A busy week.

Barclay finished his last chemo yesterday and had to have a blood transfusion so it was a long day for him. This was round 5.

We saw the social worker and the Nurse Practioner on Tuesday. The traffic was insane and it took us almost twice as long as it normally would since we hit the 8 am traffic. I won’t be doing that again any time soon.

So the social worker thing was just a repeat of the last one and the NP was informative. The most exciting news was his blasts have gone to 1% from 9 and that is GREAT news.

We are now in the final month before he goes in. The brother is set up with the national bone marrow registry and has the dates set for  Neupogen shots and then the harvest on the apheresis machine. So Barclay will go in 5 days before for chemo and get a Hickman catheter put in.  So we are ready to go!!!

We still are trying to figure out the details on lodging and the best so far is the Kiwanis house which is on the UCD campus. There are individual rooms and bathrooms but the kitchen is shared. Not really my style but it’s a walk away and is only $50 a night. the other option is an Extended stay but it’s about 10 miles away.  So we’ll just have to see. I’m checking Airbnb but they are more like a $100 a night or higher. So I might check out a few and message the owners about a 2-3 week stay.

My oncology appt today was canceled as the doctor was not going to be in. So that was good because I didn’t really feel like driving back down to Sacramento. So I’ll see him in May although  I left him a message that the appt maybe when B is going in so I’d just have to see.

I went to town to get my new glasses but they didn’t fit right so they need to be sent to the lab to have the bridge redone.

Oh well, the prescription is the same so my glasses are fine for now.

Dinner is something my daughter is making so I don’t have to cook!!

 

 

Some good news

We got a letter yesterday saying the transplant has been approved by insurance and it’s a go. Also, the nurse coordinator got a hold of the donor brother and it looks like it may all be done in NYC… so very good news.  It looks like at this point his pre-testing will happen soon and then collection on the 15 of May. That means Barclay will be going in right around then. So good news and let’s get this rolling. Not that it’s like a vacation and fun but just something you want to be over.

Also, his last labs show his WBC at 4.3 NORMAL!!!!! how great is that. Not sure it’ll stay there but let’s hope.

So yesterday was really long sitting in the dentist chair for the crown and the filling.  But it’s done. Then I still need the scan for my Invisalign retainer.  The dentist also said the filling on the crown was deep and could eventually need a root canal. ANd I’m thinking to myself, ” I’ll never do that again” that was one of the worst dental things I’ve had and then it still ended up in surgery to be pulled.  I’ll just wait and see.

Today is beautiful out. I’m going to the gym and then tackle the chest freezer. Down at the bottom, I found some salmon from last summer so I’d better use that up. Also some corn I’d frozen. So I’d better get out there and see what else is there.

Today is koffee klatch day but I’m skipping and just coming home to do the above mentioned and some outside chores.

I just finished reading Flylady’s new book, The  C.H.A.O.S cure.   It was okay and had some new stuff but mostly a rehash of her stuff. Still, I enjoyed it.

Dinner is something from the freezer.

 

Friday stuff

So yesterday was another test for B. This was the cardio stress test. Today it’s an EKG and x rays. So all that’s left is the CT scan in May and he’ll be ready to go to transplant.

Yesterday I drove and my daughter came along and we went to Whole Foods and then Barnes and Noble. Barnes and Noble is such a waste. It is so expensive. I was checking out cookbooks etc and they are full retail price as opposed to Amazon where it’s usually half that.  It was nice to look at the books but I want interested in buying.

Then since B hadn’t eaten we went out for brunch and it was really nice to do. I’m definitely a Scrooge when it comes to eating out but this time I was okay with the bill and the food was good. Not great but good.

So then today I’m going to forge forward to Social Security and be prepared to wait.  I figure 2-3 hours all said and done. After that, I may go to the gym but it kinda depends on how I feel.

My food budget is pretty much used up for April so I need to use all of what I have in the refrigerator and freezer. Tonight I ‘ll make a homemade pizza.  If anything, I’ll need salad stuff but right now I’m set for the next week.

 

Our weather looks really nice this next week with temperatures in the 70’s which I am so ready for. All our grasses are growing like crazy so the mower will be going none stop. A lot of this is seasonal grass, not lawns. We only have 2 small areas of lawn we keep green.

Some things have been planted but it’s too early for tomatoes, etc.  I think my daughter(the gardener) did plant lettuce and radishes so we’ll see how they do.

Next week looks open except me trying to get this crown done. I’m not looking forward to that but since it seems dental with Medicare is non-existent I better do it now. Still, that’s another copay but whatcha going to do?

