Midweek musings

I had a good doctor visit. As I mentioned, my numbers are going up (kappa light chains) but as he said it is slowly going up and I’m a long way to where I started out 3 1/2 years ago at 1010 mg/L kappa light chains. So I’m ok and not panicking. It went up 6 points to 31.7 so an increase. Lambda is in the normal range and looking back at my numbers, Lambda was always in the normal range. The ratio also increased to 2.66 from 2.33 so increase there too. When I went back to when I started Velcade my ratio at it’s highest was 68.25 mg/L so that says something about where I started.

All in all, I’m ok with it for now. It’s always weird to think cancer cells are in your body but one must be positive and philosophical at the same time.

We’re in for cooler temperatures which will be most welcome.

My daughter is drying some cherry tomatoes since we have so many and I really don’t want them to waste. Sundried tomatoes in the winter are nice additions to pasta.

Our last appt is Friday till next week. Driving to Sacramento has been awful with the traffic. Driving home has been a lot easier. I’m guessing with school starting and work there are more people on the freeway.

After next week, we are on a 2-week clinic schedule and that will be very nice.

 

Early morning

We need to be out by 6:30 so we can get his labs by 8:00 am in Sacramento and then clinic is at 8:30am with the NP. I think we will be out quicker this time.

  Speaking of labs my numbers came back with another increase:( So Kappa is at 25. Lambda went down to 11.3 but with that, the ratio went to 2.25. It’s still not alarming numbers and only slightly over high normal but it is a trend for sure. High normal for the ratio is 1.65 so .6 over. I’m sure my doctor is not worried at this point and I see him next week so we can talk.

Anyway, this is a good lesson for me to not obsess and just know treatment will resume at some point. I’m actually proud of myself for not being too nuts about it.  I guess that’s a good thing?

After clinic, I’m going to the gourmet store called Corti brothers. When we first moved to California in 1975, we would shop at the other Corti bros location. I had just started graduate school at Sac State and we practically lived in Sacramento. We were living in Foresthill(the same area we’re in today but not the same direction) and I was driving down 2-3 times a week. Back then there was little traffic on I-80 at night and during the morning.  Now any time of day I -80 is crazy. Anyway back to Corti Bros. So when I was at Kiwanis house and shopping over at Save Mart, I looked over and saw the sign for Corti Bros.  I wasn’t planning to go in till the person who owns the RV said ‘Hey, you should go into Corti Bros. ” So I did and first, the deli is amazing and I discovered they have the French ham I have always wanted to try. Of course, I thought I’d have to go to France but no, here it was. It was amazing. Since I do love cooking and food, it’s a fun store to look around in. Today, I’m getting some olives from their amazing olive bar and some special burger blend for 4th of July.

All in all, it should be a good day!

 

Friday Stuff

Our air quality is much better today. But Sacramento and even San Francisco are in hazardous air quality. Also, so many people still missing and I’m afraid they probably lost their lives in the fire. Very Sad. We are updating our emergency plans and have a bin with instructions ready to go. Honestly, you just don’t know if it could happen to you so better to be prepared.

My labs came back an myKappa light chains did go up 2 points 😦 to 16.1 and my Lambda down to 12.0 and the ratio went up to 1.34. All still in the normal range so I’m not going to sweat it but still there’s a tiny part of me that wants it stay lower.  But it’s ok. It’s still well below normal (kappa is 19.1 and Lambda is 26.1) so it’s all good.

Today was a gym day so I can get back to my regular schedule after being sick those 4 days. I like to go Sunday,Tuesday, Thursday.  So I will go Sunday and that puts me back on track.

I went to Safeway and got most of the rest of Thanksgiving stuff. I just need cottage cheese for the nut loaf and sour cream and probably some salad stuff next week.

Monday is my big day in court for my name change. I’m not worried about it. It’s only step one of the process to get the certified birth certificate from NY. I’ll start that paper work Thanksgiving weekend.

Tonight is a homemade pizza. I’m doing one with sausage and peppers and one with mushrooms and olives.

9a1fb140b9232e6ec8deba592897d9cb

I just love this pinecone image.

Good news and other things.

I finally got my lab results. Kappa light chains went up a point to 14.3, Lambda went up a point to 12.3, the ratio (important) went down to 1.16. So I am still in a great remission and I couldn’t be happier.  Another month to add to remission. YAAAAAY!!!

