Friday things

well, not good news on my labs:(

My kappa light chains went up to 176mg/L so a 66 point increase.

Lambda only to 13. mg/L ( normal as I am not Lambda myeloma)

ratio up to 13.44 so a 4 point increase.

Not happy but what can you do. I will see my doctor at the end of June. Not sure if I’ll do the video conference or just go down to Sac. Probably I’ll go down. I mean he isn’t going to start treatment yet anyway, but I’d like to check in physically.

We’re still looking at when I hit 500 mg/L so that maybe January. Or if things speed up sooner. You can’t really tell how it will go except it won’t go down.

I won’t lie that it doesn’t upset me but since this month is my 15 year since diagnosis( I’ll write about that later), you do get somewhat hardened to the fact that remission isn’t forever.

Other matters, B had his BMbiopsy Wednesday and was pretty loopy from the drugs but he said it went well( if enduring one of the most painful procedures you can go thru, can be ok).

I haven’t done any grocery shopping since the Costco Instacart last week. But I will go tomorrow as I need salad stuff and milk. I’d like to get to Trader Joes maybe next week.  I guess it all depends.

We’re in for a cool down here in Northern Ca. It’s been hot but not 100 degrees hot, just 95 degrees hot.

I read in the WP another Confederate statue was taken down. It was some Admiral. They did it either at night or early morning and it was whisked away. Good Riddance.  I also read that Lafayette Park where the peaceful protesters were attacked by the police used to be a slave market. One of the biggest. maybe Trump should read( ha ha ha) some history about the cruelty of selling black people.

That’s all I’ve got.

Taking down General Lee’s statue!

Finally, some good news.

Virginia’s governor, Northam, is removing the huge statue of Confederate Gen. Robert E Lee from a prominent place in Richmond and placing it in storage.

Hooray!!!

This statue put there in 1890, symbolizes the confederates stance on slavery.  That Lee was fighting to keep black people as SLAVES.

We must be better today and put these symbolic statues in a museum or a park dedicated to the tragic history of slavery in this country and showing how the Civil war divided this country.

Not unlike what is happening today with Trump dividing this country with his white supremists support.  It has to stop somewhere.

Black lives Matter.

 

Simple Sunday

What the fuck is wrong in America?

The awful murder of an innocent black man by 4 policemen.

The absolutely horrendous situation of the privileged white woman calling the police when a black man asked her to leash her dog( which was posted on a sign right behind her). Thankfully, this did not end violently and I’m glad she was fired from her job.

I’m glad there are protests going on. Something has to change in this country.  Of course, with a pandemic also going on, it’s tricky. I’m just depressed by it all. We have a racist president who is invoking violence, plays to his base, is a narcissist, and cannot feel anything except his own shit.

Something has to change.

In other news on the home front, we had another Instacart Costco order that was expensive but worth it. I spent @$375 for food and then a tip. Lots of stuff was prepper pantry stuff like bleach, cleanser, and toilet paper.  Some good food stuff like tuna, potatoes, avocados, bananas, and more. I looked at the receipt and then what I was charged by Instacart and most things were about $2.00 more that way. I ordered Sierra Pale ale for B and that was $4.00 more. So it definitely adds up but to not have to go into the store is worth it still.  The young man said the store was very busy and the checkout lines long. So I think a good choice. I’ll reevaluate in June about the time I need coffee. Of course, it’s a privilege that we can do this right now. There have been times in our past when I had $10. 00 a week for food.  And there have been times when I had zero money for food. So, for now, we can do this. Down the road, who knows. We’re living on a very limited income which will come in under $30,000 so… we shall see.

Our weather has been crazy with over 100 degrees one day and then hail and thunder the next. today is partly cloudy and cool. At least we’re not running the coolers all day.

I had my eye exam and everything seems stable with my macular pucker. Can’t do much about right now.  I also decided to cancel my crown on Tuesday and wait a few more weeks. I’m nervous about the air filtration in the office and stuff drifting around. I’m not sure much will be different in 3 weeks but I’ll try.

Next week I have my labs so we’ll see what news I get there.

 Barclay has another Bone Marrow Biopsy on Wednesday( such fun) so hopefully, he’s still fully engrafted. He started the Jakafi and I really hope this fixes the GVHD stuff.

Well, that’s all the news here at home. We did finish Ozark and it ends pretty violent and setting up for a 4th season. It’s good drama and Laura Linney is one of my favorite actors.

Flylady zone is the entryway this week if you’re following.

