Simple Sunday

A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.

Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.

Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.

Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.

This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in.  So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.

Off to tidy up and then read.

Oh, I’m reading the last Henning Mankel book,’After the fire’.  His writing is just amazing. It is so clear and precise. Yet, very poetic.

Friday Stuff

I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.

Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.

Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.

 

I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.

The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener.  But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.

If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker.  It was superb!!!

Well, off to town.

 

 

 

It’s official….MDS high risk

So it was the local medical oncologist that had the biopsy results from the other Dr. The official diagnosis is Myelodysplastic syndrome high risk because of the 7q deletion.

So at least he doesn’t need to do the induction in the hospital if it was leukemia. I guess that’s something.

For now, it’s going to be the 5 days of chemo every 28 days. Hopefully, the drugs kill off the ‘blasts’ or baby leukemia cells which are bad and then his bone marrow will start producing the right cells. Also, that will mean less and fewer transfusions and platelets.  Then it will be a donor transplant. I seem to recall the transplant doctor saying hospital time a few weeks then outpatient. Fingers crossed that it works as there is a 50% chance it won’t and he’ll die. Or he’ll need to go back on some sort of treatment. 😦

Today, after he gets platelets which do go very quickly after the IV is in, we’re going to Costco so I can load up on organic greens for those smoothies and fruit. I really hate going this time of year with Christmas, but I also hate spending a lot of money on greens at the store when can get a big bag at Costco for the same price if not cheaper.  I will get some other things as well since we’re there and call it my weekly shopping.

I’ve got a new sourdough recipe I’m trying out and it’s on its second rise. But we’ll be gone for a few hours so It’ll be longer than usual.

I’m going over to the gym for a tiny bit while he’s at the infusion center. I can probably get a good 30 minutes in.

Some of my labs are in but this new patient portal is a PITA as it says results released in a few days( it gives the date). WTF, there my results and he’s viewed them so why??? I didn’t see the big 2 tests SPEP or Light chains but they will be coming in soon I suspect.

Oh well, if it goes up again, I’ll just have to not flip out and go with it. Fortunately, I’m not high risk and my numbers have never just shot up so that would give me time to adjust. I see my doctor next week right after Christmas.

I haven’t been too inspired with cooking dinners so we’ll see what I feel like tonight. Mostly I’ve done just what’s easy without a lot of thought. Last night was pinto beans, a frozen enchilada and TJ’s cheese tamales.