Simple Sunday

Still raining and snowing. Well, it’s like slushy rain where we live but still, it’s very cold and I’m sure the snow is coming down in the Tahoe area. It’s like snowmageddon up there.  Many ‘stupid’ people yesterday clogged the freeway to try and get up to the snow and it was a mess. Pictures on the live cams showed cars and trucks just lined up for miles because it was so backed up. Eventually, they just closed the freeway.

Update: 6:30 am…. it’s light enough to see outside and it is very definitely snowing!!!!

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I was going to go to the gym unless it totally clears up. We do have 4 wd but still, people don’t know how to drive in the snow so I think it’ll be a home day.

Last night I made a minestrone in the instant pot. I do have to say it was really delicious. I put it on soup for 30 and then after 10 minutes of natural release I vented it. Then I added some cheese tortellini and closed the lid again. I just kept it closed until we were ready for dinner. I would give it an A+.  I may be getting rid of my crockpot after I do beans which I haven’t done yet. But many vegans use the Instant pot specifically for the beans it can do in a short period.

Today I am roasting a chicken in my large cast iron pan.  I did the whole chicken last time in the IP but I think I prefer the oven. Plus it’s a great day to use the oven. I may even make some WW bread too.

This week for those who follow Flylady, it’s the bedroom zone.  I normally do sheets on Sunday but I think I’ll wait till tomorrow which is weirdly enough supposed to be sunny.

This week isn’t too busy. I have my labs tomorrow. B doesn’t have labs till Tuesday with infusion on Wednesday if needed. Probably platelets and I hope he can squeak by without needing a blood transfusion.  BTW, the transplant Dr. ruled out his older brother due to age, so it’ll only be his younger one who is 64. So that does lower the chance of the match but I’m not too worried as the National Donor base will then be checked.

If all goes to plan, the donor kit will be back in a week and then it’ll about 2-3 weeks till we know.  So that puts us the end of March. He will have finished cycle 4 and it’s possible he’d be ready to go in.  We’ll see.

 

 

Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Still in a holding pattern……

No news yet, but I imagine it will be in the next day or two.

B just had his last infusion today and it went very well. We’ve had so many appts though it’s hard to keep up. Tomorrow is the medical oncologist  and then he’ll know if he needs another transfusion. It looks like he’ll be getting a port on Friday so that’s going to be almost all day. Oh well, we will get thru this one way or the other.

I had my labs this morning so I’ll be getting my results by Thursday.

I ran some errands this morning including going to the bank and I used their Coinstar to do our annual sealed pot of change. It was Sue over in Wales that stated this on her blog. She doesn’t have that blog anymore but I did always enjoy her stories. The idea is you put all your change in a jar for a year and then cash it in and use that for something.  I think we’ll just save it for something special when we can travel again.  I’m hoping B can do some short trips once this drug kicks in. (fingers crossed).

I went into Goodwill and got a small stainless steel bowl to put water in for the wood stove. I kinda was looking for something cast iron but that was probably a long shot. So I added some cinnamon sticks, cloves and orange essential oil to the water. The bowl was $2.19.

I also took B’s Santa Fe to the car wash. I need to do my VW next as it is really dirty.

Last night I made a crock pot chicken with mushrooms and then at the end you top with swiss cheese and bacon crumbles. It was delicious.

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Then and early Christmas present to myself was these really cool La Parfait jars. A vlogger I follow uses these for all sorts of things and I really like the look.

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I did carrots, olives, and the top one is left over cream cheese. I’m definitely ordering the next size up for other things.  I love the look of food in jars like this.

I’ve also been putting together glass type bento boxes for B when he’s in the infusion center.

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Mostly some cottage cheese, apple slices, olives, and nuts. This way he can eat something while there.

This week the Flylady zone is the bathroom. Since out bathroom is so small it doesn’t take long to do the whole thing even wiping all the shelves, and doing the window.  I’ve had a heck of a time getting the right shower curtains though. Target has had some great liners we’ve used in the past but they’ve discontinued them so I bought another kind that was similar but they just weren’t drying.  So then I went and bought clear plastic liners to go on the inside of these but it was all too heavy and kinda claustrophobic. So I went back yesterday and spent 20 minutes looking at my choices and finally got a liner that is light weight. I think it will do the trick. I still need to trim the bottom as they hang down in the tub to much and then would just stay wet. Our tub is an old , very old clawfoot tub we put in when we first moved in. So the shower curtain rod is a ring around the top. So I always need 2 curtains or liners.  When we remodel the bathroom next year the big decision is the tub going??? It’s a big step up into the tub which is doable now but age has a way of catching up to us.

Anyway…….

Tonight’s dinner is unknown, but I may do leftovers or something from the freezer.

 

 

Are we confused yet???

What a strange couple of days it has been. I have taken most of it in stride but that doesn’t mean I’m not pissed off about it.

So first, on Tuesday I head down for my appointment with the Legal Help at the Santucci Justice system. I’m optimistic I’ll get the answers I need. So I get in and start explaining to the legal aid about my birth certificate etc.  So I have booked marked where my questions are on the pages and …so this is where my birth name goes….yes….well and this is what it’s changing to…yes…. oh wait, I better go check on that. .. . !0 minutes later she returns and says the person upstairs’ says “you cannot change a name on a birth certificate except for adoption or paternity”…….Whoa, I say that is not correct. ….. Back up she goes with my paper work.Down she comes in 10 minutes no wiser.  The lady behind me starts chiming in that yes, I can change my name but what are the legal implications for SS, drivers license etc. So I am at that point totally confused. They are both confused. So the one says, ” you better go see a lawyer” JFC*** Really?  So I leave muttering under my breath.

