It has been a LONG week.
We made it down to UCD fine even with traffic and the endoscopy went fine too. No problems with the prostate. He just has an enlarged bladder and does need to catheterize at least once a day. I guess if that’s the worse, it’s not so bad.
Yesterday though was a nightmare day.
- first we got a letter stating AAA was canceling our house insurance because of fire dangers in California. Great. Now we will have to find a new insurer and it’s bound to be A LOT more expensive.
- Then we get a letter actually 2 letters from the Cobra people for B’s insurance. We owe $710 per month. I thought we’d already had paid the first two months. I called and NOPE that was not to them. Great, more money out the window.
- I called the dedicated hotline for employees and said we’d paid the $1200. So just this afternoon she called back and said NOPE, that was for June and July when the company transitioned to the new insurance. I looked at the paystub and she was right. Nothing was taken out. Great:(
- Then on a positive note and money. B got his LLS grant approved for MDS and they will reimburse him the first amount of the cobra just covering him. so we should get that and it’ll help. We will submit the amount for the second month next week.
- Then I’m at the Sutter Medical site getting ready to pay the installment and I see another whole set of charges. WTF!!!!! So I call Sutter and she says oh they said (UHC) he wasn’t covered for those dates. By this time I was seeing fire and smoke was coming out of my ears. I then called UHC and the VERY nice rep says let me check. She checks and says clearly there was some wrong coding as he was covered. Give me a F#@king Break.
- Let see, I think that’s everything. But there could be more I’m blocking out.
Well, I’m exhausted from it all. Too much paperwork, money stuff, and confusion. I think I see the wine bottle waiting for me.
I had a good doctor visit. As I mentioned, my numbers are going up (kappa light chains) but as he said it is slowly going up and I’m a long way to where I started out 3 1/2 years ago at 1010 mg/L kappa light chains. So I’m ok and not panicking. It went up 6 points to 31.7 so an increase. Lambda is in the normal range and looking back at my numbers, Lambda was always in the normal range. The ratio also increased to 2.66 from 2.33 so increase there too. When I went back to when I started Velcade my ratio at it’s highest was 68.25 mg/L so that says something about where I started.
All in all, I’m ok with it for now. It’s always weird to think cancer cells are in your body but one must be positive and philosophical at the same time.
We’re in for cooler temperatures which will be most welcome.
My daughter is drying some cherry tomatoes since we have so many and I really don’t want them to waste. Sundried tomatoes in the winter are nice additions to pasta.
Our last appt is Friday till next week. Driving to Sacramento has been awful with the traffic. Driving home has been a lot easier. I’m guessing with school starting and work there are more people on the freeway.
After next week, we are on a 2-week clinic schedule and that will be very nice.
This is a busy week with appt’s almost every day.
Today I have an appt at DMV, yes, the dreaded DMV, to get my license renewed and try and get the real ID. The real ID requires a certified birth certificate and lots of other proof pf residency things. One reason I persisted in the NYC birth certificate debacle is I knew that this was coming. So we’ll see how it goes and I’ll report back.
Tomorrow is clinic and labs and my daughter has volunteered to drive.
Wednesday I see my oncologist so I didn’t want to have to drive 2 days in a row. I’m going to go over my old lab results when my light chains were over 1,000 mg/L. I just want to hear his assessment of when to be more concerned. I’m guessing he’ll say the same thing, that when my numbers are much higher.
Then Thursday is open.
Friday is back down to the urologist for an endoscopy to see if there is any blockage or how does the prostate look? It is an office procedure so no sedation.
We also need to get the oil changed in the car and will do that Thursday. B said he’d go. So that would be his first time out driving the Santa Fe in a while. He’s definitely able to do that now and isn’t shakey. So progress!
The zone this week is the living room and I finished that yesterday. Since our front room is small and there’s not a lot of clutter I was able to finish it in about 15 minutes. I washed windows, dusted, checked my plants and washed the mirrors. That’s about it. I do look regularly what to declutter but right now I’m content with what’s in the bookcase and also the Heywood hutch. In the Heywood is my pinecone ware so that stays. I do love looking at it and using it too!
Yes, that is correct.
