Simple Sunday

Well, it has been a good week overall.

We are very fortunate that someone is going to lend us an RV so we can park at the Kiwanis house after B is released from the hospital. We are very grateful as it is a beautiful RV.  So at least that part of everything is set up. Plus it keeps us out of a hotel and that is great.

We will need to buy a few things as we don’t want to impact the owner’s stuff too much. We’re thinking our own sheets and some outside lawn chairs.

B’s CT scan was all good except for some more bladder stuff but he went and had a urine test and that was all good so who knows what that is. So all the tests are good.

We meet the transplant doctor this week to finalize everything. I think I’ll go to the coop first and then we can meet the doctor.

Our weather has been beautiful and continues to be so.

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May is really one of the loveliest months here in Northern California.

We’re out early again today for B to get platelets. I went to the gym and now I’m at Flour Garden writing this and drinking a coffee. When we get home I’m planning on starting the kitchen zone and do a few things maybe not all the kitchen zone. It’s also sheet day.

I finished reading the Madame chic books( the first 2) and I enjoyed them. I don’t think they’re for everyone and some people probably wouldn’t like them at all. I liked the inside look at Paris and the culture. I’ve been trying to find them at the used bookstore for about 5 years with no luck so I finally bought them off amazon.

Next Sunday is Mother’s day which I always get breakfast made. But we’re also going to celebrate our son’s graduation from CSU Sacramento and our daughters birthday since B will be in the hospital for both. We’re giving Z money and S will get a new Kindle that she wanted.

Dinner is street tacos since it’s Cinco de Mayo!! Plus some guacamole.

 

 

Decisions…..

So yesterday was insanely busy.

We had to be out the door at 7:15am to get to the local oncologists’ appt. That went well. Then B had to go get his labs.

Then we decided to go get bagels at our local organic bakery because we were going to head to Sacramento to check out the Kiwanis house and we wanted to AVOID the 8 am traffic. So we relaxed and enjoyed our coffee and bagels.

We had no stops with traffic and got down to UCD med center in 45 minutes. First, we went and toured the Kiwanis housing and as expected the rooms are quite small and the shared kitchen just didn’t do anything for us. BUT, we toured the RV parking and LOVED it.  So there is a possibility of using a friends RV or if we moved quickly buy a used small one that we were planning on doing in the fall anyway.

We asked the social worker to put in the request so at least we have that in place. There’s no guarantee but hopefully, that would be a possibility.

Then while we were there the social worker called and said there may be a problem with B’s brother’s blood something that has an antibody in it so B needed to get a blood test for that ASAP. Fortunately, we were right there so we did that.

Next, we checked out the Marriot and that was crazy expensive even though very nice. There were two nights that the cost increased to $279 a night.  We ruled that out quickly.

Then we headed to the Cannabis place and B got some chocolates since smoking is not allowed with the transplant.

After that, we went to the Sacramento Co-op and joined as I plan to shop there while we’re down there and then even later go once a month. It is a beautiful store and I found a few items like cranberry beans I’ve wanted. ( they’re like pinto beans). Plus they have an olive bar!!

Finally, we headed up Hwy 50 to check out the Extended stay hotel and surprisingly we both thought it was okay even if it was the furthest away. ( 10 minutes or so without stop and go traffic). Not ideal but doable so we’re going to get the referral to the Cancer Society and put that in as a backup plan.

By this time it was close to one and we were pretty wiped out. I came home and took a nap.

We’re hoping there isn’t a problem with the antibody as that would mean back to square one with the National Donor Bank. We should know in a day or two and we see the transplant doctor next week so…

I’m heading out to the koffee klatch to see everyone for the last time probably till the end of summer so that’ll be nice. I think everyone is planning on being there.

Dinner is salad and chicken kabobs( marinated in yogurt). Maybe some grilled tofu too.

 

 

 

Some good news

We got a letter yesterday saying the transplant has been approved by insurance and it’s a go. Also, the nurse coordinator got a hold of the donor brother and it looks like it may all be done in NYC… so very good news.  It looks like at this point his pre-testing will happen soon and then collection on the 15 of May. That means Barclay will be going in right around then. So good news and let’s get this rolling. Not that it’s like a vacation and fun but just something you want to be over.

Also, his last labs show his WBC at 4.3 NORMAL!!!!! how great is that. Not sure it’ll stay there but let’s hope.

So yesterday was really long sitting in the dentist chair for the crown and the filling.  But it’s done. Then I still need the scan for my Invisalign retainer.  The dentist also said the filling on the crown was deep and could eventually need a root canal. ANd I’m thinking to myself, ” I’ll never do that again” that was one of the worst dental things I’ve had and then it still ended up in surgery to be pulled.  I’ll just wait and see.

