What we’ve been up to.

Fortunately, my son Zephyr is able to work at home. It’s a bit of a challenge as he does video production but he’s managing.  Sachi is able to also do the library stuff online too which is mostly ‘chatting’ with students about research stuff.

I’ve read 4 ebooks in the last week. It’s a new author and character I really like.

Here’s the link. 

 The character Emma is an FBI agent who’s really good at what she does. The books are paced well and the mystery is good.  Now what?? I’ll have to see what else I can download.

The weather hasn’t been good enough to work in the yard but maybe in a few days. Everyone is getting a bit of cabin fever I think.

Our pantry is still well-stocked but I am waiting on an order from Costco for laundry soap and dishwasher soap. Both were supposed to be 2-day delivery but it’s now day 4 and it hasn’t shipped yet. We don’t really want to hit up Costo so I guess I wait and see.

I canceled our camping trip to New Brighton in April. I just don’t think everything will reopen by then and even so, it’s probably just too risky. Disappointing to say the least.

We had tacos last night and tonight is kinda freezer cleanout. I have some spanokopita to use up. I’ll make a salad with the last lettuce I have. I’ll probably need a store run for some fresh stuff by Monday.  Maybe I’ll go Sunday or Safeway has the senior time Tuesdays and Thursdays, so I could do that.

the sun is peaking out so that’s a good sign that it might end up a sunny day.

 

Friday Stuff

Happy Valentine’s Day!

We don’t do much special since I hate crowds and would not even consider a dinner out on VD day. I did buy some nice carnations at Safeway and some roses at Costco so they are on the table looking pretty.

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It’s been a maddening week trying to get a camping reservation. Every single morning ( including today) I have been on the computer at 7am on the dot( watching the second hand) to reserve a spot and absolutely NO LUCK!

There are so many people trying to get reservations for August that it’s almost impossible. Today, I’m trying for 5 different spots and not sure if that will slow down the computer. But if I don’t do the 5 then there’s no chance. I’ll update after 7am.

NOPE>>>>>NADA>>>>>ZILCH

Let’s see what else. Barclay had to go back down to UCD med center to pick up an immunosuppressant drug because he’s had skin itching and slight rash.  That’s the one he’s been off of since December so they don’t want any GVSH happening.  We’re also dealing with medical bills from August that the Cobra was supposed to cover and they don’t have it straight. I’m ready to just chuck it and make payments. We’ve been trying to get this squared away for months and they just aren’t getting it.   They keep saying he had 2 insurances but he didn’t an only had the Cobra. What a PITA>!

I’ve applied to the LLS for my grant for 2020 and that will pay my AARP supplemental insurance.  They do such an amazing job and I’m grateful for the grant. If I ever have to go back on Revlimid they would help with that co-pay as Revlimid is a tier 5 drug and runs about $20,000 a month. With insurance you need to go thru the donut hole and then still it runs about $1500 a month.  I can’t see me going back on Revlimid but who knows.

Speaking of which, my labs came back very disappointing. They almost double!! ( well the Kappa light chains did) so that is a very bad thing.  I see my doctor next week so I’ll see how he sees this change. My ratio went up too but still is overall low at 6.58 mg/L. It’s the ratio that is more important. Still, it freaks me out that myeloma cancer cells are activating and multiplying. WTF….  well, I knew it would happen sooner or later as Multiple Myeloma is incurable but can be held in check.

Today I’m just planning on staying home and doing somethings around the house. I need to mop the kitchen floor and wipe the bathroom.

Tonight I think I’ll make a pizza Margherita although I ‘d need to run to the market for some fresh basil.

Travel plans

Now that Christmas and NY are over, it’s back to my regular things.

I’m already planning some trips for us and what I’ve lined up so far is

  • Chico to stay at the Diamond Hotel( a restored old hotel) and dinner at the Red Tavern which is kinda fancy.
  • Yosemite and a stay at the Ahwahnee which is on my bucket list. Plus I’d never go to Yosemite during the tourist season. We did that camping when our kids were young and it was busy but not insanely so as it is now. We’re staying only one night due to the cost factor. It should be about a 3 1/2 hour drive so quite doable.
  • I still need to book the dates for Santa Barbara. I’m thinking early March which should be lovely down there. This will be 3 nights as it is too far just for 2 nights. Although we might just stay 2 nights and then the other night in Monterey as that’s about the half waypoint. ( it is a long drive)
  • April, I’m hoping we can get into New Brighton Stat beach and will look at that this weekend actually. It always books out that time of year so I don’t know yet.
  • Update on New Brighton. Just made a reservation for April so we’re set there. It’s after Easter and there were only a few spots with 3 nights. So I took one.
  • May has nothing, maybe camping?
  • June -nothing yet. Everything at nevada beach is booked:(
  • July we usually stay home
  • August nothing yet

The rest is open and I’ll see where we are.

