So I talked with the bone marrow transplant coordinator for UHC this week to find out the actual numbers of our co-pay. She didn’t really know that but said that since Sutter was out of network, there could be unexpected bills that will show up. So I asked if we switch to in-network that won’t happen and she said yes. So I went hmmm….
So then I called UHC line and spoke to an agent and she was very helpful. As of right now till June 1st Barclay has met the $6,000 deductible so transplant is 100% covered. With that information, I came home and we discussed that it would be just easier and best for us to go in- network which will be UCD in Sacramento. Stanford or UcSF is just too far. Because we are less than 50 miles away( we are 40) no lodging or gas will be given. But that’s what we did the GoFundMe for.
So I called the nurse coordinator for Dr. Kiwan and told them we decided we needed to go with in-network. She spoke with Kiwan later and we canceled the appt for today. Then Barclay called his local oncologist and she is the one to send the referral to UCD. I think it’ll set us back a bit but the testing is done for his brother and he is a match. For some reason, they were going to mail us the results of the genetic breakdown to take to UCD. Not sure why they wouldn’t just send it with all his other test results. Anyway, we’ll need to meet with a transplant team all over but that’s ok.
I am 100% sure this is the right course of action. Even if we go past June 1st, we can make payments on the $6000. We will be sure they are aware of the deadline for this calendar year.
Hopefully, we will hear tomorrow or early next week.
But at least we know exactly where we stand.
OMG, it is still raining!!! And I 80 is closed again!!
My daughter left Truckee at 2pm, the freeway was already closed but she was able to convince them to let her thru. So today, who knows. It’s still closed and it’s supposed to snow all day up there. The forecast is rain, rain, showers, cloudy for like the next 2 weeks. I’m convinced this is global warming changing our weather patterns. I can only think of a handful of times since we moved here in 1975, that there is this much continued non-stop weather.
Today B has a blood transfusion but his platelets are ok. So that makes this day 17 for the blood transfusion so that is a big win!! Hopefully, the next chemo cycle does it even better.
So I’mgoingto drop him off and then go to the gym since the blood takes a minimum of 5 hours. Then I’ll come home and do some chores. If my daughter is home, which I’m expecting with the way the freeway looked, she can go pick him up @ 2:30 or 3.
I think we will be hearing soon on whether his one brother is a match. Maybe early next week. But I think they are already looking in the National donor bank as well. Since we see the transplant doctor in March, I suspect he will have a plan in place.
All the budget stuff is in a good place. With the SDI checks, we are able to pay the months bills. Since his form from his HR says May is his back to work date( which is totally not happening) we will need to resubmit something but I’m not sure what. I’m guessing HR will need to put in another date.
Has anyone done that? and how do you update EDD.??? I guess we’ll bumble thru since we’ve gotten this far but I’m not even sure how we did.
I’m still planning the Medicare but haven’t even called the insurance companies yet for pricing. Maybe Friday I can do that. My target date is June 1st. But of course, it needs to be all in by then and ready to go.
Dinner is unknown.
Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there. Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.
Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!
I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.
Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+. I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.
Today I am roasting a chicken in my large cast iron pan. I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.
This week for those who follow Flylady, it’s the bedroom zone. I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.
This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion. BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.
If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know. So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in. We’ll see.
Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA. So, it was back down. I ended up getting gas again. Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.
Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.
I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.
We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.
Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected. Then after calling them and waiting forever on hold, we had it figured out. Still, sometimes I wonder how are we going to navigate this stuff.
Any suggestions for Medicare would be most welcome.
Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.
Well, I’m not sure how this will work as I’ve never done something like this so here goes….go fund me
thanks if you can help…..
Again, more appointments and just out every day. Something this introvert doesn’t like a whole lot but right now, I just need to get thru whatever is scheduled.
Today we’re heading into Sacramento for an appt with the nurse coordinator and social worker. This is supposed to be quite a long appt but I will cap it at 2 hours since that’s about my limit on things like this. If they can’t tell us all the info in that amount of time, I’ll schedule another appt. But initially, this is quite important as we will be giving her the addresses of the brothers for them to contact with the donor test kits. We will at least have that rolling. I think it was mentioned too that B would be tested as well. I’m not sure how that is different from his normal blood tests but it must be. Maybe it’s more genetically involved.
From there I initially thought we’d stop at Costco ( B can’t go in) but now I’ve decided it’s going to be too much to go in there after this appt. I need to get some things and the dog’s medicine is there too so I have to go. But I’m thinking Saturday morning, I’ll take my son as one of the things I need is cat litter and last time I lifted it (35lbs) I hurt my back. So I need someone with me. I usually go on Sunday morning which is the best time, but the pharmacy isn’t open so that’s not going to work.
Tomorrow I have a dentist appt. I’m thrilled( just joking). We aren’t too thrilled with the dentist right now. It’s all about money for them. Plus he sorta gave up on my Invisalign after he realized he was losing money when seeing me. So although it did help quite a bit, it didn’t completely align my teeth. Humm, I wonder if that is in the contract somewhere???
I didn’t walk this morning so I may go when we get back. At least try and do a mile just to get some exercise. The rain is going to come in on Friday afternoon and then all the way till Tuesday plus very cold temperatures. Nothing like the polar vortex but still a high of 48 is cold for us here.
That about sums it up, right??