Friday things…

I’m using up the dex energy to paint trim and the french door in the bedroom. Most of it done. I’m planning on painting the window trim as well and got most of one window done. I’ll do the rest tomorrow.

I’ve got the pizza dough in the bowl doing a first rise and then I’ll put it in the fridge till later.

I’ve been very frustrated about not getting ANY camping spots at all. It seems everyone in the universe now want to go camping. I’m in reserve america at 6:55 am and clicking reserve right up to 7 when it opens up and POOF they are ALL gone. I’m guessing people with faster modems or computers are just beating my Mac. Well, we might not be getting to Tahoe again this summer except for day trips.

I did order the garden shed from Costco at $999. It will be at least 3-5 weeks before delivery so that’s into April I’m guessing. I think it will be most useful.

My labs came back AMAZING. Get this. After one round of Velcade my kappa light chains went from 660.6 to 45.6. Ratio went from 60.1 to 3.65. Even my Dr was impressed. So this cycle who know but it is good news that the myeloma cells do not like VELCADE!!! I know it probably won’t always be this hopeful but for now it is and that’s all we really have in the end anyway, is this day and this moment.

Velcade, Round 2, shot #3 or 6 depending on how you look at it.

The ride down to Rocklin was uneventful. It’s a bit windy here and there but temps still nice.

They had tried to call me about needing labs but I had blocked their number by accident so I didn’t get it but it was fine. They just took blood and did the labs there. At least I don’t hve to go in Monday then for that.

On the way home I stopped at Flour Garden Bakery and bought some bagels to bring home. We haven’t been in for ages and it was nice to see them busy. Only patio setting but still good their still in business. We started going to FG in the early 1980’s when it was just a tiny shop. After Sachi was born in 1985, many of us ‘new parents’ had coffee and bagels there. Funny note: Sachi would ( eventually) have a sliver of bagel with a whole pat of butter. She loved the butter.:)

Speaking of which, she is making dinner of spaghetti and meatballs with a broccoli salad.

Anyway, all is good. The dex is starting to hit so I’m off for now.

Velcade, Round 2, shot #1 or 4 depending on how you look at it.

Today is back to the Wednesday shots and then home to take Dex. This is shot #1 for round 2 or shot #4 if you’re counting total. Don’t think it matters really.

It was a nice drive down with sun and no rain yet. I was in and out in 20 minutes. My CBC and CMP came back fine but haven’t seen the other 2 and that will be Friday. So we’ll see.

Tonight I have dinner planned as I made some pintos yesterday and we have some brown rice left over. So we’ll have that with some avocado and pico de gallo.

Kitchen zone

This was a busy weekend with starting the painting.

I did the area in front of our small bathroom and the book shelves. I’m waiting to put the books back for 24 hours till I’m sure they are quite dry. This morning I did the french door to the bedroom and that’s it.

I usually do most of the zone on Sundays but since painting was involved I didn’t get to it till this morning. It wasn’t the most thorough I’ve ever done but perfectly fine for a zone cleaning. The last thing I want to do with this zone is clean out my wine crate pantry boxes and wipe them and restock. I’ll probably to that tomorrow.

First this morning I had to go get my labs for Wednesday’s shot. He added in the IgG test which can be a myeloma indicator. Last time it came back normal so that’s good. Then my covid shot is Friday so I’ll have a day to recuperate and mostly get thru the dex.

I bought a new cookbook. Mark Bittman’s ‘Dinner for Everyone”. It seems pretty good with each recipe having an easy adaptation, a vegan one, and then a fancy one. I may try something tonight as I try and do 2-3 new recipes in my monthly menu plan.

We’re heading into some very wintery weather by Friday. Rain and lots of snow in the Sierras. We still need so no complaining.

Round 1 over, Velcade, shot #3

It was a brutal drive down to Sacramento yesterday.

We had wind and rain here overnight and it didn’t let up driving down. Sacramento looked liked a war zone. It was hit very hard by wind and rain. I saw debis all over and many trees snapped in two. There was no power in the C street area but Mercy did have power. Off the exit onto J street, the homeless encampments looked like they took a huge hit with stuff ALL over the place. Why we can’t provide some kind of motel/hotel rooms for these people is beyond me. I know Gov Newsom is trying his best to come up with solutions. Why the nutsos want to recall him is all so beyond me. What was he supposed to do during a pandemic, just say ok, keep businesses open and spread Covid-19?? Honestly?? Some People are really stupid.

Anyway, I got down there just fine and saw Dr. Laptalo. He said the soft lump that was on my front temple area probably was a plasmacytoma so fortunately with 24 hours of my first shot it was gone and he said that’s good. But there’s not much we can do with the bone area right now. sigh… why is it always something?. But the important thing is when my numbers started to double in early November, that’s when this soft lump appeared so clearly the abnormal plasma cells were working overtime. I’ll be more aggressive next time saying we need to start treatment when we reach this 500 point.

So then when I left, the sun was out but still very strong winds. I headed up to Rocklin for my shot. I was 1/2 hour early but the nurse told me just to come in since the shot doesn’t require IV hook up or anything and they had done my vitals in Sacramento. The shot went well and I was on my way.

