Frugal Friday

It was raining heavily yesterday down to infusion. There’s more rain coming in this morning too. I think the pattern will continue for the next few days. This morning my daughter will take B to his PET scan. Unfortunately, it is in Sacramento, so there will be traffic and rain. This will be his last appt. till the video visit next week.

Frugal-wise, I went to Costco to get the coffee. Spending $14 at Starbucks for a pound is not something I want to do very often. So with that in mind, I bought 2 bags at Costco. It was very busy at 1pm, which is a time I rarely go. I’m usually there at 9:30 and there are fewer people. It was okay and I got it done. I spent $180 and $$25 of that was champagne. The rest was food and $20 for TP and Toothpaste. So food ended up $124 or so. It’s not too bad overall.

I don’t think I need much from the store next week unless it’s some salad stuff. That’s the week before Christmas so I want to avoid stores if I can. I’m making our traditional lasagna and I might do a small ham.

I was able to submit my LLS for insurance. What a blessing. My grant is less than half of what it was last year, so I’ll probably run out of funds before my next sign-up period. I think they have so many people applying that a smaller grant allows more people to get some funding. It is still a huge saving for us.

Today, I want to go through the fridge and clean it. I have the leftover turkey chili I need to freeze and there’s a small amount of black beans too. Since I’m home for the day I can tick off some things on my list.

Nothing New

The PET scan results came back with nothing conclusive AGAIN!!! Boy, am I getting pissed off at this situation. We had a video visit with the doctor and come to find out she isn’t even the doctor who will be prescribing the chemo, she’s doing the diagnostic. I am really upset as this seems as if he just getting the run-around. She wants to do another biopsy in a different area. I brought up that the surgeon had said that the cell samples would more than likely be the same in the other masses. So WTF?? But we’ll have him do it but I think I’m going to find out where there is a patient advocate at UCD and make some sort of complaint about this whole process. I joined the Peritoneal Facebook group and a number of people said, they never got the source of the cancer( which is what she is trying to do without any luck so far.) and that their doctors started chemo based on their best judgment. So for instance one woman said although the source wasn’t defined it was near the uterus and so chemo was based on that.

I’ll have to think about what next step we should explore. Maybe a second opinion or getting back in touch with his transplant doctor for advice. We are definitely at their mercy right now and every week without chemo is …well you know.

Right now, I just need time to review the scan results and then figure out a plan. But I think I do want someone to be accountable and get him to the right oncologist.