Category Archives: Myeloma

Thankful Thursday

Posted in Blood test, budgets, California, cooking, Myeloma, swimming, Uncategorized by

I seem to have a few really good nights sleeping and then a not-so-good one. There doesn’t seem to be much rhyme or reason, but I am thankful for the nights I do sleep well with minimal disturbances. Using the CPAP has been an interesting experience, and overall, I’m quite pleased with the results. There is no snoring with the machine at all. So that was solved. (That’s a sign of sleep apnea.) I’ve had almost no ‘disturbances’, which is how they calculate sleep apnea, and my blood oxygen has improved, although only slightly. I would still like to try Zepbound, but I’m not sure I could afford it. I know that my prescription plan doesn’t cover it, so it would have to be direct from the drug company. Well, I’m not there with that yet, maybe next year.

I am so thankful we live above the fog. It has been socked in in the valley and even through Auburn. As soon as you hit my exit, it clears to brilliant blue skies. And the temperature is at least 10 degrees warmer here. Unfortunately, I have to go to Sacramento today for my doctor visit, but hopefully that will go quickly. My labs just came in, and my kappa went to 23.9, so up a little, but the ratio came down to 1.85, so there’s some good with that. Overall, I’m pleased it didn’t jump higher.

I was able to get a swim in yesterday, and thankful I had a lane all to myself( a rarity). i do wish I were getting there more, but it seems there’s always something that happens, and I don’t want to drive that extra day. Like tomorrow, I know I’m going to want to stay home as I will have been out 2 days in a row. (sigh)

I am NOT thankful the cat threw up all over my Apple keyboard. 😦 bad cat!!!

I’m thankful for all the wonderful Christmas B, and I had both alone and then with kids. I remember our first Christmas together. So, I was a freshman at the University of Arizona, and he was a sophomore. I think we did a few gifts that were of the hippie variety, and then our Christmas Eve dinner was brown rice with nuts and raisins in teak bowls. My mother actually sent us those bowls. Then Christmas day, I used our neighbor’s oven to bake a lasagna. Our little apartment didn’t have an oven. That’s how the tradition of the lasagna started. Good memories.

Simple Sunday

Posted in California, cancer, meal planning, Myeloma, velcade, Walking by

I woke up at my regular time, and the clocks were back an hour. Based on the light, I went out to walk at 5:50, which yesterday was 6:50. I liked it as no one else showed up. It’ll be this afternoon that I won’t like it at 4, when yesterday that was 5. But every year we go through this and adjust.

My son visited yesterday and took a big load of wood to the dump. He thinks maybe 2 more loads and it’ll be gone. A good accomplishment. I went to the store and picked up sandwiches for us all and that was nice.

Today, I’m not going into the Auburn gym because my daughter and I are going down to my son’s place to visit and go to the farmers’ market. He has a lovely park that is right near the American River, and it’s quite nice, so we’ll go over there too.

This week I have Velcade and then my new lowered Dex. I didn’t notice a big difference, but maybe the Dex wore off sooner. Dex affects my breathing, and I did notice that the night I took Dex. It’s just a matter of getting through it. 😦

I need to go to Costco too this week. I wanted to get some of their sale items. The chicken pot pies are on sale, which are good for an easy dinner. The Starbucks holiday coffee is on sale, too. Buying stuff when they have their sales is definitely a big savings.

Because of Velcade this week, I’ll probably only get to the pool and gym once. Also, I need to make an appointment for the Santa Fe as the service light switch isn’t working( it’s a computer chip, apparently.) I got it to scroll once, but then it stopped working again. So I need to do that this week. At least I don’t have any other appts.

We’re in for another beautiful day here in N Ca. The wet weather is expected to arrive by Wednesday. Also, I hope Prop 50 passes so we can redistrict some of these worthless Republicans.

I need to write up a menu plan for the week and what house chores I need to focus on.

Friday Things

Posted in budgets, California, cancer, cooking, frugalism, Halloween, Multiple myeloma, Myeloma by

Happy Halloween!!! Barclay loved to dress up for Halloween. We always took the kids to Auburn to trick or treat. It was fun! Those were the days, my friend, we thought they’d never end:(

I know I’m repeating myself, but this weather has been so nice this week. Sunny and temperatures in the mid 70s. Just lovely. I think the weekend is the same, and then next week starts to show rain again.

