Are we confused yet???

What a strange couple of days it has been. I have taken most of it in stride but that doesn’t mean I’m not pissed off about it.

So first, on Tuesday I head down for my appointment with the Legal Help at the Santucci Justice system. I’m optimistic I’ll get the answers I need. So I get in and start explaining to the legal aid about my birth certificate etc.  So I have booked marked where my questions are on the pages and …so this is where my birth name goes….yes….well and this is what it’s changing to…yes…. oh wait, I better go check on that. .. . !0 minutes later she returns and says the person upstairs’ says “you cannot change a name on a birth certificate except for adoption or paternity”…….Whoa, I say that is not correct. ….. Back up she goes with my paper work.Down she comes in 10 minutes no wiser.  The lady behind me starts chiming in that yes, I can change my name but what are the legal implications for SS, drivers license etc. So I am at that point totally confused. They are both confused. So the one says, ” you better go see a lawyer” JFC*** Really?  So I leave muttering under my breath.

 

So now, I’m just thinking about it. I can see changing the birth name. But how does that affect my other things? It shouldn’t. But I’d still like to talk to an attorney just to be sure. So I’m going to wait till next week and then see if I can get a consultation with one in Auburn. This is really turning into a 3 ring circus.

I went down to Sacramento for my oncology appointment. All looked good and I asked if I could do labs in 6 weeks and then in 6 more weeks and see him right after Christmas. I really didn’t need to go today but I felt obligated to keep the appointment. Plus I was dring the old van so that makes me a little nervous in all that traffic.

So then I’m talking to him about the patient portal. He says it looks like you haven’t signed up. So I say that I have. Hmmm, something is not right. So I get home sign in and it’s the same one I did sign up for but my records aren’t there except for 2015. Which is what I saw last week.  So I decide to call the help number and finally after waiting 15 minutes, the rep says. Oh, that’s for hospital records( so in 2015 is when I had my sedated bone marrow biopsy). The other patient portal is for the doctor’s office. God damn, how come they didn’t know that at the office there.  So now I need to call them and make sure it’s clear that there is a difference and I still want my labs.  I still feel something is off about it but till I know more there’s nothing to do.

So overall, it’s kinda been a stressful week.  Or at least weird.

We had incredible thunder and lightning and heavy rain last night. It was quite a show. The ground is saturated. But at least we won’t have to do anymore watering. Our bill went down to $99. But that’s still more than I’d like it to be in September.

 

Good news and other things.

I finally got my lab results. Kappa light chains went up a point to 14.3, Lambda went up a point to 12.3, the ratio (important) went down to 1.16. So I am still in a great remission and I couldn’t be happier.  Another month to add to remission. YAAAAAY!!!

I also had my mammogram and it was all good.  I skipped last year and probably will skip next year too.  They used the new 3 -d imaging and it really was remarkable technology.

I had my flu shot and did have a fever reaction( not unusual). Thankfully it was at night and didn’t last too long. I usually do have a slight fever, but this was chills and then a stronger fever.  Perhaps the strain was different and my immune system reacted. It wasn’t the dose for those over 65 as the pharmacy hadn’t received those yet.

So the continuing saga of my name change. I decided to go down to the Legal Clinic in Roseville for advice on how to fill in the forms. So I read it’s only open 9-12. So off I go. I get there( after getting completely lost), and go thru security and the deputy asks if I have an appt. So I say no, I thought it was all walk-in.  Oh well, after looking around at the masses waiting with appts, I just let came home and booked the appointment for this coming week. So another trip to Roseville.  Then to file it’s almost $500 and it has to be published in a paper for 4 consecutive weeks. So it’s going to be a while.

The fall weather is definitely here and we even have a chance of rain next week. It’s also way cooler today.  WE’ll need to have some small wood for the wood stove ready as I think we will need ‘a twinkly fire’ as I call them.

Our neighbor’s house is for sale at $399,999. It’s a 3 bedroom 2 bath. It’s on the smaller side of 1400 sq feet although that is a lot bigger than ours. It’s a nice piece of property but not a lot of usable land it’s mostly a hill. But I think it will sell quickly as we are right in town within walking of the PO, store, cafe, park etc. I just hope it’s not obnoxious neighbors.  The man who lived there( and is now dead), was a real asshole. He tried sueing all the neighbors( not us) because the road is actually on his property but of course we all have easements. But there were many yelling matches with this man and the Sheriff was called in numerous times. As he got older and he did lose the lawsuit, he backed off but was still a complete jerk. In the end, the EMT’s were at his house 2-3 times a week before he finally went into care.  Well, it’s a new chapter and I guess we will see.

 

I’m making a minestrone with the very last of our tomatoes and zucchini and whatever else I can get in there. Plus I’m going to roast a chicken in the oven. I made another loaf of bread the other day and this time used 1/3 whole wheat and it was really nice. Having the bread knife so sharp I can slice real sandwich slices. Very exciting is this life of mine!!!-

Tell-me-what-is-it-you-plan-to-do-with-your-one-wild-and-precious-lifeMake Bread!! Walk!!! Cook!! Read!!! Drink Wine!! (not in that order, but maybe!!!

Simplifying even more…

While we were camping we went thru the tent trailer an got rid of all the weird kitchen stuff I had in there. A whole box worth. I mean really, am I going to use a vegetable peeler while camping?? Plus, we took out a box of dishes as we really only use the same 2 over and over. We probably eliminated 3 boxes of stuff including some clothes that were for “just in case’.  That was really great to do. It’s all dropped off at the Goodwill and I didn’t even go back thru to see whether I wanted it in the house.

