Tag Archives: health

Simple Sunday

Posted in Blood test, bread, California, cancer, cooking, simplicity by

Another cloudy, rainy day yesterday, and it looks like that again for today. We can always use the rain, so I can’t complain really. I think we’re back in the sun by evening, and then it looks nice the rest of the week.

I drove B for his transusion yesterday. This is probably the one thing that is frustrating me. Well, one of many things, but it is a big question mark why it is his hemoglobin is dropping. I suppose the simple answer is that the cancer is affecting his blood levels, but I’m not a doctor. He has his next immuno on Tuesday, so hopefully that will start to improve the hemoglobin. A very good thing, though, is he’s had a bit of an appetite and has eaten pretty well the last few days. I hope that’s a sign he’s doing better.

Today is a home day. Normally, I’d be at the Auburn gym, but I want to hold off till I get an official diagnosis on my knee. I had the MRI, so I should know by Monday or Tuesday. It didn’t take long, partly because there was no contrast involved. The one oncology nurse, Vicki, who usually does my shot, said that using a stationary bike is one of the best ways to build knee muscles. She had a torn meniscus a few years back due to a skiing accident, so she really went full on rehab and now is a committed bicyclist and goes out every morning at 4:30 am. Now that’s dedication. i will start on the bike once I know what’s up.

I’m making sourdough bread this morning. I thought I’d try something different, so I’m trying cheddar and olives. We’ll see how it comes out.

Friday night, I was able to use that frozen pizza that was languishing in the freezer, so one more thing gone.

Last night I made the Greek lemon chicken soup, Avogolimeno. It’s a simple recipe, but so delicious. I made B tomato soup and he ate it all!!!

I think tonight, I’ll do rice and the TJ’s Kung Pao chicken that I’d like to use up.

I made reservations for the 5 of us to go to brunch at one of our favorite places, High Hand Nursery and Cafe. It’s very popular and reservations are hard to get, but I got a brunch on the Sunday before my daughter’s birthday. I’m sure it’ll be pricey, but since we rarely eat out, I’m ok with it.

I finished the book “Enough’ about the Everest climber. It was an interesting read, but I would have liked more about what the camps are like. How many people climb in a day? Things like that. But a good read.

Then I’m working my way through the Harry Potter books for the 3rd time. I just finished #2. They are fun to read. It’s too bad JK Rowling has become such a jerk and anti LGBTQ+. Weird.

Tomorrow I have my labs, and I might go into Target( which I’ve been avoiding) to check out some PJs. I’ve been looking for just some cotton ones, and most, like from LLB, etc, are too expensive. I saw some online at Target for $20, so I want ot check them out.

This week, Flylady is the LR. So I’ll do a few extra things. I dusted all the Easton Press Books already, so I may just need to wash the inside windows.

How do you do house chores? All at once or break it up like Flylady?

Thankful Thursday

Posted in Blood test, Bone marrow transplant, California, Gratitude, husband, peritoneal mesothelomia by

B had his transfusion on Tuesday, so he did feel better yesterday. But he got labs yesterday, and though his hemoglobin came up, it wasn’t enough to get over the 8 mark. So he needs another transfusion. I’ll take him Saturday, and my daughter will pick him up. I’m very grateful to the oncology infusion nurses, who called him and told him his labs were still low and scheduled him. Very thoughtful of them.

I’m also grateful for his doctor, who has been very proactive in all this. She mentioned to B, though, that he should contact his BMT team to see if his needing blood transfusions may be a relapse of his MDS. It seems a stretch to me, but his needing transfusions when he’s not even going through chemo is a problem. She had said the side effects of the immunotherapy are not blood-related, so now we have another puzzle piece to figure out. Very odd.

I’m thankful for our sunny, warm days. It’s been really lovely. I do miss terribly not walking and being out at the park. But I should know by next week what the story is and how to proceed. I’m sure they will recommend PT, and I’ll do that to help strengthen my knee.

I am, though, very grateful to still be able to get around with the use of a cane for stability. My son found one at Goodwill, and it’s been very helpful. I had been using my walking stick, but that has a different grip. So the cane has the handle you put your hand on, and it does give a lot of support.

I’m grateful that the kids are so helpful with driving and doing stuff around here. My daughter has been mowing and weed-eating all week. It’s a pot of work that B usually did.

I’m very thankful tRumps approval rating is tanking. Let’s hope it tanks even further.

What things are you thankful for this week?

Where we are now.

Posted in books, California, cancer, husband, peritoneal mesothelomia by

After the shock of Stanford canceling, we’ve moved on to the next phase. Barclay had to cancel all the hotel reservations, and both of my kids had to rearrange the time they had taken off. They did so, and it wasn’t a huge problem as they both have flexibility at their jobs. My anger was at Stanford for waiting to let us know. Dr. Lee had seen his CT scan weeks ago. That’s what upset me the most. Anyway, I’m over it now. ( mostly!!)

