Celebrate!!

Good news. All my labs have come back in the normal range. No abnormal protein on the SPEP test. Hurray… kappa light chains at 10.9   Lambda at 9.3   ratio at 1.17

So kappa went up slightly, lambda went down slightly and the ratio went up slightly.  All still within normal parameters. So next month will be interesting, as it will be 2 months off Velcade.  I’m thrilled to have good results and feel very fortunate. I’ll take whatever I can. Sometime this fall I’ll need Zometa but not right now.

Other good news, the Questran has really been a miracle worker. No GI issues at all.  Normal everything plus there’s no urgent , better get to the restroom.  Honestly, I’m not sure why I waited so long to try this. Since we’re in Tahoe this week and the bathrooms are a walk away, I’m feeling confident I’ll be okay.  So happy with this development.

The other good news is our credit for completing 6 years of the HAMP program has been credited to our account. So we maybe going ahead with the Harp program refi but I haven’t heard back from anyone  yet.  with the interest rate due to go up again( as per the Hamp program) in October, we need this to go thru so our payments can be lower.

I emailed both loan officers and do hope to hear something about it today.

Dinner : I think I’m ordering a pizza . It’s still going to be 103 today so too hot to use the oven. Last night my daughter made a nice tomato ,fresh mozzarella salad with grilled salmon. Quite yummy. Plus I didn’t have to cook.

On another note, I went to the Koffee klatch yesterday. Nice to see everyone. But the library news is 6 hours taken from the Applegate branch. Wow, I certainly wouldn’t have a job anymore. I’m guessing only the manager will be doing those 4 hour shifts. It’s really only a matter time before they close Applegate. Actually, I was pretty shocked since with the other 2 branches closing I thought Applegate would get more hours.  Plus the hours are only going to keep circulation down since it’ll be 10-2. No after school, no working people. That will, of course, eventually support that circulation is so low, we need to close this branch.It’s a shame really to see this happen but it doesn’t surprise me with the current administration. Oh well, I have backed away and feel good about supporting Nevada County libraries. I love libraries and am always grateful  for their existence.

Amazing!!!

eleanorroosevelt143006As a long term cancer survivor of multiple Myeloma, I have had my share of side effects, issues, fatigue, etc…yada ,yada ,yada… It’s not fun being on drugs/chemo for so long but one puts up with it because well,  we want to live. It’s kinda a no brainer. But one of the issues I have had really since my SCT is G I issues.  It really started about 3 years into Revlimid when I noticed I was going to the bathroom a lot. I didn’t really quite register( a little slow on the uptake here) that I was having diarrhea a lot. I know I kept mentioning it to my doctor but he didn’t seemed concerned or said take Immodium.  It started to get worse and I would need to go immediately after I ate and then I needed to know where bathrooms were etc. I didn’t go out to eat unless I felt sure I could get home in time. I figured this was something I had to live with.  I’m off Velcade and Dex now but I was still having the same issues.  Eat, bathroom…..not fun.  Then last week I read the Myeloma Beacons column by Tom Shell about issues he’s having and GI issues. I always enjoy these columns written by very good writers and interesting people.  But I also read all the comments since I learn SO MUCH from other people. Well, someone, Katie, mentioned a drug called Questran for diarrhea and I immediately was interested. I posted a comment to her about the drug etc, but it wasn’t published for some reason, so she didn’t get a chance to answer my couple of questions.  Well, I looked it up and read all the details especially about bile and after eating the release of certain enzymes. It sounded exactly like what I have.  I’m guessing this is a result of so many drugs over the years but also, I think my body is triggering this reaction.  Well, the uptake is I  e-messaged my doctor, who always is very responsive, and said could he order me a prescription for me to try since I’ll be going on vacation in August and I’m concerned about diarrhea.  He said it’s worth a try and did.

AMAZING!!!! I’m taking 1 teaspoon in the morning and I have had absolutely no diarrhea. I want to give a huge shout out to Katie who wrote that comment, because I am amazed.  I don’t to get too confident yet but today is day 6 and it is amazing to feel just a little more confident about going out to town or whatever. I am taking a very small dose and it’s doing the job.

If this has been an issue for you read what it says about the drug. It really described my condition totally.