Saturday catch up

So this has been the week from hell and today is looking worse.

First, the shots at infusion went well but for having to drive 25 minutes for a 15-minute shot was a pain. These shots were to boost his WBC. ( more on that in the really bad part).

So then Wednesday was a blood transfusion. We got there at 12 and thought it would be an hour and a half but the nurse said no, more like 5. So I was finishing Winco when B texted me this and it was already 1:20. So I called my son and asked him to drive down after work and get him. This was a bit of hassle as that meant he had to drive from Auburn to Rocklin then back to our house and then back to his apartment which is 40 minutes away. So quite a hassle. My daughter works the evening shift at the library so she was unavailable.

Then Thursday, my daughter took him to Sacramento for his PET scan and since it was a contrast one it’s much longer as you have to wait a minimum of 45 minutes for the dye to work. She brought her laptop and did work. Meanwhile, I had gone to Rocklin for my infusion. Then I went over to the library to drop off a bunch of books. I didn’t even go to the gym, I just wanted to get home.

Then Friday, B had to get labs so S took him again since I was on dex.

So now comes the worst. He gets a call at 10pm last night which he didn’t answer it because he was in bed half asleep. So he looks at his labs that had come in and they are AWFUL. He will need to go to the ER right away this morning for platelets and who knows what else. I’m going to hold off taking my Dex till he gets the call which I’m figuring will be around 8am. Right now it’s 7:15.

So things are pretty grim here and I hope there’s better news when I write next. The main concern is he had the shots to boost his WBC but they are tanked and I mean really low. And then he had the transfusion which should have boosted all his blood counts and they are tanked too. So clearly something is not working.

6 thoughts on “Saturday catch up

  1. I’ve been thinking of you both. It sounds like treatment is going to be a roller coaster. I’m glad your kids are able to help some of the time. Sending good thoughts your way. Stay strong.

    • yes, I think roller coaster is a good way to put it. And the sad thing is this is not doing any curative stuff. It’s just for tryong to get the tumors smaller so he can have the surgery which also it not a cure. So all very frustrating.

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