After we got that news, the next day he had a video visit with his UCD, and she set up the immunotherapy appointments. Barclay had the first one yesterday. Side effects can be nausea, thyroid problems, and skin issues, but it shouldn’t take down his hemoglobin to the point where he needs transfusions. ( At least I hope so). He will be going every 2 weeks for this. We can only hope it gives him some reprieve and he gets a little more time. He is still not eating very much, and of course, that’s a problem.

On top of all that, I had my right knee go out on me, so I’m wearing a brace and will need to get an MRI to see what it is. The doctor didn’t think it was any kind of fracture so until I get the MRI, ice, and ibuprofen. The only thing I can come up with is 4 days before I did an extended swim, and maybe I overworked my knee. Still, it may be an age factor too, with knees wearing out:(

We’ve had beautiful 70-degree weather, and everything is in full leaf and bloom, including the wisteria. Today, I plan on being home and hobbling around to take care of the house chores. My daughter has been doing the bulk of it for us. My son is going to stop by and do some chores as well. I’m grateful they can help.

I’ve read a few books from the library and including the new B. C Beaton’s ‘Death of a Smuggler’. It was fun to read Hamish Macbeth again. Also, we’re finishing ‘Dark Winds’ based on Hillerman’s Leaphorn and Chee characters. It is excellent. We finished ‘ Reacher’ and I wasn’t too impressed. The actor is a good Reacher, but the adaptation of the story just doesn’t quite fit.

Well, that’s about it. Life goes on. The sun will rise, and today is a new day.

Saturday

Posted in California, camping, cancer, canning tomato salsa, freezer cooking, peritoneal mesothelomia by

Frugal Friday got sidestepped by other things.

But I did go to Winco once after swimming and spent $58, although $15 of that was a bottle of wine. So $43 for food. I also got gas at Costco, which is always a savings. Other than that, nothing was spent.

Today, I have to take Barclay down to Infusion in Rocklin. I was going to do a Trader Joe’s stop, but nothing is urgent, so I think I’ll wait. This will take about 4 1/2 hours, so my daughter will go down to get him at 2:30 or so.

The video visit with Dr. Neal was a waste of time. He really didn’t say anything of importance except that the one spot on his spleen was concerning. But I’ve read on the Facebook group that people will have their spleen removed during the surgery if it’s impacted. So now we wait again till we hear from Lee. Honestly, at this point, I think it should be our call. He’s the one taking the risk, and if this can remove tumors, then that’s what we want. So I think I’m going to be hopeful that it will go forward.

After I get home, I plan on processing the rest of the tomatoes from last summer I froze. So I have 3 bags to do. I think I’ll cook them down, then run them through the food mill and can them tomorrow. I also am planning to make chicken broth but will pressure can that. Does anyone use the Presto pressure canner that’s automated? Lots of people swear by it because there’s no waiting for the All-American to come up to pressure, then juggle at the right time, etc. I’ve looked at them on Amazon, and they run around $350, so a big investment.

We’ve booked a spot in Tahoe for September, so that’s exciting. Belived me that’s like winning the lottery to get a spot. It took us 6 tries to get a spot, so if you’re trying to do anything in Tahoe, beware of how long it can take and plan accordingly.

Simple Sunday

Posted in budgeting, budgets, California, cancer, home stuff, Uncategorized, Walking by

A clear morning walk with the waning moon above. No one was around but us and the new hire for the park. We don’t know what happened to the other guy but it’s been around 4 months since they had a regular maintenance person there.

We drove the Santa Fe down to the park because the VW’s flywheel went the other day. This is what the mechanic, who fixed the starter, said would eventually happen. I guess we figured it would be a bit down the road. Unfortunately, we don’t have the money to fix her right now so buggie will just have to sit until we’re done with Stanford. After it’s fixed I guess we’ll need to decide to keep her or sell. Maybe it’s just time to let it go. I wouldn’t want to decide till after it’s fixed.

Today I am not going into the Auburn gym. I think my daughter and I are going to the nursery for some soil and maybe a few flowers.

Today is going to be sunny and the first real day of almost 70 degrees. I plan on getting the Weber out so this week I can BBQ at least once. I have some chicken burgers and Boca burgers too. Tuesday is supposed to be the warmest day.

This week is B’s CT and I have Velcade on Thursday. My appt is at 8:30 so I should be out of there by 9am and I’ll go over to the gym and library. Then Friday with Dex will be a home day.

There haven’t been any changes with my sleep apnea app on my Apple watch. It’s generally right above the elevated line. In April I see the sleep dr so I guess that’s when I’ll know more. I’m pretty sure I would not use a CPAC machine but who knows. Never say never, right??