 

Simple Sunday

It’s been a nice week although weird again with the holiday in the middle of the week. I kept thinking Thursday was Monday. Oh well, it seems that we’re back on course and today is Sunday.

We did a shop a Costco on Friday and didn’t overdo it. I bought extra coffee and TP so we won’t need to ‘run’ down there for those things. We are eyeing a new TV though. Ours is about 8 years old and still works but the sound quality isn’t the best. There are some sales for the super bowl so if I think we can swing it, I will.

B’s last SDI was this last week too. He did get a notice to have his doctor fill out a form about not returning to work, so I’m not sure if they would extend his benefits to use up the little he has left or if it’s just paperwork. What I read is the maximum award is 12months, so we’ll see. We’ll try and do that next week although he sees his doctor on Tuesday and I’m sure it won’t be in the mail by then.

This month will be the big test of how we do without the SDI. I know it’s going to be an adjustment. But at least we have no big bills in January just the car tags for the old van. Still, that’s $150. I have been saving quite a bit of the SDI so that I know I won’t be adding to the savings.

Also, we had to call on his Cobra as, just as expected, the Noxafil prescription came in at$1200.  This amount was the Medicare Part D prescrpiton plan that I’m not planning on using that’s why we’re paying the Cobra amount. I am not paying that much money when last month it was 0.00 co-pay.  So he called and the Cobra payment letter was just going out. So we did it online and then now we have to wait for it to get activated by the prescription plan. After that, we still don’t know what the co-pay will be since we haven’t reached any yearly deductible.  It’s all unsettled right now but next week we should know and hopefully, it’ll be resolved.

Plus we know that within a few months Noxafil will be reduced or eliminated so then we will cancel the Cobra and just use the Medicare Part D as all his other drugs are Tier 2. I think it’s only Noxafil that is Tier 5. What a Fucking scam is all I have to say.

Today is a gym day and we will go for our walk shortly.

Flylady zone is the kitchen and I’ll start that today but finish tomorrow.

I made a new recipe last night from another blogger( Teresa Kasner)

She lives along the Columbia River in an old beautiful farmhouse. Her pictures are outstanding. So the recipe was for Chicken with potatoes and spinach in a creamy parmesan sauce. It was good.

This week is Clinic for Barclay and our overnight trip. Plus whatever stress with the prescription stuff comes up.:(

I started a list of projects for the year and we’ll see how far we get.

  1. to drop the wood stove to floor level so that the footprint is lower and less of an eyesore. We built the platform specifically so we wouldn’t be bending to put wood in but it does take up a lot of floor space. This won’t cost a lot except added stove pipe( which is pricey) but we won’t need a lot. And some stone for the floor. Our woodstove is quite efficient and we will keep it for a few more years. Eventually, we will put in a gas/propane stove. But that’s maybe 5 years out still.
  2. We will be replacing windows in my daughter’s room. This will be maybe @ $1000 as it will be 2 windows replacing one large one. The Anderson windows we bought last summer are great and very energy efficient. So that ended up @ $800( I think).
  3. I’d like to also replace the bathroom window. Same size but just more energy efficient. All the windows in the house we’re replaced when we remodeled but they are now 25 years old so an upgrade will be nice.
  4. I don’t think we will get to any bathroom remodel this year.
  5. I think we are going to try and redo some of the kitchen. The biggest thing is the counters and sink( pipes underneath) really need to be redone. Getting a new pantry system from Ikea will be first on the list as that will be freestanding.

There’s always garden work and yard work. That’s kinda ongoing.

Barclay’s official retirement date is January 30. That’s 25 years. It’s hard to let go of, I think, because of the way it all happened with him getting sick. But how incredibly lucky we are for modern science that has given him a new chance without cancer. Even I can’t say that, although I have been extraordinarily lucky that my Myeloma has responded to treatment. Well, it is what it is.

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This was our dinner the other night. A small piece of filet mignon and a Beyond Meat sausage( which are delicious BTW).

 

 

Simple Sunday on Monday

The days of the week are a blur with Christmas last Wednesday and now NY on Wednesday this week. I am definitely off track.

Yesterday was a nice day though with going to the gym and then doing the LR zone. If you do Flylady there are 2 zones this week LR and then on Wednesday Entryway. That should add to all the confusion.

I made a broccoli cheddar soup for dinner last night and tweaked a Moosewood Cookbook recipe. I added some cream cheese to the soup as I didn’t have heavy cream. It came out really good although it was as thick as Panera’s it still had excellent flavor.