I watched Practical Magic the other night, and that is a fun movie to watch for Halloween. I’ve watched a couple of series on Prime. Margot is one and a few others. Nothing great, but it helps pass the evening hours.

I didn’t resubscribe to my Prime membership because my daughter offered to share her account. She pays way less being an educator. So that’s one less bill for me to deal with. Also, donating the Subaru has reduced my Allstate insurance, so that’s another savings.

I’m deciding in the next hour whether I’ll go down to the pool. I’d like to go, but there are some outside things I want to do while this weather is so nice. Plus, if I go to the pool, that’s kind of my energy output for the day, and then I don’t get a lot of other stuff done. Well, I still have an hour to decide.

I did pressure can pinto beans this week.

I ended up with 5 pints. It does take up the whole morning since pressure canning is time-consuming. I might do another round next week. We use the pintos the most.

I considered myself brave and went to Speedy to get the Santa Fe’s oil changed. Barclay always did this stuff, so it was kind of a big deal for me. Plus, I really dislike doing stuff like that, but, well, now I have to. Oil changes are so expensive now, like everything, I guess.

I need to go to Costco too, so I think I’ll plan that for next week. Next week is my Velcade injection, so I could do it after that. Also, this chemo will definitely give us a better picture of how much my numbers are going up. I looked back at what happened last time in MyQuest chart, and at this point my numbers started going from where they are now at 25, then to 30 something, and then they starting doubling. So this one will give us a better view of the trend.I don’t see Dr.L till December so we can figure it out for January. That is the exact time of when I changed treatments twice. It was in 2021 and then 2023. sigh:(

Frugal Friday and misc. stuff

Posted in Blood test, budgeting, budgets, California, cancer, decluttering, frugalism, Multiple myeloma, Myeloma, Uncategorized by

We ended up having a lot of rain!! But now it’s blue skies and the temperature is lovely. We should be having day temperatures in the 70s. We have some outside things to do, so that’s perfect. I need to paint the new gutter that S put up and tidy the patio up for winter.

I have a small pile to go to the thrift store and will probably do that on Sunday after the gym. I’m still going through different areas to find more things to add to the pile.

My son and his partner came over on Wednesday afternoon, along with the partner’s parents. They are lovely people, and I wish B could have met them. But they were here for the dad to check out my son’s Subaru. The dad is very mechanically minded. My son is giving( with my permission, as it is my name) the Subaru to him for free. They checked it out and will take it hopefully soon. As soon as that’s done I can take it off the insurance and that is going to save me over $700. I’ll call allstate as soon as it’s signed over.

My daughter and I went to Costco yesterday to finish shopping for the stuff I didn’t get last time. Most of it was non-perishables like the smoke alarms( wow, they were expensive even on sale), TP, and laundry soap. water, and a few other things. From there, we went to my favorite pizza place for a slice of New York pizza. It was fun. I also got the car washed since Quick Quack was just across the street. Costco ended up a little over $300 but I need to break down non food and also long term items and see what the total was.

My food budget for the month came in at about $350, so I’m really getting the hang of not buying so much. The Costco trip I’ll be putting on next month’s budget, which starts next week.

In not-so-happy news, my labs came back with a 4-point increase, so myeloma is definitely on the move. I checked in with Dr. L, and we decided to go one more month and see what the next increase is. I’m disappointed, but it was to be expected at some point. I just wish I could have had at least some period of time with things ‘normal’ after B died. Well, at least I’m asymptomatic which is good. Also the ratio of kappa / lambda was the same so that’s good. The plan will be to try to do biweekly,depending on how next month goes, and if that doesn’t work switch to darzalex fast pro. I’ve made it 20 years with Myeloma and know I’m one of the lucky ones. Still reality sucks that I have to deal with this. 😦

Mujō (無常)

Posted in bread, budgeting, California, camping, cancer, Death, husband, Myeloma, simplicity, Uncategorized by

The transient and ever-changing nature of things. As with Wabi Sabi, impermanence of things and the beauty in the imperfect.

