Ha, it is a miracle!!!
Just when I sent a priority letter to NYC Corrections the next day, my documents were in the priority envelope I had paid for from before. So I now have in hand my brand new birth certificate, my original marriage license and the court documents for my legal name change. What a miracle!!! All in all, it only took 8 months. Now I can get a passport and the new real ID from California.
Today B has a transfusion early. He needs both blood and platelets but it’s been 18 days for the blood so that is an improvement. Like I said we see the transplant doctor Thursday but we know he has tentatively scheduled him for another chemo in April. I also, did not quite register the co-pay issue or maybe I was in denial but 20% of 500,000 is $100,000. I just can’t get it in my head that we would be responsible for that. I mean we don’t even have any retirement money to speak of so WHAT ARE WE GOING TO DO??? I hope this is wrong and I’m going to have B call UHC and talk to the coordinator to find out. Somehow it just doesn’t seem right.
I’m heading to Costco this morning too. I need some greens, avocados, almond milk and a few other things which I’m sure will morph into a bigger shop. Oh, and I need to return 2 items. One is the Instant Pot Cookbook which is, in my opinion, a waste. I’ve never returned a book and feel kinda weird about it. Like what read the book and then give it back. Heck, I may not do it after all.
Here’s a few pictures of the snow in Tahoe:
Well, off to do laundry. It’s sheet day!
Well, it arrived and guess what? It’s still raining. (and snow in the Sierras)
We did have a break on Thursday and Friday so that was nice. Even though it was cloudy at least it wasn’t pouring down rain.
Thursday I saw my oncologist in Sacramento and it went well. I told him I was somewhat concerned about the 4 point jump but he didn’t seem worried and even gave me a look like. ..What??? it’s still n the normal range and your ratio is fine. So I did feel better.
Then I headed up to Costco for what I hope is the months shopping. I bought a huge amount and the car was loaded. But I got everything on my list. I did add in 2 more Orgain protein drinks( at almost $50) because B needs that to help keep his protein intake up. Plus you honestly can’t beat Costco’s prices on things like that.
Friday was just a gym day but it was really packed with people which I don’t like plus I see so many people NOT wiping equipment after they use it. Ahh…Why????
Today I’m taking B for labs and then just running over to the bank. I was going to go into Home Depot for some pansies or something for the entryways but with the rain, I probably won’t. if you follow Flylady there was a second zone this week and that was the dining room and entryways. So as I always like to freshen up the entryways with something, I thought some color would be cheerful.
Tonight I’m going to try an Instant pot pork chop recipe. So far everything I’ve made has been delicious. So we’ll see. I don’t usually cook much pork because generally I overcook it and it’s not all that good. My daughter has made pork kabobs on the barbequed that have been very tasty though.
Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA. So, it was back down. I ended up getting gas again. Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.
Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.
I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.
We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.
Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected. Then after calling them and waiting forever on hold, we had it figured out. Still, sometimes I wonder how are we going to navigate this stuff.
Any suggestions for Medicare would be most welcome.
Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.
It’s quiet here. We’ve been to the infusion center for B’s platelets so that’s good. He’s having quite a bit of trouble with mouth sores which we think was from a certain antibiotic, not the chemo. But still it’s uncomfortable and it’s going to take a bit to heal with his WBC so low. He’s on a different antibiotic so hopefully, that will kick in soon.
Other than that, I went to the gym for a short workout.
I’ve been in the living room zone as that is only today and tomorrow. Then the next zone starts on the 1st, which would be the entryway, dining room and something else.
Since our table is in our living room I do that area when I do the LR zone. I’m doing a bit deeper clean( wiping all shelves and baseboards) since it’s the first of the year.
I’m going to cook an organic turkey roast for dinner along with some stuffing and peas. Nothing fancy, just using up stuff from the freezer. In January, I’m doing a no spend month and freezer clean out. The no spend is just nothing other than food and essential things like cat food. I’ve spent quite a bit in December in foodstuff mainly because I went to Costco twice. I usually go to Costco once a month. So that was definitely more expensive.
This week I have a dental cleaning and B has his appts. If he spikes a fever with these mouth sores he needs to go the ER, so let’s hope he doesn’t. But if he did at least he would get intravenous antibiotic which would accelerate healing his mouth sores. Still, let’s hope not.
So it was the local medical oncologist that had the biopsy results from the other Dr. The official diagnosis is Myelodysplastic syndrome high risk because of the 7q deletion.
So at least he doesn’t need to do the induction in the hospital if it was leukemia. I guess that’s something.
For now, it’s going to be the 5 days of chemo every 28 days. Hopefully, the drugs kill off the ‘blasts’ or baby leukemia cells which are bad and then his bone marrow will start producing the right cells. Also, that will mean less and fewer transfusions and platelets. Then it will be a donor transplant. I seem to recall the transplant doctor saying hospital time a few weeks then outpatient. Fingers crossed that it works as there is a 50% chance it won’t and he’ll die. Or he’ll need to go back on some sort of treatment. 😦
Today, after he gets platelets which do go very quickly after the IV is in, we’re going to Costco so I can load up on organic greens for those smoothies and fruit. I really hate going this time of year with Christmas, but I also hate spending a lot of money on greens at the store when can get a big bag at Costco for the same price if not cheaper. I will get some other things as well since we’re there and call it my weekly shopping.