Today I’m going to brave driving down to Galleria area to Old Navy to pick up a partial order. I’m going to try their leggings and I also got two dressy blouses to wear on our dinner date in Chico. Well, I’m only going to wear one, of course. I had hit up Goodwill and Cancer thrift to find something and there just wasn’t a thing. Our Goodwill has gotten so bad. it’s mostly junk and things are picked over daily. I’m not sure what is happening in that store. There isn’t another Goodwill nearby so maybe that’s it. Plus our Salvation army store closed this year as well. I was actually trying to find something by JJill which is one of my favorite but no luck. I like Old Navy and the price, with sales, is pretty good. Anyway, I think I will try them on before I leave and if they don’t fit right I can return right then and there without a second trip.

Then that will be my big excursion. Tomorrow I am getting groceries for NYE ( we always do sub type sandwiches) and for the Chruscikis. They are Polish or Russian or basically European cookie that is a very rich dough that is fried.  They are not sweet but powdered sugar is sprinkled on top. My brother loves these and it’s one of the good memories he has of his childhood. So I’m the only one in our family who makes them.

I’m determined that we will do some traveling this year as we are both ( hopefully ) well enough. I’m going to plan our annual Santa Barbara trip that we missed last year. Of course this year B’s company won’t be paying the hotel for work. But that’s okay we will figure it out. Santa Barbara is about 7-8 hours drive but it’s doable. We have the things we like to do there and the beach trail is the best.

 

It’s been a busy but productive week

We had a nightmare drive to Sacramento on Tuesday. I have to say this really was the first time it was so awful. First off, we stopped to get gas and the car in front of us( so we couldn’t get to the pump) had what appeared to be someone living out of their car. We waited politely and waited and finally, I backed up and zoomed around to get to another pump.  The lady must have been in the bathroom washing, but then after she pumped her gas she proceeded to wash her car windows. I was getting frustrated at this point and this put us almost 15 minutes behind.

Then traffic was really heavy for some reason and I knew we would be late for B’s infusion appt( to flush his port and labs). We were 20 minutes late. That is a first.

Well, it all ended great with the NP telling us that the BMB results were excellent and chimera was 99%. Truly science is amazing.

We both got our Flu shots and both are arms a little sore. But not too bad. So that’s done.

B got his LLS reimbursement for the insurance so that’s a big deal and in the coming months will make a huge difference. Thank You LLS donors who make these grants possible.

Today I’m heading into AAA to sign up for the home insurance( that they canceled  and we now will be with them but they’re underwritten.) Plus it’s about $600. more annually. WTF!!!!

I might go to the gym afterward or I may just flake. I’ll see how it goes.

I was trying to plan another mini trip to Capitola but Airbnb’s are really expensive and so are hotels. We decided not to spend money on that. I checked New Brighton but it is all full, probably with retirees in huge RVs. 😦

Barclay is still processing going back to work but I don’t want to give up his SDI yet. That money is non-taxable so we will not owe next year. But it only goes thru December and that’s it. But it has been a huge blessing. If he goes back it won’t be his old job as that’s been given to a co-worker and he couldn’t really travel like he did.  His boss has indicated he could do something from home ( ideal ) but he’s still not sure. He’s only 4 1/2 months post-transplant and most people don’t go back to work for a year or not at all.

If anyone has any thoughts or input I’d appreciate the ideas as we definitely conflicted about it.

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Simple Sunday

Fall is in the air around here. Our temperatures have really dropped and I actually closed a few windows. We always open all the windows in the evening in the summer and then close in the morning as the heat starts. In the fall we keep the window open all day and partially close at night as it can get chilly.

We’re also watering quite a bit less and the gardens are just about done. We turned off the drip hoses and will only water as needed. We still have tons of cherry tomatoes so I’d like to keep them going. Our water bill is high again $155. but now it ‘ll drop back down.  Since we’re on Meadow Vista water it NEVER goes below $70 since they have huge fees attached to the water. In the winter we use about $20. worth of water a month but the rest are their fees.

 

Our trip up to Tahoe in 2 weeks will probably be chilly but that’s okay. We’ve got the heater in the tent trailer and lights. With the new Honda generator, we can run lights longer if we want. It’s very quiet but there’s still a curfew of 10pm on generators. We’re in bed by 9pm so no worries.

This week is the kitchen zone with Fly lady. I’ll start this morning and then finish up tomorrow. I’d like to reorganize the pantry( restaurant stainless steel shelves). they are not too bad but I do have loads of tomatoes and peppers on one shelf. So we’ll see.

Today is also a gym day and then home.

We finally got the 2 new windows we ordered almost 5 weeks ago. They go up and down and open which the other ones did not. So it is going to be great to get air in there at night or just when it’s nice out.  This is one of the few projects we did ( okay not me, but Barclay and my daughter) this summer. We’re still hoping to take down a tree or two later this fall but so far no one has called back to give us an estimate.

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