Mono no aware, Mono no aware (物の哀れ): 
This term translates to “the pathos of things” and is an aesthetic appreciation for the transient nature of life. It involves a gentle sadness or wistfulness at the passing of things and a deep sensitivity to their ephemeral nature. That’s exactly how I feel in my life. It feels somewhat ‘unreal’ Barclay is not here with me to laugh with, joke with, travel with and everything in between. But I do take comfort in he’s not suffering anymore. It was a very difficult painful last 3 months of his life. Well, now to fall.

Fall is in full swing, here in N. Ca, I get the feeling of Mono no aware and Mujo, and wabi Sabi all rolled up together. We’ve had rain and cloudy days, as well as Tahoe-like days with big, fluffy clouds. I’ve had a few twinkly fires already, since the house stays cool even if it’s nice outside.

Just to back track a little here:

Barclay and I practised Zen Buddhism for many years after our Quaker roots seemed to fade away. However, Quakerism and Buddhism are very similar in fact. Both embrace simplicity and a WAY of life. Of course, Quakerism is rooted in a Christian context, and Buddhism in Eastern philosophy as taught by Buddha.

Right now, the impermanence of life is very real for me and maybe somewhat depressing. I am trying to embrace the Mujo concept because it does help me get through the day and realize that life does go on, and it will for me what whatever time I have left. Some of that is on my mind because of my rising kappa light chains and thinking about having to change treatments by January if they continue to go up.

I know that things will change, and I need to change too. But for now, I’ll try and take comfort in Mujo and mono no aware.

On a brighter note, my kids put together a very nice birthday for me. My son came and took a huge load to the dump( which I wanted done). We got a Round Table pizza, and my daughter had gone to Safeway for some small squares of cake to share. I didn’t have any champagne that day to celebrate, but I will soon.Turning 73 is not much different than 72 for me. The real change for me was at 70. Then I felt like I was getting old. Now, I’m old and just keep trying to do the things I love like swimming, walking, the gym and I hope some day in the near future doing some camping again. If i could afford the camper type van that’s what I’d do. We still ( my daughter and I) are going to check things out sometime in the spring. A small tent trailer is very doable, but I like the idea of self contained. Time will tell. Also, If I got one I’d get a loan so that the payment would be what we were paying for rubi. And we’d have the trailer as our trade in.

Well, I’ve rambled on a bit here, so that’s it for me. I do have the day home today after going to the gym yesterday, so I’ll do some tidying and make some sourdough bread.

Friday Things

Posted in Blood test, books, bread, budgeting, budgets, California, decluttering, Myeloma, swimming, velcade by

It’s been a busy week. I’ve done tons of decluttering. The back of the Santa Fe is full, so I’ll go to Goodwill, maybe even this morning.

I emptied 2 binders of recipes I had saved and only kept the ones that were really favorites. Most of them can be gotten from the internet anyway. I went through the last two vintage suitcases that have my kids’ Waldorf toys and got rid of a few little things, but mostly just consolidated them into one, so the other is going to the thrift store.

It’s a strange place to be, but I’m determined to whittle things down to just the bare bones and keep the poetry. I have two empty shelves in the closet now. The bread maker is in there on a shelf and I haven’t decided on the bread maker yet. I think I’ll plan a sandwich loaf over the weekend, and then that’ll help me decide whether it’s a keeper or not. Good bread is easily bought at Costco and then frozen.

It’s raining this morning, and it’s wonderful to have everything watered.

We had a fun (expensive ) lunch with my son this week, and it was worth it. It was only burgers for all three of us but now a days that’s $20 each for a sit down meal. I also went to Costco after my labs on Wednesday. Something was off this week because I went in twice, and both times my lab orders were NOT there. Fortunately, I thought to get a PDF copy, so they did do the labs minus one (the SPEP). I scheduled it for next week but I think I’ll just cancel it and get it next month. My kappa Light chains went up another point. So now it’s at 21.5 . If the trend continues I’ll need to do something by January. I see Dr. L in October and see what he says. I can only hope it drops again next month but who knows.

All the bills are done for the month, so that feels good. It’s a good feeling to know it’s all taken care of for now. I’m still waiting on the Allstate bill to activate, and then my only choice at this point is to make the partial payments.

