Where we are now.

After the shock of Stanford canceling, we’ve moved on to the next phase. Barclay had to cancel all the hotel reservations, and both of my kids had to rearrange the time they had taken off. They did so, and it wasn’t a huge problem as they both have flexibility at their jobs. My anger was at Stanford for waiting to let us know. Dr. Lee had seen his CT scan weeks ago. That’s what upset me the most. Anyway, I’m over it now. ( mostly!!)

After we got that news, the next day he had a video visit with his UCD, and she set up the immunotherapy appointments. Barclay had the first one yesterday. Side effects can be nausea, thyroid problems, and skin issues, but it shouldn’t take down his hemoglobin to the point where he needs transfusions. ( At least I hope so). He will be going every 2 weeks for this. We can only hope it gives him some reprieve and he gets a little more time. He is still not eating very much, and of course, that’s a problem.

On top of all that, I had my right knee go out on me, so I’m wearing a brace and will need to get an MRI to see what it is. The doctor didn’t think it was any kind of fracture so until I get the MRI, ice, and ibuprofen. The only thing I can come up with is 4 days before I did an extended swim, and maybe I overworked my knee. Still, it may be an age factor too, with knees wearing out:(

We’ve had beautiful 70-degree weather, and everything is in full leaf and bloom, including the wisteria. Today, I plan on being home and hobbling around to take care of the house chores. My daughter has been doing the bulk of it for us. My son is going to stop by and do some chores as well. I’m grateful they can help.

I’ve read a few books from the library and including the new B. C Beaton’s ‘Death of a Smuggler’. It was fun to read Hamish Macbeth again. Also, we’re finishing ‘Dark Winds’ based on Hillerman’s Leaphorn and Chee characters. It is excellent. We finished ‘ Reacher’ and I wasn’t too impressed. The actor is a good Reacher, but the adaptation of the story just doesn’t quite fit.

Well, that’s about it. Life goes on. The sun will rise, and today is a new day.

4 thoughts on “Where we are now.

  1. Sending well wishes and healing thoughts to both of you. I get so angry at those employed in the health care universe who seem to lack humanity and compassion—like the person or persons who made the decision to wait until the last minute to notify you! A pox upon them!

Leave a comment