It has been a year of highs and lows.
Lots of things were awful with B’s diagnosis and then being transfusion dependent. Lots of chemo visits weekly. But in spite of that, there have some great things. His brother was a 10/10 match for the BMT and that was amazing.
Being at UCD med center in the BMT unit for a month was hard, very hard, but it all went way better than expected. Staying at the Kiwanis in our friends RV was also great and made the whole experience of having to be there almost 3 weeks delightful. Being able to be just minutes from the clinic made it all worth it.
Recovery and gaining strength and energy back has been slow but sure. B is doing amazing and he is almost 7 months post-transplant.
There has been no major graft vs host although he must remain vigilant as that can happen even down the road. Now he is tapering off immunosuppressants and that means less prescriptions. He will still need his vaccinations sometime next year.
So the year really was a mixed bag of emotions but overall I feel very positive about it. We did fine financially with the extra GoFund Me and the SDI. This week will be his last SDI and I am totally grateful to have had NOT to worry about money. After my transplant in 2006 and that following year, we were in serious,serious debt and it was awful. There were no GoFundME things or networks to receive financial help. I did have 2 friends that were very generous and that was a blessing.
At the end of this year, I feel grateful for my health and my children’s health. Both of my children have excellent jobs that they earned this year.
B will also officially retire as going back to full time just isn’t going to work for him. I will miss the paychecks and being able to travel with him, but honestly, he is 69 and with everything that has happened, life is just too short to go back to a job even if it’s only for another year. Who knows what will happen and he has this chance to retire. Social Security will be tough but hey, so what! We have struggled before and made it and if we can only do so much then so be it. Actually, I’m just grateful we have the little we will have coming in as it will cover our basics.
WE didn’t do any traveling and that was okay. We are planning something once a month for 2020. Next month we are planning an overnight to Chico where B has a free room at one of the nicer hotels downtown. We are planning to have dinner at a place I’ve wanted to go forever called the Red Tavern. I can’t remember where I read about it over 5 years ago, but it’s supposed to one of the best restaurants around.
House wise, we didn’t do anything major except outside and tree removal. We did replace two windows and they look great. Next year we will replace a few more windows in the bathroom and kitchen and my daughter’s room as well. Next year, we hope to work on the kitchen and do a minor remodel( mostly the sink and counter as it is 25 years old this summer and the sink connections are pretty rusty.
So life keeps on keeping on and it really is a wonderful life.
3 thoughts on “As 2019 comes to a close”
I hard year for you. But on the upside, how lucky to be in a country that has health care that makes transplants possible.
Hope 2020 is a calm and peaceful year for you.
Well, honestly, I can’t quite follow the medical trail, but it sounds like things are slowly getting better. I wish you all the best healthwise for 2020 … and housewise too!
“Isn’t life beautiful?
Isn’t life gay?
Isn’t life the perfect thing
to pass the time away?” – Mason Williams