Simple Sunday

Today is another trip to the hospital but before I go down I will try and do my Flylady zone.

It’s the bedroom so that is generally not too involved. I did call a house cleaning service to check on a ‘deep’ clean and I’d like an estimate. If it’s reasonable I’ll schedule that for the first week of June.  Since sometime after that we will be down there at the RV spot( I hope).

There’s been a hiccup with that as the owner has had a medical issue come up. I sure hope it can be resolved but it is what it is. And his health comes first. We still have the ACS hotel as back up. We can’t book that though till we know the exact date, so it’s also hurry up and wait.

On another note, my labs came back and I’m not going to lie. It upset me. They went up 4 points out of normal range. 18.4 to 22.4. So 19. 6 is high normal. And the ration went up to 1.69 out of normal range. (1.68 is high normal). so there it is. I’m guessing I’m coming out of remission.  I’m not going to worry too much yet as it’s still a long way to treatment.  It could be 3-4 months maybe longer but clearly, myeloma cells are activating.  It’s fine really. I knew it would happen and I’ve had 3 great years. Still, with everything going on it’ll be another trial. I actually see my oncologist this coming week( yes, I know in the middle of everything else) so I can ask him. He doesn’t get too concerned as the increases have been slow.

Anyway, life goes on, one way or another.

 

Decisions…..

So yesterday was insanely busy.

We had to be out the door at 7:15am to get to the local oncologists’ appt. That went well. Then B had to go get his labs.

Then we decided to go get bagels at our local organic bakery because we were going to head to Sacramento to check out the Kiwanis house and we wanted to AVOID the 8 am traffic. So we relaxed and enjoyed our coffee and bagels.

We had no stops with traffic and got down to UCD med center in 45 minutes. First, we went and toured the Kiwanis housing and as expected the rooms are quite small and the shared kitchen just didn’t do anything for us. BUT, we toured the RV parking and LOVED it.  So there is a possibility of using a friends RV or if we moved quickly buy a used small one that we were planning on doing in the fall anyway.

We asked the social worker to put in the request so at least we have that in place. There’s no guarantee but hopefully, that would be a possibility.

Then while we were there the social worker called and said there may be a problem with B’s brother’s blood something that has an antibody in it so B needed to get a blood test for that ASAP. Fortunately, we were right there so we did that.

Next, we checked out the Marriot and that was crazy expensive even though very nice. There were two nights that the cost increased to $279 a night.  We ruled that out quickly.

Then we headed to the Cannabis place and B got some chocolates since smoking is not allowed with the transplant.

After that, we went to the Sacramento Co-op and joined as I plan to shop there while we’re down there and then even later go once a month. It is a beautiful store and I found a few items like cranberry beans I’ve wanted. ( they’re like pinto beans). Plus they have an olive bar!!

Finally, we headed up Hwy 50 to check out the Extended stay hotel and surprisingly we both thought it was okay even if it was the furthest away. ( 10 minutes or so without stop and go traffic). Not ideal but doable so we’re going to get the referral to the Cancer Society and put that in as a backup plan.

By this time it was close to one and we were pretty wiped out. I came home and took a nap.

We’re hoping there isn’t a problem with the antibody as that would mean back to square one with the National Donor Bank. We should know in a day or two and we see the transplant doctor next week so…

I’m heading out to the koffee klatch to see everyone for the last time probably till the end of summer so that’ll be nice. I think everyone is planning on being there.

Dinner is salad and chicken kabobs( marinated in yogurt). Maybe some grilled tofu too.

 

 

 

A busy week.

Barclay finished his last chemo yesterday and had to have a blood transfusion so it was a long day for him. This was round 5.

We saw the social worker and the Nurse Practioner on Tuesday. The traffic was insane and it took us almost twice as long as it normally would since we hit the 8 am traffic. I won’t be doing that again any time soon.

So the social worker thing was just a repeat of the last one and the NP was informative. The most exciting news was his blasts have gone to 1% from 9 and that is GREAT news.

We are now in the final month before he goes in. The brother is set up with the national bone marrow registry and has the dates set for  Neupogen shots and then the harvest on the apheresis machine. So Barclay will go in 5 days before for chemo and get a Hickman catheter put in.  So we are ready to go!!!

We still are trying to figure out the details on lodging and the best so far is the Kiwanis house which is on the UCD campus. There are individual rooms and bathrooms but the kitchen is shared. Not really my style but it’s a walk away and is only $50 a night. the other option is an Extended stay but it’s about 10 miles away.  So we’ll just have to see. I’m checking Airbnb but they are more like a $100 a night or higher. So I might check out a few and message the owners about a 2-3 week stay.

My oncology appt today was canceled as the doctor was not going to be in. So that was good because I didn’t really feel like driving back down to Sacramento. So I’ll see him in May although  I left him a message that the appt maybe when B is going in so I’d just have to see.

