Here we go….
Hair today, not too much longer:(
Here we go….
Hair today, not too much longer:(
Barclay finished his last chemo yesterday and had to have a blood transfusion so it was a long day for him. This was round 5.
We saw the social worker and the Nurse Practioner on Tuesday. The traffic was insane and it took us almost twice as long as it normally would since we hit the 8 am traffic. I won’t be doing that again any time soon.
So the social worker thing was just a repeat of the last one and the NP was informative. The most exciting news was his blasts have gone to 1% from 9 and that is GREAT news.
We are now in the final month before he goes in. The brother is set up with the national bone marrow registry and has the dates set for Neupogen shots and then the harvest on the apheresis machine. So Barclay will go in 5 days before for chemo and get a Hickman catheter put in. So we are ready to go!!!
We still are trying to figure out the details on lodging and the best so far is the Kiwanis house which is on the UCD campus. There are individual rooms and bathrooms but the kitchen is shared. Not really my style but it’s a walk away and is only $50 a night. the other option is an Extended stay but it’s about 10 miles away. So we’ll just have to see. I’m checking Airbnb but they are more like a $100 a night or higher. So I might check out a few and message the owners about a 2-3 week stay.
My oncology appt today was canceled as the doctor was not going to be in. So that was good because I didn’t really feel like driving back down to Sacramento. So I’ll see him in May although I left him a message that the appt maybe when B is going in so I’d just have to see.
I went to town to get my new glasses but they didn’t fit right so they need to be sent to the lab to have the bridge redone.
Oh well, the prescription is the same so my glasses are fine for now.
Dinner is something my daughter is making so I don’t have to cook!!
An absolutely beautiful day. Slightly breezy but so nice.
We did a sunrise walk in the park and it was very nice even though there was a crowd of Jesus people there for a sunrise service. Plenty of room for everyone.
The Canada geese couple has babies and they are so cute. The white goose we call Mother goose is their adopted nanny as she is a domestic goose. Go figure. Heck, why not? She seems happy.
lThen I’ve been cooking for a nice dinner. For Easter dinner or Spring celebration we always have southern fried tofu, with a homemade tartar sauce, plus potato and macaroni salads. This year I pulled out a turkey breast I got at Thanksgiving and have that going on the BBQ. We’ll probably eat a few bites of that. Plus I’m using up some chicken broth I defrosted and am making a Greek lemon soup. We’ll just have that tomorrow or later in the week.
B had his chemo at 8 am so we were out the door early. I came straight home (it’s only about 1o minutes when there’s no traffic on a Sunday) and then our son drove out to get him.
I did the bedroom zone for you Flylady( ers ). I washed the windows, dusted and tidied up. I also dropped my spider plant and the pot broke and got dirt all over so I had to stop mid-stream and clean that up.
Sunday is sheet day so they are done and back on the bed. As I’ve said before we only have one set of sheets and I really like that.
This coming week does have quite a few appts, but I think we’ll glide thru. My oncologist appt was canceled as my doctor will be out of town so really that makes it easier for me rather than going to downtown Sacramento twice. I’ll probably hit Costco if the coffee gets low( that’s usually the reason I have to go) and then everything else gets thrown in.
I think I’ll go read some before turning the turkey on the BBQ.
Hope it’s a nice day for you out there, whatever you do.
We got a letter yesterday saying the transplant has been approved by insurance and it’s a go. Also, the nurse coordinator got a hold of the donor brother and it looks like it may all be done in NYC… so very good news. It looks like at this point his pre-testing will happen soon and then collection on the 15 of May. That means Barclay will be going in right around then. So good news and let’s get this rolling. Not that it’s like a vacation and fun but just something you want to be over.
Also, his last labs show his WBC at 4.3 NORMAL!!!!! how great is that. Not sure it’ll stay there but let’s hope.
So yesterday was really long sitting in the dentist chair for the crown and the filling. But it’s done. Then I still need the scan for my Invisalign retainer. The dentist also said the filling on the crown was deep and could eventually need a root canal. ANd I’m thinking to myself, ” I’ll never do that again” that was one of the worst dental things I’ve had and then it still ended up in surgery to be pulled. I’ll just wait and see.
Today is beautiful out. I’m going to the gym and then tackle the chest freezer. Down at the bottom, I found some salmon from last summer so I’d better use that up. Also some corn I’d frozen. So I’d better get out there and see what else is there.
Today is koffee klatch day but I’m skipping and just coming home to do the above mentioned and some outside chores.
