So it was the local medical oncologist that had the biopsy results from the other Dr. The official diagnosis is Myelodysplastic syndrome high risk because of the 7q deletion.
So at least he doesn’t need to do the induction in the hospital if it was leukemia. I guess that’s something.
For now, it’s going to be the 5 days of chemo every 28 days. Hopefully, the drugs kill off the ‘blasts’ or baby leukemia cells which are bad and then his bone marrow will start producing the right cells. Also, that will mean less and fewer transfusions and platelets. Then it will be a donor transplant. I seem to recall the transplant doctor saying hospital time a few weeks then outpatient. Fingers crossed that it works as there is a 50% chance it won’t and he’ll die. Or he’ll need to go back on some sort of treatment. 😦
Today, after he gets platelets which do go very quickly after the IV is in, we’re going to Costco so I can load up on organic greens for those smoothies and fruit. I really hate going this time of year with Christmas, but I also hate spending a lot of money on greens at the store when can get a big bag at Costco for the same price if not cheaper. I will get some other things as well since we’re there and call it my weekly shopping.
I’ve got a new sourdough recipe I’m trying out and it’s on its second rise. But we’ll be gone for a few hours so It’ll be longer than usual.
I’m going over to the gym for a tiny bit while he’s at the infusion center. I can probably get a good 30 minutes in.
Some of my labs are in but this new patient portal is a PITA as it says results released in a few days( it gives the date). WTF, there my results and he’s viewed them so why??? I didn’t see the big 2 tests SPEP or Light chains but they will be coming in soon I suspect.
Oh well, if it goes up again, I’ll just have to not flip out and go with it. Fortunately, I’m not high risk and my numbers have never just shot up so that would give me time to adjust. I see my doctor next week right after Christmas.
I haven’t been too inspired with cooking dinners so we’ll see what I feel like tonight. Mostly I’ve done just what’s easy without a lot of thought. Last night was pinto beans, a frozen enchilada and TJ’s cheese tamales.
A very cold morning but clear.It was 34degrees. We went for a nice walk. Not too much for B but still nice to see the early morning. We also saw a coyote and some deer. Funny, we rarely see these two wild life in the park.
I made chocolate Babkas for the first time. It’s a rich brioche type dough with a chocolate filling. Then it’s rolled up and baked. It was yummy and a nice treat.
Tonight I’m making the potato latkes and I’m going to grate them in the food processor. That should save some time from hand grating. I have the applesauce. I will also fry up some chicken strips just because I need to use the chicken up.
The gym was quite empty (my favorite time is Sunday). Then I went into Safeway for some jelly donuts for Hanukkah. I doubt we’ll eat them tonight but tomorrow morning sounds about right.
This week is light except B going to the lab and then infusion center. I don’t have any appointments. My next set of labs are coming up at the end of December and that’s it.
I decluttered a box of ornaments and Santas that no longer seem to fit with what I’m doing. I will end up with 2 bins of Christmas stuff. I ‘d love to get it down to one but there’s just a little too much for one bin. I think it’ll end up a bin and a half with most of the second bin being my Life magazine Christmas Santas. I did empty the wrapping paper holder container so I can get rid of that.
I finished the minimalist game for November. I maybe didn’t get a few days done but overall it was a success. One of the things I love about doing these sort of tasks is that it really helps me focus on getting rid of lots of little things I don’t need. It may not seem like a lot but it adds up and then draws etc look much better and clearer too.
Our walk this morning was quite chilly. 48 degrees! But it’s supposed to warm up to 78 degrees so that will be nice. It sure is darker longer in the morning and now sunset is 6:36pm. Fall is here for sure.
I’m in the kitchen zone this week. I’ve been doing a little extra all week so it shouldn’t take quite as long. I wiped down the bathroom and the laundry is started. Sundays are sheet day so that adds a load.
The first Tartine bread didn’t work out so well it didn’t do the puff up in the Le Creuset. I have the second loaf on the counter now doing a final rise from the refrigerator. I’m thinking that the kitchen was cooler and the fermentation should have gone longer. But it may be the batch is off so I ‘ll see if it does better with a final rise time being a little longer.
I’m off to the gym and then to get some groceries. I am planning to go into Target as well for a few things. We need more twinkly lights as our stash from last year is used. We keep light ups all year in the carport and on the house. They are on timers and come on at dusk. We don’t have outside lights so this works well for us.
I am terribly saddened by the political news. I really thought there was a good chance Kavanaugh wouldn’t be confirmed. Apart from the sexual assault issues, his whole temperament with the anger and partisanship really is an issue for a supreme court justice. But somehow this got thru too. Our democracy is really threatened by this whole populist movement. There is such division in this country. How anyone with any degree of sanity can support Trump is beyond me. His mocking Dr. Ford and then people laughing is just cruel and unpresidential. It goes on and on.
Tonight I’m making polenta with roasted butternut squash and brussel sprouts. I’m not sure what else maybe some pan grilled pork chops. We don’t eat a lot of pork so maybe not.
This has been a good week without a lot of unnecessary spending. The budget is in good shape for now.
We did our big shop at Costco on Monday so we were set for the week and even into next week. I had bought lots of lunch things so both my adult children would not spend money on food out. This is usually my son but he’s been absolutely great about taking stuff to work and school. He can easily spend $20 a day since he’s gone from 7:30am- 11pm. But taking 2 sandwiches or rice and chicken helps a great deal.