I’m planning on going down to the pool this morning and then straight home. I do need to get water at Costco, but it’s too heavy for me to get alone, so I’ll see if my daughter can pick some up after work.

I haven’t been reading much, although I did start my annual rereading of The Hobbit and LOTRs. I have books to drop off at the library, so I’ll check what’s new.

I scheduled my flu shot and COVID-19 booster for next week, so I’m sure I’ll be down for a few days. That’s usually what happens.

Update: all dropped off!

Five on Friday

Posted in Blood test, budgeting, budgets, California, cancer, Myeloma, travel, Uncategorized by

We had the most wonderful thunderstorm and rain last night with lightning. We got a lot of rain, and the ground is pretty soaked for now. Yeah, for the rain. Although not so good, it started a lightning fire across the canyon, but I think I saw it was contained.

A low spend week for the most part. My daughter went to Costco after work for a few things, namely dishwasher pods that we needed. Plus water and just a few other things. Food came to @ $47, and then the wine I want to take to the coast was $18. It’s called Sonoma-Cutrer. I haven’t had it before, but it’s supposed to be good.

All the July bills are done, so I have August’s budget almost done. With SS decreasing, I have made a few adjustments. I think mostly it’ll be decreasing food costs and miscellaneous expenses. Most of our bills are fixed, so I can’t do anything there.

Let see, the good news is LLS opened funding for Myeloma, so I hopped on the website and was approved. I just need the doctor to fill out his form. Having that money will be a great help in paying for my insurance.

Other good news is, my kappa light chains stayed about the same, 19.8. So up from 19.6, but that’s really marginal. So good news on that front.

I had fairly good energy this week after the low with Dex. I got the living room ceiling painted. It took 2 days working for about 30 minutes each time. I also went to the paint store and bought another gallon of Simply White. Except for the bathroom, our whole house is painted that color. It makes it easy to do touch-ups and keeps the look clean and minimal.

Well, I’m off to do some tidying and put some stuff away.

Five on Friday/Frugal Friday

Posted in budgeting, budgets, California, cancer, Credit cards, frugalism, husband, knee injury, Multiple myeloma, Myeloma, velcade, Walking by

Frugal-wise, I’m not in the Cotswolds like Mavis over at $100 a month. She probably should change the name of her blog. But she’s got the money, so why not enjoy it? Plus, she loves England.

Here in my neck of the woods, N. Ca, it’s been too hot to do much outside. The temps are much nicer in the coming week, but still some 90’s, and I saw it gets in the low 80’s, so that will be much nicer. I miss sitting outside in the mornings and afternoons.

Money-wise, just paying bills, and I had to pay the overpayment from SS. It’s ok, I’ll deal with it. It’s done, and I’m going forward. I just need to work the budget with the SS I’m getting. I’m still working on my credit card bill because I put the cremation on there. But I should be able to knock it down next month. I hate having a balance. But needs must.

After my Velcade shot, I stopped at Costco to pick up some lox for the bagels I bought at Noah’s. I also picked up some rose wine( my favorite) and a Gloria Ferrier champagne-type brut. I wanted Mumm rose, but they were out.

I gave my daughter $100 in cash to buy the paint for the studio. She’s really done a great job clearing it out and rearranging it to suit her. We might go get that today as long as she drives, since I’m on Dex. I don’t sleep well on Dex nights, and last night was no exception.

I also have a food bank donation to drop off and some more stuff for Goodwill.

I’ve almost finished most of my list of things to do related to B. If something comes up, it’ll be an outlier I don’t know about. I may take care of a few things today or not. It depends on my focusing on which Dex does affect. So we’ll see.

I’m still debating getting the next steroid shot for my knee. Mostly it’s ok. When I try and do a little extra walking or swimming, it acts up, but then I seem to recover the next day. The shot did help quite a bit, so there’s that.

Simple Sunday on Monday

Posted in Blood test, books, California, cancer, Death, Myeloma, reading, Uncategorized by

This heat wave we’re having is doing me in. 96 yesterday and the same for today. Ugh. I think a bit of a cooling trend starts on Tuesday, but it’s not huge. I read all my library books, so I picked from my shelf some old Hillerman and looked through some decluttering books. You know I’m desperate when that starts happening. I do plan on going to the library tomorrow so I can get my hold and a few others as well. I was planning on going on Thursday after my Velcade shot, but my hold expires by then, so I need to get it before that.

