No Spend January

I’m going to do a no spend month. If you’d like to do it too, it’s pretty easy.

Basically, you don’t buy anything non-essential. Food, pet supplies, household stuff is allowed but no extra stuff.

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I plan on not buying anything from Amazon.  If I need something such as Rid-X which I do get from Amazon, I’ll just either wait or go to Home Depot. So, no clothes, coffees out unless we use a gift card.  We do have a Panera one that maybe when B feels better we can go.

I’ve done this before and it really does make one aware of the things that money is spent on.  Generally, I don’t buy a lot of extra stuff but still, there is some.  I didn’t ever feel I saved money per se, but it did make me more aware of where I spent money.

On another note, I’m almost done with the SDI form so we will do that soon. There are a few things were not clear about but overall it is straightforward. I think this will take us thru the transplant and then after that, we will need to do something else.

On a fun note, if you have Netflix, there is the new MarieKondo series called Tidying up. I’ve watched 2 and it was fun. She is a really sincere person and I like her approach. It’s definitely worth watching.

Today is a gym day, but I’m not feeling great(probably stress) so I’ll just do some weights. There is the Koffee Klatch lunch but I’ll probably skip that too even though I’d like to go.

Dinner is unknown…

 

2019, here we come…

It was a quiet new years evening. We watched a few funny movies. Abbott and Costello meet Frankenstein which is hilarious and then Tremors which is also funny weird.  We had sub sandwiches which were yummy. Poor B had scrambled eggs as that’s about all he can eat right now plus pudding. I really hope these mouth sores resolve themselves soon.

Today, I walked predawn and the moon and Jupiter are quite near each other. If you’re up before dawn take a look. It’s pretty. I love crescent moons as I think of ‘priestess’ things from days gone.

Today is a day home. I need to do a load of laundry and just tidy up.  Tonight I’m making black beans in the crockpot and then a couple of tacos for me and my daughter. I’ll make something soft for B to eat.

Tomorrow I’m going to the gym with probably everybody and their mothers and their grandmothers etc. etc… the gym is always packed this time of year. It’ll slow down in a few months and the regulars that make it will keep going.

I also have a dental cleaning first in the morning.

I’ve worked out a budget for January and I will do a no- spend month and keep groceries at a minimum.  With the possibility of medical bills coming in, I’m not sure what those expenses will be yet.

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Looking back at 2018

It really was a wonderful year with my remission still present. It’s been now, 2 1/2 years since my last Velcade treatment. I’m cautiously optimistic about my numbers in the next 6 months or at least I know that in the past my numbers don’t just skyrocket so that is reassuring. If something starts changing I will have months to prepare mentally and emotionally.

We had numerous wonderful trips.

Our annual Lake Tahoe trip was just wonderful in September. Going up to the north coast with B for work was also nice. We hit Santa Barbara back in the very beginning of the year too. I do love Santa Barbara to visit.

My sister had a rough year with her cancer treatment but is now cleared and is doing well.  She, of course, couldn’t visit this year and we did miss her.

My daughter was promoted to full-time Youth Services Librarian so we are very proud.

Our son is in his last year and now last semester of college and is working very hard. He was traveling to Sac State from here 4 days a week and that is over an hour commute when the traffic is good. We’re proud of him for being so diligent.

Then the world crashed down on November 19 with B being diagnosed ( after the 19th, more like Dec 1) with MDS high risk. What a shock and it has sent us spiraling into the world of doctors again. For people like us, who rarely see a doctor unless it’s needed it’s all very weird. Of course, I do my routing labs etc, but on the whole, it has never been something we do because we’ve always been so healthy. This has been a shock, to say the least.

The future seems uncertain and we must just go forward bravely.

What else can you do??

Simple Sunday

It’s quiet here. We’ve been to the infusion center for B’s platelets so that’s good. He’s having quite a bit of trouble with mouth sores which we think was from a certain antibiotic, not the chemo. But still it’s uncomfortable and it’s going to take a bit to heal with his WBC so low.  He’s on a different antibiotic so hopefully, that will kick in soon.

Other than that, I went to the gym for a short workout.

I’ve been in the living room zone as that is only today and tomorrow. Then the next zone starts on the 1st, which would be the entryway, dining room and something else.

Since our table is in our living room I do that area when I do the LR zone.  I’m doing a bit deeper clean( wiping all shelves and baseboards) since it’s the first of the year.

I’m going to cook an organic turkey roast for dinner along with some stuffing and peas. Nothing fancy, just using up stuff from the freezer. In January, I’m doing a no spend month and freezer clean out. The no spend is just nothing other than food and essential things like cat food. I’ve spent quite a bit in December in foodstuff mainly because I went to Costco twice. I usually go to Costco once a month. So that was definitely more expensive.

This week I have a dental cleaning and B has his appts. If he spikes a fever with these mouth sores he needs to go the ER, so let’s hope he doesn’t. But if he did at least he would get intravenous antibiotic which would accelerate healing his mouth sores. Still, let’s hope not.