 

 

My labs…

Hurray, they are in the normal range and even went down ever so slightly.

Kappa light chains at 18.9 mg/L

Lambda at 13.6mg/L

ratio 1.39

the ratio is actually what is important. So I’m still doing great there.

One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food.  I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away.  Still, after this amount of time, I’ll just back off some.

I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed.  I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.

I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.

Today is a gym day for me.

B has his pulmonary test scheduled and my daughter will take him to Roseville.

Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.

The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.

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Beginning of the week.

I’m off to get my labs this morning. Even though I don’t see my oncologist till the end of the month, I wanted to get my labs at 6 weeks to see where they are or if they’ve changed.

Then I’m going to go pay our property taxes(bi-annually), and I have to go pay the car tags on the Santa Fe.

Then home to do Monday chores. I need to wash mirrors and the window in the entryways and the sun porch. But the sun porch is ALL windows so maybe not all today.

On a super positive note, I called the American Cancer Society about there partnership with hotels for our stay after B is released from the hospital and it all sounds great. He’s in the system and when he goes in then call and set up the tentative date for the hotel. Since it will be at a reduced price, even if we are a few days different, I’ll go and check in just to keep the reservation. So very good news there.

So yesterday, inspired by “The Home Edit”. I pulled everything out of the fridge. Then I cleaned all the shelves with the help of my daughter. I had gone to Target and got some plastic bins for specific things to group. I’m pleased with it all.

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It looks all fresh and bright.

Today I might work on the kitchen pantry which is the restaurant shelving. It seems I haven’t found the best way to work things there.  But I think I’ll take everything out and see where I go with it..

Dinner is unknown…….

 

Simple Sunday or is it??

Well, it is going to be a lovely sunny day so I’m going to enjoy that. Our yard is looking so pretty with daffodilsUNADJUSTEDNONRAW_thumb_367.jpg, and the lawns turning bright green. Here’s the flowering cherry which is the prettiest bloom I’ve seen in a few years. Last year these trees were hit with a late frost and all the blooms died.

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In the far background you can see some of the hoarders stuff across the fence! More daffodils.

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Today is a gym day and B has platelets. I’m going to drop him off and then go over to the gym.

Sunday is sheet day so I’m doing those and since it’s so nice out, I thought I’d do our comforter as well.

There’s not a lot on the agenda for today so I guess that does make it a simple day.

I’m reading a new release in ‘home organizing’ called’The Home Edit’. 91xVeNilguL._AC_UL436_.jpg It’s nicely presented with lovely pictures. So far I’ve gleaned a few ideas about organizing stuff. Nice book, if you’re needing some help putting things together. I’m going to pull everything out of the refrigerator today and give it a good clean.

This week we are in the Entryway, dining room(which we don’t really have) and porches. I’m planning to wash windows sometime this week as well.

Update:

 

We went to town. I went to the gym and then was going to pick B up but he had a reaction(second time) to the platelets. So he had to stay and then they sent him to the ER.

He’s home now and all seems ok.

Dinner is roast chicken.

 

Finally!!!!

After almost 8 months of bureaucratic bullshit, I got my NYC birth certificate yesterday.

I actually ordered 3 when I sent in the final documents. unadjustednonraw_thumb_354.jpg

So there it is finally done. What an ordeal. I should write an ebook about how to get a certified birth certificate from NYC.

So, unfortunately ( i sincerely hope not) they didn’t return in the same envelope my certified marriage certificate. I’m not panicking yet because they didn’t mail the other in the envelope I provided, so I’m going to wait a few days and then try and email the corrections department.  Hopefully, it’s just in process on someone’s desk:(

Well, now I can dance in the streets, get a passport and get the real ID from California when I go to renew my license. Geez…..

Today is a doctor appt for B before he starts cycle 4 of Dacogen on Thursday.  If after this cycle, everything seems a- go I think he’ll start the transplant process which is a number of tests.  We haven’t heard about the brother’s donor match yet, but maybe she will know something.

We are in for more rain today thru Thursday but then it looks like we may be heading for ‘normal ‘ weather. Sunny, and in the ’60s.

I made IP polenta cacao de pepe, and wow it was superb. If you like polenta but not stirring for 40 minutes this is a deal breaker. It was creamy and just delicious.

Then I made tilapia with a parmesan crust and it was also delicious. Because I’m trying to eat fewer carbs, it’s a good recipe. I still drink wine so the carbs are still there, but hey, you got to do what you gotta do:) So this is not Keto, just fewer carbs like bread( my weakness) bagels, pasta, etc. I do love carbs, but I’m curious if I’ll notice a difference. We’ll see.