It’s been a busy but productive week

We had a nightmare drive to Sacramento on Tuesday. I have to say this really was the first time it was so awful. First off, we stopped to get gas and the car in front of us( so we couldn’t get to the pump) had what appeared to be someone living out of their car. We waited politely and waited and finally, I backed up and zoomed around to get to another pump.  The lady must have been in the bathroom washing, but then after she pumped her gas she proceeded to wash her car windows. I was getting frustrated at this point and this put us almost 15 minutes behind.

Then traffic was really heavy for some reason and I knew we would be late for B’s infusion appt( to flush his port and labs). We were 20 minutes late. That is a first.

Well, it all ended great with the NP telling us that the BMB results were excellent and chimera was 99%. Truly science is amazing.

We both got our Flu shots and both are arms a little sore. But not too bad. So that’s done.

B got his LLS reimbursement for the insurance so that’s a big deal and in the coming months will make a huge difference. Thank You LLS donors who make these grants possible.

Today I’m heading into AAA to sign up for the home insurance( that they canceled  and we now will be with them but they’re underwritten.) Plus it’s about $600. more annually. WTF!!!!

I might go to the gym afterward or I may just flake. I’ll see how it goes.

I was trying to plan another mini trip to Capitola but Airbnb’s are really expensive and so are hotels. We decided not to spend money on that. I checked New Brighton but it is all full, probably with retirees in huge RVs. 😦

Barclay is still processing going back to work but I don’t want to give up his SDI yet. That money is non-taxable so we will not owe next year. But it only goes thru December and that’s it. But it has been a huge blessing. If he goes back it won’t be his old job as that’s been given to a co-worker and he couldn’t really travel like he did.  His boss has indicated he could do something from home ( ideal ) but he’s still not sure. He’s only 4 1/2 months post-transplant and most people don’t go back to work for a year or not at all.

If anyone has any thoughts or input I’d appreciate the ideas as we definitely conflicted about it.

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Simple Sunday

Fall is in the air around here. Our temperatures have really dropped and I actually closed a few windows. We always open all the windows in the evening in the summer and then close in the morning as the heat starts. In the fall we keep the window open all day and partially close at night as it can get chilly.

We’re also watering quite a bit less and the gardens are just about done. We turned off the drip hoses and will only water as needed. We still have tons of cherry tomatoes so I’d like to keep them going. Our water bill is high again $155. but now it ‘ll drop back down.  Since we’re on Meadow Vista water it NEVER goes below $70 since they have huge fees attached to the water. In the winter we use about $20. worth of water a month but the rest are their fees.

 

Our trip up to Tahoe in 2 weeks will probably be chilly but that’s okay. We’ve got the heater in the tent trailer and lights. With the new Honda generator, we can run lights longer if we want. It’s very quiet but there’s still a curfew of 10pm on generators. We’re in bed by 9pm so no worries.

This week is the kitchen zone with Fly lady. I’ll start this morning and then finish up tomorrow. I’d like to reorganize the pantry( restaurant stainless steel shelves). they are not too bad but I do have loads of tomatoes and peppers on one shelf. So we’ll see.

Today is also a gym day and then home.

We finally got the 2 new windows we ordered almost 5 weeks ago. They go up and down and open which the other ones did not. So it is going to be great to get air in there at night or just when it’s nice out.  This is one of the few projects we did ( okay not me, but Barclay and my daughter) this summer. We’re still hoping to take down a tree or two later this fall but so far no one has called back to give us an estimate.

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Simple Sunday

A nice Sunday morning with cooler temperatures.

Getting ready to do the bedroom zone.

Plus its sheet day.

Yesterday I did a Walmart grocery pick up. I don’t shop Walmart but was interested in the pickup and I had a $10 off code. I bought quite a few organic items and them some pantry stuff I wanted. I was surprised at how easy it was and I didn’t have to go into the store. I’m not sure I would do it a lot but I have to say the prices were quite a bit less than Safeway.  Organic Valley milk was almost $2.00 less than Safeway. So were the Morningstar items. So those are big savings.  I also went to our little organic farm down the road and got $20 worth of veggies. The corn was excellent.

