November hasn’t been a kind month

It will be a year tomorrow that Barclay was getting a blood test and was told to go to the ER immediately. He had almost 0 platelets, and extremely low RBC, WBC, and hemoglobins. Seriously bad.  I knew it was something bad and that this wasn’t just a blip.

 

He got in to see the local oncologist pretty quickly( like that same week). MDS was a possibility or aplastic anemia.  After getting more transfusions he got a BMB but the BMB wasn’t done right and the sample was inadequate.  This was when we were still with Sutter.  So eventually it was done correctly and the diagnosis was MDS high risk.

He then was transfusion-dependent and without a transplant would last maybe a year.

The rest is history.

Today was almost that year mark and another BMB.

Now my turn. It was right before Thanksgiving in 2003 when I had the fracture in my T-10.  Of course, I didn’t know that then or even that it was Multiple Myeloma. the NP I saw said a strained back. No Xray ( which would have at least seen something). I lived with that for 18 months till the spring of 2005 when I saw a doctor about some back surgery since my back still hadn’t really ever gotten 100% better.  Then I had an MRI. There was a plasmacytoma. The rest is history.

So November brings up some difficult emotions.

Transversing blood cancers is difficult. I’ve been fortunate that my Myeloma has responded when I’m in treatment.  I’m grateful I’m not starting treatment this month but hopefully can get to spring before I start.  B’s MDS is tricky and I hope he has a long if not permanent remission.

There’s always the questions” Why Us?” But I don’t bother with that anymore. Nor do I do prayers or the ‘God’ thing’.  Life is what it is and I believe we must live presently and with good intentions. There are no second-guessing these things.  I believe we must js\ust put one foot in front of the other and

remember what Bilbo Baggins says” It’s dangerous business going out your front door”.

Friday stuff

No news on the second biopsy but it will be next week so then we’ll know the exact diagnosis. B is doing well and trying to adjust to this new normal of craziness. We had to drive to Sacramento twice and out everyday for something or other.

He started the chemo yesterday because either way this is the drug he would start with. It’s 5 days every 28 days and seems to be well tolerated. So that’s a start.

We’ve had a few lunches out coming back from Sacto since it’s easier to get a bite instead of coming home starving. Nothing fancy, a burrito at our favorite local place and the other day I had a In and Out burger and he had fries and a shake. One thing for sure is he needs to up his caloric intake. He’s already underweight( has always been) but I don’t want it to decrease anymore.

I’ve made 2 Vitamix smoothies and WOW it was amazing. I did one with a knob of ginger and there wasn’t a stringy thing left. I think it will be a great addition. Right now it’s on the counter but I try not to keep much on the counters so I’ll have to see where it’s home is. Since I’ll be using it daily the counter seems like an obvious choice but I’ll see.

While he’s at infusion today, I’m going to the gym for 30 minutes. I wasn’t feeling great yesterday so I didn’t go. that would have been my normal Thursday workout.

I get my labs next week so we’ll see how that goes too. I guess it’s really insane the two of us with a blood cancer. yes, I’ve tried to think what could it be and all I can say is it’s the luck of the draw. We’ve never been exposed to any chemicals or worked with hazardous stuff. So , we’ll never know really.

Tonight is pizza night and we’ll order out. It’s just too much to think about making too much stuff right now.