Friday Stuff

Our air quality is much better today. But Sacramento and even San Francisco are in hazardous air quality. Also, so many people still missing and I’m afraid they probably lost their lives in the fire. Very Sad. We are updating our emergency plans and have a bin with instructions ready to go. Honestly, you just don’t know if it could happen to you so better to be prepared.

My labs came back an myKappa light chains did go up 2 points ūüė¶ to 16.1 and my Lambda down to 12.0 and the ratio went up to 1.34. All still in the normal range so I’m not going to sweat it but still there’s a tiny part of me that wants it stay lower. ¬†But it’s ok. It’s still well below normal (kappa is 19.1 and Lambda is 26.1) so it’s all good.

Today was a gym day so I can get back to my regular schedule after being sick those 4 days. I like to go Sunday,Tuesday, Thursday.  So I will go Sunday and that puts me back on track.

I went to Safeway and got most of the rest of Thanksgiving stuff. I just need cottage cheese for the nut loaf and sour cream and probably some salad stuff next week.

Monday is my big day in court for my name change. I’m not worried about it. It’s only step one of the process to get the certified birth certificate from NY. I’ll start that paper work Thanksgiving weekend.

Tonight is a homemade pizza. I’m doing one with sausage and peppers and one with mushrooms and olives.

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I just love this pinecone image.

Good news and other things.

I finally got my lab results. Kappa light chains went up a point to 14.3, Lambda went up a point to 12.3, the ratio (important) went down to 1.16. So I am still in a great remission and I couldn’t be happier. ¬†Another month to add to remission. YAAAAAY!!!

I also had my mammogram and it was all good.  I skipped last year and probably will skip next year too.  They used the new 3 -d imaging and it really was remarkable technology.

I had my flu shot and did have a fever reaction( not unusual). Thankfully it was at night and didn’t last too long. I usually do have a slight fever, but this was chills and then a stronger fever. ¬†Perhaps the strain was different and my immune system reacted. It wasn’t the dose for those over 65 as the pharmacy hadn’t received those yet.

So the continuing saga of my name change. I decided to go down to the Legal Clinic in Roseville for advice on how to fill in the forms. So I read it’s only open 9-12. So off I go. I get there( after getting completely lost), and go thru security and the deputy asks if I have an appt. So I say no, I thought it was all walk-in. ¬†Oh well, after looking around at the masses waiting with appts, I just let came home and booked the appointment for this coming week. So another trip to Roseville. ¬†Then to file it’s almost $500 and it has to be published in a paper for 4 consecutive weeks. So it’s going to be a while.

The fall weather is definitely¬†here and we even have a chance of rain next week. It’s also way cooler today. ¬†WE’ll need to have some small wood for the wood stove ready as I think we will need ‘a twinkly fire’ as I call them.

Our neighbor’s house is for sale at $399,999. It’s a 3 bedroom 2 bath. It’s on the smaller side of 1400 sq feet although that is a lot bigger than ours. It’s a nice piece of property but not a lot of usable land it’s mostly a hill. But I think it will sell quickly as we are right in town within walking of the PO, store, cafe, park etc. I just hope it’s not obnoxious neighbors. ¬†The man who lived there( and is now dead), was a real asshole. He tried sueing all the neighbors( not us) because the road is actually on his property but of course we all have easements. But there were many yelling matches with this man and the Sheriff was called in numerous times. As he got older and he did lose the lawsuit, he backed off but was still a complete jerk. In the end, the EMT’s were at his house 2-3 times a week before he finally went into care. ¬†Well, it’s a new chapter and I guess we will see.

 

I’m making a minestrone with the very last of our tomatoes and zucchini and whatever else I can get in there. Plus I’m going to roast a chicken in the oven. I made another loaf of bread the other day and this time used 1/3 whole wheat and it was really nice. Having the bread knife so sharp I can slice real sandwich slices. Very exciting is this life of mine!!!-

Tell-me-what-is-it-you-plan-to-do-with-your-one-wild-and-precious-lifeMake Bread!! Walk!!! Cook!! Read!!! Drink Wine!! (not in that order, but maybe!!!

OMG….

Such good news!!!!

My kappa light chains went down almost 2 points.

Lambda light chains stayed just about the same.

The ratio went down to 1.18.  The ratio is a very important piece of the whole equation.

So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.

It is so amazing and I am so grateful and happy.

