Yep, Tomorrow would have been day 0 of my stay at the BMT unit at Sutter Hospital in 2006.
I was in for 18 days ( I think) it may have been 17. The nurses and staff were amazing. They come in and do what needs to be done and then leave. Most days I just laid in bed but once a day I’d walk the hall with B just to move. Most of what I remember was it was raining outside a lot. I’d be awake at 3am and see sheets of rain going across the freeway. The reintroduction of Stem Cells is anti climatic. It’s a bag that’s feed into the IV and it’s done. The worst Chemo has already been done a few days before. After the Stem cells, it’s just hurry up and wait for your numbers to plunge to zero and then slowly your immune system starts to reboot. It’s about day 11-14 you start to see the change.
Well, I had 4 years of remission before I relapsed and went on Revlimid. That was in 2010. So I’m pretty lucky. Many of ‘old crowd’ of myelomers are gone and sadly so. I’m grateful everyday to be here to enjoy the life I have.
Simple Sunday news.
We had a lovely walk with NO one in the park but us and the geese. My feet still bother me but walking actually seems to help the neuropathy. Sunrise is so early that we are getting there at 6 but it’s already light. I’m thinking next week to try and back it up to 5:45 am but we’ll see. With daylight savings in march 6am will be 7am so definitely not walking that late.
I’m making a King Arthur batch of lemon ginger scones. They are baking.
I”m going to put a turkey breast in the crockpot for dinner. I’m hoping it comes out ok, if not I have tofu I will make anyway. My son isn’t crazy about turkey so the tofu will be an option.
We have a Home Depot order to pick up but my daughter and B will do that soon. We need some 3ft to put around the front area garden to keep Rosie the chicken out.
I am going to start the second coat of paint here in awhile.
This week I’m in the bedroom zone so the fresh paint on the door is a nice improvement. OOPs, looks like that was last week. this week is a split week of Living room and then March 1 entry ways!!!!
I wanted to write this as a separate post from my good news with my labs.
But first, I want to give a shout out to Bob over at Satisfying Retirement.
He wrote a very good post on being prepared for retirement. Or in our case, what not to do, but now scrambling to do!! ( If that made sense)!
- my great news on my labs is top of my list
- we went to Home Depot and bought a security screen door so we can leave the front door open at night and let cool air in!!
- it’s been a hot,hot week, but we’ve managed to keep the yard watered and the house cool.
- my son fixed the AC in my old van and it’s nice and cold now. so that saved us the money from taking it down the road to the mechanic.
- we’ve had lots of zucchini from the garden this week and they have been excellent in a variety of recipes.
My sons birthday is coming up in the first week of August. He already received his present which was the trip and tickets to Elton John in LV. But I am going to tuck a little money in an envelope for him and tell him that’s the start of his emergency fund.
Not much else going on, there are terrible fires all over but the one in Yosemite and up near Redding are especially bad. Our air quality is not so good.
It’s May and everything is blooming. Plus, lots of pollen. I don’t have bad allergies but just enough with the oak and pine pollens. I take a homeopathic pill that works pretty good.
Tonight is Dex night so I’ll take a Benadryl and Ativan. Also after reading the Myeloma Beacon and the colum this month by Andrew about revlimid related diarehea and what he did to stop it by taking Colestid, I’ve decided I’m going to ask for a prescription when I see the doctor next. Even though it’s not as bad as it was, which was pretty bad for almost a year, it’s still a concern. I’ll bring in the article although he did know about the drug when I asked maybe, 5 months ago. Being on pomalyst I haven’t had quite the same issue but it’s always a concern and I’ve had two to close for comfort calls. So I’m going to do it. Sigh, another drug, but I’d rather not worry constantly where’s a bathroom!!
Last night was pizza night. I’ve been using the recipe from”Date night In”. It’s a very good recipe and does slow rise in the fridge for 24-48 hours. Its a good cook book and I’d recommend it.
Off to library stuff.
Bbq chicken / tofu for dinner.
Another Home Depot trip today….. More money…. Spring is really about spending money on plants , yard, etc. we’re trying to put a brick patio out front and need more pavers. They’re expensive, but it looks nice and clean off the dirt.
Well, I’m off today ,the library is closed for presidents day, so we’re going to go do some fun chores.
First, farmers market to get some lettuce broccoli, and whatever else looks good. Then I need to stop at staples and check out the day planner I’m interested in getting. I want something that zips, but not too expensive. Then over to Home Depot to get some bags of soil so we can plant peas, chard and maybe some spinach. I’m hoping to do this in a bed that’s by the side of the front lawn.
We want to plant the whole front yard, but I’m not sure if that’ll happen. Water, money etc.
then we think we’ll get lunch at a place I bought a groupon with. But since I just ate breakfast, I may not be quite ready for lunch so soon. We shall see. Usually I’m terrible about stuff like that, say I’ll do it and then I poop out and don’t. So…..
Its cloudy here and not a sunny happy day. But no rain till tonight.