Simple Sunday

It’s been a nice week although weird again with the holiday in the middle of the week. I kept thinking Thursday was Monday. Oh well, it seems that we’re back on course and today is Sunday.

We did a shop a Costco on Friday and didn’t overdo it. I bought extra coffee and TP so we won’t need to ‘run’ down there for those things. We are eyeing a new TV though. Ours is about 8 years old and still works but the sound quality isn’t the best. There are some sales for the super bowl so if I think we can swing it, I will.

B’s last SDI was this last week too. He did get a notice to have his doctor fill out a form about not returning to work, so I’m not sure if they would extend his benefits to use up the little he has left or if it’s just paperwork. What I read is the maximum award is 12months, so we’ll see. We’ll try and do that next week although he sees his doctor on Tuesday and I’m sure it won’t be in the mail by then.

This month will be the big test of how we do without the SDI. I know it’s going to be an adjustment. But at least we have no big bills in January just the car tags for the old van. Still, that’s $150. I have been saving quite a bit of the SDI so that I know I won’t be adding to the savings.

Also, we had to call on his Cobra as, just as expected, the Noxafil prescription came in at$1200.  This amount was the Medicare Part D prescrpiton plan that I’m not planning on using that’s why we’re paying the Cobra amount. I am not paying that much money when last month it was 0.00 co-pay.  So he called and the Cobra payment letter was just going out. So we did it online and then now we have to wait for it to get activated by the prescription plan. After that, we still don’t know what the co-pay will be since we haven’t reached any yearly deductible.  It’s all unsettled right now but next week we should know and hopefully, it’ll be resolved.

Plus we know that within a few months Noxafil will be reduced or eliminated so then we will cancel the Cobra and just use the Medicare Part D as all his other drugs are Tier 2. I think it’s only Noxafil that is Tier 5. What a Fucking scam is all I have to say.

Today is a gym day and we will go for our walk shortly.

Flylady zone is the kitchen and I’ll start that today but finish tomorrow.

I made a new recipe last night from another blogger( Teresa Kasner)

She lives along the Columbia River in an old beautiful farmhouse. Her pictures are outstanding. So the recipe was for Chicken with potatoes and spinach in a creamy parmesan sauce. It was good.

This week is Clinic for Barclay and our overnight trip. Plus whatever stress with the prescription stuff comes up.:(

I started a list of projects for the year and we’ll see how far we get.

  1. to drop the wood stove to floor level so that the footprint is lower and less of an eyesore. We built the platform specifically so we wouldn’t be bending to put wood in but it does take up a lot of floor space. This won’t cost a lot except added stove pipe( which is pricey) but we won’t need a lot. And some stone for the floor. Our woodstove is quite efficient and we will keep it for a few more years. Eventually, we will put in a gas/propane stove. But that’s maybe 5 years out still.
  2. We will be replacing windows in my daughter’s room. This will be maybe @ $1000 as it will be 2 windows replacing one large one. The Anderson windows we bought last summer are great and very energy efficient. So that ended up @ $800( I think).
  3. I’d like to also replace the bathroom window. Same size but just more energy efficient. All the windows in the house we’re replaced when we remodeled but they are now 25 years old so an upgrade will be nice.
  4. I don’t think we will get to any bathroom remodel this year.
  5. I think we are going to try and redo some of the kitchen. The biggest thing is the counters and sink( pipes underneath) really need to be redone. Getting a new pantry system from Ikea will be first on the list as that will be freestanding.

There’s always garden work and yard work. That’s kinda ongoing.

Barclay’s official retirement date is January 30. That’s 25 years. It’s hard to let go of, I think, because of the way it all happened with him getting sick. But how incredibly lucky we are for modern science that has given him a new chance without cancer. Even I can’t say that, although I have been extraordinarily lucky that my Myeloma has responded to treatment. Well, it is what it is.

