We were up and out at 7:30 to get to the infusion center and then I came straight home to do my Sunday chores.
I did the bathroom zone, vacuumed, tidying the kitchen counters and did some emails.
Then I went back to town to go to the gym and Target. B has to have blood and platelets plus the Dacogen so it’ll be a long day for him. Either my son or daughter will go get him around 3 pm.
I don’t think I’ve mentioned that I did get an Instant Pot and have really liked it so far. I’ve done rice a few times, a chicken salsa recipe, a whole chicken, and last night I did spaghetti. The spaghetti sounds weird but actually, it was quite good. Plus, I sauteed the ground beef in the instant pot then put the spaghetti is and then homemade sauce. It was really quite delicious.
Today I’m going to do brown rice and I may try hardboiled eggs too. The whole chicken was very moist but I think overall I’d prefer a roast chicken. The time factor though is pretty amazing. I think since it’s really a pressure cooker the flavors are locked into whatever you are cooking. I wouldn’t say I absolutely love it yet, but I have enjoyed the things I’ve made. I haven’t tried beans yet and for me, that’s probably the deciding factor.
This coming week shouldn’t be too bad with appts. B has chemo tomorrow( the last of this cycle), then Wednesday I have the appt with the Medicare person, so that’s it overall except B’s labs.
The weather is supposed to be cold and rainy/snowy so I’m not looking forward to that.
Well, it has been a really busy week with doctor appts, chemo( still 3more days to go), Costco not once but twice. Uhgggg, I ended up going again to Costco today as the Vet didn’t get the dogs pills in on Monday. PITA. So, it was back down. I ended up getting gas again. Plus, I figured I’d get the stuff on sale. B has been using Orgain drinks to bolster his food intake and it was on sale. I got both the powder and the liquid. It’s pricey but since he’s lost so much weight (almost 20 lbs) the doctor and I want him to eat eat eat. He’s always been way to thin and now it’s critical he gain weight.
Anyway, this has not been a thrifty week at all. I’m not sure if I’m just going to not go to the store for the rest of the month or just minimally. I do need milk and almond milk so that’s more$ right there. Oh well. It’s only Feb 8 so that’s a while till the end of the month but as of right now, I’m over budget. I’ve been budgeting $200 a week for everything, food, and non-food. It’s actually been spot on. Since we do provide food for our adult children it’s more than if it was just the 2 of us. My daughter does pay rent/food but my son who’s in school full time we let slide.
I’ve also been on the phone a lot, which I greatly dislike, arranging payments for the hospital bill for B’s port placement and the surgeon. I did the one over 4 months at $350 a month and the other over 10 months at $270. They were very accommodating but still not really budget friendly. Well, at least they let us do payments.
We haven’t heard back from the financial coordinator about the insurance for the transplant or sending off the BM kits to the brothers. Maybe next week.
Next week I have an appointment with an SS advisor about Medicare. We are both still covered by B’s insurance but I’m thinking if I switch over to Medicare then that will give us an idea of what our monthly amount will be. I’m sure it’s more than what we pay now but it has to be done sooner or later. So, we’ll see what he says. I need to be sure the drugs I might need in the future such as the Velcade I was on will be covered or at least after we pay the initial amount of our responsibility. Honestly, sometimes I feel as if we are just bumbling thru. Take the SDI, we really had no idea what to put in the form and it was initially rejected. Then after calling them and waiting forever on hold, we had it figured out. Still, sometimes I wonder how are we going to navigate this stuff.
Any suggestions for Medicare would be most welcome.
Well, on a more positive note, I’m making a BBQ chicken pizza for dinner and leftover gourmet veggie for the Dad.
My husbands GoFundMe has been a huge success. I am honestly blown away by all the people who have contributed. I said to him even if it’s enough for some co-pays or gas, I’ll be grateful. His co-ops have contributed, so many co-workers, even some of my blog readers, which is really amazing.
