Friday stuff

No news on the second biopsy but it will be next week so then we’ll know the exact diagnosis. B is doing well and trying to adjust to this new normal of craziness. We had to drive to Sacramento twice and out everyday for something or other.

He started the chemo yesterday because either way this is the drug he would start with. It’s 5 days every 28 days and seems to be well tolerated. So that’s a start.

We’ve had a few lunches out coming back from Sacto since it’s easier to get a bite instead of coming home starving. Nothing fancy, a burrito at our favorite local place and the other day I had a In and Out burger and he had fries and a shake. One thing for sure is he needs to up his caloric intake. He’s already underweight( has always been) but I don’t want it to decrease anymore.

I’ve made 2 Vitamix smoothies and WOW it was amazing. I did one with a knob of ginger and there wasn’t a stringy thing left. I think it will be a great addition. Right now it’s on the counter but I try not to keep much on the counters so I’ll have to see where it’s home is. Since I’ll be using it daily the counter seems like an obvious choice but I’ll see.

While he’s at infusion today, I’m going to the gym for 30 minutes. I wasn’t feeling great yesterday so I didn’t go. that would have been my normal Thursday workout.

I get my labs next week so we’ll see how that goes too. I guess it’s really insane the two of us with a blood cancer. yes, I’ve tried to think what could it be and all I can say is it’s the luck of the draw. We’ve never been exposed to any chemicals or worked with hazardous stuff. So , we’ll never know really.

Tonight is pizza night and we’ll order out. It’s just too much to think about making too much stuff right now.

Tidying up!

Yesterday I decided to forego the gym and do some stuff around the house.

First, I pulled off the couch covers and started them in the laundry. Believe me this is workout in it self. Wrangling the cushion covers and then the couch cover it self is not for the faint of heart. IMG_0565.jpeg

Here it is washed ironed and back on the frame. Buying this couch from Ikea was one of the best things we did. I love it!!

I also hung that swag you see above the couch. I teetered  on the couch to get it up. I should have just got the step ladder.

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Here’s the tree. Well the top is cut off in the picture, but you get the idea. I did get rid of quite a few ornaments that I just didn’t want to keep anymore. Even a Christmas Barbie that just isn’t my style. We don’t do any bulb type ornaments, just Hallmark or things we’ve liked. That little straw ornament near the top is from 1971 when B and I went to Nogales and bought ornaments. We still have them.

Here’s a shot of the Hanukkah candles.

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I like the reflection on the wall. Last night was fun and I gave out bubble gum as the gifts. The first night was lots of fun as B got lottery tickets and they had fun scratching away. They actually won $10. and two more tickets.  If you want to do Hanukkah, Target has some nice inexpensive Menorahs. Also, these beeswax candles burn beautifully.

I also made two wreaths for the doors using the grape vine base. I had B go cut some pine boughs down in the woods. I put some red berries from the Heavenly bamboo but then keep falling off so I may go to Micheals and get some artificial ones. I can reuse them next year.

I’m planning on going to the gym today although I’m feeling a little off.

This week we paid our property tax and also I will go pay the DMV on my sons Subaru. So an expensive week. Also, there are going to be some medical bills coming in for B. It looks like the deductible maybe as high as $6000. Geez, I hope not but I haven’t looked at it yet.

Christmas gifts are pretty much done. We did pay for a years subscription to Rosetta stone in French for my son. He says it’s very helpful. So to remind him on Christmas morning I found one of our Tahoe black rocks and used a white marker and wrote Rosetta on it. Kinda cute. And I will put it in a bag for him.

Overall, B is doing great for what is going on. Next week is the specialist and we’re assuming he will do a biopsy in the office. Definitely,, not fun. I’m really hoping he can give us a tentative treatment plan to get things moving along. It’s all the way down in downtown Sacramento, so we will need to leave early as it will commute time.

 

 

 

Simple Sunday

A very cold morning but clear.It was 34degrees. We went for a nice walk. Not too much for B but still nice to see the early morning. We also saw a coyote and some deer. Funny, we rarely see these two wild life in the park.

I made chocolate Babkas for the first time. It’s a rich brioche type dough with a chocolate filling. Then it’s rolled up and baked. It was yummy and a nice treat.

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Tonight I’m making the potato latkes and I’m going to grate them in the food processor. That should save some time from hand grating. I have the applesauce. I will also fry up some chicken strips just because I need to use the chicken up.

The gym was quite empty (my favorite time is Sunday).  Then I went into Safeway for some jelly donuts for Hanukkah. I doubt we’ll eat them tonight but tomorrow morning sounds about right.