I’ll have to see how I feel about it over the next week.

I was able to book a night at Nevada Beach for B’s birthday. We may or may not take the tent trailer. Our old van can be used to sleep in so that’s an easier option. We found a nice 2017 Hummingbird RV by Jayco for a terrific price but it’s about 2 hours away. We were pretty gung ho about it but then backed off. I think since we really don’t have other camping plans this year we should save our money till next spring. It was a great price though. If we could see one locally it might make a difference.

It’s a gym day too and that’s it. Don’t need any groceries for a change.

The coming week is busy with 3 days of appts for B. We’ll get thru. After this week we should be on schedule for every 2 weeks. But there’s also my doctor appt and his BMB  early September so that will add some extra driving days. My daughter isn’t working yet so she’ll help with some appts which will be appreciated.

My labs should be in tomorrow. I’m guessing they went up and really there isn’t any more downward trends. So the question will when do we start Velcade again. Since my doctor is very conservative I may have to say I want to start when my Kappa light chains go to 100. It’s hard to know if I’m asymptomatic. But if it’s going the way it is it still may be a while. I went from 19.7 to 22.? to 25.? to ??? So 3 points a time. That’s every 6 weeks. The ratio at 2.33 so that’s above the high normal of 1.65

If I could hold off till next year, B will be in good shape and hopefully not need any interventions.

Who knows? Right?

Simple Sunday

A nice walk this morning with some cloud cover. Today is supposed to be a bit cooler and with some clouds.

Yesterday, I grilled some chicken on the bbq and made extra for a chicken salad tonight. I had made an Asian salad last night and added crispy tofu and chicken on the side.  I think there’s some of that left too.

I started the kitchen zone and will do a bit more after I go to the gym. Tomorrow, I’m not going out at all so I can finish it then.

I did some meal planning for the week and plan to use the IP for a few recipes. We’ll see how I feel using it again.  I know I don’t like the beans cooked in the IP for some reason but the crockpot is great for beans.  Anyway, we’ll see.

I’m finally back on schedule that this is sheet day and Monday is towel day. When we got back from Sacto, the sheets had been washed and were on the bed so it thru the week off. The following week I did them on Saturday and this week is finally the right day at least on my schedule.

We’ve been talking about getting the small RV this fall to be ready to go. I’m sorta thinking maybe we should sell the tent trailer now as it is summer and probably a better time to sell. I’d be sad to see it go but I know we won’t be out this season at all. And we know we want a toilet and shower. So, I guess the time has come.  I’m also thinking of paying for 1/2 the RV and then financing the rest but not sure on that either.  I’d like to get $4,000 for the tent trailer but that may be optimistic although they do go for a fair price, even older ones.  I’ll check what’s on Facebook Marketplace to compare.

Other than that, a nice simple day enjoying the beauty of life.

The week ahead…

We had a quiet Memorial Day.

My brother died in Viet Nam in 1968 so I thought about him. He was a talented artist. What a waste. He also couldn’t get a deferment even though he had a heart problem and at that time was working full time to support my mother. I guess Donald Trump got the deferment for his bone spurs. I guess he had enough millions to pay off a judge. Well, I guess that tells you something about my brother being killed in Viet Nam and  Donald Trump whining about a bone spur.

It was cloudy to start but then eventually the sun came out. We BBQ some burgers and I made some coleslaw. My daughter made us some strawberry shortcakes for dessert later.  We generally don’t eat dessert so this was a nice treat.

I didn’t drive to Sacramento and missed seeing B. But I’m going down today and all the rest of the week except Friday. I think my daughter will go on Friday unless her new job starts. Her library interview is next week and this job she is doing is only temporary thru June.

Everything is lining up for us to have the RV. I just ordered some camp chairs as I don’t want to use the owner’s ones for risk of them being stolen or damaged. We needed new ones anyway.

