Friday things

So we are ready to go. B signed the consent forms yesterday and admission is next Friday. That’s only one week away. After listening for 45 minutes of every terrible thing that could go wrong we signed.

He will go in at 9am admissions, have a main line put in or a pic line. At this point, it looks like a pic line since his platelets still have not gone over 50. They hover in the ’20s and then drop into the low teens and that is too low for surgery for the mainline catheter.

Then Friday is D -5 for chemo, down to Day 0 which is transplant.  The chemo is supposed to be well tolerated but since I had melphalan  I’m not too sure I agree with that. There are two other chemos involved as well.

So, it begins. Probably the recovery will be the worst part with fatigue and the constant threat of graft vs host disease.

We stopped in the co-op for a quick shop and it was slightly more expensive than I’m used to I may have to use it to buy the things that are better priced such as bulk items. We did have a lovely lunch though and got to relax before heading over to UCD med center.

We got in another co-pay bill for $1680 that’s for all his transfusions. I’ll call this morning to make arrangements for payments. We paid off one and so with this one we’ll have two. All together that will use @ $4500 of the GFM but I’m stretching it out. Actually, I think it’s more like $5000 but still, over time it’s doable. ( As long as too much more doesn’t show up.) But we still have the transplant co-pay which is still unknown but we know it’s about $6000.

Well, I’m just not going to worry about it now.

Today, I’m off to get my labs for my Thyroid as I’m overdue. Then to pick up my new glasses that hopefully have been corrected. From there I may hit the gym and I need to go to the bank.  Yesterday was super long and so I usually drag the next day.

I’m hoping to not go anywhere tomorrow or Sunday and I’m willing to give up my Sunday workout just to stay home. I’ll be driving to Sacramento almost every day starting next week.

UNADJUSTEDNONRAW_thumb_374.jpg This our Cecil Brunner rose all out for Mothers day!!

 

No gym day:(

I’m still stuffy in the nose and coughing so no gym for me today.

I did walk my 30 minutes this morning but I was huffing and puffing on the last round. ( A sure sign my lungs aren’t working optimally with this cold thing.)

So I will just accept that I can putter around and see what else might need attending to.  It is hard to accept such things at times. Even now 13 years out from my diagnosis I clearly remember as if it were yesterday, how limited I was.  Absolutely no energy at all. I was lucky if I got one thing done.  So, it’s good to be motivated as I am to go the gym and it’s good to know that it’s okay when I can’t.

Acceptance is necessary in such cases or otherwise the guilt or whatever creeps in.

I’ve tidied up, started laundry, have pintos in the crock pot for dinner.  I’m kinda going in spurts of energy and then sitting. A sure sign my body just isn’t up to something more strenuous. Although I tried to convince myself I could just go do weights:)…

It is amazingly beautiful outside. This is the time of year our yard looks amazing thanks to my daughter gardener and husband extraordinaire.

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These are Cecil Brunner planted the first year we were here so 23 years ago. I’ll post a few more yard pictures. We own almost 3 acres here but much of it is sloped with oaks and pines.

My daughter has done an amazing job transforming the back area that is fenced. There’s many native plants and grasses. We have so many varieties of birds coming and migrating thru that it’s quite reassuring.

She’s working on the side area now and we’ve put in at least 3 new Iceland roses which are one of my favorites as the continuously bloom.

I decided to move some Fiesta ware and put the Melmac on the shelf for spring and summer. We used it the other night.  I realized that it’s pretty scratched up( the large plates) so now I’m thinking maybe I’ll sell it in our local sell group.  I’ll use it a few more times and then decide. This Mallo ware in robin egg blue and is somewhat collectible.

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Well, time to do another round of something.