I started making some homemade bread again. I used the Zojirushi to make the dough and then bake in my bread pan. My daughter got me a fancy new bread knife for my birthday so I had to make bread. It was amazing to cut the bread. It sliced thru like soft butter.  It always surprises me how having a good tool for cooking or like a sharp knife makes cooking so much better. I don’t use a lot of fancy tools but what I have does make the job of cooking so much better.

Recently, I got rid of our rice maker and started using my Le Creuset.  Organic long grain white rice takes only 18 minutes and then let sit for 15 minutes.  It’s actually quicker than the rice maker. So one less bulky thing in the kitchen.

Yesterday i cleaned out more pantry stuff. I have a good size bag to give to the food bank.

I had my labs Monday but no results yet so I’m guessing he’s out of town. That’s the only time when my esults get delayed. I’ll wait till Thursday then I’ll call his nurse.

Today I’m washing the white couch covers as this week is the living room zone.  I also need to do the outside window as I do these quarterly.

The garden is done and I am done with canning tomatoes. There are still some apples but they can wait. Last night we had butternut squash soup with our very own butternut squash. I also made a spaghetti squash and had that with butter and sage.

An old friend from my ‘metaphysical’years got a hold of me last week. It was nice to reconnect. Her sister had just died and I think it caused her to do some thinking about times gone by. We plan on getting together in a few weeks. She lives in Reno so not too far away. I will drive up for lunch!!

 

 

Five on Friday

I wanted to write this as a separate post from my good news with my labs.

But first,  I want to give a shout out to Bob over at Satisfying Retirement.

He wrote a very good post on being prepared for retirement. Or in our case, what not to do, but now scrambling to do!! ( If that made sense)!

So five:

  • my great news on my labs is top of my list
  • we went to Home Depot and bought a security screen door so we can leave the front door open at night and let cool air in!!
  • it’s been a hot,hot week, but we’ve managed to keep the yard watered and the house cool.
  • my son fixed the AC in my old van and it’s nice and cold now. so that saved us the money from taking it down the road to the mechanic.
  • we’ve had lots of zucchini from the garden this week and they have been excellent in a variety of recipes.

My sons birthday is coming up in the first week of August. He already received his present which was the trip and tickets to Elton John in LV.  But I am going to tuck a little money in an envelope for him and tell him that’s the start of his emergency fund.

Not much else going on, there are terrible fires all over but the one in Yosemite and up near Redding are especially bad. Our air quality is not so good.

 

OMG….

Such good news!!!!

My kappa light chains went down almost 2 points.

Lambda light chains stayed just about the same.

The ratio went down to 1.18.  The ratio is a very important piece of the whole equation.

So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.

It is so amazing and I am so grateful and happy.

Time to celebrate!!!

Tahoe Blue

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I actually haven’t seen this movie ‘The Fight Club’ but I do love this quote.

Note: that’s just a random thing I put in there, because I saw it the other day.

Tahoe Blue VODKA!!!

So here’s a funny snippet. The other morning I come out of the bedroom and it’s maybe 6:45 am ( of course I’ve been up for at least an hour), but my son sees me with the bottle of Tahoe Blue. He says” it’s a little early isn’t it”???

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Well, the funny thing is I reuse pretty bottles like this one to put water in and then water my plants!!!! So I had just finished the plants in the bedroom.

I don’t even drink Vodka although with all the Trump stuff going on I may start soon.

Today is my lab day. I figure I’ll call next week or maybe Friday as it does take 3 days for the SPEP test. All I can do is just wait and see. I feel good but that can be deceiving with myeloma.

I’m also going to do some weights at the gym and then stop at the market as I need half and half and a few other things. I’m trying not to shop till Aug 1 although that is a week away and I know I’ll need some fruit at the very least.

We are in a heat wave and today is supposed to be 102. Yikes!!!

Dinner is unknown at this point.

 

Simple Sunday​

It’s a little cooler at 93 degrees. I’m still running the window coolers so I can only imagine how high the electric bill will be especially since there’s an excessive heat warning for the middle of the week.

I went to the gym and it was nice and mostly empty.

This week is my 2-month labs. I know my oncologist is in Europe for 2 weeks so he won’t get my labs back to me so I’ll need to call his nurse for the results or wait.  I don’t have any particular sense which way it will go. They have been creeping up so I guess there’s that. I’m not sure one ever gets over the anxiety of labs once you’ve had cancer.  You wait for them with bated breath.  But in the end, there’s not much you can do but accept what the results are. I feel pretty good so there’s that.

My son fixed the AC in my old van so it’s blowing cold again. He didn’t fill the thing all the way with the R 124?? so I’ll buy another can of that tomorrow.

I’ve prepped a big salad for dinner and I’m going to grill some salmon.  I might add in a carb but not sure what yet. This week with B gone to Minnesota, I’ll keep the menus easy especially since my daughter doesn’t get home till 7.  Maybe sandwiches, tacos, pancakes?? We’ll see. Nothing too heavy as it’s too hot to eat heavy foods.

I gave away 2 sets of Fiesta ware to my brother, so that’s more out the door. I gave him the peacock blue color and the dark blue. I wasn’t in love with either color although the dark blue is pretty.  I still have plenty of other colors to use. I was going to give them to the Cancerthrift but then realized I had given him 2 sets a few years ago so this would make 4.

This week I might do a little more reorganizing the pantry.  I was thinking of taking everything off the stainless steel restaurant shelves and reorganize that way. We’ll see.

 

This week is the bedroom zone in Flylady, so I’ll work on tidying the closet. Plus it does hold my pantry back up items.

Overall, it should be a quiet week except hot!!!