Monoclonal protein update

So, my cancer marker, m protein is up again. It went from .42 to .5 

whr this means to me is I have myeloma cells starting to wander around my blood stream ,. He said not to worry its very small, but if it goes up again next month, then I will want to go back on the drugs. Yes, they’re hard to take but I can still work, and do most stuff. Usually I’m more tired and WBC can get low. But since I monitored every month I would know.

im actually doing ok with this, since sooner or later it was going to happen.

On other notes, it is freaking hot here. Thank goodness we have a pool. It’s only a Costco one, but it’s cool and refreshing.i can’t do too much outside that’s for sure.

I had B pick up half a flat of organic strawberries, so I’m going to make some jam today or tomorrow . And try out my new loaf pan . Very excited.

Budget is pretty set for July, I told my noes working son, I want him to pay his cell phone. So he will give me $40. I’m going to put that in my 52 week savings which got used last week so I need to rebuild it. My $5 dollar challenge is good and I’m up to $150. Next week will be expensive as B needs new tires and his car service. We also ordered propane and that was $300. So lots going out. 

Hoping to get to ikea soon to check out table and sofa. Especially , after reading pancakes and french fries blog on ikea sofas.

I’m going to work on menus for the week and figure out what were doing 4 th of July .

Working the budget

imageWell, the rain has stopped. Actually since we weren’t camping it was great to get that much rain for the garden . But, it’s suppose to be 100 by the weekend. Go figure?,!

So, it’s budget day. All Julys bills are in and I have a few to write out and send. But, I send those to coordinate with the next pay check. I’d hoped to have the Prius paid off by now but as usual we are not really ahead. I put$50 in Santa, and moved $500 back to sinking. It’s again not what I hoped but at least it’s something. Groceries I’ve put at $300 and that may have to include non food. I’m going to do some batch cooking for the freezer ,so I made need more bulk items. Yesterday, I made a spinach lasagna and this yummy pesto penne pasta bake. Both are in the freezer. I’m going to do enchiladas and double stuffed potatoes. It’s off to Costco today and winco. June we did spend less on food, but non food and cat food were too high.

If you remember our cat tucker has feline diabetes, so we are feeding him can food every 4 hours.

I’m not budgeting any clothes for July. We spent too much in June which is unusual. I almost never buy clothes but I found a few things I needed. I still need new walking shoes, but that will have to wait till I see how the budget is. B needs tires and a 30,000 mile service. Both big money items for us.

So yesterday, I decided not to box up the Franciscan dishes. I decided I don’t use the shelves their on,because there too high for me. So I’m going to see if I do use them , if not ….

I got school art and main lesson books( for you Waldorf people), down to 1 bin. We also have almost another load to go to the thrift store. A tent with no poles I found. Where the heck did that come from? So out in our funky barn we have shelves I the middle ,that actually help the structure, and that’s where I store Christmas etc. My goal is to only have what will fit on these shelves. Christmas is about 4 bins, LOTR binders( kids stuff) 1 bin, art work 1 bin, Z’s brio set 1 bin, Star Trek stuff 2 bins if I’m honest:) ,and some others. But it’s almost where it’s good for now.

What I’ve discovered in this simplifing journey, is each time I go thru stuff, I find less to keep, less that really just doesn’t need to be stored in a bin. Many many years ago, we were very influenced by everything Japanese. Hence , my daughters name is Sachiko. But we were very wabi sabi. Alan watts kinda, “Uncarved Block, Unbleached Silk”. So I guess it’s always been there for us. But after you live somewhere 20 years, stuff accumulates. We still have a very small house( under 1000 sq ft), but as anyone with kids knows, stuff just appears. So it’s now, less is more.

Rain, rain, rain!

image imageimage

I’m going to pack up the Franciscan ware dish set I and put in a cabinet I have. This set is desert  rose. It was service for eight and I have given half away. Mostly they had chips and were mostly seconds. So I’m putting them in a box. If I don’t use them in 6 months for a special occasion, I will give to a friend.

I’m looking into buying shelving called Elfa. I want to seriously change our pantry from our front walk in porch to the kitchen. This shelving looks simple and seems easy to install. Not sure overall how expensive it is.

Today in the rain, I’m going out to the barn and go thru some kids artwork and get it down to 1 bin. I have all their special Waldorf toys in 1 bin. Baby blankets in another. So I am definitely getting it down to a nice small amount. Since I started this minimalism journey, I have really pared everything down. It feels so great.

Should hear from the nurse today or tomorrow on my M protein……….. Worry……..

So have any of you used the Elfa system?