Menu planning is still hit or miss these days. I still have the basic menu plan going of using things from the freezer and fridge, but I’m not super motivated. It’s probably a combination of the heat and just finding a new ‘normal’ balance. My daughter bought an air fryer on Prime Day, so she’s been experimenting with that. So far, she’s made sweet potato fries and wild cod in panko. Both excellent.

Sunday- used up a bag of Trader Joe’s chicken chow mein with added chicken.

Monday- Tofu something as I have 2 containers to use up. I also have some broccoli to use.

Tuesday- I’ve been feeling like crock pot pintos, so I think I’ll do that with tortillas and avocado if they’re ripe. I bought the bag(6) from Costco. It takes a while for them to ripen, but as soon as they start to ripen, I put them all in the fridge and they will last weeks in there.

Wednesday- I think we’ll do spaghetti with marinara and maybe some meatballs.

Thursday- Freezer meal of some sort. I need to go out to the chest freezer( that’s in our outside laundry room) and check.

Friday- I’ll make a pizza if it’s not too hot.

Saturday- ?? TBD

Today I’m going to meet my library friends for a coffee. They have been very supportive, and the one gal is the one whose husband died of Myeloma a few years back. His Myeloma came on very fast, he was in his 80s, and Sutter really didn’t address his issues or treatment till it was too late. It was very sad.

All in all, things are ok. I’m still cleaning out B’s desk of odds and ends, like pens and notebooks. Nothing major, just a little at a time.

I have my Velcade shot this week and then Dex days. Actually, the dex isn’t too awful when I do it between 2 days. It’s still Dex no matter what, but it’s less intense. Then I’ll go get my labs next week.

Simple Sunday

Posted in Blood test, bread, budgeting, budgets, California, cancer, cooking, Flylady, home stuff, Myeloma, simplicity by

It’s warm out but cloudy right now. It’s supposed to clear up and be in the 80s, so that’s a first this year.

I might go to the Auburn gym to do weights, but I’ll decide in a few hours. It depends on what I want to get done today. I vacuumed yesterday, so it’s maybe a quick mop. Flylady is the living room zone. Usually, that means in my LR, dust the Easton Press books and the ceiling fan, and wash the mirror. So not too much overall. Most of that I do anyway on Monday mornings when I do my house reset for the week. I need to start on the sunroom windows so I may do some of them.

I have some sourdough starter ready to use, so I’ll get that together. Last night we had the Costco chicken burgers on the BBQ and they were delicious. I think I’ll put together a chili tonight since I defrosted some ground turkey. I’m still working my way through the freezer, and this was the last pack of Costco turkey. I’ll probably cook that in the Le Creuset on the stove instead of the IP. I have my pressure-canned beans to add, so I don’t need the IP to cook the beans. I’m still contemplating the electric pressure canner. Does anyone reading use the Presto one? They are not cheap, but from the comments in the Facebook group, most everyone loves the convenience. Mostly because you set it up and there’s no watching it, etc, like the All-American. Like I said, it’s expensive, so not something I’m rushing to do.

It should be a quiet week, no appts, unless B ends up needing a blood transfusion, which I certainly hope not. He gets labs tomorrow, so he’ll know by Monday afternoon. I have nothing but need to call the sleep place to arrange getting the home test, and I need to call Ortho, as they should have reviewed the MRI by now. Mostly, from Ortho, I just want to get the PT referral to start doing that.

I do plan on going down to Roseville to the gym at least once. I think I’ll try and coordinate either WinCo or Costco with that.

How does your week look?, Do you have routines you follow, like Flylady? Some people really like Clean Mama ( I think that’s her blog name), but I tried it and it seemed way too involved for me. I’m always interested in minimalism, especially in older people, and how that helps with daily stuff.

Oh!!! I forgot my labs came back just a smidge above high normal, so all good. 19.6 kappa light chains, high normal is 19.4. It does tend to fluctuate, but this is still excellent. Boy, I am always so relieved that Velcade is working because I couldn’t handle one more thing right now. 😦