We still don’t know too much about the CT scan B got but it does look like there’s cancer. We talked to his NP from UCD and she has referred him to an oncologist that does tumor loads. We are hoping for a call today. Since we don’t exactly know what this is, it’s hard to say what the protocol will be. One of the worst things about cancer things is the waiting. She also ordered a needle CT scan which is a biopsy so that’s good and hopefully, that can be scheduled soon.

It’s very upsetting to have Barclay be 5 years out and cancer-free from MDS to this. But since we don’t know the official diagnosis yet it’s just waiting as I said.

Other than that it’s incredibly hot and even next week looks awful. I’m planning on going to go to the gym tomorrow to get out of the house and at least do a workout and hit the library. I’m thinking most holiday people will be wherever they planned and there won’t be a ton of traffic. I might stop in trader joes too but we’ll see if it fits in on my way home. I don’t need a whole lot but could use milk and few other things.

I’ll keep you posted when we know more and will have some sort of treatment in place. These appts do take time and scheduling can be out.

In good news, my kappa light chains went down to 19.7 so right where they were so clearly the Dex did help. I told Dr. L how I did it at 4mg a day, and he said that was fine. My blood pressure was great the whole time. Funny though yesterday when she took my blood pressure she had the cuff way too tight and it came in at 160/85 . So I said ok?? I got home and took it and it was 128/83 so I’m not sure what she was doing. But when it started getting too tight I was holding my breathe so that’s probably why.:(

Well, that’s it for now, if I get an update today I’ll post it.

UPDATE; He got an appointment for the needle CT next week. It’ll be down at UCD so we should know more by the following week.

Both his tumor blood markers were in the normal range so that’s good. It’s the mass showing up that needs to be biopsied.