Five on Friday or more…

It’s been a busy week. The snow and weather have been a PITA, but we got thru. Yesterday morning there was ice snow on the ground and in the trees. It must have been like freezing rain in the early morning. The roads were a little scary.

We did recycle this week, and we went to Harbor Freight in Roseville to get a car canopy thing. This last week the Santa Fe has been iced over every morning and taken forever to defrost. So we will put that up over the weekend.

I had my labs this week and haven’t heard what the results are. I’ll probably call later if I don hear.  Usually, my doctor is really good about that but sometimes it slips thru his radar.  I go to Sacramento to see him next week.

I’ve used the instant pot daily and I am really enjoying it. I made pinto beans( which turned out great), a butter chicken, rice again and hardboiled eggs.  I really like that it is quiet and the flavors are pretty impressive. Oh, yeah, I made minestrone soup that was excellent.

Because of 2 trips to Costco, I’ve gone over our food budget but I’m just chalking it up to whatever as some of the stuff was the Orgain for B which was pricey. We bought 2 of them, plus coconut waters and nuts to help him add on calories to gain weight.  So, I’m just letting it go instead of obsessing about it. ( which I probably will do anyway)…

B has labs tomorrow and infusion on Sunday.  He will need platelets and probably blood but the blood has been 14 days so that’s an improvement. But honestly, it needs to be better.

I have finally have figured out Medicare to a point. I still need to call the insurance company and ask a few questions but I have the basics figured out so I feel good about switching by June. B’s insurance stuff gets re-upped in June so I will consider that (May 31) as the last day and Medicare to start June 1st. I’m a little nervous about it but it’s going to have to happen sooner or later.

Well, I’m off to town to do some errands.

 

Quick update:

just saw my labs and my kappa light chains went up 4 points( bad) to 19.4 which is the borderline for high. So there it is I’m at the high normal range but at least not out of it.

Lambda went to 13. 6 which is in the normal range, high is 26.5

the ratio went to 1.43 high normal is 1.65 so that’s still below.

Well, I’m somewhat dismayed but heck it’s still a long way off till it would be back on treatment.

 

Simple Sunday

Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there.  Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.

Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!

IMG_1775.jpeg

I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.

Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+.  I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.

Today I am roasting a chicken in my large cast iron pan.  I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.

This week for those who follow Flylady, it’s the bedroom zone.  I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.

This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion.  BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.

If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know.  So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in.  We’ll see.

 

 

Friday Stuff

We’re still in the storm pattern here and I 80 is closed again. This kind of snow and weather hasn’t happened in years. I think the last time I remember snow like this was 1988 or so. Truly amazing amounts of snow have fallen in the Tahoe area.

My daughter still hasn’t been able to get there. Yesterday she got 1/2 way and had to turn around because cars were sliding all over. Too dangerous.  I told her if the library director complains take it to the CEO of Nevada City and say if it’s too dangerous to drive then it’s just too dangerous.

We’re off to infusion this morning for Barclay to get platelets. Good news is that his hemoglobin is at 10.6. That is very good news. So he does not need a transfusion.

Also good news, the nurse coordinator is calling his brothers today and the donor kits will be sent out Overnight express. So we are moving forward and should know if they are a match in about a month. So very good news there too.

I’m going to the gym and then pick a few groceries at Safeway for pizza tonight. I thought I’d get mushrooms, olives and maybe artichokes.  I have the pizza dough rising right now and will put in the fridge before we leave.

Our very old neighbor left with his son late yesterday. Someone came and boarded up the broken window. But there’s still no power and if the roof was leaking it’s probably a mess in there. But at least he’s safe. We’re looking at taking down maybe 2 or more trees but it really does depend on money. We will need to be very careful as we still need to cover the $6000 deductible for the transplant and lodging is our responsibility and donor costs such as the flights and hotel while getting the marrow. So lots on our plate financially.   But I know from what we felt in the past when we removed the huge trees, I think this next set of trees will also feel great. I mean there’s always a chance some random tree could fall but at least we would have done what we thought was the most likely.  The way our neighbor’s tree fell was really unpredictable. So who knows?

A weird week really.  Really weird….

 

 

Another busy week.

Again, more appointments and just out every day. Something this introvert doesn’t like a whole lot but right now, I just need to get thru whatever is scheduled.

Today we’re heading into Sacramento for an appt with the nurse coordinator and social worker. This is supposed to be quite a long appt but I will cap it at 2 hours since that’s about my limit on things like this.  If they can’t tell us all the info in that amount of time, I’ll schedule another appt. But initially, this is quite important as we will be giving her the addresses of the brothers for them to contact with the donor test kits. We will at least have that rolling. I think it was mentioned too that  B would be tested as well. I’m not sure how that is different from his normal blood tests but it must be. Maybe it’s more genetically involved.

From there I initially thought we’d stop at Costco ( B can’t go in) but now I’ve decided it’s going to be too much to go in there after this appt. I need to get some things and the dog’s medicine is there too so I have to go.  But I’m thinking Saturday morning, I’ll take my son as one of the things I need is cat litter and last time I lifted it (35lbs) I hurt my back.  So I need someone with me.  I usually go on Sunday morning which is the best time, but the pharmacy isn’t open so that’s not going to work.

Tomorrow I have a dentist appt. I’m thrilled( just joking). We aren’t too thrilled with the dentist right now. It’s all about money for them. Plus he sorta gave up on my Invisalign after he realized he was losing money when seeing me. So although it did help quite a bit, it didn’t completely align my teeth. Humm, I wonder if that is in the contract somewhere???

I didn’t walk this morning so I may go when we get back. At least try and do a mile just to get some exercise. The rain is going to come in on Friday afternoon and then all the way till Tuesday plus very cold temperatures. Nothing like the polar vortex but still a high of 48 is cold for us here.

images That about sums it up, right??

 

 

 

Friday Stuff…

Things are definitely looking up.

We got a hold of SDI (EDD) again and it was like oh, sure, the dates are fine and we’ll mail out the debit card that has the benefits. So what ended up happening is they needed the date that UNFI was putting him on FML. So that was Jan 7. We will still need to use some PTO to cover the benefits and when that runs out which it will, we will have to pay with a check or whatever.  I’m hoping that doesn’t happen at least for 12 weeks so we can get ready. But at least we are on our way.

Then B had a great day yesterday, very energetic so I’m hoping the labs tomorrow are promising. We will see.

Then we will need to set up some payments for the medical co-pays coming in. So far the first is $1400. I’ve decided to start a Go fund me for him to help us with bills and ALL the stuff that comes with chemo and when the transplant happens, that will be a lot of things, extra gas to get to Sacramento, food, lodging, and the list goes on. So we will see.  I’m not sure how GoFund Me works so that will have to be figured out. When I looked at the page, it didn’t look so bad.  I will link it when I get it done if anyone in the cyber world wants to donate.

The weather is quite nice and this weekend looks lovely with temperatures at almost 70 degrees.

Dinner is homemade pizza and a salad. IMG_0466

In a healthier time at Santa Barbara. His job was given to one of his co-workers. I’m definitely sad about it, but Barclay’s health is more important. And the next year will be tough and there’s no way he can do that job. Legally, they need to keep it for him while he is on Family Leave but that’s only for the 12 weeks. So what can you do? It is what it is.

 

Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Friday Stuff

I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.

Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.

Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.

 

I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.

The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener.  But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.

If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker.  It was superb!!!

Well, off to town.