Time to celebrate!!!

Five on Friday

Let’s see, my labs came in but I had to call the nurse to get the results. My doctor is on call for other doctors this week so he is slammed. My CBC is all the same and normal, Kappa light chains went up to 15.0, Lambda was the same at 11.1, the ratio went up just slightly to 1.30 ( from 1.27). ¬†So not bad but I’d rather the ratio be a little lower. But still all in the normal range. ¬†June marks 2 years of being off all chemo. ¬†What a lovely time it has been and I am grateful every day.

We zipped down to Costco at 9am to get a few things. Mostly coffee. Last week I had to go buy a pound¬†at Starbucks and that was a rude awakening. So off we went. We filled up the Santa Fe, and then got thru Costco fairly quickly. I didn’t need a whole lot so it went quick. We also paid our membership which was due June 1st.

Tonight is a pizza night and I gave my son cash to get a Round Table. I had a coupon for a speciality pizza for $19.99 and we love their gourmet veggie. So a good deal.

We were going to go to the nursery and get some pots for me to re-pot some of my house plant friends but it’s raining so we nixed that. I guess we saved money by not going but I’ll still need to get some at Home Depot in the next week or so.

Yesterday I went out to the barn and declutter more magazines, some kitchen things I had put in a box for my son when he was going to live at SFSU( which he didn’t do), and other misc. It’s the start of a small thrift store run.

I worked on the budget and June looks okay. Still working on finishing the CC that we put Z’s tuition on. I’m okay with that. I’d like to target end of July to have it done.

I think that’s all I can think of.

We did feel bad for all the campers heading up to Tahoe for Memorial day weekend. It was pouring down rain and I’m sure it’s worse up there.

 

 

 

Labs in and other stuff.

My CBC was great. All good there except the hemoglobin was still .5 above normal. ¬†He had wanted me to drink 8 glasses of water a day. I did pretty good but not 8 glasses. Maybe got to 5-6 a day plus tea. I guess hemoglobin¬†has to do with the oxygen in your blood. So he thought maybe I wasn’t¬†hydrating enough. ¬†I’m not worried at only .5 over normal. but I’ll see what he says in June. ¬†In other good news, my kappa light chains still normal but it went up 2 points. So from 12.6 to 14.2. ¬†So here’s that trend of going up. I know I’ll come out of the normal range at some point but for now, it’s still in the normal range even with the 2 point increase. ¬†My Lambda went up too from 10.9 to 11.5 so another increase. And the ratio went up to from 1.16 to 1.23 .¬†In myeloma numbers, the ratio is most important so still an increase. These are all in values of mg/L for those that want that .¬† I can’t say I’m not a bit disappointed¬†because I am just a little but hey this is month 10 going into month 11 of no drugs andI’m still within normal ranges. Oh, the good news too, was no detectable M-protein. So that’s the great news. the light chain tests though are more sensitive to myeloma cell, so the increase does show a trend. But, for now, I will celebrate LIFE!! I feel good well except for the aches and pains of normal stuff. ¬†My one year of stopping Velcade is June 23. June is never a good emotional month for me as I was officially diagnosed on June 15 of 2005. Funny how we remember some things exactly. ¬†Oh well, I’m grateful for modern medicine and my doctor and park and the ducks and the everything. ( That’s supposed to be funny).

It’s been windy here and we haven’t sat out at dinner even though the temperature is nice. The allergies are kicking in when that wind blows. I’m hoping to BBQ tonight if the wind is gone.

Here’s a picture of Hobbles the duck. yesterday we couldn’t find him at the park but he was back today. Whew…IMG_0700he’s called hobbles because about 2 years ago he got injured somehow and was not using his one leg. Now he uses it but just hobbles. He’s our buddy in the morning.

Labs still normal!!

After I e-messaged my doctor he messaged back that my labs were normal. But I  still wanted a paper copy. So he sent that and I got that on Saturday. So this is month 7 off Velcade and Dex. I feel pretty good.

Kappa light chains 12.7 mg/L

lambda light chains 12.9 mg/L

ratio .98

So, all in all, I am thrilled.

I cancelled the appt to see him this month as I don’t need to and will reschedule for March after the next set of labs.

Last night the chicken adobo was really tasty. The tofu one needed more of the sauce. But I’ll definitely¬†make this again.

Tonight I have homemade mac and cheese and a big salad.