Category Archives: Uncategorized

Day – 2 and counting…

Posted in Bone marrow transplant, MDS, Uncategorized by

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Well, he is still smiling and the hair is still there. He did get the Melphalan yesterday so it’s only a matter of time now that he’ll start to feel awful.

He gets another dose today as well.

But he is eating well for now which is great.

I’m still working on the insurance stuff with him going on Cobra and waiting for a callback.

They did send him an email but he can’t seem to find it right now.  But I’ll follow up tomorrow if I don’t get a callback today.

I’m heading down this morning after I do a few things.  It’s just me this morning and then tomorrow Sachi will go down. Tomorrow is D -1 so almost there.

Simple Sunday

Posted in Blood test, Bone marrow transplant, cancer, Flylady, Multiple myeloma, Uncategorized by

Today is another trip to the hospital but before I go down I will try and do my Flylady zone.

It’s the bedroom so that is generally not too involved. I did call a house cleaning service to check on a ‘deep’ clean and I’d like an estimate. If it’s reasonable I’ll schedule that for the first week of June.  Since sometime after that we will be down there at the RV spot( I hope).

There’s been a hiccup with that as the owner has had a medical issue come up. I sure hope it can be resolved but it is what it is. And his health comes first. We still have the ACS hotel as back up. We can’t book that though till we know the exact date, so it’s also hurry up and wait.

On another note, my labs came back and I’m not going to lie. It upset me. They went up 4 points out of normal range. 18.4 to 22.4. So 19. 6 is high normal. And the ration went up to 1.69 out of normal range. (1.68 is high normal). so there it is. I’m guessing I’m coming out of remission.  I’m not going to worry too much yet as it’s still a long way to treatment.  It could be 3-4 months maybe longer but clearly, myeloma cells are activating.  It’s fine really. I knew it would happen and I’ve had 3 great years. Still, with everything going on it’ll be another trial. I actually see my oncologist this coming week( yes, I know in the middle of everything else) so I can ask him. He doesn’t get too concerned as the increases have been slow.

Anyway, life goes on, one way or another.

 

Day -4 and counting

Posted in Bone marrow transplant, Uncategorized by

Today went well.

My son, Zephyr, and I went down @ 10 am, and it was nice. No traffic backed up.

Today was his graduation day from Sacramento State but he wasn’t planning on going.

he spent the entire time setting up a Spotify account for his Dad and Hulu. So entertainment wise he’ll have lots to do. He also ordered a wifi speaker from Best Buy and we will pick it up on the way home.

He was in good spirits since chemo doesn’t really kick in for about a week.

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We’re heading down around 10 am again and will stay for a while. Tomorrow I’ll go alone as we need to call @ the Health care changes since open enrollment starts tomorrow and we’re not sure how that will work. Someone is supposed to call us but I’m not holding my breath and I’ll check back with them.

Why I am giving up my Instant Pot…

Posted in cooking, simple foods, Uncategorized by

I tried really hard to fall in love with this kitchen item. I’ve made the rice and it’s okay. I think I like the rice maker better. I did make chili and it was pretty good overall but so is the slow cooker.

unnamed.jpg This is not the model I have. This is the fancy one!

I also made some chicken recipes that were good but not stellar. Maybe I like cooking too much and the IP doesn’t allow for tasting as you cook. It’s a one-shot deal.

I gave my rice cooker away to use the IP plus it was getting kinda old.  Rice is good in the IP but I think the rice maker is better.

One thing for sure no one likes the beans in the IP. I’ve been making pintos, black beans, and whatever other beans for years in the crockpot. They come out creamy and in a delicious broth. I also have never presoaked them. In the IP they just don’t taste the same and I can honestly say I didn’t like them much.

So I think I’m going to put it in my closet pantry for a bit and see if in 3 months or so I want to use it or not.

I think it’s great to try new things and I’m glad I’ve tried the IP but I think it’s also okay not to have to like it because everyone does.

So after 6 months, I have to say, I’m not impressed.

 

A change in the weather.

Posted in Bone marrow transplant, home improvement, home stuff, simplicity, Uncategorized by

Over the next two weeks, it looks like rain and cool temperatures. I get so used to it being like 75 or high ’70’s that I forget its still only May.

Still, we usually have all the coolers in the windows by now.  B only put the living room one in and then our son or daughter will have to do the rest when B is in the hospital. But it looks like it’s going to stay cool all the way to Memorial Day. Our yard does look it’s best this time of year with all the roses, and perennials blooming.

A couple of projects are done. One was to paint the french doors( that we got free many years ago) Behr’s Ultra White. The hardest part was taping all the squares. Still, after 2 coats it looks fresh and clean. I must have painted one set before as the second coat on that set looks better than the other doors. But after 2 coats I was done.

Next year I can do a fresh up. Then B fixed one of the sunroom windows that actually is on a hinge to open for circulation. But it had some water damage and didn’t open so he took it off and rehung it.  Cool!!

We also touched up the bathroom paint and it looks good enough I can hold off painting the whole thing till next year.  In the past, I’ve tried to paint each room or a few rooms on rotation.  But not this year.  One thing though, going to a whole house inside color ( Benjamin Moores Simple white has been great.

Today B has a CT scan of his sinuses that they forgot to do in the last CT scan.( ah really?? forgot??? Then we have a load to take to the food bank.

And we’re on count down to Friday:(

Happy Mother’s Day

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I hope for all mothers out there, the best day it can be!!

Being a mom has been the best thing that has happened to me in my life. I had my children later than many (33, and 42) but each one was a gift and I loved almost every minute. (I’m sure there have been a few minutes that I wanted to scream!)

But overall, it has been wonderful and I have two really wonderful children that are smart, kind, and really talented!!