This week is light except B going to the lab and then infusion center. I don’t have any appointments. My next set of labs are coming up at the end of December and that’s it.

I decluttered a box of ornaments and Santas that no longer seem to fit with what I’m doing. I will end up with 2 bins of Christmas stuff. I ‘d love to get it down to one but there’s just a little too much for one bin. I think it’ll end up a bin and a half with most of the second bin being my Life magazine Christmas Santas. I did empty the wrapping paper holder container so I can get rid of that.

I finished the minimalist game for November.  I maybe didn’t get a few days done but overall it was a success. One of the things I love about doing these sort of tasks is that it really helps me focus on getting rid of lots of little things I don’t need. It may not seem like a lot but it adds up and then draws etc look much better and clearer too.

 

 

No Results yet…

So we are incredibly disappointed by the non results. B got a call from the nurse at 4:30 yesterday with the news that the biopsy sample was inadequate. WTF???? The doctor said it was a good marrow sample. So now we’re in limbo again till something else is scheduled.

He will go in for another transfusion as his platelets are very low. So as long as this can stabilize him till the next appt. Right now we have a pretty good idea that it’s MDS but without a biopsy confirming it’s still unknown.

He’s worked from home most of this week so at least that’s good. Next week will be the same as he shouldn’t go out in crowds too much. We might try and go out for a coffee date but we’ll see.

We did go to Trader Joes and did a huge grocery shop so that will last at least 2 weeks.  A few things we bought that we’re fun is their Candy Cane green tea! Go get some!!! It was delicious. Plus I did get some frozen meal items to make some evenings just a little easier.

Sunday night is the first night of Hanukkah. I plan on making latkes and using my homemade applesauce.  Of course, we are not Jewish, but any excuse to have candles is ok by me.

It’s a rainy Saturday and a snowy one in the Sierras. My daughter is driving up today and I suspect it will take a while. She got home fine last night without any delay.

I think I’m making Breakfast for dinner but not sure.

Rainy Wednesday

The storm door is open and the rain /snow is here. We had some rain yesterday but more is slated for today and the next week almost. My daughter is going to stay in Truckee for a night or two due to the snow. It’s just not worth her driving for 3 hours just to turn around the next morning and so the same.  The snow starts tonight and will continue so she can just stay at a hotel.

The BMB went very well and I have to say I am completely impressed with Sutter’s services. The procedure went very fast and we even stopped for soup at our local cafe and were home by 12:30. Now we just have to wait for the bad news. Yes, I know that’s pessimistic but I don’t think with all the low counts that’s it’s going to be positive. But we will move forward. We haven’t heard from the specialists yet so if not by Friday, I’ll have B call.

Today is a gym day since yesterday was busy with the doctor appt.

I have some butternut squash baking and I’m going to make a puree for soup. I’m planning to freeze it and then make soup this weekend.

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Simple Sunday

We had a delicious thanksgiving dinner. It all came out excellent and was one of the simpler ones we’ve had. I used the dry brine technique that Ina Garten suggests. I’m not sure if that’s what made the turkey so good or it was just a good turkey. The nut loaf was delicious too. All in all, a lovely day.

The rain has stopped but is supposed to be back tomorrow and then on and off for the next 10 days. We need it so no complaining. It does make feeding dogs and chores more challenging but that’s ok.

I had B go get the Christmas tree and so that’s up and I’ve put a few ornaments up and again, I’m not doing ALL the ornaments I have. I just want the tree to have our favorites this year. Definitely a decision in keeping it minimal and honestly, I’m not into the maintenance or look of a whole lot. Actually, I think it’s kinda exciting to make choices like this as it does confirm our minimalist lifestyle.

We went to the infusion center Friday so B got another infusion. Tuesday we head to Roseville for the BMB procedure. I expect we’ll be there most of the day.  I’ll probably hang out and then maybe go over to Trader Joes for some groceries.  I’m hoping we get some diagnosis by Friday which is definitely pushing it.

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A happy moment !! I think this was when we went to the Seattle Cancer Center for me.

Well, ciao for now.

Happy Thanksgiving…

I hope it’s a great day for everyone and you are doing what it is you want.

So a small update. We saw the hematologist/medical oncologist today. She is very with it and I felt very good about how she’s handling things.  He will have a bone marrow biopsy  on Tuesday to determine the blood cancer. It’s all very surreal. How is it that we both end up with something like this.

When we went thru this with me, we were scared and didn’t know anything. We had hardly ever went to doctors. Ever. So this time around we at least know what to expect. I suppose that’s something.