Just Keep Walking update and is this neuropathy??

So we have about 44 days till June 1st and reaching our 3-year mark of walking EVERY DAY. I don’t see any reason to stop, so it’ll be onwards to year 4. Right now sunrise is 6:29 am so we are getting out earlier and probably that will keep going. Walking now around 6:05 am.

But with this last cycle of Velcade it seems I’ve had a lot of leg and feet issues. I know my leg muscles often feel kinda spongey but I think that’s the dex as this has been kinda ongoing for a long time. My leg muscles never seem to feel stronger as a result of walking but if I didn’t walk I’d hate to think how it would be. Hence ,the need to keep walking.

But over the last month,there’s been more achiness in my legs especially at night plus tingling in my feet and some burning sensation. I’ve never had neuropathy so I’m not sure if this is it. Plus it seems restless leg syndrome fits how my legs often feel. Since to complicate matters,I’ve had foot issues with bone spurs and a nerve that causes some numbness in my big toe joint. I saw a podiatrist last year and she gave me a cortisone shot in that area and it helped a tiny bit but not much. She recommended a surgery which I’m not doing at least not.

So, is this neuropathy?? I’m going to go get some B-complex vitamins plus alpha lipic? something.Pat Killingsworth recommended those two things. Are there any other thoughts. ? I’m going to emessage my doctor and at least let him know.

My first labs came in and all my WBC, RBC platelets etc look terrific so I’m happy about that. I’m waiting for the SPEP and light chains to come in probably tomorrow. We had lowered my dex to 16 mg so hopefully, that didn’t impact anything.

So any ideas if this is the beginning of neuropathy? I’m due to start Velcade cycle 5 in 2 weeks. that gives me 2 weeks to see if it gets better, or worse, or stays the same.


I finished ‘Loyalty’ finally.51rlClmbPcL._SX282_BO1,204,203,200_ Not a geat mystery but ok. I fast read near the end to just get it done. I wouldn’t recommend it.

I also skimmed thru the’Inside the California Food Revolution ‘.51-ZDgzp37L._SX329_BO1,204,203,200_This is quite an interesting read. It talks about Chez Panisse, Zuni Cafe and farms and chefs and is really quite well done. It reads a bit like a masters thesis but good history of how California changed the way we eat.

It went well.

So I drove to Sacramento by myself in the old vanIMG_0259IMG_0392 and it went well. Traffic was not to bad since it was past the morning rush. I got hooked up with an IV quickly and soon Zometa was coursing into my blood stream. I also got my last Velcade shot of this cycle.I took some Tylenol when I got home.  I came home and took the evil dex and then rested for a few hours.

Finally, we called down to check on the VW. It was ready. B took it for a ride and we still need more miles on it to reset. This morning though as we drove out to the park, the airbag light was on showing a malfunction. WTF with this garage . Every time we bring it there it has another issue pop up.

So today , I’m going to drive to the koffee klatch but probably wait till tomorrow for a longer drive. It’s better to not do too much on the second day of dex.

Our beautiful weather is turning to clouds and showers for the next week it looks like. Not bad.We have some garden in ( oh, that’s my daughter who does).  The chickie babies are getting bigger but still not ready to mix with the big girls. Probably when we’re back from camping at New Brighton State Park.


Thoughts on a life well lived

I just finished reading another bloggers post   down to earth . I really got a lot out of her blog. She’s a little older than me but has similar thoughts about life. She lives in Australia and has published a number of Home books for simplifying,cooking ,sewing .   http://www.amazon.com/Down-Earth-Guide-Simple-Living/dp/0670075922/ref=sr_1_1?s=books&ie=UTF8&qid=1459790680&sr=1-1&keywords=down+to+earth

I think she sums up very well things about getting older. More aches and pains, can’t do things like we use to. Accepting this with grace is the key I think. I’ve had a hard time this past year trying to figure out where I am in my life. I don’t have a career as such and really never had a full-time job. I have a graduate degree in counseling but never really used it. Plus last year was tough with Pomalyst not working and side effects.

It’s a good read, check it out. It helped me put things in a more positive light. Especially about being a SAHM and other choices I’ve made plus other choices that we’re made for me( getting laid off from the best little job in the whole world)





In a split second …

Our community had a tragic loss of 2 teens killed as they were walking to get coffee. A drunk driver(or allegedly under some kind of influence) swerved into the shoulder where they were walking. It is so senseless and sad. I cannot imagine their families sorrow.  in a split second these 2 teens are gone and 2 families do not have their sons. It makes me so incredibly sad.

Each day is truly a gift.  Whether we feel good or not, or get our goals accomplished, or whatever the day brings, it is still a gift to be here.

Today, I’m making some seed bread, taco meat with organic beef for taco Tuesday and I need to go get gas in the old van for tomorrow’s trip to Sacramento.


Spring is here!

Our weather is beautiful. Today its going to be 70 degrees. So nice. Plus everything is starting to bloom and all the grass is growing and is so green. Even our oaks are almost out. I’m pretty sure this is early for them as I usually remember them more toward the end of April. Plus having El Nino this year, Lake Tahoe and many other lakes are at capacity. this is great news for our drought. We pulled out the gas barbeque and already have used it. This time of year we eat out on the patio, which is right outside the front door. We will do this all the way to fall. We have the patio umbrellas up to block the sun, as the sun hits this area by @ 5 pm. We might go to Home depot to pick up some pavers as we want to extend the one patio area by one more row. We’ll see, I’ve been out the last 2 days so, not sure.

No news on the damn VW. He hasn’t called to even say what’s up. I don’t think I’m bringing the car back there , even though its a short walk from our house. We did stop and pay the registration fees yesterday even though the smog is not done. We’ll just have to bring the smog certificate into AAA when it’s done. Geez, what a PITA.

I’ve worked on the budget and it’s doable but tight. Plus we’re going down to Santa Cruz camping the week of April 19, so we’ll need cash for that.  I’m thinking with all the taxes done, car tags etc, hopefully, May will get us back on track. My daughter graduates in May with her Library degree, so a gift of some sort has to be included.

I’m also thinking any future bonuses B gets must be line itemed for these annual bills. Next year our taxes won’t be so bad as there’s no stock sales. Also, later this month I will put in for the LLS reimbursement of insurance( my portion on my husband’s insurance). That little bit helps a lot. The Leukemia Lymphoma Society does such and outstanding job in helping many of us with co-pays and insurance . It is much appreciated.

This weekend is Pat Killingsworth’s Myeloma Survival School. I would have loved to go to Florida to meet many of the on line people that I’ve gotten to know. Everyone still misses Pat so much. What a legacy he has left. The doctor who was treating Pat (Dr. Tricot) will be there to speak. Hopefully someone will pass on what he says.