I’ve got a new sourdough recipe I’m trying out and it’s on its second rise. But we’ll be gone for a few hours so It’ll be longer than usual.
I’m going over to the gym for a tiny bit while he’s at the infusion center. I can probably get a good 30 minutes in.
Some of my labs are in but this new patient portal is a PITA as it says results released in a few days( it gives the date). WTF, there my results and he’s viewed them so why??? I didn’t see the big 2 tests SPEP or Light chains but they will be coming in soon I suspect.
Oh well, if it goes up again, I’ll just have to not flip out and go with it. Fortunately, I’m not high risk and my numbers have never just shot up so that would give me time to adjust. I see my doctor next week right after Christmas.
I haven’t been too inspired with cooking dinners so we’ll see what I feel like tonight. Mostly I’ve done just what’s easy without a lot of thought. Last night was pinto beans, a frozen enchilada and TJ’s cheese tamales.
I like November. It’s Thanksgiving, one of my favorite holidays. Of course, daylight savings is this weekend which always takes a week to get used to at least.
Sunset at 5 pm is tough at first. But then one acclimates. I’m just going to go by my body clock and get up when I do. We will walk in the morning when we’re ready. This morning was SO lovely with stars!!
Well, the week ended weird when B’s Santa Fe wouldn’t respond to the key fob. Nothing!!
He thought it was the battery but nope. We called AAA and had it towed to Roseville which is quite a good distance( 25 miles). But that’s where the Hyundai dealer is. As of right now (almost 5 pm) he hasn’t heard what the problem is. Also in January, he comes off the car program at work since the car is 4 years old. So we will need to figure out do we buy an inexpensive Elantra so he can get the compliance or not. I don’t know yet. but we have 2-3 months to consider the idea.
Who knows what this repair is going to cost if it’s a computer system failure. Ugh:(
Well, so then I followed him down since yesterday was a wash and he was supposed to get Bonnies anti -seizure pills at Costco. So I went and got them after I dropped him off. Then right when I got home, he called and said ”come get him” and I said hummmm, let me call Zephyr( our son) because he could do it on his lunch hour which he did thankfully. Then he still had to go out to the Sacramento Airport to get our daughter from her flight. A Lot of driving and that’s going to be Friday night traffic. What a crazy day.
Geez, let’s hope tomorrow we can pick up the car and go on. When I went to Costco I picked up the Sonic care toothbrush replacements and after I got home and tried to put them on they are the wrong ones. So tomorrow, they need to be returned. What a PITA.
Other than that a good week with very nice weather. So I guess that’s encouraging.
Tonight is Friday night pizza homemade!!! I bought the 00 flour and have high hopes!!
This has been a good week without a lot of unnecessary spending. The budget is in good shape for now.
We did our big shop at Costco on Monday so we were set for the week and even into next week. I had bought lots of lunch things so both my adult children would not spend money on food out. This is usually my son but he’s been absolutely great about taking stuff to work and school. He can easily spend $20 a day since he’s gone from 7:30am- 11pm. But taking 2 sandwiches or rice and chicken helps a great deal.
Last week I paid the 6 month Allstate bill so that was pricey but at least it’s done. B got a great bonus (relative to us) so we could pay it all at once. Then I put some in savings too. The first of the month bills are ready to roll out. That’s our mortgage, 2nd, internet, PGE, and the car payment. I’m really close to putting a large payment on the car loan but not yet. I want to finish off the cc that we put our daughters Honda repair on. She is paying this back but we put the amount on our card. So by the end of October, I will finish that.
I haven’t been to the store except we needed some half and half.
Tonight we are having takeout pizza so that will come out of dining out money. We don’t do this often, maybe once a month so I’m okay with that. Plus there’s always leftovers for lunch the next day.
I just started the Tartine Sourdough leaven to make bread this weekend. I’ve been just making sandwich bread but I’ll go ahead with the boule this weekend. The Tartine recipe takes a few days so by Sunday it should be ready to go.
It looks just like fall outside. The yellow colors of Northern California are starting. We don’t get the New England colors but there are wonderful golden colors and some orange. We have a Japanese maple in the yard and that turns red so it’s very pretty.
Today I’m just tidying up things and putting more stuff away for fall. I’m moving the geraniums to the greenhouse. I have to decide if I want them in the sunroom where they were last year. It’s nice in there for them but they do take up a lot of room. I need to get chicken food but I think I’ll let B get that tomorrow. They can make it on the other seeds they have for a day. All the chickens are molting so they aren’t really laying eggs except one or two.
I think I will put out my vintage Halloween stuff today too!
I’d love to find more but that would just be adding to the amount I already have. We put up the orange lights outside and I just love the glow they give this time of year.