Finally!!!!

After almost 8 months of bureaucratic bullshit, I got my NYC birth certificate yesterday.

I actually ordered 3 when I sent in the final documents. unadjustednonraw_thumb_354.jpg

So there it is finally done. What an ordeal. I should write an ebook about how to get a certified birth certificate from NYC.

So, unfortunately ( i sincerely hope not) they didn’t return in the same envelope my certified marriage certificate. I’m not panicking yet because they didn’t mail the other in the envelope I provided, so I’m going to wait a few days and then try and email the corrections department.  Hopefully, it’s just in process on someone’s desk:(

Well, now I can dance in the streets, get a passport and get the real ID from California when I go to renew my license. Geez…..

Today is a doctor appt for B before he starts cycle 4 of Dacogen on Thursday.  If after this cycle, everything seems a- go I think he’ll start the transplant process which is a number of tests.  We haven’t heard about the brother’s donor match yet, but maybe she will know something.

We are in for more rain today thru Thursday but then it looks like we may be heading for ‘normal ‘ weather. Sunny, and in the ’60s.

I made IP polenta cacao de pepe, and wow it was superb. If you like polenta but not stirring for 40 minutes this is a deal breaker. It was creamy and just delicious.

Then I made tilapia with a parmesan crust and it was also delicious. Because I’m trying to eat fewer carbs, it’s a good recipe. I still drink wine so the carbs are still there, but hey, you got to do what you gotta do:) So this is not Keto, just fewer carbs like bread( my weakness) bagels, pasta, etc. I do love carbs, but I’m curious if I’ll notice a difference. We’ll see.

 

 

Friday Stuff

We’re still in the storm pattern here and I 80 is closed again. This kind of snow and weather hasn’t happened in years. I think the last time I remember snow like this was 1988 or so. Truly amazing amounts of snow have fallen in the Tahoe area.

My daughter still hasn’t been able to get there. Yesterday she got 1/2 way and had to turn around because cars were sliding all over. Too dangerous.  I told her if the library director complains take it to the CEO of Nevada City and say if it’s too dangerous to drive then it’s just too dangerous.

We’re off to infusion this morning for Barclay to get platelets. Good news is that his hemoglobin is at 10.6. That is very good news. So he does not need a transfusion.

Also good news, the nurse coordinator is calling his brothers today and the donor kits will be sent out Overnight express. So we are moving forward and should know if they are a match in about a month. So very good news there too.

I’m going to the gym and then pick a few groceries at Safeway for pizza tonight. I thought I’d get mushrooms, olives and maybe artichokes.  I have the pizza dough rising right now and will put in the fridge before we leave.

Our very old neighbor left with his son late yesterday. Someone came and boarded up the broken window. But there’s still no power and if the roof was leaking it’s probably a mess in there. But at least he’s safe. We’re looking at taking down maybe 2 or more trees but it really does depend on money. We will need to be very careful as we still need to cover the $6000 deductible for the transplant and lodging is our responsibility and donor costs such as the flights and hotel while getting the marrow. So lots on our plate financially.   But I know from what we felt in the past when we removed the huge trees, I think this next set of trees will also feel great. I mean there’s always a chance some random tree could fall but at least we would have done what we thought was the most likely.  The way our neighbor’s tree fell was really unpredictable. So who knows?

A weird week really.  Really weird….

 

 

All I can say is “WOW”

My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.

I am so grateful for everyone’s generosity.  I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.

Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.

The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.

I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.

The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills.  So I guess our electric bill will be sky high too.

Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:

  • 1x laundry a day washed, dried and put away.
  • counters kept clean
  • dishwasher emptied either after it runs or in the morning
  • tidy each room
  • make bed
  • wipe bathroom
  • do a daily budget
  • in the morning check what appts are for the day
  • I also plan dinner what I’m making in the morning

It really does help to keep routines and to simplify things.

Well, I’m off to do a few of those things now as we were out all morning.

 

 

 

 

 

Simple Sunday

It’s supposed to be just beautiful today with a high near 70. Well, 67 at least. Then it’s downhill from there. Rain expected later in the week.