 

Wintery days

It is very cold and windy here but the sky is bright blue. Very California-y winter day.

We had a lovely Christmas and although I was going for complete minimalism, that didn’t exactly happen. But I think it was just the right amount of gifts and they were lovely. I received some new silicone spatulas( much needed), the DVD of Gone with the Wind, of course, the Vita-mix which I am absolutely loving and a Vitamix cookbook plus Ina Garten’s new cookbook too.

Gone with the wind by Margaret Mitchell was a book that shaped my outlook on life as an 11-year-old. Not the racist part of slave owners but the struggle to keep what was of value.  I was telling my children, that we actually went to NYC to see the movie at Radio City Music Hall. At least I think it was RCMH, not completely sure.  I must have read the book 10 times growing u along with A Tree Grows in Brooklyn.  Both were huge influences on me.

Anyway, then we had a great lasagna, cheese manicotti, a salad, and bread.  B is not drinking any alcohol with his treatment stuff so my daughter and I shared a nice chardonnay.

His numbers have been tanking and it’s mostly due to the chemo which is good that it’s working but until the good cells out do the bad ones, he will need more transfusions, unfortunately.

 

I drove down to Sacramento for my oncology appt and traffic was practically nonexistent and I made it in record time. All my labs are normal so I’ll see him again at the end of February. He was informative about MDS and did encourage us to have the brothers checked for being a possible donor. He said it’s a simple blood test to check that first. It will give B the best chance of success if one of them is a match. I guess we will swallow our pride and ask although I said that doesn’t mean I want to have them in my life. So we shall see.

It also appears the best route for working is not working and going on disability so we will do that next week.  At first, I thought B could work between appts but there is no letting up right now with needing transfusions and platelets. Plus he can’t risk being around anyone who might be sick.  So hopefully it goes quickly and smoothly which I think will happen.

Tonight I’m making a spinach soup using the Vitamix and it came out silky smooth. The recipe is one of made many times from the mystery cater stories by Diane Mott Davidson. I tell you, if you’ve thought about one and are undecided, I can tell you it is really amazing. Plus I’m baking potatoes and 2 small pieces of wild Alaskan sockeye salmon.

The tree is down and the ornaments away. The little live tree I’ll have B move this weekend as he will need the dolly to move it.  So, the house is back to it’s clean and tidy self.

Have a wonderful Christmas!

I hope everyone has a lovely and special Christmas.

We are all ready for Christmas and tonight is Christmas Eve and we will have our traditional cheese fondue with baguette, veggies, and maybe some ham for the meat eaters.

I made the sauce for the manicotti yesterday so all I need to do is assemble the dish and pop in the oven tomorrow.

Today should be low key. I will do a little Flylady zone cleaning and a quick vacuum.

The other day after infusion, we went to the nursery and bought a live tree.  For some reason, I just had this urge to buy a real tree and I knew I didn’t want to get a cut one. So off we went and found a IMG_0576.jpeglovely blue spruce that we will plant after Christmas. They are a slow grower so we shouldn’t have to worry about it getting too big. I really wanted a tree with a strong fragrance like a balsam or Frasier but none to be found in this part of the world.

Next year we will get that Christmas tree permit early like we did last year as they sell out within a week. $10 for a tree is unheard of.

I might go to the gym, haven’t decided yet. The day feels slow and open to possibilities.

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Two of my favorite things, wine, and beeswax candles. 🙂

Five on Friday or a few more…

It’s been a whirlwind week ending today with us being out ALL day at the Roseville Hospital for the port placement. Poor B, no water or food till after the procedure so that’ll be @ 3 pm. Plus, I get to drive in crazy Friday traffic down there which will NOT be fun.

Oh well, it’ll be over soon and then onwards…..Actually having the port will be wonderful as he won’t need peripheral IV’s.

Rain today but clearing for a few days. It’s wet and damp and chilly outside.

First, off this morning, I’ll take B to infusion for platelets. His platelets need to be over 50 so they can do the surgery. So actually we won’t know that till later.  Then I’m going to come home feed the dogs and give them some time out and then head back into town.

I have Christmas dinner all planned I just need some manicotti noodles for the manicotti.  Plus a baguette for garlic bread.

We’re still trying to figure out if B will continue on PTO or what.  He’s officially off till new years but after that is the decision to work some from home and do some local stuff or keep putting in for the PTO.  Honestly, it’s a tough choice.  Work would help give him some focus but then there’s also a lot of stress with labs, infusions and then the next chemo session will be January 10.  So, I guess the best thing is to keep filtering the information and then make a decision by January 1st.

Dinner is a complete unknown as we’ll be home later. We had a pizza lunch the other day so I wouldn’t buy a pizza. Maybe spaghetti???? I’ll think about it later.

Our son is down in Yosemite till tomorrow but with the government shut down possible they will close the park. So I’ll need to text him as to whether they should leave today.

 

Oh, great news for my labs…

kappa light chains 15.5

lambda light chains 12.3

ratio  1.26

 

so Hurray, one less thing to worry about right now.