Simple Sunday

We are out early for B to get platelets. But he isn’t done so I’m sitting at Starbucks waiting.  I’ve already been to the gym, Safeway, the bank, and the car wash so I guess I’ll just chill till he’s done.

We had our first BBQ last night. I did salmon I bought at Whole Foods last week. It was good.

Tomorrow I need to go to the Apple store as I ordered the wrong Ipad cover and I don’t want to send it back. r just go there and exchange. My daughter is going to come along and then we may go to a few stores. I may go back to Whole foods for a few items for this week.

We don’t celebrate Easter but do celebrate the pagan celebration of spring. Of course, Easter started as a pagan celebration and then somehow Christians turned it into palm Sunday and then Easter.  I love that Easter is still predicted by the first Sunday after the full moon in April. Of course, Passover is celebrated too.  And Of course, Jesus was a Jew, not a Christian as there was no such thing.  The first gospels weren’t even written for 70 years after Jesus’ death. Ahhh, real accurate I’m sure. Ask any 70 year old what happened all those years ago. Hmmmm.  thought so.

 

Oh well, enough of my Atheist cynicism.

Our week ahead looks pretty good. Regular labs for B and then I have the dentist on Tuesday.  That’ll be long and I’m not looking forward to my mouth being drilled and yanked for a few hours. But I have to do it while we have dental insurance.  I’m going to schedule a different appt for the Invisalign scan but hopefully this week. Then all I need to do is order my prescriptions so I have enough while the new insurance to is processed which I was told needs to be after Medicare approves me. I’m going double check to see if that’s accurate but I’m assuming the social security guy knew what he was talking about.

I’ve done a menu for the week and I don’t need a whole lot. Maybe some veggies which I could get at Whole foods tomorrow.

Also, the budget is done for the month.

We’re very proud of our son, Zephyr who will be graduating from Sac State in May. No student loan debt and it took incredible focus and fortitude to drive that 4 days a week. It’s an hour or more drive on way. We’re planning on giving him some money as a graduation gift.  Then he can buy what he wants.

For those following Flylady, we’re in the bathroom zone. I had my daughter use some leftover paint and redo the ceiling. One of the great things about loving a paint color is when you need to touch up it’s so easy.

Friday stuff

So yesterday was another test for B. This was the cardio stress test. Today it’s an EKG and x rays. So all that’s left is the CT scan in May and he’ll be ready to go to transplant.

Yesterday I drove and my daughter came along and we went to Whole Foods and then Barnes and Noble. Barnes and Noble is such a waste. It is so expensive. I was checking out cookbooks etc and they are full retail price as opposed to Amazon where it’s usually half that.  It was nice to look at the books but I want interested in buying.

Then since B hadn’t eaten we went out for brunch and it was really nice to do. I’m definitely a Scrooge when it comes to eating out but this time I was okay with the bill and the food was good. Not great but good.

So then today I’m going to forge forward to Social Security and be prepared to wait.  I figure 2-3 hours all said and done. After that, I may go to the gym but it kinda depends on how I feel.

My food budget is pretty much used up for April so I need to use all of what I have in the refrigerator and freezer. Tonight I ‘ll make a homemade pizza.  If anything, I’ll need salad stuff but right now I’m set for the next week.

 

Our weather looks really nice this next week with temperatures in the 70’s which I am so ready for. All our grasses are growing like crazy so the mower will be going none stop. A lot of this is seasonal grass, not lawns. We only have 2 small areas of lawn we keep green.

Some things have been planted but it’s too early for tomatoes, etc.  I think my daughter(the gardener) did plant lettuce and radishes so we’ll see how they do.

Next week looks open except me trying to get this crown done. I’m not looking forward to that but since it seems dental with Medicare is non-existent I better do it now. Still, that’s another copay but whatcha going to do?

 

 

Five on Friday…Frugal Friday..

Well, definitely not frugal after the Ikea trip and ordering my new glasses yesterday.

The eye doctor is a really nice man and told me my macular pucker looks stable. He also said because of the diagnosis(?) not sure of its term, under Medicare it’ll be covered. So that was a relief.  The glasses I have now are called Lindberg, made in Denmark and I love them. They are expensive but since these lasted me 5 years and really I could have just kept them as my prescription hasn’t really changed. But I felt before jumping off the boat into Medicare, I better do all this stuff I can now.

Speaking of which, I was going to go into their office this morning but I’ve just had it with this week so I’ll wait till next. When I called to make the appointment, the person said: “oh, you can’t make appts for that, you just have to go in and take a number”. Great. More waiting. So that’ll be next week.

So, today is a gym day. And then to the store for a few items, cat food, half and half, and some deli stuff.

I talked with the UHC transplant person and unfortunately, the brothers travel and lodging is not covered so that was kinda a bummer and the billing is probably when he comes out of the hospital, so we know that’s going to be June. So we will have the full deductible which ( based on what they said before)is $6,000. So we’ll just ask for payments to be made or use as much as the GFM that will be left after paying for the brother’s flights and lodging.  I’m seriously, not going to worry about it.  I’m sure there will be enough stress with this whole thing to go around.