We will be going to Sacramento on Thursday to meet with the nurse coordinator and the social worker. It will be a long appointment as a lot has to be gone over about the transplant and the nurse coordinator will go over sending the donor match kits to the brothers. I think she mentioned they will also be looking at the donor bank but I wasn’t clear whether that was simultaneous to getting the brothers test or after. Also, they want to go over transplant requirements such as a caregiver etc.

I’m heading out to the gym and then B has to get platelets so I’ll just hang out after the gym. I do need to go into Safeway for some chicken I want to make for dinner. I wanted to go to Target and get an ironing board but I think I’ll postpone that.

I dropped off a load at Goodwill the other day that included a bunch of food stuff for the local food bank. I’m noticing that each time I go to Goodwill we really do have less and less to drop off. That is progress for sure. There are a few things I’m still considering giving away but not decided yet. One is the small table in the sunroom. Last year I had plants on it but this year I just put them in the greenhouse so the table top is clear. It’s a nice midcentury looking table I bought at Target a number of years ago so it’s not vintage or anything, so I’d be ok with it going. But if it’s useful(still to be determined) I’ll keep it.

Well, off then to lift weights:)

 

 

 

Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Simple Sunday

A sunny day at last. Actually, yesterday was nice too. But rain/snow is forecast for the whole week. I guess we’ll get thru. But when the sun is out and it’s almost 60 degrees, I start to want to go out and do yard work, or garden. or get back out to the barn for more decluttering. But then it’s nice for a day and then back to 50 degrees or less and all that enthusiasm leaves. Oh well, it’ll all be there to get to.

Today is day 4 of chemo, so only one more for this round and then it’s a waiting game to see how the labs start doing. I suspect at least a week before anything maybe two. I have read some encouraging stories on the MDS facebook page. That does help. Plus I’ve asked a few questions and people are very helpful. That kind of support is really worth it and from my own experience with the Myeloma page and the Myeloma Beacon, they were literally life-saving and helped me move in the right direction.

Today is a gym day and then home to just do some chores before heading back in to get B. Today is a short day for him so that’s nice.

Dinner is pulled pork with corn tortillas. Scrambled eggs for B. His mouth sores he says are getting a tiny bit better.

This week is the bathroom zone. I was watching YouTube with The minimom who is in New Zealand. She’s quite cute with her zone cleaning but she said she uses some printouts from Etsy. I went and looked and am undecided if I need these. They’re only $4 but I’m not sure how much I’d use them. Basically, I have a planner( blank pages with a dot grid, I get at Michaels) and then each day write my goals and what I need to do. I also do a budget daily checking what’s out and what is due when. 98% of our bills are automatic but a few are still put in.  So usually, I also do the next paycheck budget and adjust accordingly such as this next pay period I need to get the van smogged and pay registration. So, then I add that in.

Off to tidy up and then read.

Oh, I’m reading the last Henning Mankel book,’After the fire’.  His writing is just amazing. It is so clear and precise. Yet, very poetic.

Simple Sunday

It’s quiet here. We’ve been to the infusion center for B’s platelets so that’s good. He’s having quite a bit of trouble with mouth sores which we think was from a certain antibiotic, not the chemo. But still it’s uncomfortable and it’s going to take a bit to heal with his WBC so low.  He’s on a different antibiotic so hopefully, that will kick in soon.

Other than that, I went to the gym for a short workout.

I’ve been in the living room zone as that is only today and tomorrow. Then the next zone starts on the 1st, which would be the entryway, dining room and something else.

Since our table is in our living room I do that area when I do the LR zone.  I’m doing a bit deeper clean( wiping all shelves and baseboards) since it’s the first of the year.

I’m going to cook an organic turkey roast for dinner along with some stuffing and peas. Nothing fancy, just using up stuff from the freezer. In January, I’m doing a no spend month and freezer clean out. The no spend is just nothing other than food and essential things like cat food. I’ve spent quite a bit in December in foodstuff mainly because I went to Costco twice. I usually go to Costco once a month. So that was definitely more expensive.

This week I have a dental cleaning and B has his appts. If he spikes a fever with these mouth sores he needs to go the ER, so let’s hope he doesn’t. But if he did at least he would get intravenous antibiotic which would accelerate healing his mouth sores. Still, let’s hope not.