Friday things

So we are ready to go. B signed the consent forms yesterday and admission is next Friday. That’s only one week away. After listening for 45 minutes of every terrible thing that could go wrong we signed.

He will go in at 9am admissions, have a main line put in or a pic line. At this point, it looks like a pic line since his platelets still have not gone over 50. They hover in the ’20s and then drop into the low teens and that is too low for surgery for the mainline catheter.

Then Friday is D -5 for chemo, down to Day 0 which is transplant.  The chemo is supposed to be well tolerated but since I had melphalan  I’m not too sure I agree with that. There are two other chemos involved as well.

So, it begins. Probably the recovery will be the worst part with fatigue and the constant threat of graft vs host disease.

We stopped in the co-op for a quick shop and it was slightly more expensive than I’m used to I may have to use it to buy the things that are better priced such as bulk items. We did have a lovely lunch though and got to relax before heading over to UCD med center.

We got in another co-pay bill for $1680 that’s for all his transfusions. I’ll call this morning to make arrangements for payments. We paid off one and so with this one we’ll have two. All together that will use @ $4500 of the GFM but I’m stretching it out. Actually, I think it’s more like $5000 but still, over time it’s doable. ( As long as too much more doesn’t show up.) But we still have the transplant co-pay which is still unknown but we know it’s about $6000.

Well, I’m just not going to worry about it now.

Today, I’m off to get my labs for my Thyroid as I’m overdue. Then to pick up my new glasses that hopefully have been corrected. From there I may hit the gym and I need to go to the bank.  Yesterday was super long and so I usually drag the next day.

I’m hoping to not go anywhere tomorrow or Sunday and I’m willing to give up my Sunday workout just to stay home. I’ll be driving to Sacramento almost every day starting next week.

UNADJUSTEDNONRAW_thumb_374.jpg This our Cecil Brunner rose all out for Mothers day!!

 

Updates ,Just Keep Walking Project(JKWP) and more

In the JKWP, we are at day 136 in the fourth year.  We walk every day in the rain(today), snow (hopefully not soon), and in the dark (today) and in the light (summer). Next week when we travel to Florida we will walk intentionally even if it’s not the very first thing. We need to leave for the airport quite early so our walk will be later. If you’re just starting out walking, I’d say the best thing is to lace up your shoes first thing and then go. That’s what I do. I get out of bed put on my sweats and lace up my North Face walking shoes. Then I ‘m ready to go. I go out early as it suits my personality. I’m now and have always been an early morning person. I’ve upped my distance too and that’s nice. Mostly since I’m off Dex. Dex just makes things harder with its ups and downs.  So get out there and walk.

Next update: my sister and her 3 daughters are safely back in Connecticut. It was a short visit but they had fun. Everyone avoided talk of politics and religion. I think no one wanted controversy. That’s all good.  Family is family and since we do have differences, it’s best to be tolerant. As an atheist, it would be easy to go on and on about things. But , we each have our own journey to take and that’s that.

Next…. today , finally we get to sign our refi.  We had to pay the annual house insurance and property tax since they were due within 60 days she said. So that was a hit. And we still need to pay a small OOP amount. Not happy about that but it’s a done deal and finally over for now.  My plan is to try and do another refi in2- 3 years and try and get the interest rate lower. But for now,it’s ok.

My doctor appointment went well and he said I didn’t need to see him for 2 months. Wow!!! But I still want labs every 4-5 weeks just to keep up. So I’m still hoping for 6 months but we’ll see. But anyway great for me.

Then we went to the brand new Sacramento Food Coop and wow, it is impressive.  I’m not a member but I just might become one since the bulk foods were amazing. So. fun!!! Plus, I’m trying to work towards zero waste ( in a small way) and this would be a great option for bulk every thing.

Then we went to J Jill in the Galleria. Now remember I hardly ever shop and really don’t ever go to the mall, but I needed something for the evening attire event in Florida. I found a nice black overshirt and I got a black dress off eBay. So I should be set, plus honestly, I don’t care and at night black is black and I’m sure no one is really going to be looking at me.

So, that’s it I think. It’s raining and suppose to get worse today. But we’re snug with a fire going. OMG, it might not be Friday night pizza.  I don’t have any mozzarella so it might be burgers as I got some yummy rolls at the coop yesterday.

imagePart of my vintage Halloween collection.

one of the last things I collect and love.