We had a nice drive to Sacramento yesterday for B’s clinic appt. Traffic moved fairly well thru the usual difficult areas( where I -80 merges to Business 80) and the downtown area. His appt went well and the good news is they have reduced his Tacrolimus to every other day. This is the biggest drug that targets keeping at bay Graft vs Host. So we need to watch for any flare-ups but the NP was pretty confident that this is the time to start. So that means maybe by February he can go off Noxafil which is the Tier 5 that we are holding on to paying the Cobra for. Actually, with the plan set to restart in January, we’re not sure if the Cobra co-pay will reset( I’m assuming it will) and that means, well, I’m not sure how much the co-pay will so that’s a big question mark.
We are set up with Plan D medicare for him but that’s not what we’ll use as that immediately goes to Tier 5 and the 25% start. So way to much $. I guess we will just need to wait and see how it plays out. I’m hoping we can drop the Cobra by March.
After clinic we went to Trader Joes and OMG it was a madhouse. I almost walked right back out. But we managed thru and I got what we needed for Christmas( fondue, and ham) and lots of good food( french fries, they have the best frozen) and other things including TJ’s wine!
We stopped for a pizza slice and then headed home.
Today is a gym day. And then I need to hit Home depot for a bulb for my salt lamp. Then home to bake some more cookies and maybe make the fudge.
Tonight is a new recipe for a spinach pie. One of the very few memories I have of my mother and this was not when I was young but @ 16, she made a spinach pie that was like a pizza. My sister doesn’t remember it so I’ve been trying to recreate it. This recipe calls for ricotta so maybe that’s what she used.
I’ll update after it’s done and give a review.
A calm and rainy day ahead. Rain is indicated for most of today but at least it’s not too cold yet. We managed a walk in the park yesterday between storms and it was pleasant. I’m not used to being there in the late morning so things looked different:)
Yesterday, the baking bug hit and I made some chocolate chip cookies, the dough for sugar cookies( in the refrigerator now) then I prepped dinner, which was chicken with mushrooms and finally assembled two casseroles of enchiladas for tonight’s dinner.
The week ahead is not too busy. B has clinic on Tuesday and then after that, we’re going to shop Trader Joes. I plan to do Costco later in the week. I plan o getting what we need for Christmas dinner. Our tradition is fondue Christmas eve and then cheese lasagna Christmas day.
Today is a gym day.
Plus it’s the kitchen zone for those that follow Flylady. I’ll do some today and some tomorrow. It’s raining so no walk this morning.
Well, it has been a very involved week.
From last Monday when we decided to switch to UCD because it will be in network for the transplant to today when I went to Trader Joe’s.
I haven’t been to TJ’s in a while and there were some specific things I wanted. I read that their mahi-mahi burgers were very good, so I got some of those and lots of other things I’d been keeping a list of.
B had a platelet transfusion and my daughter went and picked him up as I was still down the hill as they say.
It’s supposed to rain off and on all week. I hope that changes as I’m completely done with rainy weather.
This week is the living room zone for those of you following Flylady. I did most everything in about 10 minutes. Last week I had washed the couch covers so they are fresh. I vacuumed yesterday so I’ll do that tomorrow. I like to vacuum every other day.
Dinner is a new recipe of green chile chicken. I’ll bake that not use the IP and have coleslaw on the side.
One of my favorite quotes!
So we are incredibly disappointed by the non results. B got a call from the nurse at 4:30 yesterday with the news that the biopsy sample was inadequate. WTF???? The doctor said it was a good marrow sample. So now we’re in limbo again till something else is scheduled.
He will go in for another transfusion as his platelets are very low. So as long as this can stabilize him till the next appt. Right now we have a pretty good idea that it’s MDS but without a biopsy confirming it’s still unknown.
He’s worked from home most of this week so at least that’s good. Next week will be the same as he shouldn’t go out in crowds too much. We might try and go out for a coffee date but we’ll see.
We did go to Trader Joes and did a huge grocery shop so that will last at least 2 weeks. A few things we bought that we’re fun is their Candy Cane green tea! Go get some!!! It was delicious. Plus I did get some frozen meal items to make some evenings just a little easier.
Sunday night is the first night of Hanukkah. I plan on making latkes and using my homemade applesauce. Of course, we are not Jewish, but any excuse to have candles is ok by me.
It’s a rainy Saturday and a snowy one in the Sierras. My daughter is driving up today and I suspect it will take a while. She got home fine last night without any delay.
I think I’m making Breakfast for dinner but not sure.
Saw the oncologist yesterday and all is well in myelomaville.
My Labs are almost identical to last time so that’s a relief. I’ll have labs in 6 weeks and then 6 weeks after that and then have an appointment with him.
Very exciting to still be doing well and in remission.
We went to Trader Joes after the appointment and stocked up on lots of goodies. I even bought a couple of frozen pizzas just so when on some Friday night pizza I don’t feel like making it. I also bought a cauliflower crust to try for a gluten-free one. I stocked up on a few spices I needed and olives ,tomato sauce, and nuts.
I do wish there was a TJ’s closer, but since we’re coming back from Sacramento, it’s right off the freeway so quite convenient.
I might go to the gym since yesterday I didn’t go but I may just stay home and putter around. I have some sweet potatoes cooking for lunches or dinners. Plus I made a small chopped veggie tray for snacking.
Tonight is pizza night.
We’re at the end of the year so, it’s 6 months from June 1 when the new walking year started. That’s 3 1/2 years of walking every single day with intention. These past few days it has been 27 degrees and that is pretty darn cold to walk in at 6:30 am. I finished the year (almost the end of the year) at 900 miles. I was trying to get 1000 miles in that the lady from Britain challenged. But I was still 100 miles short. Next year!!
I saw my oncologist today, and he was sick with a cold so we stayed apart. And no physical exam which I don’t need anyway, but it was good to touch base. He said everything looked good and he’d order labs for 8 weeks. That’s a little long for my comfort range but we’ll see. Actually, after I read the clinical summary, he put them at 6 weeks. I think he wasn’t really thinking clearly. That’s okay. Then I’d see him again in February. I think if my labs look good I’ll cancel that and ask for labs again 6 weeks after that. I think that’s what he wanted but got mixed up especially since his computer wouldn’t boot up and his head was stuffy.
Then we hit Trader Joes for salad stuff, got the paint for the front room, and then stopped at Costco to return something.
All in all a good day.
It’s taco Tuesday.
So out Internet hasn’t been working , it’s frustrating. Tonight we are switching over to u verse.I hope this makes the difference. we will see.
So ,back from my monthly oncologists and everything looks good. I get my SPEP test back next week. That is the big marker so ……otherwise we were out of there in record time.
then we went to trader joes and that was fun. Bought too much, but I figure part of this is camping food and my son will be home alone ,so he needs some stuff too.
I’m heading out for my walk right now. I’m up to 17 days in a row. Not bad.