Tag Archives: immunotherapy

Simple Sunday

Posted in Blood test, bread, California, cancer, cooking, simplicity by

Another cloudy, rainy day yesterday, and it looks like that again for today. We can always use the rain, so I can’t complain really. I think we’re back in the sun by evening, and then it looks nice the rest of the week.

I drove B for his transusion yesterday. This is probably the one thing that is frustrating me. Well, one of many things, but it is a big question mark why it is his hemoglobin is dropping. I suppose the simple answer is that the cancer is affecting his blood levels, but I’m not a doctor. He has his next immuno on Tuesday, so hopefully that will start to improve the hemoglobin. A very good thing, though, is he’s had a bit of an appetite and has eaten pretty well the last few days. I hope that’s a sign he’s doing better.

Today is a home day. Normally, I’d be at the Auburn gym, but I want to hold off till I get an official diagnosis on my knee. I had the MRI, so I should know by Monday or Tuesday. It didn’t take long, partly because there was no contrast involved. The one oncology nurse, Vicki, who usually does my shot, said that using a stationary bike is one of the best ways to build knee muscles. She had a torn meniscus a few years back due to a skiing accident, so she really went full on rehab and now is a committed bicyclist and goes out every morning at 4:30 am. Now that’s dedication. i will start on the bike once I know what’s up.

I’m making sourdough bread this morning. I thought I’d try something different, so I’m trying cheddar and olives. We’ll see how it comes out.

Friday night, I was able to use that frozen pizza that was languishing in the freezer, so one more thing gone.

Last night I made the Greek lemon chicken soup, Avogolimeno. It’s a simple recipe, but so delicious. I made B tomato soup and he ate it all!!!

I think tonight, I’ll do rice and the TJ’s Kung Pao chicken that I’d like to use up.

I made reservations for the 5 of us to go to brunch at one of our favorite places, High Hand Nursery and Cafe. It’s very popular and reservations are hard to get, but I got a brunch on the Sunday before my daughter’s birthday. I’m sure it’ll be pricey, but since we rarely eat out, I’m ok with it.

I finished the book “Enough’ about the Everest climber. It was an interesting read, but I would have liked more about what the camps are like. How many people climb in a day? Things like that. But a good read.

Then I’m working my way through the Harry Potter books for the 3rd time. I just finished #2. They are fun to read. It’s too bad JK Rowling has become such a jerk and anti LGBTQ+. Weird.

Tomorrow I have my labs, and I might go into Target( which I’ve been avoiding) to check out some PJs. I’ve been looking for just some cotton ones, and most, like from LLB, etc, are too expensive. I saw some online at Target for $20, so I want ot check them out.

This week, Flylady is the LR. So I’ll do a few extra things. I dusted all the Easton Press Books already, so I may just need to wash the inside windows.

How do you do house chores? All at once or break it up like Flylady?

Thankful Thursday

Posted in California, cancer, Gratitude by

So far, B seems to be doing ok after the immunotherapy infusion. It’s 2 drugs, and the infusion time is way shorter than the others. So, I’m grateful, and fingers crossed, he doesn’t have some reaction in the next few days.

I’m thankful my daughter drove him down so I had some time alone in the house. I pottered around and did a few odd jobs. Then, when I went to get him, I stopped at Costco for gas and then Winco for groceries.

I’m grateful that we’ve had lovely weather and haven’t had to have any fires in the wood stove. So nice to not need them. Our yard looks so pretty this time of year.

We call that the White Tree of Gondor. It’s the tree in LOTR that came from Numenor.

The pink tree is a red bud.

I’m grateful to be up and about, even with my knee. I still haven’t been able to schedule the MRI. The phone wait is ridiculous. After 10 minutes, I gave up. I did that 3 times already. I’ll try again today.

I’m very grateful my son came up and did some miscellaneous chores for us. It was things like taking down the twinkly lights that were burned out, gas up the truck, fixing the railing outside, and a few other things. He’s a wonderful young man.

Today is open, although I am considering Costco because I need vitamins, and they are on sale right now. It’s early yet, so I’ll think about it. I know I want to avoid all the Easter shoppers over the weekend.

A close-up of the white tree.

Where we are now.

Posted in books, California, cancer, husband, peritoneal mesothelomia by

After the shock of Stanford canceling, we’ve moved on to the next phase. Barclay had to cancel all the hotel reservations, and both of my kids had to rearrange the time they had taken off. They did so, and it wasn’t a huge problem as they both have flexibility at their jobs. My anger was at Stanford for waiting to let us know. Dr. Lee had seen his CT scan weeks ago. That’s what upset me the most. Anyway, I’m over it now. ( mostly!!)

After we got that news, the next day he had a video visit with his UCD, and she set up the immunotherapy appointments. Barclay had the first one yesterday. Side effects can be nausea, thyroid problems, and skin issues, but it shouldn’t take down his hemoglobin to the point where he needs transfusions. ( At least I hope so). He will be going every 2 weeks for this. We can only hope it gives him some reprieve and he gets a little more time. He is still not eating very much, and of course, that’s a problem.

On top of all that, I had my right knee go out on me, so I’m wearing a brace and will need to get an MRI to see what it is. The doctor didn’t think it was any kind of fracture so until I get the MRI, ice, and ibuprofen. The only thing I can come up with is 4 days before I did an extended swim, and maybe I overworked my knee. Still, it may be an age factor too, with knees wearing out:(

We’ve had beautiful 70-degree weather, and everything is in full leaf and bloom, including the wisteria. Today, I plan on being home and hobbling around to take care of the house chores. My daughter has been doing the bulk of it for us. My son is going to stop by and do some chores as well. I’m grateful they can help.

I’ve read a few books from the library and including the new B. C Beaton’s ‘Death of a Smuggler’. It was fun to read Hamish Macbeth again. Also, we’re finishing ‘Dark Winds’ based on Hillerman’s Leaphorn and Chee characters. It is excellent. We finished ‘ Reacher’ and I wasn’t too impressed. The actor is a good Reacher, but the adaptation of the story just doesn’t quite fit.

Well, that’s about it. Life goes on. The sun will rise, and today is a new day.