. We need some 3ft to put around the front area garden to keep Rosie the chicken out.

I am going to start the second coat of paint here in awhile.

This week I’m in the bedroom zone so the fresh paint on the door is a nice improvement. OOPs, looks like that was last week. this week is a split week of Living room and then March 1 entry ways!!!!

Velcade, Round 2, shot #3 or 6 depending on how you look at it.

The ride down to Rocklin was uneventful. It’s a bit windy here and there but temps still nice.

They had tried to call me about needing labs but I had blocked their number by accident so I didn’t get it but it was fine. They just took blood and did the labs there. At least I don’t hve to go in Monday then for that.

On the way home I stopped at Flour Garden Bakery and bought some bagels to bring home. We haven’t been in for ages and it was nice to see them busy. Only patio setting but still good their still in business. We started going to FG in the early 1980’s when it was just a tiny shop. After Sachi was born in 1985, many of us ‘new parents’ had coffee and bagels there. Funny note: Sachi would ( eventually) have a sliver of bagel with a whole pat of butter. She loved the butter.:)

Speaking of which, she is making dinner of spaghetti and meatballs with a broccoli salad.

Anyway, all is good. The dex is starting to hit so I’m off for now.

Kitchen zone

This was a busy weekend with starting the painting.

I did the area in front of our small bathroom and the book shelves. I’m waiting to put the books back for 24 hours till I’m sure they are quite dry. This morning I did the french door to the bedroom and that’s it.

I usually do most of the zone on Sundays but since painting was involved I didn’t get to it till this morning. It wasn’t the most thorough I’ve ever done but perfectly fine for a zone cleaning. The last thing I want to do with this zone is clean out my wine crate pantry boxes and wipe them and restock. I’ll probably to that tomorrow.

First this morning I had to go get my labs for Wednesday’s shot. He added in the IgG test which can be a myeloma indicator. Last time it came back normal so that’s good. Then my covid shot is Friday so I’ll have a day to recuperate and mostly get thru the dex.

I bought a new cookbook. Mark Bittman’s ‘Dinner for Everyone”. It seems pretty good with each recipe having an easy adaptation, a vegan one, and then a fancy one. I may try something tonight as I try and do 2-3 new recipes in my monthly menu plan.

We’re heading into some very wintery weather by Friday. Rain and lots of snow in the Sierras. We still need so no complaining.

Round 1 over, Velcade, shot #3

It was a brutal drive down to Sacramento yesterday.

We had wind and rain here overnight and it didn’t let up driving down. Sacramento looked liked a war zone. It was hit very hard by wind and rain. I saw debis all over and many trees snapped in two. There was no power in the C street area but Mercy did have power. Off the exit onto J street, the homeless encampments looked like they took a huge hit with stuff ALL over the place. Why we can’t provide some kind of motel/hotel rooms for these people is beyond me. I know Gov Newsom is trying his best to come up with solutions. Why the nutsos want to recall him is all so beyond me. What was he supposed to do during a pandemic, just say ok, keep businesses open and spread Covid-19?? Honestly?? Some People are really stupid.

Anyway, I got down there just fine and saw Dr. Laptalo. He said the soft lump that was on my front temple area probably was a plasmacytoma so fortunately with 24 hours of my first shot it was gone and he said that’s good. But there’s not much we can do with the bone area right now. sigh… why is it always something?. But the important thing is when my numbers started to double in early November, that’s when this soft lump appeared so clearly the abnormal plasma cells were working overtime. I’ll be more aggressive next time saying we need to start treatment when we reach this 500 point.

So then when I left, the sun was out but still very strong winds. I headed up to Rocklin for my shot. I was 1/2 hour early but the nurse told me just to come in since the shot doesn’t require IV hook up or anything and they had done my vitals in Sacramento. The shot went well and I was on my way.

I need to do labs before my next round starts in February and I have off next week.

There wasn’t any rain when I left but the winds were still very strong and it was hard to even walk back to the car.

I got home by 12 having left by 8am. So not too bad. I ate some lunch and took Dex.

I guess it’s all a waiting game to see what my blood work shows, but after only one round, you can’t expect too much. Maybe by Round 3 in March.

My daughter made a nice comfort food dinner of Mac and Cheese, wedge salad and a few breaded Costco shrimp in the air fryer.

We are watching Brooklyn 99 with my son and it you want a funny show this is definitely it. Great writing and characters. We’re taking a break from the ‘Money Heist’ since we just finished Part 3. Then we browsed and started ‘Lupin” . French and quite good so far. We also paused Cobra Kai. It’s a good show, I’m just not sure if I’m into the story line although it is good and it’s fun they are the original characters from the “Karate Kid”.

Tonight my son will cook and is planning an IP chicken teriyaki dish. I’m going to make a tofu curry for the veggies. Plus I’ll put some arborio rice in the Zojirushi. An easy meal to put together.

It’s still raining and we didn’t walk. I just ordered this morning a set of Frogg Toggs since I don’t mind walking in the rain if I have the right gear. If I feel up to it, I’ll get on the treadmill and do at least something, maybe:)

January 13, 1st Velcade

So yesterday I went down to the Mercy( Dignity Health) satellite medical center in Rocklin. It was about a 25 minute drive so this is less than 1/2 of going down to C street in Sacramento. It was very nice. A quite small infusion room with 5 chairs. The nurses(2) seemed exceptional and mine was over the top friendly and informative.

So this is round 1.

Shot one of 2.5 milligrams of bortezomib. The nurse said she had quite a few patients on different regimes such as weekly( no breaks), 2x weekly for 2 weeks and then a 2 week break. So I thought that was interesting.

