It’s going to be another nice spring day. We didn’t walk this morning but will tomorrow. Sunday is my favorite day for walking as usually, no one is there. But this Sunday, B has his transfusion scheduled for 8 am. He doesn’t get labs till tomorrow at 3pm so we won’t know what he needs till after that. So getting out the door will be too rushed if we try and walk at 7am.
Today is going to be a fun day as we are driving up to Tahoe, actually, Incline to go to the Marijuana store for B to get some edibles and may the oil. He can’t smoke anything as he signed an agreement not to while undergoing the transplant. So just the chocolates and something else.
Then we’ll go to Truckee for lunch.
The dogs will be home outside so we need to time it so they’re not out for too long. I think we’ll be gone for about 5 hours.
Here’s a couple of pictures of the Ikea cabinet we got for the bathroom. Funny, it’s really the only thing that would have fit there so I guess I was spot on.
I’m planning on painting the tub black and we’re hoping to replace the floor this summer or fall depending on if B will be well enough or we may hire someone to do it.
This is one of my most favorite prints. I found this at a garage sale many years ago.
It’s been another frustrating week with NYC corrections not answering my emails about our original marriage license and then LLS (leukemia lymphoma society) denied my insurance claim because the breakdown in the forms we have doesn’t have B as the Assoc. alone. It shows him plus one. So that was not good enough for them even though that’s how I’ve been doing it since last June. Go figure. I resubmitted everything again with an additional form we found that shows his health credits but it still only shows him plus one. So I’m not going to sweat it although I was pretty nasty on the phone saying that was all we had to show it.
Since I’ll be switching to Medicare by June 1st I can just wait till then as they do cover Medicare. I did speak to an insurance agent and actually got MORE info. Wow, It’s amazing anyone figures this stuff out. So I need to get a form from B’s HR stating I won’t be on his insurance and then go into SS office for them to process. Then I add the plan F and Part D. He was helpful in that he said to go with the less expensive drug coverage as right now I don’t need the chemo drugs. And actually, in the future, I would ask for only infusions so that would be covered by Part B. I can’t see me going back on Revlimid since I became refractory to it. But if that does happen I can change the plan in January ( I think that’s what he said).
So at least I know the next step.
Dinner is some kind of pizza. I’m not making one so it may be a frozen one.
We were at Costco at 9am and back home by 10am. We left home at 8:30am. So a quick turn around. Primarily we needed to pick up Bonnie( the border collie) anti-seizure meds. So we picked up cheeses, lunch stuff, Sierra Pale ale for B, and granola bars plus butter.
Then after putting everything away, I made turkey chili to put in the crockpot for dinner. I’ll grill some tofu for B. Then I put on a pot of brown rice for tonight and the week ahead.
My daughter has Mondays off so she vacuumed for me and I mopped the floors.
I also was able to download my stuff to LLS so as to get my part of our insurance covered. I am very grateful for this grant but the website is a disaster. It freezes up and then it locks you out for 24 hours if you mess up. But I persevered and got it done for September.
Tomorrow is my appt with Legal Aid for my name change. We’ll just have to see how helpful they are.
We went to Costco yesterday and got a ton of stuff. A fire extinguisher we needed, some organic sheets ( yeah.. they were 29.95), lots of food stuff, coffee. I also went to the customer service desk and got a refund on the stuff that my husband bought 3 days before the coupon book came out. I didn’t know they did that. I was pretty impressed. I won’t need to go to Costco for a month at least. Unless I decide to go get veggies and fruit there.
It also wasn’t raining and that was a big plus. After putting the load away, I made us a brunch of scrambled eggs( our own) and avocado, tomatoes and cheese. Pretty tasty.
This has been a gloomy week with lots of rain and it looks like more is heading in today. Although right now its okay out, no rain. On Wednesday we head to Santa Barbara. B is working the co-ops and I’m going along since work pays for it all. We will pay for my portions of food but hotel and gas are covered. I’m looking forward to it. I love SB, even though I wouldn’t want to live there. It’s somewhat locked in by mountains and of course ridiculously expensive. But it’s great to visit and I love the beach trail. Since we’ve been there before we know a couple of great places to eat, plus there’s Trader Joes and Whole foods just to get some snacks and lunch stuff.
