I swam on Tuesday and it was good. Somewhat busy when I got there and then it lightened up. I’ll go again tomorrow. I haven’t been able to get the 3rd swim in yet but that’s ok. It is an effort to go twice a week as it is and it’s also gas money. I try and fill up at costco which is right on the way to the pool.
Then Tuesday Barclay had his video appt about his MRI. The PC doctor will refer him to a specialist because it is neurological. The nerve is being affected by the degeneration of the L 5 ( I think it was L5). Hopefully it won’t progress and some sort of physical therapy or cortisone shots will help. Who knows?? Surgery would be the very last option. I guess with spinal stenosis, it can progress where surgery is necessary.
Then Wednesday I saw Dr Laptalo. It was an ok visit. He was on call so he was 40 minutes late and seemed distracted. That’s okay, overall. My Kappa light chains are still in normal range and so is the ratio. So for now, all good. I do think my remission will be short lived and I’ll be back in treatment by Jan/ Feb. It really depends on how quickly they start rising. Last time it was slow to start and then was very rapid, doubling every month. Anyway, I’ll do labs in September and see him again in October.
After that I decided to go in to Trader Joes which is right off the freeway at Douglas so quite easy. I got lots of things like 3 boxes of tea, 4 different cheeses, milk, juice, some frozen stuff, wine, and chocolate. Oh and 2 little petite orchids.
Then yesterday B took the Santa Fe in to the dealer for the recall fix and had the oil changed. Poor thing had to wait over 3 hours. After that he went to Roseville Honda and looked at a truck and it seems it’s a winner.It’s a 2014 Chevy Silverado. Very clean and drove great he said. So actually today, we are both going to look at it and decide. It’s been quite a process figuring out what we need and want to do. We know for now, we want to keep the Santa Fe as our driving vehicle. The truck is really for towing and Home Depot/ Lowes kinds of things. Anyway, if we are committed to travel in the Rubi then this what we need to do. We also decided to donate the van to the public radio station here( well Sacramento). We all agree trying to sell for $1000 bucks isn’t worth it especially since the windows don’t go down except the drivers side and the blinkers only work sometimes. The engine is still quite powerful but overall, we’ll just see if we can donate it. Maybe they don’t even want it???
Yesterday while he did that I made jalapeno pepper jelly. It looks really good so I may open one later and try with a dab of cream cheese.
This was the last jar and it didn’t quite fill up so we’ll start with this. You can’t see the green too well but it’s a nice color of green.
Done!! 6 months of Velcade. 3 weeks on one week off.
I get labs Friday and then see Dr. L next week. Where it goes, who knows.
Tonight I have leftover vegetarian chili and IP polenta.
Tomorrow is Dex Thursday and I don’t walk. I’ll tidy the house and continue to do this next layer of decluttering. This round is sponsored by Ann Patchett whose New Yorker article really hit home. I’m getting rid of all my Fiesta Ware except the red. I like the red and we use it at Christmas and Valentines day. I plan on giving it all to Cancer Thrift Store not Goodwill. I just feel better giving it to them as the money stays local. Anyway, it’s a lot. The other thing is all my kids Waldorf toys( ok, not all of them:), but quite a bit. If they don’t sell on our local facebook they will go too. We have the Live oak Waldorf school here in Applegate( about 3 miles away). So far no one is interested. It’s interesting to go to another level when I’ve decluttered so much and so much was valuable. navajo rugs, vintage fans, dishes, books etc, antique silver( yes, silver).
But this is what I want:
I want our small home to be a true reflection of minimalism and where we are at this point in our life. Even though what I’m getting rid of was only on 3 different shelves,that’s 3 too many. I’m not interested in making a buck off Fiesta Ware. So what?? It’s nice but that’s it.
What about you??? Are you deciding who you are in your life right now?? And what you have reflects that.!!!
