Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there. Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.
Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!
I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.
Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+. I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.
Today I am roasting a chicken in my large cast iron pan. I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.
This week for those who follow Flylady, it’s the bedroom zone. I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.
This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion. BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.
If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know. So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in. We’ll see.
Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA. So, it was back down. I ended up getting gas again. Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.
Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.
I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.
We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.
Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected. Then after calling them and waiting forever on hold, we had it figured out. Still, sometimes I wonder how are we going to navigate this stuff.
Any suggestions for Medicare would be most welcome.
Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.
Well, I’m not sure how this will work as I’ve never done something like this so here goes….go fund me
thanks if you can help…..
Again, more appointments and just out every day. Something this introvert doesn’t like a whole lot but right now, I just need to get thru whatever is scheduled.
Today we’re heading into Sacramento for an appt with the nurse coordinator and social worker. This is supposed to be quite a long appt but I will cap it at 2 hours since that’s about my limit on things like this. If they can’t tell us all the info in that amount of time, I’ll schedule another appt. But initially, this is quite important as we will be giving her the addresses of the brothers for them to contact with the donor test kits. We will at least have that rolling. I think it was mentioned too that B would be tested as well. I’m not sure how that is different from his normal blood tests but it must be. Maybe it’s more genetically involved.
From there I initially thought we’d stop at Costco ( B can’t go in) but now I’ve decided it’s going to be too much to go in there after this appt. I need to get some things and the dog’s medicine is there too so I have to go. But I’m thinking Saturday morning, I’ll take my son as one of the things I need is cat litter and last time I lifted it (35lbs) I hurt my back. So I need someone with me. I usually go on Sunday morning which is the best time, but the pharmacy isn’t open so that’s not going to work.
Tomorrow I have a dentist appt. I’m thrilled( just joking). We aren’t too thrilled with the dentist right now. It’s all about money for them. Plus he sorta gave up on my Invisalign after he realized he was losing money when seeing me. So although it did help quite a bit, it didn’t completely align my teeth. Humm, I wonder if that is in the contract somewhere???
I didn’t walk this morning so I may go when we get back. At least try and do a mile just to get some exercise. The rain is going to come in on Friday afternoon and then all the way till Tuesday plus very cold temperatures. Nothing like the polar vortex but still a high of 48 is cold for us here.
That about sums it up, right??
It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.
Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something. For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month. Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.
Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.
Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.
My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier. My daughter has a day off due to MLK day she gets a comp day.
All in all, things are going along.
A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.
Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.
Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.
Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.
This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in. So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.
Off to tidy up and then read.
Oh, I’m reading the last Henning Mankel book,’After the fire’. His writing is just amazing. It is so clear and precise. Yet, very poetic.
I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.
Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.
Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.
I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.
The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener. But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.
If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker. It was superb!!!
Well, off to town.