Sunny and cold!

It was 32 degrees this morning when I walked. Everything was frosty. B felt good enough to come along and it was a lovely romantic walk in the moonlight. Jupiter and Venus? are aligned and quite a sight. I think Mars was there too but not as bright.

Yesterday we drove to Sacramento for a follow up with the transplant doctor. It was an informative appt but there’s no real difference yet in numbers. But it’s still early in the cycle and it would be next week things could start to show something.  For the actual transplant the hospital stay will be a month and then we will need to be in a hotel nearby as he will be having to visit the hospital daily for a month.  Not sure how that’s all going to work out but when we talk with the nurse coordinator we will know more.

Today is a gym day and B gets labs. We’re still trying to figure out the SDI and we’re waiting on a call from HR. They have NOT been helpful so we need more info. Also tomorrow we will call EDD to see if we can get the claim going.

Tonight is Taco Tuesday and I’m making tamales not tacos but hey it’s Mexican.

My son started back at Sac State this morning. He’s still trying to get credit for his internship which would allow him to drop one class and make his load a little easier.  My daughter has a day off due to MLK day she gets a comp day.

All in all, things are going along.

 

Friday Stuff

I got a call from my oncologist’s office that the Dexa scan came back in the normal range. Yay, one less thing to think about. Kinda a relief.

Today we’re off to chemo day 2, and B needs a blood transfusion as his Hemoglobin was down to 7.4. I am so hoping that the chemo kicks in soon and he will need less peripheral support( transfusions). Realistically though it could be 2-3 weeks.

Then I’m coming home to do some tidying and laundry. My son, who gets off at 4: 30, is going to pick up his Dad so I don’t have to go back out. That’ll be nice.

 

I’m making pizza for dinner and have the dough made and is doing a rise. I thought I’d do a simple marguerite one and then an Italian sausage and mushroom one.

The no spend January sorta fizzled out as I went to Target yesterday. Well, I got cat food but also a candle and a faux eucalyptus branch made by Hearth and Home which is the Magnolia line. I’ve been buying fresh eucalyptus at Trader Joes but haven’t been there in quite a while. So I thought these would do nicely as a substitute. I shall keep focused on the No spend but things may sneak in here and there and I’m keeping track of that. For me just bringing awareness into what I’m spending money on is an eye-opener.  But since I don’t go out for coffees a lot or buy clothes, the main thing I spend on is household items. So that’s all good as long as the budget is there.

If you’re a Dracula fan, I just finished ‘Dracul’ which is written by the great grand nephew of Bram Stoker.  It was superb!!!

Well, off to town.

 

 

 

Here in soggy California

So still raining, but today is supposed to be sunny and then back to rain. UGhhhh, I really do get sick of it. Plus the yard looks rather sad and really needs some picking up. I did clear off the patio the other day as it looked like everything had been tossed on the patio table in hopes of someone tossing it. That turned out to be me. It all still looks forlorn and I’m seriously thinking of hitting up Home Depot for some kind of winter flower or plant to spruce it up. Anything to bring a little cheer to the front door area. Our entry is weird enough that the front door is on the side of the house and we have a gate from where we park cars that we walk thru so the angle is always weird. Plus the patio is right there and that adds to the visual clutter.  The original front door was where the porch was that we rebuilt and enclosed when we were remodeling. It’s all done with 2x 6s so it’s code but it wasn’t in our final.  I suppose if we ever were to sell we’d need to do something but that’s neither here nor there yet.  so that door which was the main door also was placed weird that it faced the lawn that was there and not a driveway either.  So now that door goes into the front room and the other room is my office. But originally that was daughters room. It’s actually quite cozy with french doors on one end. The floor is wide planked pine that B put down over the concrete floor that was there.  I suppose if we ever had money a proper remodel would be nice.

Anyway, enough rattling on about that.

So far this week, we’ve had the oncologists/hematologists appt and that went well. She took pictures of poor B’s mouth. We asked for a pain prescription and about other stuff and she was very thorough. From the second BMB, there were no other FISH (genetic anomalies). So it looks like it’s the 7 q deletion plus excessive blasts( that’s the bad part). She’s also hoping that after this second round of chemo the good cells will start winning over the bad cells but that remains to be seen.  He had another transfusion on Monday and starts chemo today. So the next 5 days will be constant. Hopefully, though, it will go smoothly. His counts are so low that risk of infection is there. So far he’s done fine except for the mouth sores.