I am so grateful for everyone’s generosity. I remember when we were going thru my transplant and treatments and all the extra stuff we needed and had to spend money on and we ended up in huge Credit card debt. This time, I told Barclay, we would never do that this time around. Of course, there was Go fund me in 2005, well, at least I don’t think there was.
Well, it’s been a really busy week again. I had to see the eye doctor this morning after I dropped B off at the infusion center. Then I took the car for an oil change and a car wash.
The Social worker suggested we get a handicap placard for when he’s in the hospital and/or doctor visits, so I got the signed forms and went to AAA. But he needs to it in person I guess because of fraud issues. So I’ll need to go back with him.
I did the kitchen zone this week but ended up doing it Tuesday since I had to go to Costco on Monday. I also deep cleaned the oven as best I could just today.
The weather is extremely cold here and is going to stay that way for at least 10 days. HIghs only @ 45degrees. That is unusual for us here in the Sierra Nevada foothills. So I guess our electric bill will be sky high too.
Even though the week has been very busy, since we live more simply and our home is minimalist, my daily routines have been followed. Basically, here’s my daily list:
- 1x laundry a day washed, dried and put away.
- counters kept clean
- dishwasher emptied either after it runs or in the morning
- tidy each room
- make bed
- wipe bathroom
- do a daily budget
- in the morning check what appts are for the day
- I also plan dinner what I’m making in the morning
It really does help to keep routines and to simplify things.
Well, I’m off to do a few of those things now as we were out all morning.
Well, I’m not sure how this will work as I’ve never done something like this so here goes….go fund me
thanks if you can help…..
It is rainy, rainy and rainy. The temperature is dropping too. My daughter is planning to work on Tuesday but I think the freeway will be closed and travel to Truckee unlikely. I guess we’ll see.
Today B has platelets and I’m going to go to the gym. This infusion goes relatively quickly.
We got quite a few applications from the Social worker to fill out for assistance such as PGE’s medical rate, handicap placard for when he’s going to the hospital and afterward and an American Cancer one that might have some assistance. We’ll see how any or all of that goes. I’m still planning to do a GoFundme but just haven’t gotten around to it. Based on what the social worker said the month housing will be around $2000. Plus we will have to cover the expenses of the bone marrow retrieval( plane flight, hotels, etc). That’s if there’s a match.
Lots to consider and think about. But one day at a time and one foot in front of the other or just keep walking:)
This week is the kitchen zone and I may start that when I get home from town or I’ll start tomorrow. One thing about simplifying and decluttering, cleaning goes much faster when you have less. I’m still loving the open shelves and love the bright white. Even if and when we do a remodel I would keep open shelving. It makes things more organized since you can see what’s there. The things in the metal bins are organized such as tea, coffee, spices, so I know which one is which. I think it’s working out great and I’d encourage you to try if you’re looking for a change up in your kitchen. Initially, I did freak out and it took 3 coats to paint the shelves but it was worth it.
We don’t have cable so I’m not sure if we’ll find the super bowl to stream but honestly, I don’t even have a clue about the 2 teams. But the ads are always great and quite clever.
Well, off to town in the rain:( I really hate driving in the rain.
Well, this storm is here and it’s supposed to continue thru Tuesday with possible snow even at our elevation which is about 1700 ft. It will definitely close the freeway if it’s whiteout conditions. We only need to go out for labs this morning and then tomorrow would be a transfusion day, probably platelets. So we won’t be out too long.
So yeah, got the call from infusion, tomorrow platelets. Sa o that’ll be enough time for me to go to the gym.
I’m seriously re-thinking the instant pot. I’ve not been too interested but then I started thinking about when B is down in Sacramento in the hospital for a month and then in a hotel or Air Bnb for a month. Of course, I will come home every couple of days but then I had a brain hit of making up meals that my daughter or son could put in the instant pot and cook within an hour. So have any of you been on the fence and then got one and loved it??? I have to say with the Vitamix I was and am amazed at its versatility. Plus the Instant pot runs around $79 on Amazon so not a huge loss if I hate it. So any thoughts let me know…
This was at the end of my walk yesterday in the park.