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This was our dinner the other night. A small piece of filet mignon and a Beyond Meat sausage( which are delicious BTW).

 

 

Hello, 2020

Hello, 2020!!

Time marches on which is a lesson for all of us. It really can be a good day, a lousy year, a wonderful moment but it still keeps moving forward as we should do as well.

I look forward to whatever 2020 holds in store for me. I suppose chemo won’t be a fun thing to do weekly but you get used to things. I have the dreaded colonoscopy scheduled( it will be my first and last). Who knows what that might reveal. Doesn’t really matter, it’ll be whatever the hell it is. It’s really just a question of dealing with it and moving on.

I’m looking forward to some camping trips and some other getaways.

Here’s to new adventures whatever they may be.

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Simple Sunday on Monday

The days of the week are a blur with Christmas last Wednesday and now NY on Wednesday this week. I am definitely off track.

Yesterday was a nice day though with going to the gym and then doing the LR zone. If you do Flylady there are 2 zones this week LR and then on Wednesday Entryway. That should add to all the confusion.

I made a broccoli cheddar soup for dinner last night and tweaked a Moosewood Cookbook recipe. I added some cream cheese to the soup as I didn’t have heavy cream. It came out really good although it was as thick as Panera’s it still had excellent flavor.

Today I’m going to brave driving down to Galleria area to Old Navy to pick up a partial order. I’m going to try their leggings and I also got two dressy blouses to wear on our dinner date in Chico. Well, I’m only going to wear one, of course. I had hit up Goodwill and Cancer thrift to find something and there just wasn’t a thing. Our Goodwill has gotten so bad. it’s mostly junk and things are picked over daily. I’m not sure what is happening in that store. There isn’t another Goodwill nearby so maybe that’s it. Plus our Salvation army store closed this year as well. I was actually trying to find something by JJill which is one of my favorite but no luck. I like Old Navy and the price, with sales, is pretty good. Anyway, I think I will try them on before I leave and if they don’t fit right I can return right then and there without a second trip.

Then that will be my big excursion. Tomorrow I am getting groceries for NYE ( we always do sub type sandwiches) and for the Chruscikis. They are Polish or Russian or basically European cookie that is a very rich dough that is fried.  They are not sweet but powdered sugar is sprinkled on top. My brother loves these and it’s one of the good memories he has of his childhood. So I’m the only one in our family who makes them.

I’m determined that we will do some traveling this year as we are both ( hopefully ) well enough. I’m going to plan our annual Santa Barbara trip that we missed last year. Of course this year B’s company won’t be paying the hotel for work. But that’s okay we will figure it out. Santa Barbara is about 7-8 hours drive but it’s doable. We have the things we like to do there and the beach trail is the best.

 

All tidied…

I took down the Christmas tree and B took it back out to the barn. Then I put everything I used as decorations in one bin along with leftover bags to be reused. Just one bin and I labeled it Christmas 2019, what I used.

It has been quite freeing to have Christmas be so minimal. It used to take me 2 days( of course, just pacing myself) to get everything put away right. This has been an eyeopener. I’m planning to go thru the 2 bins out in the barn sometime this summer( when it’s warm out there) and check if there was something else I would have liked to use. The rest, including all the Hallmark ornaments, will just get labeled for my kids whenever they have a place of their own. cdafb2f3-5d12-47d5-a1b9-0eb08ae93aa7.jpeg

The lights will be put in the tree bag so everything is together.

I need to have cleared off surfaces and very little on the table as it just feels like a fresh start. I’m thinking of getting a fresh new orchid though as I like that they last a really long time.

Our weather is quite cold, 30 degrees this morning but sunny. Tomorrow it’s supposed to rain.

Today I’m going to do a freezer inventory and see what needs to be used up and then plan some menus. I’m thinking of doing a No Spend January but I’ll think about some more. I have done these in the past and although I do get a lot out of it, I also seem to delay getting things that are needed and then it seems I spend money on them eventually. I think what I will do is do No Spend on anything extra like the other space heater we need. But things like household I will still buy( like dishwasher soap). Well, I’ll think about it till January 1st.