I went to town to get my new glasses but they didn’t fit right so they need to be sent to the lab to have the bridge redone.

Oh well, the prescription is the same so my glasses are fine for now.

Dinner is something my daughter is making so I don’t have to cook!!

 

 

Some good news

We got a letter yesterday saying the transplant has been approved by insurance and it’s a go. Also, the nurse coordinator got a hold of the donor brother and it looks like it may all be done in NYC… so very good news.  It looks like at this point his pre-testing will happen soon and then collection on the 15 of May. That means Barclay will be going in right around then. So good news and let’s get this rolling. Not that it’s like a vacation and fun but just something you want to be over.

Also, his last labs show his WBC at 4.3 NORMAL!!!!! how great is that. Not sure it’ll stay there but let’s hope.

So yesterday was really long sitting in the dentist chair for the crown and the filling.  But it’s done. Then I still need the scan for my Invisalign retainer.  The dentist also said the filling on the crown was deep and could eventually need a root canal. ANd I’m thinking to myself, ” I’ll never do that again” that was one of the worst dental things I’ve had and then it still ended up in surgery to be pulled.  I’ll just wait and see.

Today is beautiful out. I’m going to the gym and then tackle the chest freezer. Down at the bottom, I found some salmon from last summer so I’d better use that up. Also some corn I’d frozen. So I’d better get out there and see what else is there.

Today is koffee klatch day but I’m skipping and just coming home to do the above mentioned and some outside chores.

I just finished reading Flylady’s new book, The  C.H.A.O.S cure.   It was okay and had some new stuff but mostly a rehash of her stuff. Still, I enjoyed it.

Dinner is something from the freezer.

 

Friday stuff

So yesterday was another test for B. This was the cardio stress test. Today it’s an EKG and x rays. So all that’s left is the CT scan in May and he’ll be ready to go to transplant.

Yesterday I drove and my daughter came along and we went to Whole Foods and then Barnes and Noble. Barnes and Noble is such a waste. It is so expensive. I was checking out cookbooks etc and they are full retail price as opposed to Amazon where it’s usually half that.  It was nice to look at the books but I want interested in buying.

Then since B hadn’t eaten we went out for brunch and it was really nice to do. I’m definitely a Scrooge when it comes to eating out but this time I was okay with the bill and the food was good. Not great but good.

So then today I’m going to forge forward to Social Security and be prepared to wait.  I figure 2-3 hours all said and done. After that, I may go to the gym but it kinda depends on how I feel.

My food budget is pretty much used up for April so I need to use all of what I have in the refrigerator and freezer. Tonight I ‘ll make a homemade pizza.  If anything, I’ll need salad stuff but right now I’m set for the next week.

 

Our weather looks really nice this next week with temperatures in the 70’s which I am so ready for. All our grasses are growing like crazy so the mower will be going none stop. A lot of this is seasonal grass, not lawns. We only have 2 small areas of lawn we keep green.

Some things have been planted but it’s too early for tomatoes, etc.  I think my daughter(the gardener) did plant lettuce and radishes so we’ll see how they do.

Next week looks open except me trying to get this crown done. I’m not looking forward to that but since it seems dental with Medicare is non-existent I better do it now. Still, that’s another copay but whatcha going to do?

 

 

My labs…

Hurray, they are in the normal range and even went down ever so slightly.

Kappa light chains at 18.9 mg/L

Lambda at 13.6mg/L

ratio 1.39

the ratio is actually what is important. So I’m still doing great there.

One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food.  I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away.  Still, after this amount of time, I’ll just back off some.

I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed.  I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.

I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.

Today is a gym day for me.

B has his pulmonary test scheduled and my daughter will take him to Roseville.

Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.

The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.

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Beginning of the week.

I’m off to get my labs this morning. Even though I don’t see my oncologist till the end of the month, I wanted to get my labs at 6 weeks to see where they are or if they’ve changed.

Then I’m going to go pay our property taxes(bi-annually), and I have to go pay the car tags on the Santa Fe.

Then home to do Monday chores. I need to wash mirrors and the window in the entryways and the sun porch. But the sun porch is ALL windows so maybe not all today.

On a super positive note, I called the American Cancer Society about there partnership with hotels for our stay after B is released from the hospital and it all sounds great. He’s in the system and when he goes in then call and set up the tentative date for the hotel. Since it will be at a reduced price, even if we are a few days different, I’ll go and check in just to keep the reservation. So very good news there.

So yesterday, inspired by “The Home Edit”. I pulled everything out of the fridge. Then I cleaned all the shelves with the help of my daughter. I had gone to Target and got some plastic bins for specific things to group. I’m pleased with it all.

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It looks all fresh and bright.

Today I might work on the kitchen pantry which is the restaurant shelving. It seems I haven’t found the best way to work things there.  But I think I’ll take everything out and see where I go with it..

Dinner is unknown…….