So we are incredibly disappointed by the non results. B got a call from the nurse at 4:30 yesterday with the news that the biopsy sample was inadequate. WTF???? The doctor said it was a good marrow sample. So now we’re in limbo again till something else is scheduled.
He will go in for another transfusion as his platelets are very low. So as long as this can stabilize him till the next appt. Right now we have a pretty good idea that it’s MDS but without a biopsy confirming it’s still unknown.
He’s worked from home most of this week so at least that’s good. Next week will be the same as he shouldn’t go out in crowds too much. We might try and go out for a coffee date but we’ll see.
We did go to Trader Joes and did a huge grocery shop so that will last at least 2 weeks. A few things we bought that we’re fun is their Candy Cane green tea! Go get some!!! It was delicious. Plus I did get some frozen meal items to make some evenings just a little easier.
Sunday night is the first night of Hanukkah. I plan on making latkes and using my homemade applesauce. Of course, we are not Jewish, but any excuse to have candles is ok by me.
It’s a rainy Saturday and a snowy one in the Sierras. My daughter is driving up today and I suspect it will take a while. She got home fine last night without any delay.
I think I’m making Breakfast for dinner but not sure.
Okay, after spending half the day calling optimum RX and being on hold ( 4 times) finally at 4:50 they said no we haven’t gotten the order. I called down to mercy , talked with the nurse and she called them. So I’m out floating in the pool and sure enough they call back 10 minutes later. So finally it will be delivered tomorrow . The problem is I won’t be home till 2:15 nor will anyone else. So I’m kinda taking a chance that ups will come later. I will leave him a note and put it on our gate but still………
my m protein is .30 . I like .25 better. So if the 16 mg of dex doesn’t keep the m protein down, I’ll go back to 20 , I guess.
Really who knows if that’s it, but I’d still go back if that’s what it takes.
what a day!
Well, the doctor visit went well. My labs are all normal. But no m protein results yet. So, waiting. Then called optimum RX about my revlimid. No it hasn’t been faxed in. Ok , waiting…. Called down to Mercy cancer center talked with the nurse. Yes, she’ll fax it this morning. Waiting…… Till @ 1 to call optimum back.
Rearranged the Star Wars stuff and Star Trek ,but didn’t get rid of any. I told my son to go out there and pick 1/2 to sell. It’s too many. But I did find some misc to give to the thrift store and some western Tepco to sell on eBay.
Otherwise, it’s a day just to wait till I can get something done. And get my rev delivered for tomorrow . I’ll be at work till 2, but ups doesn’t come till 4( watch, tomorrow he’ll decide to swing in early). Oh well, it should be fine.