Next week starts our new budget and I have most everything in. I still need to check my Allstate bill and find the due date. I think that’s the only bill not on auto-pay since I’m paying a different amount each time.

Well, off to start the day! What’s new in your world? anything? I think the reason blogs are so interesting to read is other people’s lives are different than mine and I do enjoy peeking into them.

Menu Monday

Posted in Blood test, budgets, California, cancer, cooking, Flylady, meal planning by

Happy St. Patricks day!!

We don’t really do the corned beef and cabbage. I like cabbage but mostly as sauerkraut or cole slaw. Tonight I’m planning baked tofu with sauerkraut and something else.

Tuesday- Probably tacos of some sort. I have some taco meat I made last week and froze so I’ll pull that out and open a jar of my home canned pintos.

Wednesday- I want to start using up the fish I have so I’ll either do salmon or cod. I have a box of Near East rice mix so I’ll make that up too.

Thursday- soup of some sort. This is questionable as I’m not sure what I have. I do have lots of ramen packs so that’s probably what I’ll do and add an egg and veggies.

Friday- I still have frozen pizza but I’m feeling like making homemade. I have an unopened bag of 00 flour so I could use that. plus I have mozzarella and some other toppings.

Saturday- I have a Trader Joe’s mac and cheese I want to use up so that may be it.

I’m home today and plan on doing a Monday tidy-up and home blessing day( which is just a few extra chores). Usually I like to go and do a quick clean of each zone and then something extra.

This week is mellow and no appts. Yay!! But I do plan on going to the gym and the pool at least once. I also want to get a few things at TJ’s like chili powder and ancho if they have it.

Our water bill comes out this week and then that’s it for March’s bills. I’m working on April’s budget this week too. I’m also hoping B gets in for that CT. He’ll probably need to go to Sacramento but that’s ok as long as it gets done. The sooner he gets it the sooner we’ll know how serious it is. 😦

Five on Friday

Posted in Blood test, California, cancer, cooking, frugalism by

I spent $240 on food at Costco but that includes the protein drinks for B. So that was $25 on sale so closer to $200 for food. That included maple syrup(which lasts a long time), granola( because I didn’t make any), and some other pantry staples. I’d like to figure out what the breakdown is for long-term pantry stuff but not now.

I got gas at Costco this week and that was $4.65 a gallon. So saved some money there.

Today is my eye doctor’s appt for a retinal scan to see how my macular pucker is. I haven’t noticed any change, I still can’t really see out of my right eye. The left eye does all the work. 😦

B had another blood draw and his ALP is still elevated( liver) so that’s what seems to be causing the abdomen pain. He has a message to his UCD oncologist to see what she thinks this is about. His ALT and AST are in the normal range. I think one of them is slightly out of range but those are liver markers too. This really throws a wrench into the whole process because I’m quite sure Dr. Lee won’t do the surgery if something is going on with the liver. I guess we’ll just have to wait and see. Somewhat stressful.

We have PGE’s tree people showing up today. We think they’re going to take the one tree today and then the big one next week. If we paid for these trees, it’d be at least $4K for one and the other is huge so probably $5-6K

I’m just glad they’re doing it. I may go for coffee in town as I get too nervous with trees coming down. We’ll see how it goes.

I made black beans for dinner last night. We each had half a cheese tamale with them plus avocado. I only gave B a small portion because of his stomach pain. I told him also to take one of his pain pills and he did and said that actually helped.

Thankful Thursday

Posted in California, cooking, Gratitude, velcade by

I’m thankful for the beautiful weather here in Northern Ca. Our daffodils are up and the flowering cherry tree is blooming. Today is supposed to hit 70. nice!!

I’m grateful B is recovering so well from the laparoscopy and he can pretty much do what needs doing. We have a date now for the surgery and Hipec. It’s April 14. So the plan is to arrive Sunday and he will need labs. Fortunately, the lab is open on Sunday. Then Monday is the surgery although we don’t know the time yet. The surgery is where the surgeon(Dr. Lee) goes in and basically scrapes any cancer areas he sees. Then he is closed back up except for tubes that will administer the chemo. That part I’m not sure how long it will be but it could be quite long. At this point, I am NOT staying in the hospital but will go back to the hotel. After last time sitting in the waiting room just about did me in. Then the plan is I will go see him on Tuesday and check in about how things are. The last time Dr. Lee called me after the surgery was over so I suspect he will do that again. Then B will be in the hospital for at least a week. We haven’t figured out part 2 of getting him as I do not plan on staying all week.

I’m thankful for good food that I cook and feel good enough to do that. Last night we had a piece of the Halibut I got from Alaskian Fish. I think it was the first time I’ve had halibut and it was very good.

I’m grateful I can get my Velcade shot today in Rocklin and not drive into Sacramento. That is a real time saver and emotional one too not having to deal with Sacramento traffic.