I need to do labs before my next round starts in February and I have off next week.

There wasn’t any rain when I left but the winds were still very strong and it was hard to even walk back to the car.

I got home by 12 having left by 8am. So not too bad. I ate some lunch and took Dex.

I guess it’s all a waiting game to see what my blood work shows, but after only one round, you can’t expect too much. Maybe by Round 3 in March.

My daughter made a nice comfort food dinner of Mac and Cheese, wedge salad and a few breaded Costco shrimp in the air fryer.

We are watching Brooklyn 99 with my son and it you want a funny show this is definitely it. Great writing and characters. We’re taking a break from the ‘Money Heist’ since we just finished Part 3. Then we browsed and started ‘Lupin” . French and quite good so far. We also paused Cobra Kai. It’s a good show, I’m just not sure if I’m into the story line although it is good and it’s fun they are the original characters from the “Karate Kid”.

Tonight my son will cook and is planning an IP chicken teriyaki dish. I’m going to make a tofu curry for the veggies. Plus I’ll put some arborio rice in the Zojirushi. An easy meal to put together.

It’s still raining and we didn’t walk. I just ordered this morning a set of Frogg Toggs since I don’t mind walking in the rain if I have the right gear. If I feel up to it, I’ll get on the treadmill and do at least something, maybe:)

Round 1, Velcade, shot #2

I was able to watch the swearing in of Harris and Biden and it really brought me to tears.

Then I left to go to Rocklin for shot #2 and was able to listen to quite a bit on the radio.

This nurse wasn’t quite as good as the first one. She did a blood draw which they need to check my WPC and RBC and she didn’t seem very seasoned in where a vein was on my arm. They do it always in the same place at Quest so not sure what her thing was but she did it and did leave a bruise. A good draw never leaves a mark at all.

This is the injection site. The red lasts maybe 3-4 days. Yesterday she did the opposite side and did leave a little bruising. So the other nurse did seemed to do a better injection. Other than that no complaints and of course, I just want it to work again.

I made a loaf of sourdough seed bread. It came out very nice.

I also made a chocolate sheet pan cake and it’s disappeared so I guess it was good.

Today is just a home day due to dex but I hope to get a few things done.

I should know better than to do business, so I went to pay a bill and and instead of putting in Feb 1st( due date) I left it as today. So I had to move money over from savings to cover it as it will come out tomorrow. Oh well, just a reminder that dex messes with your mind:)

Simple Sunday

We finally have rain!!

We had to use umbrellas to walk but that was fine. Nobody was there but us so that’s always a treat.

I made some sugar cookie dough this morning and it’s in the fridge for a few hours to harden some. So I’ll start those a little later. I used an Alton Brown recipe and it was pretty straight forward.

If you follow Flylady, we are in the bathroom zone. I can finish mine in about 15 minutes as our bathroom is so small. I might add on a couple of extra tasks this week as well. I consolidated the Christmas ornaments into 1 larger plastic bin that B had bought at Home Depot. So that’s most of the Hallmark boxes and some felted animals when I use to put them out at Christmas on the nature table. I don’t do that anymore but they’re cute enough to keep for now. In the future, who knows? right.

So, as expected, my kappa light chains went up over 600,( high normal is 26.4) and the ratio also doubled( It was 74.3 mg/l ) normal high is 26.3. So Velcade will start in January. So since it’s 3 weeks on 1 week off, I’m thinking @ the second week of January and then a break the first week of February and so on. I guess we’ll have to see how it’s working as to how many rounds it’ll be. That’s a wait and see kind of thing. But one would hope, if it works on the myeloma, 6 months of treatment. Again, big unknowns since we don’t know how things will go. Disappointing but reality.

Tonight I’m cooking a roast chicken in my cast iron pan and I think I’ll make some buttered noodles to go with it as we are potatoed out from latkes. i wanted to get down to Krispy Kreme for donuts( you know to keep the cooking in oil thing going for Hanukkah:) but that may not happen.

B is actually going down for a doctor visit this week as I think they want to see him in person. I’m going to write a list of things for him to bring up because they continue to bother him. He is supposed to get his pneumonia shot and soon he will start revaccinating. I never did revaccinations as back in 2006 it wasn’t common then. Now, I think with autos it is. It is absolutely necessary with an allo transplant though as he had donor cells.

Well, I think I’m going to finish my Sunday chores and read some more of the Obama memoir. BTW, it is a great book and so full of compassion and insight. Definitely worth buying . One thing that really stood out to me was how many times he went to Walter Reed to see the wounded soldiers and how he would interact with them. I tried to look up how many times trump did it but I only found the 1 time shortly after his inauguration. I guess he couldn’t handle seeing the soldiers with one leg or arm or whatever. What a guy!:(

Simple Sunday

We were supposed to have a PGE blackout tomorrow but it seems that the last message I got said it may not happen. We are supposed to have 70 degree weather and some wind. JFC, this is December 6, where is the rain?? I guess we would be ready. We do have what we need and our heat is mostly wood and propane so it would be ok. I just hope we get some kind of rain soon.