Our budget plans are going very well. Paying off the last bit on a CC is going very well. Actually, I way ahead of my schedule. But that may change or slow down since in the next month we need to get wood for the new garden beds and a truck- load of soil. So that will be an extra expense. But the garden gives us food and freezer stuff to so it’s a win.
I did a bunch of paperwork stuff this week. I needed to reapply for my LLS grant which covers my health insurance and copays to the doctor. Nothing diagnostic but it does help. Then I had to update my son’s FAFSA because he plans to go to San Francisco State university in the fall as a senior. I would like to see him get a grant for housing and tuition but we’ll see. They now do the year before ( 2015) and that was the year B sold stock so we had a larger gross amount. So that may impact it. I’m not sure if I could have done 2016 as that was substantially less. But it said taxes from 2015.
Today is a gym day and then I’m going to roast a chicken with a new recipe from William Sonoma that calls for oranges and red onion. Sounds good.
Arghhh, no sleep last night. It’s a dex night but this is ridiculous. I went to bed at 10 ,slept till the cat woke me up at 1:44, then never went back to sleep. Got up at4:55 , had coffee, then we did our walk. Now, I’m ready for a nap. But I have already done some stuff. Listed some vintage lunch pails. And I’m going to list a few other things today. I have a few Flylady things to do but that’s it. Tonight is egg salad sandwiches, so the eggs are hardboiled already. I need to get my LLS forms ready for my insurance co pay. It’s going to be less since we’ve had a reduction in how much we pay. I am very grateful to the LLS for their support.
I might go out to the barn and declutter some more but will see if I’m still awake. Plus we are having very hot weather, 100 degrees so not to conducive to being out side.
So, a rainy drive to Sacramento and lots of traffic. Dr l was nice, blood work good. Didn’t get my m protein test back but should be soon. Got revlimid ordered and I should get it tomorrow . So a good visit overall.next month I’ll get zometa .
we went then to trader joes and bought some groceries and then to lunch at a super Italian restaurant with the best fire cooked pizza. Yummmmm
oh so the PITA health coverage is requiring a blood test for tobacco use and a wellness dr checkup and fasting blood test for HDL etc.
As if I don’t get pocked enough , and checked once a month. Well not cholesteral but everything else. What a pain.
A big shout out thank you to the LLS for granting me another grant this year to help pay for insurance and co pays!
So, we’ve had 9 no spend days, so very good.
Then payday ,today, got cash for gas, and Costco. Did pretty well only $100 for food, but non food we splurged and bought some potting soil, a pot for the sweet potatoes, new pillows ,we needed. I got a t shirt,$10 and B got a nice dress shirt $20. So I’ll have to figure non food out if my food money, but I think it was good. Also put $100 in Santa, and $100 in savings.
B has changed our w4 so it will be less deductions and therefore more federal,tax taken out. We cannot have a repeat of this next year. So that’s going to affect our take home too. Oh well, it’s always something.
Found out a old acquaintance died recently of brain cancer. I guess she went all over, including Mexico , looking for cures. I don’t know, as a cancer survivor and patient, I think there’s a time to let go. But, who am I to say.
Also, everyone, March is multiple myeloma awareness month, so support someone with Myeloma, say hi, or help out. You can even make donations to the leukemia and lymphoma society. (LLS )!
Well, my son lost his very expensive smartphone somewhere. Humm, so I said he could use my upgrade and get a new one. I’ll help pay for the phone, I guess, but I’m thinking he’ll need to pay some of it back to me. This is going to have to come out of our zero balance, which is NOT, where it should be. I’m going to be dipping under a $1000. Not happy about that. Actually , I’m pretty frustrated with trying to go forward and then it’s two steps back.
I’d like to start paying extra on our mortgage, but my focus is to get that zero balance back up to $1500. I will be getting an LLS check and that will help. But still frustrating…