I’m not so thankful for Dex overall, but it does do the job so I guess I am grateful for that.

I’m thankful ” to be alive on this fresh morning in this broken world”. What else can I say? Our democracy is in serious danger of falling apart thanks to tRump and mUsk. What a bunch of assholes.

Frugal Friday on Saturday

Posted in budgeting, budgets, California, cash envelopes, swimming by

The rain is still with us and the storm gates are open. Santa Cruz really got hit hard with the wharf breaking off. I was hoping to walk this morning so as of 6am , it’s still raining so I see how it is in 30 minutes. I can walk a little later if it stops.

I have most Christmas stuff away. The little tree in the living room just has the lights on it, so I may leave that up a day or two more. Otherwise, Christmas is over.

i went down to the pool yesterday and it was AWFUL. I can count on one hand how many times it has been crazy busy and does not invite swimming. I waited 10 minutes and then did get a lane to share. But the coast guard was training, then the college kids; maybe 15 of them were taking up most lanes. I almost left but glad I did my swim. next week I won’t be able to go at all because of New Year’s, it’s closed and then on Thursday I have my Velcade shot. I wore my new Apple watch to track swimming and it was fun. I still couldn’t remember how to unlock the water though. ( a feature to release any water if any in the watch). But when I came home my daughter showed me. I didn’t see any water come out.

I’m mainly using it to track sleep and sleep disturbances which basically is sleep apnea. So based on a week’s tracking, I was elevated every night which means some sleep apnea. This is giving me a good idea of my sleep patterns which was the main reason I bought it. I’m trying a few things, like no wine after 7pm and seeing if I can lose some weight. The thing is if I’ve had sleep apnea for years with no problems, then I’m not sure what it all means. Well, my appt with the sleep doctor isn’t till April so it gives me time to work on different things.

Budget wise, I have January’s budget in place. I don’t think we have any annual bills coming up so that’s a relief. I’m trying to get ahead with the spring annual bills like property tax but there’s not a lot left over to add when it’s all said and done. Still something is better than nothing. I’ve set the food budget at $500 for the 3 of us. That’s a little tight but I am going to try and use up freezer stuff. So far for food, I’ve spent $139. I plan on hitting Costco this week so that’ll add up. I don’t need a whole lot but buying from Costco means each item is more expensive though you get more. Plus that’s what stocking up is about.

In January, I need to buy some clothing items such as socks and a few T shirts. I think I’m ok on jeans, but may need a new polar fleece jacket. The one I have is LL Bean and it’s held up for 5 + years so I may get another one. Since I wear the same things daily( levis, T shirt, a demin shirt or flannel and my LL Bean fleece. some stuff does wear out. I’ll try to budget a $100 for January and see how it goes.

Today is a home day for me and I plan on cooking some brown rice and tidying the house. If I can kick the cats out, I’ll vacuum.:) they are spoiled!!!

Thankful Thursday

Posted in books, California, camping, cancer, Gratitude, peritoneal mesothelomia, social security by

This has really been an awful year. B getting diagnosed with peritoneal mesothelioma was such a shock. Also, it doesn’t have a very good prognosis. Then because of this, we had to cancel all our RV trips and it’s been hard to not head out somewhere. All in all, it’s just been a hard year. As we close 2024, I’m still thankful for many things.

  • that he’s had the last chemo and will get a PET scan soon. So going into 2025, we should know where he is with it all.
  • I’m thankful that, even with me getting Velcade, I can do most things that need to be done.
  • I’m thankful my kids are there to pick up the slack and help us so much.
  • I’m grateful that even though money is always tight on SS we can pay our bills. There’s not a lot left over but we have a roof over our heads, food, and hot water, wood heat and lots more. It would have been nice to not have a mortgage at all but that wasn’t in the cards for us. At least we can pay for it.
  • I’m thankful for the library and the world of books. Books, even as a child, took me to places I’d never been. Today, at 72, I can say books still carry me to unknown places and show me a different perspective.

I’m hopeful for 2025, but I think it’s still going to be tough going especially when we head to Stanford for the surgery.

One step at a time, one step at a time.

My appt went ok yesterday. It was quite busy in there but I still got in on time. Dr. L asked if I had any sleep apnea. Not that I know of. I guess my hematocrit is slightly elevated and he said to consider getting a sleep apnea test. Even if I did have it, I wouldn’t use a mask at night unless it was severe. Does anyone out there have any experience with sleep apnea. My guess is the hematocrit goes up and down because of not drinking enough water. Dehydration is one cause. I never drink enough water. Plus it’s been 1 point out of range for a year. 15.5 is high normal, I’ve been 16.4. I’m not sure why he brought this up now, but I said, I’ll think about it but I really have too much going on to add one more thing. I’ll do some more research and see what I find out.