This week is the kitchen zone for Flylady followers. It is my biggest zone and takes the longest. Still, clearing your counters and keeping your sink clean will go a long way.

I have a Tartine bread dough started and will do that tomorrow. I used up most of the pieces I had frozen so I’m ready to do a fresh batch.

We been having fun opening the Bon Maman advent jams. They are the cutest little jars which of course I am saving for?? Well, I’ll think of something. Seeds? spices?

I’m planning on making a curry for dinner in my new Staub. I ‘ll make some rice to go with it and also a tofu curry.

Tomorrow I have my labs and I am bracing for the worst. I think if it is under 600mg/L I’ll be happy. Well, not happy but ok. If the same pattern emerges though it will probably over 600. Guessing almost 400mg/L now, so adding 50% ( that’s what it’s done,) will take it to 600 or so. maybe I’ll be lucky though but who knows.???

Well, off to do the first fold on the Tartine bread.

Simple Sunday

It seems the craziness continues with the trump supporters and him still not conceding even though there is no way for him to get the electoral votes. His malfeasance just continues in some downward spiral of an alternate reality. I still think his mental illness will catch up to him at some point.

This morning I made some banana pancakes, bacon, and eggs for breakfast. We’re still getting lots of eggs. I tried selling them but got no takers so now I’m just giving them away for free. It’s ok. It’s a small way to give to someone who needs them. I used one pack of the frozen ones(scrambled) and they were great. Actually, I don’t know if I could tell the difference. So I did a few more bags and popped them in the freezer. The girls will slow down once there are fewer daylight hours and it’s colder.

Our walks have been lovely and no sign of the ‘jerk’ dog walker. Either he’s getting there really early or something’s up with him because I figured we would have at least crossed his path in the last two weeks but we haven’t. But it’s really really nice to not have his frenetic energy there. Also, since it’s so pleasant we’ve increased our walk time to 45 minutes so that’s a plus.

All the tree leaves are turning shades of gold, yellow, red, and orange. This is one of the more colorful falls we’ve had in recent memory. I remember one year when we had a serious frost early and all the trees just turned brown and that was it. I’m guessing that because the temperatures have been warm the sap flowing helped with the color change. Any scientists out there that can give a scientific answer???

I’ve got some Tartine sourdough in the oven and then I’m going to finish cleaning up the kitchen. I’ve been freezing leftover slices of bread since we don’t go thru that much bread and when we want a slice for toast I just take it out of the freezer. I also just made some parmesan croutons with some end pieces.

This week is the bathroom zone if you’re following Flylady.

I still have a few weeks before my next labs( first week of December) so that’s kinda nice to jsut put it out of my mind for now. Barclay will need another IGIV soon but he’ll do that in Roseville as it’s half the distance. He’s going off a few more drugs (yay)and will finally be getting his pneumonia vaccine. He’s going to have talk to his doctor about his chronic fatigue and see what options there are. I know of a few myeloma patients that use Ritalin for increased energy but I’m not sure what his doctor will think. Also a serotonin reuptake(like zoloft) may help his low energy and meloncholy. I’m not sure what his options are but he can talk to his doctor or the NP next time and check it out.

It’s a Struggle…

Honestly, it is hard at times to be positive about having cancer. I can compartmentalize most of the time and I do. But then when labs come in and you have to face the reality it is hard.

I was diagnosed with Multiple Myeloma in 2005, had the autologous transplant in 2006. I know how lucky I am to even still be here but it doesn’t make it easier. I relapsed in 2010 and actually did great on Revlimid ( aside from it causing severe IBS) for 5 years and then that stopped working. My kappa light chains went up to almost 1100mg/L so pretty high and my ratio was way up at 92mg/L. Velcade or bortezomib is a proteasome inhibitor and worked astonishing well. Within 2 cycles my numbers were almost in the normal range. And that has lasted 4 whole years.

I have no complaints. But the reality is now my numbers are increasing exponentially and I have to deal with it. With my new numbers, I still think it will be January 2021 when I restart Velcade. Since I get my labs every 8 weeks that puts me at the beginning of December, with a doctor visit by the end of the month and then a start date. Velcade means weekly trips to the infusion center. It’s 3 weeks on 1 week off.

It’s depressing but the fact remains I have a cancer that goes in to remission and then re-emerges. It’s never going to disappear. Don’t get me wrong, I am exceedingly fortunate not to be dead from this already, so it’s really just a matter of buck up and deal with it. So many cyber friends with myeloma are long gone with very aggressive myeloma. Mine is always there but so far hasn’t been aggressive.

So here’s the numbers:

Kappa light chains at 382.mg/L up from 239.2mg/L

Lambda light chains at 11.2mg/L up from 10.2mg/L

ratio of the two at 34.11 mg/L up from 23.2

M-protein( SPEP) .4 up from .3

Well, blood doesn’t lie so there it is in black and white. The cancer cells are on the march.

Give me a few days and I’ll be okay with it and be ready to reset. Plus, after thinking about it, I wouldn’t want to start anything till after the holidays so there’s that as well. I’ll see what he thinks when I see him at the end of the month.