Today is beautiful out. I’m going to the gym and then tackle the chest freezer. Down at the bottom, I found some salmon from last summer so I’d better use that up. Also some corn I’d frozen. So I’d better get out there and see what else is there.

Today is koffee klatch day but I’m skipping and just coming home to do the above mentioned and some outside chores.

I just finished reading Flylady’s new book, The  C.H.A.O.S cure.   It was okay and had some new stuff but mostly a rehash of her stuff. Still, I enjoyed it.

Dinner is something from the freezer.

 

Simple Sunday

Well, it is now that I’ m back from my monthly Costco haul.

I put everything away and put stuff in the freezer. We should be good to go for the rest to the month.

Then I moved into the kitchen zone and got that done except for the floor which I asked my daughter to do.

So, I ‘ve got the rest of the day to be outside or read or whatever.

Tomorrow B has his bone marrow biopsy with the new transplant doctor.  He’ll need to take a sedative so he’ll be drowsy probably.  Then Tuesday he has another test and then Thursday. My daughter will alternate with me since she’s still off from work. That helps a great deal.

Tonight we’re having artichokes( I bought at Costco) and some fish/tofu. Nothing too fancy.

It’s really lovely out almost 70 degrees.

Don’t forget to comment in my previous blog if you’re interested in the ‘Lightly” book.

Five on Friday…Frugal Friday..

Well, definitely not frugal after the Ikea trip and ordering my new glasses yesterday.

The eye doctor is a really nice man and told me my macular pucker looks stable. He also said because of the diagnosis(?) not sure of its term, under Medicare it’ll be covered. So that was a relief.  The glasses I have now are called Lindberg, made in Denmark and I love them. They are expensive but since these lasted me 5 years and really I could have just kept them as my prescription hasn’t really changed. But I felt before jumping off the boat into Medicare, I better do all this stuff I can now.

Speaking of which, I was going to go into their office this morning but I’ve just had it with this week so I’ll wait till next. When I called to make the appointment, the person said: “oh, you can’t make appts for that, you just have to go in and take a number”. Great. More waiting. So that’ll be next week.

So, today is a gym day. And then to the store for a few items, cat food, half and half, and some deli stuff.

I talked with the UHC transplant person and unfortunately, the brothers travel and lodging is not covered so that was kinda a bummer and the billing is probably when he comes out of the hospital, so we know that’s going to be June. So we will have the full deductible which ( based on what they said before)is $6,000. So we’ll just ask for payments to be made or use as much as the GFM that will be left after paying for the brother’s flights and lodging.  I’m seriously, not going to worry about it.  I’m sure there will be enough stress with this whole thing to go around.

Dinner is an order out pizza. Round Table gourmet veggie, I think.

All in all, it’s been a good week. Next week is insanely busy with appts. Another biopsy, pulmonary stress test, and who know what else. But one foot in front of the other and JUST KEEP WALKING!!!

Simple Sunday

Ha, it is a miracle!!!

Just when I sent a priority letter to NYC Corrections the next day, my documents were in the priority envelope I had paid for from before. So I now have in hand my brand new birth certificate, my original marriage license and the court documents for my legal name change. What a miracle!!! All in all, it only took 8 months.  Now I can get a passport and the new real ID from California.

Today B has a transfusion early. He needs both blood and platelets but it’s been 18 days for the blood so that is an improvement. Like I said we see the transplant doctor Thursday but we know he has tentatively scheduled him for another chemo in April. I also, did not quite register the co-pay issue or maybe I was in denial but 20% of 500,000 is $100,000. I just can’t get it in my head that we would be responsible for that. I mean we don’t even have any retirement money to speak of so WHAT ARE WE GOING TO DO???  I hope this is wrong and I’m going to have B call UHC and talk to the coordinator to find out.  Somehow it just doesn’t seem right.

I’m heading to Costco this morning too. I need some greens, avocados, almond milk and a few other things which I’m sure will morph into a bigger shop. Oh, and I need to return 2 items. One is the Instant Pot Cookbook which is, in my opinion, a waste. I’ve never returned a book and feel kinda weird about it. Like what read the book and then give it back. Heck, I may not do it after all.

Here’s a few pictures of the snow in Tahoe:

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Well, off to do laundry. It’s sheet day!

 

Simple Sunday

Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there.  Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.

Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!

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I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.

Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+.  I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.

Today I am roasting a chicken in my large cast iron pan.  I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.

This week for those who follow Flylady, it’s the bedroom zone.  I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.

This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion.  BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.

If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know.  So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in.  We’ll see.