I just finished reading Flylady’s new book, The C.H.A.O.S cure. It was okay and had some new stuff but mostly a rehash of her stuff. Still, I enjoyed it.
Dinner is something from the freezer.
Hurray, they are in the normal range and even went down ever so slightly.
Kappa light chains at 18.9 mg/L
Lambda at 13.6mg/L
the ratio is actually what is important. So I’m still doing great there.
One weird number I’ve never even looked at (liver function ALT) went up out of normal by a few points. I’m guessing since I started the Keto diet that I’m eating a lot of full-fat food. I’ve felt great on this keto but I haven’t really lost the weight that people rave about. Maybe I’ve lost 3 pounds but nothing remarkable. I do know my body does like homeostasis and my weight doesn’t just drop away. Still, after this amount of time, I’ll just back off some.
I’m not sure if I’m in full ketosis and that might be the reason. Anyway, I’ll probably back off the full-fat stuff for a while but keep on low carb and proteins which I’ve enjoyed. I’ve given it a good trial period but think it’s time to just eat my ‘normal’ stuff.
I definitely haven’t missed sugar at all but then again I’m not so much as a ‘sweet’ person but rather ‘savory’. Not having beans and rice has been easy too. I just substitute lettuce stuff. Well, I’ll see how that ALT number is on my next labs. Obviously, something was going on as it’s always been in the low 20’s range. Even when I looked back over the last year so the Keto must have had an impact.
Today is a gym day for me.
B has his pulmonary test scheduled and my daughter will take him to Roseville.
Yesterdays BMB went exceptionally well. The NP did the procedure and I could tell she was going to do a good job. Of course, no matter what they still hurt like hell.
The book giveaway is still happening with the brand new book “lightly” by Francine Jay. she is one of the pioneers of the minimalist movement in the last 10 years or so.
Well, it is now that I’ m back from my monthly Costco haul.
I put everything away and put stuff in the freezer. We should be good to go for the rest to the month.
Then I moved into the kitchen zone and got that done except for the floor which I asked my daughter to do.
So, I ‘ve got the rest of the day to be outside or read or whatever.
Tomorrow B has his bone marrow biopsy with the new transplant doctor. He’ll need to take a sedative so he’ll be drowsy probably. Then Tuesday he has another test and then Thursday. My daughter will alternate with me since she’s still off from work. That helps a great deal.
Tonight we’re having artichokes( I bought at Costco) and some fish/tofu. Nothing too fancy.
It’s really lovely out almost 70 degrees.
Don’t forget to comment in my previous blog if you’re interested in the ‘Lightly” book.
Well, definitely not frugal after the Ikea trip and ordering my new glasses yesterday.
The eye doctor is a really nice man and told me my macular pucker looks stable. He also said because of the diagnosis(?) not sure of its term, under Medicare it’ll be covered. So that was a relief. The glasses I have now are called Lindberg, made in Denmark and I love them. They are expensive but since these lasted me 5 years and really I could have just kept them as my prescription hasn’t really changed. But I felt before jumping off the boat into Medicare, I better do all this stuff I can now.
Speaking of which, I was going to go into their office this morning but I’ve just had it with this week so I’ll wait till next. When I called to make the appointment, the person said: “oh, you can’t make appts for that, you just have to go in and take a number”. Great. More waiting. So that’ll be next week.
So, today is a gym day. And then to the store for a few items, cat food, half and half, and some deli stuff.
I talked with the UHC transplant person and unfortunately, the brothers travel and lodging is not covered so that was kinda a bummer and the billing is probably when he comes out of the hospital, so we know that’s going to be June. So we will have the full deductible which ( based on what they said before)is $6,000. So we’ll just ask for payments to be made or use as much as the GFM that will be left after paying for the brother’s flights and lodging. I’m seriously, not going to worry about it. I’m sure there will be enough stress with this whole thing to go around.
Dinner is an order out pizza. Round Table gourmet veggie, I think.
All in all, it’s been a good week. Next week is insanely busy with appts. Another biopsy, pulmonary stress test, and who know what else. But one foot in front of the other and JUST KEEP WALKING!!!
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I'm a wife and mom of three young kids - ages 11, 10 and 8 and I just happen to have cancer. Multiple Myeloma is a cancer of the blood that is currently incurable but IS considered highly treatable! My goal is to make people laugh, cry or feel a little less alone whether you are a mom, cancer patient or BOTH!
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