I had my DEXA scan and shall see how the bones are in a week or so. Honestly, who cares at this point if I’m pre-osteoporosis.  Or maybe it’s there already.  I would just have to see what the doctor says about what to do with medicine.  Because I’ve had so much Aredia and Zometa, that can actually affect the bones sometimes in a negative way after years of treatment. So we’ll see.

I finished watching the ‘Tidying up with Marie Kondo’ and it was really fun to watch. Amazingly, B did all his clothes, which were not a lot, but still, his drawers and closet look absolutely great!!! If you can watch it, I’d highly recommend it. I do think there are other methods of decluttering that are just as good or for some better. Some people do room by room and that works too. I think because I had done so much decluttering starting with Fly Lady, that when I got to Marie Kondo’s method it wasn’t overwhelming. But if you haven’t, I could see getting out every book you own would be daunting.

So off to the gym today, drop B off at infusion and then go get chicken food.

Last night I made a Thai Chicken soup and it was delicious.  If you have leftover chicken and a can of coconut milk, I’d highly recommend it.

 

Simple Sunday

It’s quiet here. We’ve been to the infusion center for B’s platelets so that’s good. He’s having quite a bit of trouble with mouth sores which we think was from a certain antibiotic, not the chemo. But still it’s uncomfortable and it’s going to take a bit to heal with his WBC so low.  He’s on a different antibiotic so hopefully, that will kick in soon.

Other than that, I went to the gym for a short workout.

I’ve been in the living room zone as that is only today and tomorrow. Then the next zone starts on the 1st, which would be the entryway, dining room and something else.

Since our table is in our living room I do that area when I do the LR zone.  I’m doing a bit deeper clean( wiping all shelves and baseboards) since it’s the first of the year.

I’m going to cook an organic turkey roast for dinner along with some stuffing and peas. Nothing fancy, just using up stuff from the freezer. In January, I’m doing a no spend month and freezer clean out. The no spend is just nothing other than food and essential things like cat food. I’ve spent quite a bit in December in foodstuff mainly because I went to Costco twice. I usually go to Costco once a month. So that was definitely more expensive.

This week I have a dental cleaning and B has his appts. If he spikes a fever with these mouth sores he needs to go the ER, so let’s hope he doesn’t. But if he did at least he would get intravenous antibiotic which would accelerate healing his mouth sores. Still, let’s hope not.

 

Wintery days

It is very cold and windy here but the sky is bright blue. Very California-y winter day.

We had a lovely Christmas and although I was going for complete minimalism, that didn’t exactly happen. But I think it was just the right amount of gifts and they were lovely. I received some new silicone spatulas( much needed), the DVD of Gone with the Wind, of course, the Vita-mix which I am absolutely loving and a Vitamix cookbook plus Ina Garten’s new cookbook too.

Gone with the wind by Margaret Mitchell was a book that shaped my outlook on life as an 11-year-old. Not the racist part of slave owners but the struggle to keep what was of value.  I was telling my children, that we actually went to NYC to see the movie at Radio City Music Hall. At least I think it was RCMH, not completely sure.  I must have read the book 10 times growing u along with A Tree Grows in Brooklyn.  Both were huge influences on me.

Anyway, then we had a great lasagna, cheese manicotti, a salad, and bread.  B is not drinking any alcohol with his treatment stuff so my daughter and I shared a nice chardonnay.

His numbers have been tanking and it’s mostly due to the chemo which is good that it’s working but until the good cells out do the bad ones, he will need more transfusions, unfortunately.

 

I drove down to Sacramento for my oncology appt and traffic was practically nonexistent and I made it in record time. All my labs are normal so I’ll see him again at the end of February. He was informative about MDS and did encourage us to have the brothers checked for being a possible donor. He said it’s a simple blood test to check that first. It will give B the best chance of success if one of them is a match. I guess we will swallow our pride and ask although I said that doesn’t mean I want to have them in my life. So we shall see.

It also appears the best route for working is not working and going on disability so we will do that next week.  At first, I thought B could work between appts but there is no letting up right now with needing transfusions and platelets. Plus he can’t risk being around anyone who might be sick.  So hopefully it goes quickly and smoothly which I think will happen.