So much for those who try and defend the confederate flag

“Indeed, the flag had long been tied to white supremacy, racism and racial violence. The Confederate flag was already tied to racism in 2000 when the state legislature agreed to move it from the top of the capital to the nearby Confederate monument where it would remain for the next 15 years. Indeed, the flag had first flown at South Carolina’s State House, at least partially in response to federal orders to desegregate. The Confederate flag was a favorite symbol of those resisting the civil rights movement, including, in this case, the South Carolina government.” Washington Post

This article is from the Washington Post yesterday morning. Definitely reading material.

No one is going to change anyone’s mind about how they think about the South including the Confederate statues or the flag. People believe what they want to believe. But history and facts tell a different story.

So for those out there who like to believe the fantasy that the Confederate statues and flags have something to do with standing up to the government for the idea of taxation( what the civil war was about( they think)), think again. It was about the evil forces that lower humanity into thinking slavery was just fine.

 

 

A Sad Sunday

What is this country coming to?

Until we have gun control and a ban on all semi-automatic weapons this relentless killing by crazy hate-driven people will continue.

Until we completely denounce white supremacy and domestic terror for what it is, this country will continue down in a spiral of hate and bigotry.

We certainly don’t need a president that fuels this hate of immigrants and people of color.

This is just a sad, sad sad day and my friends no amount of prayers and thoughts is enough

Remembering

-c3a688de2d9ee00bI have a dream.

I was raised mostly by my mother(absent alcoholic father) who was very racist. She really hated Puerto Ricans and blacks. Why?? I really have no idea. She was raised in NYC and went to Catholic schools.

I on the other hand at even an early age had a tremendous affinity for black people. When I was in high school, I think it was 11th grade, that summer I volunteered in a town called Newberg that had a program for “underprivileged black youth”. I remember just starting to drive and it was frankly a little scary. That year as well I was chosen as the class representative to meet a civil rights leader with my Social Studies teacher. Honestly, I have no memory of who that was but just remember the ride along.

Anyway, MLK JR. was a huge influence in my life. Later when I meet B and he was a Quaker and conscientious objector I was over the moon. ( and in Love)…

Well, right now we need some help in this country as was witnessed by those absolutely horrible teenagers taunting the Elder Native American. Those kids should be sent to a reservation to live and work for a year and find out what it’s really like to be a native person.

Five things Friday

  1.  Political things:

The election is over and I’m happy with the results overall. At least Democrats got the house back and can put some pressure on Trump to be more accountable.

I was very upset when I saw the treatment of Jim Acosta. I happened to be watching that news conference on Youtube just when that happened. He did not touch her in any way inappropriately and even says’excuse me, ma’am’.  Why the lies form Sanders and Trump?? Whose the enemy of the people?? It’s a government that’s bent on Nationalism and populist views and actions. Not the press which is just trying to ask questions albeit ones Trump doesn’t want to hear.

2.  We had the Santa Fe fixed at the tune of $1600 as it was a computer item where the key is synched to the car and then they said his brakes were shot. It does have 90,000 miles so I guess that’s probably realistic.  We’re still not sure what we’ll do about cars and specifically a work car for B since the Santa Fe comes off the program in January.  That gives us at least 3 months to figure it out. I don’t think I’d do anything before February.

3. I caught a cold from my daughter. After her trip to Salt Lake City she came down with a cold and I got it yesterday. So my head is 3x bigger( that’s the way it feels) and my sinuses are plugged.  Hers went very quickly so I hope mine does too. I have my labs on Monday and when you’re sick your white blood count goes down fighting the infection. So I guess I’ll have to hope by Monday I’m back to normal.

4. I made a menu for Thanksgiving and it’s simple. Just the traditional stuff not a ton of sides.  So far I have

Turkey (either a Trader Joes kosher turkey breast or an organic turkey)

Nutloaf/gravy homemade using tamari

mashed potatoes/green beans

stuffing/ cranberry sauce homemade

rolls/butter/ olive tray

 

I learned a number of years ago to not go overboard as we just don’t eat it.  We tend to eat simply and never overeat.  I also haven’t decided to get a turkey breast or an organic turkey. I refuse to buy the commercial deals of turkeys for .47lb. How are those poor turkeys raised in miserable conditions? At least the organic ones have had a little better life. ( I hope).

5. I’m still doing the Minimalist game and have another bag of over 30 items to go to the thrift store. Some of it is just small junk but at least it’s out.

Well, I’m off to lay on the couch and try and breathe!!!