Last week I paid the 6 month Allstate bill so that was pricey but at least it’s done. B got a great bonus (relative to us) so we could pay it all at once. Then I put some in savings too. The first of the month bills are ready to roll out. That’s our mortgage, 2nd, internet, PGE, and the car payment. I’m really close to putting a large payment on the car loan but not yet. I want to finish off the cc that we put our daughters Honda repair on. She is paying this back but we put the amount on our card. So by the end of October, I will finish that.
I haven’t been to the store except we needed some half and half.
Tonight we are having takeout pizza so that will come out of dining out money. We don’t do this often, maybe once a month so I’m okay with that. Plus there’s always leftovers for lunch the next day.
I just started the Tartine Sourdough leaven to make bread this weekend. I’ve been just making sandwich bread but I’ll go ahead with the boule this weekend. The Tartine recipe takes a few days so by Sunday it should be ready to go.
It looks just like fall outside. The yellow colors of Northern California are starting. We don’t get the New England colors but there are wonderful golden colors and some orange. We have a Japanese maple in the yard and that turns red so it’s very pretty.
Today I’m just tidying up things and putting more stuff away for fall. I’m moving the geraniums to the greenhouse. I have to decide if I want them in the sunroom where they were last year. It’s nice in there for them but they do take up a lot of room. I need to get chicken food but I think I’ll let B get that tomorrow. They can make it on the other seeds they have for a day. All the chickens are molting so they aren’t really laying eggs except one or two.
I think I will put out my vintage Halloween stuff today too!
I’d love to find more but that would just be adding to the amount I already have. We put up the orange lights outside and I just love the glow they give this time of year.
I finally got my lab results. Kappa light chains went up a point to 14.3, Lambda went up a point to 12.3, the ratio (important) went down to 1.16. So I am still in a great remission and I couldn’t be happier. Another month to add to remission. YAAAAAY!!!
I also had my mammogram and it was all good. I skipped last year and probably will skip next year too. They used the new 3 -d imaging and it really was remarkable technology.
I had my flu shot and did have a fever reaction( not unusual). Thankfully it was at night and didn’t last too long. I usually do have a slight fever, but this was chills and then a stronger fever. Perhaps the strain was different and my immune system reacted. It wasn’t the dose for those over 65 as the pharmacy hadn’t received those yet.
So the continuing saga of my name change. I decided to go down to the Legal Clinic in Roseville for advice on how to fill in the forms. So I read it’s only open 9-12. So off I go. I get there( after getting completely lost), and go thru security and the deputy asks if I have an appt. So I say no, I thought it was all walk-in. Oh well, after looking around at the masses waiting with appts, I just let came home and booked the appointment for this coming week. So another trip to Roseville. Then to file it’s almost $500 and it has to be published in a paper for 4 consecutive weeks. So it’s going to be a while.
The fall weather is definitely here and we even have a chance of rain next week. It’s also way cooler today. WE’ll need to have some small wood for the wood stove ready as I think we will need ‘a twinkly fire’ as I call them.
Our neighbor’s house is for sale at $399,999. It’s a 3 bedroom 2 bath. It’s on the smaller side of 1400 sq feet although that is a lot bigger than ours. It’s a nice piece of property but not a lot of usable land it’s mostly a hill. But I think it will sell quickly as we are right in town within walking of the PO, store, cafe, park etc. I just hope it’s not obnoxious neighbors. The man who lived there( and is now dead), was a real asshole. He tried sueing all the neighbors( not us) because the road is actually on his property but of course we all have easements. But there were many yelling matches with this man and the Sheriff was called in numerous times. As he got older and he did lose the lawsuit, he backed off but was still a complete jerk. In the end, the EMT’s were at his house 2-3 times a week before he finally went into care. Well, it’s a new chapter and I guess we will see.
I’m making a minestrone with the very last of our tomatoes and zucchini and whatever else I can get in there. Plus I’m going to roast a chicken in the oven. I made another loaf of bread the other day and this time used 1/3 whole wheat and it was really nice. Having the bread knife so sharp I can slice real sandwich slices. Very exciting is this life of mine!!!-
Make Bread!! Walk!!! Cook!! Read!!! Drink Wine!! (not in that order, but maybe!!!
The day sorta got away from me yesterday.
I made 5 small jars of salsa and 2 bigger ones. These were all our own tomatoes so that was a big plus.
I doubt we’ll get enough tomatoes for all the sauce I need for winter but I will get some. Based on last years supply I probably need about 18 freezer bags of sauce. I may try and can some but freezing is easier.
Then I decided to make up the sourdough leaven for a Tartine bread. I have the one loaf rising in the bread basket form and I’ll cook that in an hour or so.
My oncology appointment went well. I told him about the stress fracture and he did say ‘repetitive’ movement. So maybe it was just walking every day. Who knows? My foot is still bothering off and on. Kinda weird. He suggested a DEXA scan so I will do that sometime this fall. I did have one around 14 years ago that was normal. That was about a year before I was diagnosed with myeloma.
Then we headed to Costco and spent a small fortune. B bought a small or I guess it’s called ‘dorm ‘ refrigerator to replace the tiny funky one he had. It was a good deal at $130. Now we could get milk and OJ at Costco as there would room to keep them out in the barn.
Today, I’m making 2 zucchini loaves of bread from a Smitten Kitchen recipe. She said to use 2 loaf pans but it looked like it wasn’t very full but we’ll see how they turn out. I plan on freezing one sliced so we can pull out a slice when we want one in the fall-winter. If the recipe is a good one, I’ll make a few more, maybe to give as gifts.
Tonight I think I’m going to make burgers/veggie burgers for dinner.
It’s very very hazy here from the Carr fire. Hopefully, it’ll clear out and the fire will get put out.