Flylady zone this week was the living room. That’s an easy one for me as it is almost where I want it with functionality and minimalized. I try and do one thing in each zone that’s new or improved. So this time I moved the Ikea cart out and put it in my office area. It holds our wine bottles( which have been reduced to one Chianti, that we don’t drink very often) and we kept our silverware in Ball jars there too. So, I’m going to try it and see if we NEED it back or can the space just be open( white space). I guess we shall see. Right now in my office space, it has a plant on top and that’s it so, that probably isn’t very efficient either.

I’m planning on going to Sac Co-op this morning for veggies and olives from their olive bar. But it kinda depends on my mood as I get closer. Nothing is critical that I need so we’ll see. (How’s that for being indecisive??)

Dinner is chicken enchiladas!

Looking back at 2018

It really was a wonderful year with my remission still present. It’s been now, 2 1/2 years since my last Velcade treatment. I’m cautiously optimistic about my numbers in the next 6 months or at least I know that in the past my numbers don’t just skyrocket so that is reassuring. If something starts changing I will have months to prepare mentally and emotionally.

We had numerous wonderful trips.

Our annual Lake Tahoe trip was just wonderful in September. Going up to the north coast with B for work was also nice. We hit Santa Barbara back in the very beginning of the year too. I do love Santa Barbara to visit.

My sister had a rough year with her cancer treatment but is now cleared and is doing well.  She, of course, couldn’t visit this year and we did miss her.

My daughter was promoted to full-time Youth Services Librarian so we are very proud.

Our son is in his last year and now last semester of college and is working very hard. He was traveling to Sac State from here 4 days a week and that is over an hour commute when the traffic is good. We’re proud of him for being so diligent.

Then the world crashed down on November 19 with B being diagnosed ( after the 19th, more like Dec 1) with MDS high risk. What a shock and it has sent us spiraling into the world of doctors again. For people like us, who rarely see a doctor unless it’s needed it’s all very weird. Of course, I do my routing labs etc, but on the whole, it has never been something we do because we’ve always been so healthy. This has been a shock, to say the least.

The future seems uncertain and we must just go forward bravely.

What else can you do??

Simplifying even more…

While we were camping we went thru the tent trailer an got rid of all the weird kitchen stuff I had in there. A whole box worth. I mean really, am I going to use a vegetable peeler while camping?? Plus, we took out a box of dishes as we really only use the same 2 over and over. We probably eliminated 3 boxes of stuff including some clothes that were for “just in case’.  That was really great to do. It’s all dropped off at the Goodwill and I didn’t even go back thru to see whether I wanted it in the house.

I started making some homemade bread again. I used the Zojirushi to make the dough and then bake in my bread pan. My daughter got me a fancy new bread knife for my birthday so I had to make bread. It was amazing to cut the bread. It sliced thru like soft butter.  It always surprises me how having a good tool for cooking or like a sharp knife makes cooking so much better. I don’t use a lot of fancy tools but what I have does make the job of cooking so much better.

Recently, I got rid of our rice maker and started using my Le Creuset.  Organic long grain white rice takes only 18 minutes and then let sit for 15 minutes.  It’s actually quicker than the rice maker. So one less bulky thing in the kitchen.

Yesterday i cleaned out more pantry stuff. I have a good size bag to give to the food bank.

I had my labs Monday but no results yet so I’m guessing he’s out of town. That’s the only time when my esults get delayed. I’ll wait till Thursday then I’ll call his nurse.

Today I’m washing the white couch covers as this week is the living room zone.  I also need to do the outside window as I do these quarterly.

The garden is done and I am done with canning tomatoes. There are still some apples but they can wait. Last night we had butternut squash soup with our very own butternut squash. I also made a spaghetti squash and had that with butter and sage.

An old friend from my ‘metaphysical’years got a hold of me last week. It was nice to reconnect. Her sister had just died and I think it caused her to do some thinking about times gone by. We plan on getting together in a few weeks. She lives in Reno so not too far away. I will drive up for lunch!!