Dinner is an order out pizza. Round Table gourmet veggie, I think.

All in all, it’s been a good week. Next week is insanely busy with appts. Another biopsy, pulmonary stress test, and who know what else. But one foot in front of the other and JUST KEEP WALKING!!!

Midweek musings

OMG, it is still raining!!! And I 80 is closed again!!

My daughter left Truckee at 2pm, the freeway was already closed but she was able to convince them to let her thru. So today, who knows. It’s still closed and it’s supposed to snow all day up there. The forecast is rain, rain, showers, cloudy for like the next 2 weeks. I’m convinced this is global warming changing our weather patterns.  I can only think of a handful of times since we moved here in 1975, that there is this much continued non-stop weather.

Today B has a blood transfusion but his platelets are ok. So that makes this day 17 for the blood transfusion so that is a big win!! Hopefully, the next chemo cycle does it even better.

So I’mgoingto drop him off and then go to the gym since the blood takes a minimum of 5 hours. Then I’ll come home and do some chores. If my daughter is home, which I’m expecting with the way the freeway looked, she can go pick him up @ 2:30 or 3.

I think we will be hearing soon on whether his one brother is a match. Maybe early next week. But I think they are already looking in the National donor bank as well.  Since we see the transplant doctor in March, I suspect he will have a plan in place.

All the budget stuff is in a good place. With the SDI checks, we are able to pay the months bills. Since his form from his HR says May is his back to work date( which is totally not happening) we will need to resubmit something but I’m not sure what.  I’m guessing HR will need to put in another date.

Has anyone done that? and how do you update EDD.??? I guess we’ll bumble thru since we’ve gotten this far but I’m not even sure how we did.

I’m still planning the Medicare but haven’t even called the insurance companies yet for pricing. Maybe Friday I can do that.  My target date is June 1st. But of course, it needs to be all in by then and ready to go.

Dinner is unknown.

 

 

Five on Friday or more…

It’s been a busy week. The snow and weather have been a PITA, but we got thru. Yesterday morning there was ice snow on the ground and in the trees. It must have been like freezing rain in the early morning. The roads were a little scary.

We did recycle this week, and we went to Harbor Freight in Roseville to get a car canopy thing. This last week the Santa Fe has been iced over every morning and taken forever to defrost. So we will put that up over the weekend.

I had my labs this week and haven’t heard what the results are. I’ll probably call later if I don hear.  Usually, my doctor is really good about that but sometimes it slips thru his radar.  I go to Sacramento to see him next week.

I’ve used the instant pot daily and I am really enjoying it. I made pinto beans( which turned out great), a butter chicken, rice again and hardboiled eggs.  I really like that it is quiet and the flavors are pretty impressive. Oh, yeah, I made minestrone soup that was excellent.

Because of 2 trips to Costco, I’ve gone over our food budget but I’m just chalking it up to whatever as some of the stuff was the Orgain for B which was pricey. We bought 2 of them, plus coconut waters and nuts to help him add on calories to gain weight.  So, I’m just letting it go instead of obsessing about it. ( which I probably will do anyway)…

B has labs tomorrow and infusion on Sunday.  He will need platelets and probably blood but the blood has been 14 days so that’s an improvement. But honestly, it needs to be better.

I have finally have figured out Medicare to a point. I still need to call the insurance company and ask a few questions but I have the basics figured out so I feel good about switching by June. B’s insurance stuff gets re-upped in June so I will consider that (May 31) as the last day and Medicare to start June 1st. I’m a little nervous about it but it’s going to have to happen sooner or later.

Well, I’m off to town to do some errands.

 

Quick update:

just saw my labs and my kappa light chains went up 4 points( bad) to 19.4 which is the borderline for high. So there it is I’m at the high normal range but at least not out of it.

Lambda went to 13. 6 which is in the normal range, high is 26.5

the ratio went to 1.43 high normal is 1.65 so that’s still below.

Well, I’m somewhat dismayed but heck it’s still a long way off till it would be back on treatment.

 

Friday stuff…

Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA.  So, it was back down. I ended up getting gas again.  Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.

Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.

I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.

We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.

Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected.  Then after calling them and waiting forever on hold, we had it figured out.  Still, sometimes I wonder how are we going to navigate this stuff.

Any suggestions for Medicare would be most welcome.

Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.

 

 

All I can say is “WOW”

My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.

I am so grateful for everyone’s generosity.  I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.

Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.

The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.

I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.

The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills.  So I guess our electric bill will be sky high too.

Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:

  • 1x laundry a day washed, dried and put away.
  • counters kept clean
  • dishwasher emptied either after it runs or in the morning
  • tidy each room
  • make bed
  • wipe bathroom
  • do a daily budget
  • in the morning check what appts are for the day
  • I also plan dinner what I’m making in the morning

It really does help to keep routines and to simplify things.

Well, I’m off to do a few of those things now as we were out all morning.