August 23, 1970.
We were SO young but determined as we headed out to our new life in Tucson, Arizona. We were heading to U of A. B was already a sophomore and I was starting as a freshman. We really had a lot of fun. We really weren’t all that crazy about what we did but we still had loads of adventures. And we still are.
Today, we went to Walmart to pick up the groceries, and then up to Home Depot to get our anniversary gift to ourselves which was a Honda generator. A small compact one.
We came home, put stuff away and then headed into Auburn to go to the record shop. We’ve been listening to jazz every night at 7pm so we thought it’d be cool to get some jazz Lp’s. Funny because Barclay’s dad had a huge, and I mean huge jazz collection along with big band and others. All that was lost when he lost the lawsuits against him. ( Long story). He eventually lost the house and most everything. It was sad. Anyway, we found 4 LPs and that was a good start.
From there we went for lunch at our favorite Mexican place. He cant have salads out due to germs but if the food is zapped, well-cooked he can have that.
All in all a lovely day.
So, from my blogs you know we’ve wanted to upgrade from our tent trailer(that we love, but alas has no bathroom) to a hardbody.
So yesterday we decided to go take a look at the 2020 R Pods. They are small and lightweight. The original one we thought we’d be interested the 190, was a little cramped for our style. Then we like the 179 ( it may be a different #)with the rear kitchen, was quite a bit roomier.
But then he showed us the 195 and we were sold. It was perfect. But out the door almost $ 26,000 that includes all the setup, brakes for the Santa Fe, etc. So it was a good price but we weren’t sure or I should say hesitant to commit. We would need to finance some and I think we’re unsure about that.
So although perfect, now isn’t the right time. Or maybe it is.
The other thing is after we got home I looked up towing it with the Santa Fe. And although it has a towing capacity of 5000 lbs, most people advised against it as it will wear the motor and brakes out by stressing it. This R pod came in 3400 lbs, so under but still probably hard on the car.
So that also then got me thinking we’d need to go back to the drawing board about getting used truck. That then increases the cost now considerably. So it is a dilemma.
oh well, we’ll just have to think about it all more.
A nice Sunday morning with cooler temperatures.
Getting ready to do the bedroom zone.
Plus its sheet day.
Yesterday I did a Walmart grocery pick up. I don’t shop Walmart but was interested in the pickup and I had a $10 off code. I bought quite a few organic items and them some pantry stuff I wanted. I was surprised at how easy it was and I didn’t have to go into the store. I’m not sure I would do it a lot but I have to say the prices were quite a bit less than Safeway. Organic Valley milk was almost $2.00 less than Safeway. So were the Morningstar items. So those are big savings. I also went to our little organic farm down the road and got $20 worth of veggies. The corn was excellent.
I’ll have to see how I feel about it over the next week.
I was able to book a night at Nevada Beach for B’s birthday. We may or may not take the tent trailer. Our old van can be used to sleep in so that’s an easier option. We found a nice 2017 Hummingbird RV by Jayco for a terrific price but it’s about 2 hours away. We were pretty gung ho about it but then backed off. I think since we really don’t have other camping plans this year we should save our money till next spring. It was a great price though. If we could see one locally it might make a difference.
It’s a gym day too and that’s it. Don’t need any groceries for a change.
The coming week is busy with 3 days of appts for B. We’ll get thru. After this week we should be on schedule for every 2 weeks. But there’s also my doctor appt and his BMB early September so that will add some extra driving days. My daughter isn’t working yet so she’ll help with some appts which will be appreciated.
My labs should be in tomorrow. I’m guessing they went up and really there isn’t any more downward trends. So the question will when do we start Velcade again. Since my doctor is very conservative I may have to say I want to start when my Kappa light chains go to 100. It’s hard to know if I’m asymptomatic. But if it’s going the way it is it still may be a while. I went from 19.7 to 22.? to 25.? to ??? So 3 points a time. That’s every 6 weeks. The ratio at 2.33 so that’s above the high normal of 1.65
If I could hold off till next year, B will be in good shape and hopefully not need any interventions.
Who knows? Right?
That’s one of our original tickets. We had 2 and the other either got lost or we never had it. So there you have it.