I went down to Rocklin yesterday and started the next round. It went fine except I couldn’t remember which side of my belly they gave the last one. I’m fairly bruised up on both sides so I’m not sure it really matters. Then, Barclay had come with me, we headed down to the RV camping world to look at a Coleman. I will share the outcome tomorrow. We’ve been pretty set on an R pod, but there are absolutely none available within 3 hours, so then we looked a a new model of Coleman that an SUV can pull. It’s nice.
Today is Dex day and yesterday I took the 12mg ,down from 16mg and today feel good. Not too dexed out. I even walked 2 rounds at the park and wasn’t short of breath. ( a dex side effect). So I’m very pleased with the results. He said I could even try 8mg. The reason being is that since I’m back in the normal range of things, Dex isn’t as crucial in bonding with Velcade. It’s still important just that I can do well with less. So I’m pretty happy with that.
Today is just a puttering around day. I watered my plants, and ‘m cooking a chicken in the oven for tonight. I plan on making a potato salad and we still have some lovely asparagus from Costco. I wanted to try a new way of baking tofu too I read about in the NYT. You wrap the tofu in a paper towel then microwave it and it removes the moisture. Then you bake with tamari and oil. It’s worth a try. I usually just press it with a cast iron top.
We are all excited to have a cat show up near our barn. It is getting friendlier. We checked all the missing cats on our neighborhood watch but nothing showed up. She’s( we think it’s a she) has been her @ 10 days.
Not the best photo, but she’s cute and is now sitting inside the barn door. My son , who is NOT, a big animal person has really taken this on. First he named her Sgt Pepper, which I liked, then he didn’t think it fit her so now she’s Siri. I do hope she sticks around as we could really use a barn cat.
There’s lots going on in the gardens and the yard. Flowers are blooming and all three lilac trees are in full bloom. This has been a really good year for flowering trees. Out Cherry trees maintained their blossoms for weeks which was unusual. Now the lilacs are in full swing and very full. The white roses are just starting to bud and a few have flowers. The Cecil Brunner looks to be ready to explode with pink blossoms.
Today I plan on applying the redwood stain to the new fencing. I’m going to use a small roller so I think it will go quickly but I’m not sure how much/far the gallon will go. It certainly wasn’t cheap at $58 a gallon. The garden shed is nearing completion and I have bought the same house paint to paint that. I’m still not thrilled with the way it’s positioned but done is done. We still need to get some roofing to finish the shingles. We had some left over when we had the roof re -done so we just need to get 2-3 more bundles.
The weather is stellar right now with this afternoon being @ 80 degrees. I plan on BBQ some chicken and tofu.
I need to write up my monthly menu and check the freezer. I know I’ve used up quite a bit and when we were in New Brighton my daughter also used up lots of frozen things so that’s good and I can write a list of what needs to be replaced.
After my doctor visit yesterday, which went fine, I stopped at Trader Joe’s in Roseville. I bought some bread things,bagels,pita bread, sandwich bread, some veggies, some frozen things too. TJ’s is great for snacks like sesame sticks so I got a nice variety.
The doctor visit was fine. He said to lower my Dex( from 16 to 12 mg) so it’s maybe not so intense. That’ll be nice. He also said we’ll just wait and see about Round 6. I think if the Dex is more tolerable he’ll go for round 6. I guess we’ll see. All my numbers were still great and my ratio even went down to 1.3 since Lambda went up slightly. So I’m pleased and plus I feel pretty good overall. I do feel pretty lucky that the cancer is being wiped out by Velcade. Unfortunately, there are always rogue cells left behind and that’s why relapse is inevitable. But that’s not now and I refuse to think about something in the future I have no control over.
I drove down to Rocklin yesterday and had my shot. I was out again by 10:20 and it went well. Sometimes the injection stings some and yesterday it did. Other times I barely feel it, so who knows.