As 2019 comes to a close

It has been a year of highs and lows.

Lots of things were awful with B’s diagnosis and then being transfusion dependent. Lots of chemo visits weekly. But in spite of that, there have some great things. His brother was a 10/10 match for the BMT and that was amazing.

Being at UCD med center in the BMT unit for a month was hard, very hard, but it all went way better than expected. Staying at the Kiwanis in our friends RV was also great and made the whole experience of having to be there almost 3 weeks delightful. Being able to be just minutes from the clinic made it all worth it.

Recovery and gaining strength and energy back has been slow but sure. B is doing amazing and he is almost 7 months post-transplant.

There has been no major graft vs host although he must remain vigilant as that can happen even down the road.  Now he is tapering off immunosuppressants and that means less prescriptions. He will still need his vaccinations sometime next year.

So the year really was a mixed bag of emotions but overall I feel very positive about it. We did fine financially with the extra GoFund Me and the SDI. This week will be his last SDI and I am totally grateful to have had NOT to worry about money. After my transplant in 2006 and that following year, we were in serious,serious debt and it was awful. There were no GoFundME things or networks to receive financial help. I did have 2 friends that were very generous and that was a blessing.

At the end of this year, I feel grateful for my health and my children’s health. Both of my children have excellent jobs that they earned this year.

B will also officially retire as going back to full time just isn’t going to work for him. I will miss the paychecks and being able to travel with him, but honestly, he is 69 and with everything that has happened, life is just too short to go back to a job even if it’s only for another year. Who knows what will happen and he has this chance to retire. Social Security will be tough but hey, so what! We have struggled before and made it and if we can only do so much then so be it. Actually, I’m just grateful we have the little we will have coming in as it will cover our basics.

WE didn’t do any traveling and that was okay. We are planning something once a month for  2020. Next month we are planning an overnight to Chico where B has a free room at one of the nicer hotels downtown. We are planning to have dinner at a place I’ve wanted to go forever called the Red Tavern. I can’t remember where I read about it over 5 years ago, but it’s supposed to one of the best restaurants around.

House wise, we didn’t do anything major except outside and tree removal.  We did replace two windows and they look great. Next year we will replace a few more windows in the bathroom and kitchen and my daughter’s room as well. Next year, we hope to work on the kitchen and do a minor remodel( mostly the sink and counter as it is 25 years old this summer and the sink connections are pretty rusty.

So life keeps on keeping on and it really is a wonderful life.

Happy Hanukkah

We had a nice dinner of latkes, roast chicken, nut loaf( from thanksgiving) with sour cream and the last jar of my homemade applesauce from last fall.

We lit the candle ( one, for the first night). Then we each had a little gift of cash, and B got us 1 lottery ticket. I never win anything so… but he actually recouped $6.00. Still, it was fun to chat and share this time with Sachi and Zephyr and Barclay. My family.

Today I’m doing the Flylady bedroom zone. It’s pretty much done as I change the sheets on Sundays. But I will dust and tidy.

Other than that, just a nice quiet day home.

Yesterday I did make another batch of homemade peanut brittle. I had bought a candy thermometer and it was a great $10 buy as right on it is the temperatures for hard brittle etc. Well worth it to have.

I might make a soup tonight or just something light. Latkes are fried and although not really heavy still fried!! So I have a butternut squash from our garden to use so I think that’s what I’ll make. I found a recipe that was butternut squash and red lentil soup. It’s kinda a curry so I might do that.

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Almost ready!!!

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The mix that was done in the food processor. And of course, the wine glass!!

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Frying up the Latkes

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This is my red fiesta ware that I use at Christmas. Oh, in the background you can see the peanut brittle.

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This was our Solstice fire.