 

So now, I’m just thinking about it. I can see changing the birth name. But how does that affect my other things? It shouldn’t. But I’d still like to talk to an attorney just to be sure. So I’m going to wait till next week and then see if I can get a consultation with one in Auburn. This is really turning into a 3 ring circus.

I went down to Sacramento for my oncology appointment. All looked good and I asked if I could do labs in 6 weeks and then in 6 more weeks and see him right after Christmas. I really didn’t need to go today but I felt obligated to keep the appointment. Plus I was dring the old van so that makes me a little nervous in all that traffic.

So then I’m talking to him about the patient portal. He says it looks like you haven’t signed up. So I say that I have. Hmmm, something is not right. So I get home sign in and it’s the same one I did sign up for but my records aren’t there except for 2015. Which is what I saw last week.  So I decide to call the help number and finally after waiting 15 minutes, the rep says. Oh, that’s for hospital records( so in 2015 is when I had my sedated bone marrow biopsy). The other patient portal is for the doctor’s office. God damn, how come they didn’t know that at the office there.  So now I need to call them and make sure it’s clear that there is a difference and I still want my labs.  I still feel something is off about it but till I know more there’s nothing to do.

So overall, it’s kinda been a stressful week.  Or at least weird.

We had incredible thunder and lightning and heavy rain last night. It was quite a show. The ground is saturated. But at least we won’t have to do anymore watering. Our bill went down to $99. But that’s still more than I’d like it to be in September.

 

OMG….

Such good news!!!!

My kappa light chains went down almost 2 points.

Lambda light chains stayed just about the same.

The ratio went down to 1.18.  The ratio is a very important piece of the whole equation.

So all in all, I am beyond thrilled. This is now month 25 after stopping Velcade.

It is so amazing and I am so grateful and happy.

Time to celebrate!!!

Simple Sunday​

It’s a little cooler at 93 degrees. I’m still running the window coolers so I can only imagine how high the electric bill will be especially since there’s an excessive heat warning for the middle of the week.

I went to the gym and it was nice and mostly empty.

This week is my 2-month labs. I know my oncologist is in Europe for 2 weeks so he won’t get my labs back to me so I’ll need to call his nurse for the results or wait.  I don’t have any particular sense which way it will go. They have been creeping up so I guess there’s that. I’m not sure one ever gets over the anxiety of labs once you’ve had cancer.  You wait for them with bated breath.  But in the end, there’s not much you can do but accept what the results are. I feel pretty good so there’s that.

My son fixed the AC in my old van so it’s blowing cold again. He didn’t fill the thing all the way with the R 124?? so I’ll buy another can of that tomorrow.

I’ve prepped a big salad for dinner and I’m going to grill some salmon.  I might add in a carb but not sure what yet. This week with B gone to Minnesota, I’ll keep the menus easy especially since my daughter doesn’t get home till 7.  Maybe sandwiches, tacos, pancakes?? We’ll see. Nothing too heavy as it’s too hot to eat heavy foods.

I gave away 2 sets of Fiesta ware to my brother, so that’s more out the door. I gave him the peacock blue color and the dark blue. I wasn’t in love with either color although the dark blue is pretty.  I still have plenty of other colors to use. I was going to give them to the Cancerthrift but then realized I had given him 2 sets a few years ago so this would make 4.

This week I might do a little more reorganizing the pantry.  I was thinking of taking everything off the stainless steel restaurant shelves and reorganize that way. We’ll see.

 

This week is the bedroom zone in Flylady, so I’ll work on tidying the closet. Plus it does hold my pantry back up items.

Overall, it should be a quiet week except hot!!!

 

Five on Friday

Let’s see, my labs came in but I had to call the nurse to get the results. My doctor is on call for other doctors this week so he is slammed. My CBC is all the same and normal, Kappa light chains went up to 15.0, Lambda was the same at 11.1, the ratio went up just slightly to 1.30 ( from 1.27).  So not bad but I’d rather the ratio be a little lower. But still all in the normal range.  June marks 2 years of being off all chemo.  What a lovely time it has been and I am grateful every day.

We zipped down to Costco at 9am to get a few things. Mostly coffee. Last week I had to go buy a pound at Starbucks and that was a rude awakening. So off we went. We filled up the Santa Fe, and then got thru Costco fairly quickly. I didn’t need a whole lot so it went quick. We also paid our membership which was due June 1st.

Tonight is a pizza night and I gave my son cash to get a Round Table. I had a coupon for a speciality pizza for $19.99 and we love their gourmet veggie. So a good deal.

We were going to go to the nursery and get some pots for me to re-pot some of my house plant friends but it’s raining so we nixed that. I guess we saved money by not going but I’ll still need to get some at Home Depot in the next week or so.

Yesterday I went out to the barn and declutter more magazines, some kitchen things I had put in a box for my son when he was going to live at SFSU( which he didn’t do), and other misc. It’s the start of a small thrift store run.

I worked on the budget and June looks okay. Still working on finishing the CC that we put Z’s tuition on. I’m okay with that. I’d like to target end of July to have it done.

I think that’s all I can think of.

We did feel bad for all the campers heading up to Tahoe for Memorial day weekend. It was pouring down rain and I’m sure it’s worse up there.