From there I drove up to the Walmart in Rocklin which is right on my way home and picked up my order. They didn’t have the propane bottles we needed for camping so we’ll need to get them somewhere else. Then I went into the nursery side and bought 2 clay pots and 2 orchids. For some reason getting clay pots now is like winning the lottery. They only had 2 on the shelf. Oh well, I’ll keep checking but Home Depot also didn’t have any.
I took my Dex after lunch and rested. Geez, Dex is so weird. Oh well, my daughter made a nice stir fry with tempeh. It was good. Yesterday I experimented with making jasmine rice in the Staub and it came out great. I love my Zojirushi rice maker but wanted to try this as an alternative. The nice thing is that it is half the time . 15 minutes on a boil and then 15 minutes rest. The other method is an hour. It’s nice to have the alternative.
Today is just take it easy and do a few things. I want to air out the bed covers on the line. And move a few more things around in the closet.
We finished the bedroom painting it looks amazing. I’m very glad I screwed up and started the touch up as I wouldn’t have really know how bad it was( well I guess that’s relative. )
The stove hood debacle continues as it wasn’t working unless the bathroom fan was on which I said”No way, am I putting up with that”. I said hire an electrician, people do it all the time. But he managed to get it hooked to something else?? and now the bathroom fan isn’t working. Did I say just hire an electrician??Well, he is pretty handy and always figures out a solution. We had most of the wiring was redone when we moved in but there were some that the guy didn’t do for some reason. ( he wasn’t a real licensed electrician although he did know a lot).
I hope the tar paper can go on the garden shed before we leave on Sunday but the shingles will need to wait. Most of the trim is going on too. It looks good and I think we will like the extra storage.
I have another Goodwill run to make tomorrow but i will have my daughter help. Last with her helping it went really quick plus I couldn’t lift the monitor anyway.
Tonight my son cooks and I’m not sure what he planning. Maybe I’ll check the freezer but I know I have lots of salad stuff.
Plus, the most exciting thing this week is he gets his Covid shot tomorrow. Hurray!!!!
So this finishes Round 3 and I get labs tomorrow so I should know by next Wednesday how it all looks. I will start Round 4 April 7th.
It was a quick trip down to Rocklin. All went smooth and I got my shot and was out by 10:15. I’m having some eye issues like I did before with watering eyes and getting some styes. I have an ophthalmic prescription ointment but it’s 6 years old at least. the nurse said still use it but it may not have quite the efficacy. Then get Dr. L to prescribe a new one. It is interesting how you ‘forget’ certain things with chemo and then it’s like ” wait , didn’t this happen before”.?
I decided to stop at the Humane society bookstore in Auburn and was glad I did.
Everyone has to wear a mask and everyone did.It was somewhat busy but I found a good stack of cookbooks to read and then more of the Sue Grafton. They actually had an ‘A is for Alibi”, her first, which is pretty hard to find. It was only released in paperback. So I’m set for books for a while.
I’ve actually read ‘Bella Tuscany’ a few times but it is a great location book about Tuscany, which I’m sure I will never see in my lifetime. And I have read the Berg book too. I really always enjoyed her writing.
Today is a no walk Dex day as I end up having shortness of breath so I’m going to lay low and read. I still need to get out my monthly menu planner sheet and start April.
This was the big day. I got my second vaccine. HIP HIP HOORAY!!!!
Barclay got his yesterday and only had a sore arm so I’m hoping that’s all I get. I will report back though.
I ordered raspberries, asparagus,,blueberry plants from Johnny’s. I decided that we should have an asparagus patch after all this time. It will take a few years to produce but that’s ok. We have lots of golden raspberries but last year when I tried to make jam it just didn’t come out very well. Maybe too many seeds even after I strained them out and the flavor fresh was great but not so much as a jam.
This week I made the Mediterranean white bean soup again and man, it is so good.
Then I made a big batch of granola.
I also whipped a batch of oatmeal chocolate chip cookies. I didn’t get a picture of them and now they are all gone.
Tonight is pizza night and we’re going to order out. I’m gonna leave it to my son to decide where he wants to get it. We don’t do take out very often so I’m okay with $30+ for pizzas although homemade is pennies on the dollar.
