Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there. Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.
Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!
I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.
Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+. I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.
Today I am roasting a chicken in my large cast iron pan. I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.
This week for those who follow Flylady, it’s the bedroom zone. I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.
This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion. BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.
If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know. So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in. We’ll see.
My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.
I am so grateful for everyone’s generosity. I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.
Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.
The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.
I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.
The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills. So I guess our electric bill will be sky high too.
Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:
- 1x laundry a day washed, dried and put away.
- counters kept clean
- dishwasher emptied either after it runs or in the morning
- tidy each room
- make bed
- wipe bathroom
- do a daily budget
- in the morning check what appts are for the day
- I also plan dinner what I’m making in the morning
It really does help to keep routines and to simplify things.
Well, I’m off to do a few of those things now as we were out all morning.
It is rainy, rainy and rainy. The temperature is dropping too. My daughter is planning to work on Tuesday but I think the freeway will be closed and travel to Truckee unlikely. I guess we’ll see.
Today B has platelets and I’m going to go to the gym. This infusion goes relatively quickly.
We got quite a few applications from the Social worker to fill out for assistance such as PGE’s medical rate, handicap placard for when he’s going to the hospital and afterward and an American Cancer one that might have some assistance. We’ll see how any or all of that goes. I’m still planning to do a GoFundme but just haven’t gotten around to it. Based on what the social worker said the month housing will be around $2000. Plus we will have to cover the expenses of the bone marrow retrieval( plane flight, hotels, etc). That’s if there’s a match.
Lots to consider and think about. But one day at a time and one foot in front of the other or just keep walking:)
This week is the kitchen zone and I may start that when I get home from town or I’ll start tomorrow. One thing about simplifying and decluttering, cleaning goes much faster when you have less. I’m still loving the open shelves and love the bright white. Even if and when we do a remodel I would keep open shelving. It makes things more organized since you can see what’s there. The things in the metal bins are organized such as tea, coffee, spices, so I know which one is which. I think it’s working out great and I’d encourage you to try if you’re looking for a change up in your kitchen. Initially, I did freak out and it took 3 coats to paint the shelves but it was worth it.
We don’t have cable so I’m not sure if we’ll find the super bowl to stream but honestly, I don’t even have a clue about the 2 teams. But the ads are always great and quite clever.
Well, off to town in the rain:( I really hate driving in the rain.
I walked this morning and B actually felt like walking too!!! Hurray!!! As soon as we were done though it started pouring rain. It was funny.
Today is supposed to be rainy but then the rest of the week looks lovely and in the mid-’60s. Yes, I can get outside. I am wanting to get out to the barn to go thru another bin of Life magazines. I think I’m just going to take most of the very early ones to the Cancer thrift. I have some of the ones in the 1930s. I love that life was so different and way simpler but also way more uninformed. News took a long time to get out. Now it’s instant. Anyway, I’m pretty sure my kids don’t want these ones so I think that will eliminate almost a whole bin. I have 4 bins left and I’d like to get it down to 2 by this summer. Other than reorganizing camping stuff the shelves out there look good.
B will need to give most of his samples away since he’s not on the road and won’t be again. The food bank always appreciates the organic and natural stuff. His job has been given to someone else so when he goes back it won’t be for that job. Does anyone know the law about that? Do they have to hold his job for him for x amount of months or not at all? Well, since we don’t know how long it’s going to be I guess it’s a moot point but still I’d like to know.
I’m off to the gym and then finish the bedroom zone. I want to wash the curtains this time around.
Dinner is spaghetti with a sauce I think. Brinner is an option too. So one or the other.
A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.
Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.
Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.
Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.
This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in. So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.
Off to tidy up and then read.
Oh, I’m reading the last Henning Mankel book,’After the fire’. His writing is just amazing. It is so clear and precise. Yet, very poetic.