The drive home uneventful and I was back quickly.

When I got home I waited till @ noon to take the dex. I rested a bit and got up around 2 and read some. My daughter made some tortellini for dinner. My eyes do get affected with dex and so we only watched one Bridgerton.

I took an Ativan and was in bed @ 9. I didn’t fall right to sleep but eventually. This morning I could tell it was still a Dexish morning so I’ve done some of my morning resets( swish and swipe), tidy kitchen, and started a IP of yogurt. I did cut our walk short by 1 round as I was just too tired to do another.

So onward to Shot # 2 next week.

Simple Sunday

A simple day to start the new year.

My daily chores are done and the FL zone this week is the kitchen. The entry way was only 2 days so I missed that. But, I think I’ll sweep the patios and tidy up the fir boughs.(my daughter already did all this so it’s done!!) I’m going to leave them thru january as it seems wintery. My door wreath is bay laurel so that can stay up too. I also have some nice pinecones we collected up in Tahoe on the bench outside the front door.

One thing I’ve learned with being more minimal is to use natural things for decor or seasonal decorations. It makes it easier for me to not have think about the decorations in bins. I definitely used to keep bins with seasonal stuff but not so much any more. Now I only have my vintage Halloween, and some Easter stuff and Christmas in some Ikea boxes. Works for me.

I used my Staub again for a braised short rib recipe. It cooked beautifully but we ( the meat eaters) were not too into the dish. It was good but not great. It will not go into rotation even though it really is an easy one pot meal. This pot though has cooked everything I’ve done to perfection. If you’re looking for an all around pot this is it. Staub should sponsor me as I cannot say enough good things about this pot. And that’s coming from a die hard fan of Le Creuset.

I am doing a Walmart pickup so that should get us thru till we get to Costco about mid month. I’m planning on trying to use the Instant Pot to make yogurt. It seems easy enough so on the Walmart order I have some whole milk yogurt to use as a starter. We’ll see. I’ll post how it goes.

My rib feels pretty good. Maybe still a little tender where I probably pulled the muscle around the rib. I’ll be sure to mention it to my doctor. He did ask whether I wanted to do PET scans and a bone marrow biopsy to see it there were any hot spots and/or if the myeloma has morphed. I declined since it is what it is regardless. I think if I had more symptoms I might but at this point I’m fairly asymptomatic except for blood work that show the increases.

This week I see the eye doctor for my 6 month macular pucker scan. I’m hoping to not have to get my eyes dilated as they stay dilated for hours. I’m also thinking of getting the surgery when the pandemic is over and things are back to normal so probably a year from now.

I added some more ” things I hope to accomplish” list. :

find 3 new hikes to try

paint the living room and kitchen( this was supposed to be done last year)

find 2 new places to camp( I was thinking either private or maybe just Forest Service campgrounds)

keep up with the prepper pantry but streamline what I stock( and know we will use).

Rib update

Thanks for the concerns.

Appreciate that . Actually it is feeling 100% better today so maybe it was just pulled rib muscles. It’s still tender but not as awful as yesterday so that’s a good thing.

Since I have a history of chronic rib fractures, it seemed that it was a flare up. On my x rays you can see the old fractures.

So anyway, it is better and thank you all.

Simple Sunday and Christmas is over.

It was a really nice simple christmas.

Everyone got some nice things. I got my son a Pendleton National Park wool blanket from Goodwill Seattle. It’s the Glacier one that is white with color stripes. Very nice and a fraction of the cost new. He also got a used copy of Easton Press” A Tale of Two Cities”. B got a new Leatherman knife since a few years ago when he went to board a plane he had is quite expensive Leatherman in his pocket and they took it away. My daughter got 2 pairs of pruning shears, an Easton Press Grimm Fairy tales and some other stuff including these made in Japan Sound Collection plates… I discovered these by accident about 2 years ago at Goodwill when I found a bowl and fell in love with it. They are quite hard to find and the only place apart from Japan ,I guess, is Ebay.

I got a lovely sweater, a Kitchen Aid hand mixer( I asked for this), and some great gifts from my son, artisan flour, and a scone mix.

All in all a really nice and somewhat minimalist Christmas. It could have been scaled back even a little more but in the end I think it was perfect.

I made a NYT recipe called the Big Lasagna.

This is just the first page of the recipe, there are 2 more pages if you’re interested you can google it. It actually was huge and must have weighed 5 pounds. Lasagna is always our Christmas dinner. Not sure quite when this started but I remember when we were first married making lasagna since it was vegetarian.

It really was delicious.

I took all the Christmas stuff down and put away. I start to feel it looks a little cluttered up after 3 weeks of decorations. So now it’s all tidy and things put back in place.

I’m cooking up the scone mix this morning. It’s a ginger cranberry and it was a nice mix. I’m thinking scones are a nice easy thing to bake so maybe I’ll do this more often. This mix was from the Vermont Store but King Arthur has some lovely ones to choose from.

Our walk was lovely at 6:10am this morning. Still dark, but by 7am we’re getting a nice light and the park is all frosty.( well, it’s frosty before that but then we can see it!).

If you follow FL, we’re in the Living room zone. That was one reason I wanted to put Christmas stuff away. I’ll wash the inside windows and dust everything.

Well, this is the week I go to Sacramento to meet with my oncologist. My first question is going to be” when can I get the Covid vaccine? the second will be when do we start treatment.” 😦 Really, I’d rather start than have myeloma cells multiplying and then risking fractures or worse.