I also had my mammogram and it was all good.  I skipped last year and probably will skip next year too.  They used the new 3 -d imaging and it really was remarkable technology.

I had my flu shot and did have a fever reaction( not unusual). Thankfully it was at night and didn’t last too long. I usually do have a slight fever, but this was chills and then a stronger fever.  Perhaps the strain was different and my immune system reacted. It wasn’t the dose for those over 65 as the pharmacy hadn’t received those yet.

So the continuing saga of my name change. I decided to go down to the Legal Clinic in Roseville for advice on how to fill in the forms. So I read it’s only open 9-12. So off I go. I get there( after getting completely lost), and go thru security and the deputy asks if I have an appt. So I say no, I thought it was all walk-in.  Oh well, after looking around at the masses waiting with appts, I just let came home and booked the appointment for this coming week. So another trip to Roseville.  Then to file it’s almost $500 and it has to be published in a paper for 4 consecutive weeks. So it’s going to be a while.

The fall weather is definitely here and we even have a chance of rain next week. It’s also way cooler today.  WE’ll need to have some small wood for the wood stove ready as I think we will need ‘a twinkly fire’ as I call them.

Our neighbor’s house is for sale at $399,999. It’s a 3 bedroom 2 bath. It’s on the smaller side of 1400 sq feet although that is a lot bigger than ours. It’s a nice piece of property but not a lot of usable land it’s mostly a hill. But I think it will sell quickly as we are right in town within walking of the PO, store, cafe, park etc. I just hope it’s not obnoxious neighbors.  The man who lived there( and is now dead), was a real asshole. He tried sueing all the neighbors( not us) because the road is actually on his property but of course we all have easements. But there were many yelling matches with this man and the Sheriff was called in numerous times. As he got older and he did lose the lawsuit, he backed off but was still a complete jerk. In the end, the EMT’s were at his house 2-3 times a week before he finally went into care.  Well, it’s a new chapter and I guess we will see.

 

I’m making a minestrone with the very last of our tomatoes and zucchini and whatever else I can get in there. Plus I’m going to roast a chicken in the oven. I made another loaf of bread the other day and this time used 1/3 whole wheat and it was really nice. Having the bread knife so sharp I can slice real sandwich slices. Very exciting is this life of mine!!!-

Tell-me-what-is-it-you-plan-to-do-with-your-one-wild-and-precious-lifeMake Bread!! Walk!!! Cook!! Read!!! Drink Wine!! (not in that order, but maybe!!!

OMG….

Such good news!!!!

My kappa light chains went down almost 2 points.

Lambda light chains stayed just about the same.

The ratio went down to 1.18.  The ratio is a very important piece of the whole equation.

So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.

It is so amazing and I am so grateful and happy.

Time to celebrate!!!

Five on Friday

Let’s see, my labs came in but I had to call the nurse to get the results. My doctor is on call for other doctors this week so he is slammed. My CBC is all the same and normal, Kappa light chains went up to 15.0, Lambda was the same at 11.1, the ratio went up just slightly to 1.30 ( from 1.27).  So not bad but I’d rather the ratio be a little lower. But still all in the normal range.  June marks 2 years of being off all chemo.  What a lovely time it has been and I am grateful every day.

We zipped down to Costco at 9am to get a few things. Mostly coffee. Last week I had to go buy a pound at Starbucks and that was a rude awakening. So off we went. We filled up the Santa Fe, and then got thru Costco fairly quickly. I didn’t need a whole lot so it went quick. We also paid our membership which was due June 1st.

Tonight is a pizza night and I gave my son cash to get a Round Table. I had a coupon for a speciality pizza for $19.99 and we love their gourmet veggie. So a good deal.

We were going to go to the nursery and get some pots for me to re-pot some of my house plant friends but it’s raining so we nixed that. I guess we saved money by not going but I’ll still need to get some at Home Depot in the next week or so.

Yesterday I went out to the barn and declutter more magazines, some kitchen things I had put in a box for my son when he was going to live at SFSU( which he didn’t do), and other misc. It’s the start of a small thrift store run.

I worked on the budget and June looks okay. Still working on finishing the CC that we put Z’s tuition on. I’m okay with that. I’d like to target end of July to have it done.

I think that’s all I can think of.

We did feel bad for all the campers heading up to Tahoe for Memorial day weekend. It was pouring down rain and I’m sure it’s worse up there.