So it was the local medical oncologist that had the biopsy results from the other Dr. The official diagnosis is Myelodysplastic syndrome high risk because of the 7q deletion.
So at least he doesn’t need to do the induction in the hospital if it was leukemia. I guess that’s something.
For now, it’s going to be the 5 days of chemo every 28 days. Hopefully, the drugs kill off the ‘blasts’ or baby leukemia cells which are bad and then his bone marrow will start producing the right cells. Also, that will mean less and fewer transfusions and platelets. Then it will be a donor transplant. I seem to recall the transplant doctor saying hospital time a few weeks then outpatient. Fingers crossed that it works as there is a 50% chance it won’t and he’ll die. Or he’ll need to go back on some sort of treatment. 😦
Today, after he gets platelets which do go very quickly after the IV is in, we’re going to Costco so I can load up on organic greens for those smoothies and fruit. I really hate going this time of year with Christmas, but I also hate spending a lot of money on greens at the store when can get a big bag at Costco for the same price if not cheaper. I will get some other things as well since we’re there and call it my weekly shopping.
I’ve got a new sourdough recipe I’m trying out and it’s on its second rise. But we’ll be gone for a few hours so It’ll be longer than usual.
I’m going over to the gym for a tiny bit while he’s at the infusion center. I can probably get a good 30 minutes in.
Some of my labs are in but this new patient portal is a PITA as it says results released in a few days( it gives the date). WTF, there my results and he’s viewed them so why??? I didn’t see the big 2 tests SPEP or Light chains but they will be coming in soon I suspect.
Oh well, if it goes up again, I’ll just have to not flip out and go with it. Fortunately, I’m not high risk and my numbers have never just shot up so that would give me time to adjust. I see my doctor next week right after Christmas.
I haven’t been too inspired with cooking dinners so we’ll see what I feel like tonight. Mostly I’ve done just what’s easy without a lot of thought. Last night was pinto beans, a frozen enchilada and TJ’s cheese tamales.
9 thoughts on “It’s official….MDS high risk”
So sorry to hear your news. Sending best wishes from the uk. Hope all goes well. Karen xx
Thanks, Karen, I will hope for the best. Since he is so healthy( like amazing) I’m hoping it goes without a hitch.
I really hope it goes well. Glad he’s starting from such a healthy point. Good luck xx
I really felt weird “liking” this post……just know that my like is really a support and prayer button. Prayed for your today……….
Yeah, that would be weird but I know what you’re saying. It’s not that you ‘like’ the bad news but like the post …ha ha… thanks for the good thoughts.
thank you for understanding my thoughts. sending you many many hugs your way….
It seems incredible that you both have a similar (relatively rare) condition. What are the odds.
My very best wishes for the upcoming treatment, I shall be thinking of you both. Take care.
It is so bizarre, really. I keep going over in my head what could have caused this, was there something in the water??? I guess we’ll never know really….:(