Five on Friday or more…

It’s been a busy week. The snow and weather have been a PITA, but we got thru. Yesterday morning there was ice snow on the ground and in the trees. It must have been like freezing rain in the early morning. The roads were a little scary.

We did recycle this week, and we went to Harbor Freight in Roseville to get a car canopy thing. This last week the Santa Fe has been iced over every morning and taken forever to defrost. So we will put that up over the weekend.

I had my labs this week and haven’t heard what the results are. I’ll probably call later if I don hear.  Usually, my doctor is really good about that but sometimes it slips thru his radar.  I go to Sacramento to see him next week.

I’ve used the instant pot daily and I am really enjoying it. I made pinto beans( which turned out great), a butter chicken, rice again and hardboiled eggs.  I really like that it is quiet and the flavors are pretty impressive. Oh, yeah, I made minestrone soup that was excellent.

Because of 2 trips to Costco, I’ve gone over our food budget but I’m just chalking it up to whatever as some of the stuff was the Orgain for B which was pricey. We bought 2 of them, plus coconut waters and nuts to help him add on calories to gain weight.  So, I’m just letting it go instead of obsessing about it. ( which I probably will do anyway)…

B has labs tomorrow and infusion on Sunday.  He will need platelets and probably blood but the blood has been 14 days so that’s an improvement. But honestly, it needs to be better.

I have finally have figured out Medicare to a point. I still need to call the insurance company and ask a few questions but I have the basics figured out so I feel good about switching by June. B’s insurance stuff gets re-upped in June so I will consider that (May 31) as the last day and Medicare to start June 1st. I’m a little nervous about it but it’s going to have to happen sooner or later.

Well, I’m off to town to do some errands.

 

Quick update:

just saw my labs and my kappa light chains went up 4 points( bad) to 19.4 which is the borderline for high. So there it is I’m at the high normal range but at least not out of it.

Lambda went to 13. 6 which is in the normal range, high is 26.5

the ratio went to 1.43 high normal is 1.65 so that’s still below.

Well, I’m somewhat dismayed but heck it’s still a long way off till it would be back on treatment.

 

Friday stuff…

Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA.  So, it was back down. I ended up getting gas again.  Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.

Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.

I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.

We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.

Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected.  Then after calling them and waiting forever on hold, we had it figured out.  Still, sometimes I wonder how are we going to navigate this stuff.

Any suggestions for Medicare would be most welcome.

Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.

 

 

All I can say is “WOW”

My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.

I am so grateful for everyone’s generosity.  I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.

Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.

The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.

I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.

The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills.  So I guess our electric bill will be sky high too.

Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:

  • 1x laundry a day washed, dried and put away.
  • counters kept clean
  • dishwasher emptied either after it runs or in the morning
  • tidy each room
  • make bed
  • wipe bathroom
  • do a daily budget
  • in the morning check what appts are for the day
  • I also plan dinner what I’m making in the morning

It really does help to keep routines and to simplify things.

Well, I’m off to do a few of those things now as we were out all morning.

 

 

 

 

 

Simple Sunday

A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.

Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.

Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.

Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.

This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in.  So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.

Off to tidy up and then read.

Oh, I’m reading the last Henning Mankel book,’After the fire’.  His writing is just amazing. It is so clear and precise. Yet, very poetic.

Friday Stuff

I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.

Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.

Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.

 

I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.

The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener.  But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.

If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker.  It was superb!!!

Well, off to town.

 

 

 

2019, here we come…

It was a quiet new years evening. We watched a few funny movies. Abbott and Costello meet Frankenstein which is hilarious and then Tremors which is also funny weird.  We had sub sandwiches which were yummy. Poor B had scrambled eggs as that’s about all he can eat right now plus pudding. I really hope these mouth sores resolve themselves soon.

Today, I walked predawn and the moon and Jupiter are quite near each other. If you’re up before dawn take a look. It’s pretty. I love crescent moons as I think of ‘priestess’ things from days gone.

Today is a day home. I need to do a load of laundry and just tidy up.  Tonight I’m making black beans in the crockpot and then a couple of tacos for me and my daughter. I’ll make something soft for B to eat.

Tomorrow I’m going to the gym with probably everybody and their mothers and their grandmothers etc. etc… the gym is always packed this time of year. It’ll slow down in a few months and the regulars that make it will keep going.

I also have a dental cleaning first in the morning.

I’ve worked out a budget for January and I will do a no- spend month and keep groceries at a minimum.  With the possibility of medical bills coming in, I’m not sure what those expenses will be yet.

1167451777d06c35d1fb422de7cb25fc

 

Ahhh, no frugal Friday:(

No, we could call it spend money Friday.

images.jpeg

First at 8 am I ordered propane and that was $197.00. Actually at $1.57 a gallon that is a bargain. I can remember when we paid over $4.00 a gallon maybe 5 years ago.

On to Costco: gas for B $30. still a great bargain at $2.94 a gallon here in California. Inside Costco $375. for tons of food, nonfood, a case of Sierra Pale Ale for B and a rose bottle for me.  We got enough stuff to really last almost the whole month ( except maybe fruit, and a few minor things.) So I’m okay with it.

Onward to Trader Joes and another $125 . Yes, wine, pizza stuff, an orchid, crackers( I love their rice crackers, sesame oil( the whole reason I was going there)!!

Then we came home and had to separate it all out and put away. I was exhausted!

But it’s done for the month. They’re starting to put out Christmas stuff and had some really beautiful North Face jackets that I was eyeing, so I may take a trip at the end of the month after another payday and check it out.

B is getting the window coolers out of the windows and the yard is definitely looking like fall.  We’re also not watering as much which is a relief.

Soon the pool will be put to bed for the winter. Again, we need to order a pool cover for winter as they only last one season.

Tonight is homemade pizza, I’m thinking a pesto one.