I need to do a shop in the next few days as we are out of a lot of things. I’m thinking Trader Joe’s as it’s been ages since we’ve been there.
Our neighbor( old Leo who’s 95) fell again in his house. His son was there so he called 911 but he did break his hip in 2 places. It’s unlikely he will come home again. We need to be ready with fencing along the driveway as once Leo is gone his son will put the house on the market. Our driveway is right along his property line and too close for us as we see his parking area( which is quite big). We are concerned that some ‘rednecks’ will buy it as it is not the greatest house or property. If we had the money we would buy it but sadly we don’t. Oh well.
I start my next round of Velcade next week. My doctor visit was good. He didn’t say anything about our ‘plan’ but there’s time yet. I figure this is round 3, so at least thru to round 4. All good.
Yep, Tomorrow would have been day 0 of my stay at the BMT unit at Sutter Hospital in 2006.
I was in for 18 days ( I think) it may have been 17. The nurses and staff were amazing. They come in and do what needs to be done and then leave. Most days I just laid in bed but once a day I’d walk the hall with B just to move. Most of what I remember was it was raining outside a lot. I’d be awake at 3am and see sheets of rain going across the freeway. The reintroduction of Stem Cells is anti climatic. It’s a bag that’s feed into the IV and it’s done. The worst Chemo has already been done a few days before. After the Stem cells, it’s just hurry up and wait for your numbers to plunge to zero and then slowly your immune system starts to reboot. It’s about day 11-14 you start to see the change.
Well, I had 4 years of remission before I relapsed and went on Revlimid. That was in 2010. So I’m pretty lucky. Many of ‘old crowd’ of myelomers are gone and sadly so. I’m grateful everyday to be here to enjoy the life I have.
Simple Sunday news.
We had a lovely walk with NO one in the park but us and the geese. My feet still bother me but walking actually seems to help the neuropathy. Sunrise is so early that we are getting there at 6 but it’s already light. I’m thinking next week to try and back it up to 5:45 am but we’ll see. With daylight savings in march 6am will be 7am so definitely not walking that late.
I’m making a King Arthur batch of lemon ginger scones. They are baking.
I”m going to put a turkey breast in the crockpot for dinner. I’m hoping it comes out ok, if not I have tofu I will make anyway. My son isn’t crazy about turkey so the tofu will be an option.
We have a Home Depot order to pick up but my daughter and B will do that soon. We need some 3ft to put around the front area garden to keep Rosie the chicken out.
I am going to start the second coat of paint here in awhile.
This week I’m in the bedroom zone so the fresh paint on the door is a nice improvement. OOPs, looks like that was last week. this week is a split week of Living room and then March 1 entry ways!!!!
The ride down to Rocklin was uneventful. It’s a bit windy here and there but temps still nice.
They had tried to call me about needing labs but I had blocked their number by accident so I didn’t get it but it was fine. They just took blood and did the labs there. At least I don’t hve to go in Monday then for that.
On the way home I stopped at Flour Garden Bakery and bought some bagels to bring home. We haven’t been in for ages and it was nice to see them busy. Only patio setting but still good their still in business. We started going to FG in the early 1980’s when it was just a tiny shop. After Sachi was born in 1985, many of us ‘new parents’ had coffee and bagels there. Funny note: Sachi would ( eventually) have a sliver of bagel with a whole pat of butter. She loved the butter.:)
Speaking of which, she is making dinner of spaghetti and meatballs with a broccoli salad.
Anyway, all is good. The dex is starting to hit so I’m off for now.
I've been married for nearly 15 years to a wonderful husband and I'm a mom to three great kids ages 12, 11 and 9. Oh, and I just happen to have cancer. Multiple Myeloma is a cancer of the blood that is currently incurable but IS considered highly treatable! My goal is to make people laugh, cry or feel a little less alone whether you are a mom, cancer patient or BOTH!