Tonight I’m making a spinach soup using the Vitamix and it came out silky smooth. The recipe is one of made many times from the mystery cater stories by Diane Mott Davidson. I tell you, if you’ve thought about one and are undecided, I can tell you it is really amazing. Plus I’m baking potatoes and 2 small pieces of wild Alaskan sockeye salmon.

The tree is down and the ornaments away. The little live tree I’ll have B move this weekend as he will need the dolly to move it.  So, the house is back to it’s clean and tidy self.

Five on Friday or a few more…

It’s been a whirlwind week ending today with us being out ALL day at the Roseville Hospital for the port placement. Poor B, no water or food till after the procedure so that’ll be @ 3 pm. Plus, I get to drive in crazy Friday traffic down there which will NOT be fun.

Oh well, it’ll be over soon and then onwards…..Actually having the port will be wonderful as he won’t need peripheral IV’s.

Rain today but clearing for a few days. It’s wet and damp and chilly outside.

First, off this morning, I’ll take B to infusion for platelets. His platelets need to be over 50 so they can do the surgery. So actually we won’t know that till later.  Then I’m going to come home feed the dogs and give them some time out and then head back into town.

I have Christmas dinner all planned I just need some manicotti noodles for the manicotti.  Plus a baguette for garlic bread.

We’re still trying to figure out if B will continue on PTO or what.  He’s officially off till new years but after that is the decision to work some from home and do some local stuff or keep putting in for the PTO.  Honestly, it’s a tough choice.  Work would help give him some focus but then there’s also a lot of stress with labs, infusions and then the next chemo session will be January 10.  So, I guess the best thing is to keep filtering the information and then make a decision by January 1st.

Dinner is a complete unknown as we’ll be home later. We had a pizza lunch the other day so I wouldn’t buy a pizza. Maybe spaghetti???? I’ll think about it later.

Our son is down in Yosemite till tomorrow but with the government shut down possible they will close the park. So I’ll need to text him as to whether they should leave today.

 

Oh, great news for my labs…

kappa light chains 15.5

lambda light chains 12.3

ratio  1.26

 

so Hurray, one less thing to worry about right now.

 

 

 

 

 

It’s official….MDS high risk

So it was the local medical oncologist that had the biopsy results from the other Dr. The official diagnosis is Myelodysplastic syndrome high risk because of the 7q deletion.

So at least he doesn’t need to do the induction in the hospital if it was leukemia. I guess that’s something.

For now, it’s going to be the 5 days of chemo every 28 days. Hopefully, the drugs kill off the ‘blasts’ or baby leukemia cells which are bad and then his bone marrow will start producing the right cells. Also, that will mean less and fewer transfusions and platelets.  Then it will be a donor transplant. I seem to recall the transplant doctor saying hospital time a few weeks then outpatient. Fingers crossed that it works as there is a 50% chance it won’t and he’ll die. Or he’ll need to go back on some sort of treatment. 😦

Today, after he gets platelets which do go very quickly after the IV is in, we’re going to Costco so I can load up on organic greens for those smoothies and fruit. I really hate going this time of year with Christmas, but I also hate spending a lot of money on greens at the store when can get a big bag at Costco for the same price if not cheaper.  I will get some other things as well since we’re there and call it my weekly shopping.

I’ve got a new sourdough recipe I’m trying out and it’s on its second rise. But we’ll be gone for a few hours so It’ll be longer than usual.

I’m going over to the gym for a tiny bit while he’s at the infusion center. I can probably get a good 30 minutes in.

Some of my labs are in but this new patient portal is a PITA as it says results released in a few days( it gives the date). WTF, there my results and he’s viewed them so why??? I didn’t see the big 2 tests SPEP or Light chains but they will be coming in soon I suspect.

Oh well, if it goes up again, I’ll just have to not flip out and go with it. Fortunately, I’m not high risk and my numbers have never just shot up so that would give me time to adjust. I see my doctor next week right after Christmas.

I haven’t been too inspired with cooking dinners so we’ll see what I feel like tonight. Mostly I’ve done just what’s easy without a lot of thought. Last night was pinto beans, a frozen enchilada and TJ’s cheese tamales.