Still in a holding pattern……

No news yet, but I imagine it will be in the next day or two.

B just had his last infusion today and it went very well. We’ve had so many appts though it’s hard to keep up. Tomorrow is the medical oncologist  and then he’ll know if he needs another transfusion. It looks like he’ll be getting a port on Friday so that’s going to be almost all day. Oh well, we will get thru this one way or the other.

I had my labs this morning so I’ll be getting my results by Thursday.

I ran some errands this morning including going to the bank and I used their Coinstar to do our annual sealed pot of change. It was Sue over in Wales that stated this on her blog. She doesn’t have that blog anymore but I did always enjoy her stories. The idea is you put all your change in a jar for a year and then cash it in and use that for something.  I think we’ll just save it for something special when we can travel again.  I’m hoping B can do some short trips once this drug kicks in. (fingers crossed).

I went into Goodwill and got a small stainless steel bowl to put water in for the wood stove. I kinda was looking for something cast iron but that was probably a long shot. So I added some cinnamon sticks, cloves and orange essential oil to the water. The bowl was $2.19.

I also took B’s Santa Fe to the car wash. I need to do my VW next as it is really dirty.

Last night I made a crock pot chicken with mushrooms and then at the end you top with swiss cheese and bacon crumbles. It was delicious.

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Then and early Christmas present to myself was these really cool La Parfait jars. A vlogger I follow uses these for all sorts of things and I really like the look.

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I did carrots, olives, and the top one is left over cream cheese. I’m definitely ordering the next size up for other things.  I love the look of food in jars like this.

I’ve also been putting together glass type bento boxes for B when he’s in the infusion center.

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Mostly some cottage cheese, apple slices, olives, and nuts. This way he can eat something while there.

This week the Flylady zone is the bathroom. Since out bathroom is so small it doesn’t take long to do the whole thing even wiping all the shelves, and doing the window.  I’ve had a heck of a time getting the right shower curtains though. Target has had some great liners we’ve used in the past but they’ve discontinued them so I bought another kind that was similar but they just weren’t drying.  So then I went and bought clear plastic liners to go on the inside of these but it was all too heavy and kinda claustrophobic. So I went back yesterday and spent 20 minutes looking at my choices and finally got a liner that is light weight. I think it will do the trick. I still need to trim the bottom as they hang down in the tub to much and then would just stay wet. Our tub is an old , very old clawfoot tub we put in when we first moved in. So the shower curtain rod is a ring around the top. So I always need 2 curtains or liners.  When we remodel the bathroom next year the big decision is the tub going??? It’s a big step up into the tub which is doable now but age has a way of catching up to us.

Anyway…….

Tonight’s dinner is unknown, but I may do leftovers or something from the freezer.

 

 

No Results yet…

So we are incredibly disappointed by the non results. B got a call from the nurse at 4:30 yesterday with the news that the biopsy sample was inadequate. WTF???? The doctor said it was a good marrow sample. So now we’re in limbo again till something else is scheduled.

He will go in for another transfusion as his platelets are very low. So as long as this can stabilize him till the next appt. Right now we have a pretty good idea that it’s MDS but without a biopsy confirming it’s still unknown.

He’s worked from home most of this week so at least that’s good. Next week will be the same as he shouldn’t go out in crowds too much. We might try and go out for a coffee date but we’ll see.

We did go to Trader Joes and did a huge grocery shop so that will last at least 2 weeks.  A few things we bought that we’re fun is their Candy Cane green tea! Go get some!!! It was delicious. Plus I did get some frozen meal items to make some evenings just a little easier.

Sunday night is the first night of Hanukkah. I plan on making latkes and using my homemade applesauce.  Of course, we are not Jewish, but any excuse to have candles is ok by me.

It’s a rainy Saturday and a snowy one in the Sierras. My daughter is driving up today and I suspect it will take a while. She got home fine last night without any delay.

I think I’m making Breakfast for dinner but not sure.

Update….

Okay, after spending half the day calling optimum RX and being on hold ( 4 times) finally at 4:50 they said no we haven’t gotten the order. I called down to mercy , talked with the nurse and she called them. So I’m out floating in the pool and sure enough they call back 10 minutes later. So finally it will be delivered tomorrow . The problem is I won’t be home till 2:15 nor will anyone else. So I’m kinda taking a chance that ups will come later. I will leave him a note and put it on our gate but still………

my m protein is .30 . I like .25 better. So if the 16 mg of dex doesn’t keep the m protein down, I’ll go back to 20 , I guess. 

Really who knows if that’s it, but I’d still go back if that’s what it takes.

what a day!

 

Thursday , waiting……

Well, the doctor visit went well. My labs are all normal. But no m protein results yet. So, waiting.  Then called optimum RX about my revlimid. No it hasn’t been faxed in. Ok , waiting…. Called down to Mercy cancer center talked with the nurse. Yes, she’ll fax it this morning. Waiting…… Till @ 1 to call optimum back. 

Rearranged the Star Wars stuff and Star Trek ,but didn’t get rid of any. I told my son to go out there and pick 1/2 to sell. It’s too many. But I did find some misc to give to the thrift store and some western Tepco to sell on eBay. 

Otherwise, it’s a day just to wait till I can get something done. And get my rev delivered for tomorrow . I’ll be at work till 2, but ups doesn’t come till 4( watch, tomorrow he’ll decide to swing in early). Oh well, it should be fine.