Friday stuff

No news on the second biopsy but it will be next week so then we’ll know the exact diagnosis. B is doing well and trying to adjust to this new normal of craziness. We had to drive to Sacramento twice and out everyday for something or other.

He started the chemo yesterday because either way this is the drug he would start with. It’s 5 days every 28 days and seems to be well tolerated. So that’s a start.

We’ve had a few lunches out coming back from Sacto since it’s easier to get a bite instead of coming home starving. Nothing fancy, a burrito at our favorite local place and the other day I had a In and Out burger and he had fries and a shake. One thing for sure is he needs to up his caloric intake. He’s already underweight( has always been) but I don’t want it to decrease anymore.

I’ve made 2 Vitamix smoothies and WOW it was amazing. I did one with a knob of ginger and there wasn’t a stringy thing left. I think it will be a great addition. Right now it’s on the counter but I try not to keep much on the counters so I’ll have to see where it’s home is. Since I’ll be using it daily the counter seems like an obvious choice but I’ll see.

While he’s at infusion today, I’m going to the gym for 30 minutes. I wasn’t feeling great yesterday so I didn’t go. that would have been my normal Thursday workout.

I get my labs next week so we’ll see how that goes too. I guess it’s really insane the two of us with a blood cancer. yes, I’ve tried to think what could it be and all I can say is it’s the luck of the draw. We’ve never been exposed to any chemicals or worked with hazardous stuff. So , we’ll never know really.

Tonight is pizza night and we’ll order out. It’s just too much to think about making too much stuff right now.

Tidying up!

Yesterday I decided to forego the gym and do some stuff around the house.

First, I pulled off the couch covers and started them in the laundry. Believe me this is workout in it self. Wrangling the cushion covers and then the couch cover it self is not for the faint of heart. IMG_0565.jpeg

Here it is washed ironed and back on the frame. Buying this couch from Ikea was one of the best things we did. I love it!!

I also hung that swag you see above the couch. I teetered  on the couch to get it up. I should have just got the step ladder.

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Here’s the tree. Well the top is cut off in the picture, but you get the idea. I did get rid of quite a few ornaments that I just didn’t want to keep anymore. Even a Christmas Barbie that just isn’t my style. We don’t do any bulb type ornaments, just Hallmark or things we’ve liked. That little straw ornament near the top is from 1971 when B and I went to Nogales and bought ornaments. We still have them.

Here’s a shot of the Hanukkah candles.

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I like the reflection on the wall. Last night was fun and I gave out bubble gum as the gifts. The first night was lots of fun as B got lottery tickets and they had fun scratching away. They actually won $10. and two more tickets.  If you want to do Hanukkah, Target has some nice inexpensive Menorahs. Also, these beeswax candles burn beautifully.

I also made two wreaths for the doors using the grape vine base. I had B go cut some pine boughs down in the woods. I put some red berries from the Heavenly bamboo but then keep falling off so I may go to Micheals and get some artificial ones. I can reuse them next year.

I’m planning on going to the gym today although I’m feeling a little off.

This week we paid our property tax and also I will go pay the DMV on my sons Subaru. So an expensive week. Also, there are going to be some medical bills coming in for B. It looks like the deductible maybe as high as $6000. Geez, I hope not but I haven’t looked at it yet.

Christmas gifts are pretty much done. We did pay for a years subscription to Rosetta stone in French for my son. He says it’s very helpful. So to remind him on Christmas morning I found one of our Tahoe black rocks and used a white marker and wrote Rosetta on it. Kinda cute. And I will put it in a bag for him.

Overall, B is doing great for what is going on. Next week is the specialist and we’re assuming he will do a biopsy in the office. Definitely,, not fun. I’m really hoping he can give us a tentative treatment plan to get things moving along. It’s all the way down in downtown Sacramento, so we will need to leave early as it will commute time.

 

 

 

No Results yet…

So we are incredibly disappointed by the non results. B got a call from the nurse at 4:30 yesterday with the news that the biopsy sample was inadequate. WTF???? The doctor said it was a good marrow sample. So now we’re in limbo again till something else is scheduled.

He will go in for another transfusion as his platelets are very low. So as long as this can stabilize him till the next appt. Right now we have a pretty good idea that it’s MDS but without a biopsy confirming it’s still unknown.

He’s worked from home most of this week so at least that’s good. Next week will be the same as he shouldn’t go out in crowds too much. We might try and go out for a coffee date but we’ll see.

We did go to Trader Joes and did a huge grocery shop so that will last at least 2 weeks.  A few things we bought that we’re fun is their Candy Cane green tea! Go get some!!! It was delicious. Plus I did get some frozen meal items to make some evenings just a little easier.

Sunday night is the first night of Hanukkah. I plan on making latkes and using my homemade applesauce.  Of course, we are not Jewish, but any excuse to have candles is ok by me.

