Friday things

So we are ready to go. B signed the consent forms yesterday and admission is next Friday. That’s only one week away. After listening for 45 minutes of every terrible thing that could go wrong we signed.

He will go in at 9am admissions, have a main line put in or a pic line. At this point, it looks like a pic line since his platelets still have not gone over 50. They hover in the ’20s and then drop into the low teens and that is too low for surgery for the mainline catheter.

Then Friday is D -5 for chemo, down to Day 0 which is transplant.  The chemo is supposed to be well tolerated but since I had melphalan  I’m not too sure I agree with that. There are two other chemos involved as well.

So, it begins. Probably the recovery will be the worst part with fatigue and the constant threat of graft vs host disease.

We stopped in the co-op for a quick shop and it was slightly more expensive than I’m used to I may have to use it to buy the things that are better priced such as bulk items. We did have a lovely lunch though and got to relax before heading over to UCD med center.

We got in another co-pay bill for $1680 that’s for all his transfusions. I’ll call this morning to make arrangements for payments. We paid off one and so with this one we’ll have two. All together that will use @ $4500 of the GFM but I’m stretching it out. Actually, I think it’s more like $5000 but still, over time it’s doable. ( As long as too much more doesn’t show up.) But we still have the transplant co-pay which is still unknown but we know it’s about $6000.

Well, I’m just not going to worry about it now.

Today, I’m off to get my labs for my Thyroid as I’m overdue. Then to pick up my new glasses that hopefully have been corrected. From there I may hit the gym and I need to go to the bank.  Yesterday was super long and so I usually drag the next day.

I’m hoping to not go anywhere tomorrow or Sunday and I’m willing to give up my Sunday workout just to stay home. I’ll be driving to Sacramento almost every day starting next week.

UNADJUSTEDNONRAW_thumb_374.jpg This our Cecil Brunner rose all out for Mothers day!!

 

2 thoughts on “Friday things

    • Thanks, Juhli, I’m doing pretty well overall as long as I’m in remission. I get my labs next week… I am a little worried that I might have some post-traumatic thing when he goes into the isolated unit. For me not being home and alone in there was very difficult. I think it will be for Barclay too as he’s used to being outside all day. But we must go forward, there isn’t a choice.

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