Sunday night chit chat with Carla

  • Reading:just finished “The Apple Orchard” , good, sort of predictable, and Robert Parker’s ,”Fool Me Twice” by Michael Brandman
  • Listening to:quiet, and the cat making ” give me food ” sounds
  • Watching: I think
  • we will watch ” the Shining” , not my kind of movie but my kids want me to see it.
  • Cooking/Baking: we’re having spaghetti for dinner.
  • Happy you accomplished this week: went to the oncologist, good visit. Went to the eye doctor, my floater is normal and not to worry. Just did almost most of my zone cleaning today instead of this week.
  • Looking forward to next week: well, it was vacation, a d I guess it still is, just not at wet Tahoe.
  • Thankful for today: everything!
  • Bonus Question – What was your least favourite part and your most favourite part of the last week? Gee, I guess HAVING to go see a hematologist / medical oncologist . Dr. Laptalo is great. I totally trust him in treating my multiple myeloma . Favorite part, walking in the park!
  • Carla’s

Staycation, not camping vacation!

Well, it’s off. We decided not to battle the rain. It’s unseasonal wet storm, due in tonight, tomorrow and Tuesday . Since that’s most of our camping days, we opted out. I’m okay with it, I really don’t want to be huddled in our tent trailer with pouring down rain. We lose our camping fees, but that’s the way it goes.

so our menu for the week will be our camping menu:

  • Sunday, spaghetti , garlic bread, salad
  • monday, burgers with fixings 
  • tuesday, pulled pork, tofu on rolls salad 
  • wednesday, grilled chicken/tofu potatoes of some sort
  • thursday, enchiladas ,beans
  • Friday,  out for dinner or tacos
  • Saturday, sandwiches of some sort

Have any of you backed out of camping, if you knew it was going to be awful weather?


Waiting, waiting, waiting

imageimageThese are some cactus flowers. We have a small cacti garden, and it’s fun when they bloom. They only bloom a few days.image

We are STILL waiting. And tomorrow we leave for Tahoe, so if its not fixed today it won’t be till late next week!

Waiting for my blood tests to come back…….waiting, always a little nervous…. Has my m-protein gone up, bad, or down, good!

its been very slow at the library…..imagethats my desk!

so you an see not busy today….

oh, I should add this is on my BREAK!

Still no Internet!

ImageWe are still without Internet. We switched to u verse thinking that would solve the problem. No!

my husband changed all the phone wire, No!, so we’ve called for a technician ,which is going to cost $99 to START. WTF, it is driving me crazy. So here I am wifi ING from the library. 😦

I got my new bread baguette pan from Williams Sonoma yesterday , so I can’t wait to try it.

Our dear friend got married yesterday. It was lots of fun! His house is beautiful. I would love to have that much open space, our house always seems a little dumpy after visiting places like that.  Oh well. We have a roof over our head at least.

so were off to Tahoe on Sunday, but it’s suppose to be cooler, maybe a little rain.

Our budget has been completely shot. No zero balance, we even took money from our sinking funds( do not touch), to get camping food. UGhH it has been a tough week!

Wednesday news

So out Internet hasn’t been working , it’s frustrating. Tonight we are switching over to u verse.I hope  this makes the difference. we will see. 

So ,back from my monthly oncologists  and everything looks good. I get my SPEP test back next week. That is the big marker so ……otherwise we were out of there in record time.

then we went to trader joes and that was fun. Bought too much, but I figure part of this is camping food and my son will be home alone ,so he needs some stuff too. 

I’m heading out for my walk right now. I’m up to 17 days in a row. Not bad. 

Whole Wheat Bread, and Saturday stuff!

imageWell, first off I wanted to show a picture of some yummy whole wheat bread I made and homemade butter. I’ve really wanted a zojirushi bread machine forever. But I recently started using Jim Laheys no knead bread. It’s delicious and easy. But, I still wanted the Zojirushi  bread machine. But I have a kitchen aid, so I saw a great recipe on another blog and decided to go for it.

So as a special treat and I’ve wanted this forever, I ordered from Williams Sonoma , their gold or professional bread pan. So instead if spending $200 on the Zorirushi, I spent $25 on a great 1.5 loaf pan. Can’t wait to get it. Also, in the old hippy days, I always made fresh butter. So when I saw the blog on Tomato boots, I thought, yeah, baby(Austin Powers reference ), I’m gonna do that too. It was fun .

So, here’s the next thing, not so happy, but, it was June 15 2005, when I got the official diagnosis of multiple myeloma. I’d never heard of it, and truly was in shock. So, it’s been 8 years, I’m doing pretty well. When you have this cancer, you’re just always waiting for the next shoe to drop, or something like that. I get checked (with blood tests ) every month. I know eventually I’ll be back on chemo, but for now life is good, and I’m going to keep making bread!