It’s a rainy Saturday and a snowy one in the Sierras. My daughter is driving up today and I suspect it will take a while. She got home fine last night without any delay.

I think I’m making Breakfast for dinner but not sure.

Simple Sunday

We had a delicious thanksgiving dinner. It all came out excellent and was one of the simpler ones we’ve had. I used the dry brine technique that Ina Garten suggests. I’m not sure if that’s what made the turkey so good or it was just a good turkey. The nut loaf was delicious too. All in all, a lovely day.

The rain has stopped but is supposed to be back tomorrow and then on and off for the next 10 days. We need it so no complaining. It does make feeding dogs and chores more challenging but that’s ok.

I had B go get the Christmas tree and so that’s up and I’ve put a few ornaments up and again, I’m not doing ALL the ornaments I have. I just want the tree to have our favorites this year. Definitely a decision in keeping it minimal and honestly, I’m not into the maintenance or look of a whole lot. Actually, I think it’s kinda exciting to make choices like this as it does confirm our minimalist lifestyle.

We went to the infusion center Friday so B got another infusion. Tuesday we head to Roseville for the BMB procedure. I expect we’ll be there most of the day.  I’ll probably hang out and then maybe go over to Trader Joes for some groceries.  I’m hoping we get some diagnosis by Friday which is definitely pushing it.

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A happy moment !! I think this was when we went to the Seattle Cancer Center for me.

Well, ciao for now.

1000 + posts

I don’t look at stats much only blog but happened to see I had posted 1010 posts since I been this blog in 2012.

That’s cool!  I started this blog as an online journey with cancer, myeloma. But then, on and off when I’ve been in treatment and in remission, I’ve added in simple living and minimalism. Both I am passionate about. Oh, and cooking! And The just keep Walking Project that ended this past June after 5 years.

I write for me as a way to process life. I’ve met some terrific on line people and value their cyber friendship.

eve-1071355__340.jpg I love champagne but we didn’t have any on Thanksgiving. I forgot to get it but we had wine!!

So onward to more posts about life, how shit happens and the good stuff too!!!

Five on Friday on Saturday!

The day sorta got away from me yesterday. IMG_1471.jpg

I made 5 small jars of salsa and 2 bigger ones. These were all our own tomatoes so that was a big plus.

I doubt we’ll get enough tomatoes for all the sauce I need for winter but I will get some. Based on last years supply I probably need about 18 freezer bags of sauce. I may try and can some but freezing is easier.

Then I decided to make up the sourdough leaven for a Tartine bread. I have the one loaf rising in the bread basket form and I’ll cook that in an hour or so.

My oncology appointment went well. I told him about the stress fracture and he did say ‘repetitive’ movement. So maybe it was just walking every day. Who knows?  My foot is still bothering off and on. Kinda weird. He suggested a DEXA scan so I will do that sometime this fall.  I did have one around 14 years ago that was normal. That was about a year before I was diagnosed with myeloma.

Then we headed to Costco and spent a small fortune. B bought a small or I guess it’s called ‘dorm ‘ refrigerator to replace the tiny funky one he had. It was a good deal at $130. Now we could get milk and OJ at Costco as there would room to keep them out in the barn.

Today, I’m making 2 zucchini loaves of bread from a Smitten Kitchen recipe. She said to use 2 loaf pans but it looked like it wasn’t very full but we’ll see how they turn out.  I plan on freezing one sliced so we can pull out a slice when we want one in the fall-winter. If the recipe is a good one, I’ll make a few more, maybe to give as gifts.

Tonight I think I’m going to make burgers/veggie burgers for dinner.

It’s very very hazy here from the Carr fire. Hopefully, it’ll clear out and the fire will get put out.

 

 

Cancer 2005

It was June 15, 2005, that I got the ‘official’ diagnosis over the phone. We knew, really before that, but it had to be official. The bone biopsy was done by a neurologist surgeon since it was on the spine. It was a pretty horrid experience. I didn’t feel anything but was conscious and I could feel the pressure.  Well, anyway, 13 years ago and here I am doing pretty great( apart from the stress fracture in my foot) which is doing better in the boot thing.

Time gives one perspective on most things, and this is no different.  I’m older, wiser, more informed than I was then. As I’ve said before, I didn’t really want to know much except what do we do now. It was later that I started getting all the info I could. Still, even the Myeloma Beacon didn’t come into being till 2009 maybe???  I learned so much from other Myeloma people and their experiences. Sadly, many of them are no longer here with us.

Life moves on no matter what. Death, sickness, political craziness(hopefully)will all change and move on to something else. It’s as it should be. It doesn’t make it easier or the pain any less, just different.

So, I lift a glass of sparkly and toast to me!!