So still raining, but today is supposed to be sunny and then back to rain. UGhhhh, I really do get sick of it. Plus the yard looks rather sad and really needs some picking up. I did clear off the patio the other day as it looked like everything had been tossed on the patio table in hopes of someone tossing it. That turned out to be me. It all still looks forlorn and I’m seriously thinking of hitting up Home Depot for some kind of winter flower or plant to spruce it up. Anything to bring a little cheer to the front door area. Our entry is weird enough that the front door is on the side of the house and we have a gate from where we park cars that we walk thru so the angle is always weird. Plus the patio is right there and that adds to the visual clutter. The original front door was where the porch was that we rebuilt and enclosed when we were remodeling. It’s all done with 2x 6s so it’s code but it wasn’t in our final. I suppose if we ever were to sell we’d need to do something but that’s neither here nor there yet. so that door which was the main door also was placed weird that it faced the lawn that was there and not a driveway either. So now that door goes into the front room and the other room is my office. But originally that was daughters room. It’s actually quite cozy with french doors on one end. The floor is wide planked pine that B put down over the concrete floor that was there. I suppose if we ever had money a proper remodel would be nice.
Anyway, enough rattling on about that.
So far this week, we’ve had the oncologists/hematologists appt and that went well. She took pictures of poor B’s mouth. We asked for a pain prescription and about other stuff and she was very thorough. From the second BMB, there were no other FISH (genetic anomalies). So it looks like it’s the 7 q deletion plus excessive blasts( that’s the bad part). She’s also hoping that after this second round of chemo the good cells will start winning over the bad cells but that remains to be seen. He had another transfusion on Monday and starts chemo today. So the next 5 days will be constant. Hopefully, though, it will go smoothly. His counts are so low that risk of infection is there. So far he’s done fine except for the mouth sores.
I had my DEXA scan and shall see how the bones are in a week or so. Honestly, who cares at this point if I’m pre-osteoporosis. Or maybe it’s there already. I would just have to see what the doctor says about what to do with medicine. Because I’ve had so much Aredia and Zometa, that can actually affect the bones sometimes in a negative way after years of treatment. So we’ll see.
I finished watching the ‘Tidying up with Marie Kondo’ and it was really fun to watch. Amazingly, B did all his clothes, which were not a lot, but still, his drawers and closet look absolutely great!!! If you can watch it, I’d highly recommend it. I do think there are other methods of decluttering that are just as good or for some better. Some people do room by room and that works too. I think because I had done so much decluttering starting with Fly Lady, that when I got to Marie Kondo’s method it wasn’t overwhelming. But if you haven’t, I could see getting out every book you own would be daunting.
So off to the gym today, drop B off at infusion and then go get chicken food.
Last night I made a Thai Chicken soup and it was delicious. If you have leftover chicken and a can of coconut milk, I’d highly recommend it.
So far the no-spend month is going fine. I’ve been to the store a few times but nothing extra. I need to go to Costco this week for TP and some fruit and greens for the Vitamix but that’s all(I think). I’d like to hold off as much as possible but I’ll be down in Roseville on Wednesday for a Dexa scan. So, that maybe when I go.
Things have been rainy and windy here. It looks like the next 10 days are rained filled. I walked this morning and it was quite lovely and it only started sprinkling when I left.
I made a yummy split pea and ham soup last night. I didn’t make a vegetarian one as B isn’t eating much. Once again, I made him some scrambled eggs. I don’t make Split pea often and this one turned out quite delicious. There’s some to freeze and maybe lunch today.
Tonight I’m making chicken parmesan and some pasta. No salad as I bought a clamshell pack at Grocery Outlet and it was all funky so I gave it to the chickens.
This week is the kitchen zone. So I’ll start that today. Plus it is sheet day. We only have one set of sheets so I wash and dry them and put them back on the bed on Sundays. I am going to get some new sheets but just not sure when. I was waiting for Target to put the linen/cotton blend on sale but so far haven’t seen it.
This week is full of appts which I do not like. But they are necessary and B starts his next round of chemo on Thursday so that means out every.single.day. I’m sure my daughter and son will help with the driving when they can.
Oh geez, I forgot to update about my damn birth certificate. They returned it (after 6 weeks) REJECTED because the second page of the decree was not included. The clerk had told me, it wasn’t generally ever asked for. Plus they wanted our original certified marriage license WTF I don’t know. This has been one of the biggest BS things I have ever been thru. So on a whim, I drove down to Roseville to the justice center and expected to wait hours till I could get to the recorders window. Much to my surprise, I sat down after taking the ticket, and I was called in about 2 minutes. I told the clerk what I needed and she said sure. She said it’s rare anyone cares about the second page. So I got what I needed, came home went to the post office to get Priority envelopes (again) and loaded it up and sent it off. I would hope this does it but I’ll keep you updated(probably in another 6 weeks???) What a PITA…..
Well, off to the kitchen zone…