Category Archives: cancer

Menu Monday

Posted in Blood test, bread, budgeting, budgets, California, cancer, cooking, meal planning, Uncategorized by

We did very good with meals last week. I did cook the tilapia, and followed through on some of the other meals. We didn’t do a pizza or the baked potatoes. The night my daughter works late, I had broccoli cheddar soup for dinner. We also had turkey burgers one night because I finally found them in the freezer:(

Last night I made a beef stew with things I had on hand and wanted to use: carrots, potatoes, and a piece of steak. So there’s a little leftover that I put in the Souper cubes to freeze. I also had made the night before a turkey and wild rice soup because I had stuff in the freezer to use: 3 containers of turkey broth that each had turkey chunks in them. I added some cream to make it creamy and it was very good. I froze some of that too although rice doesnt always freeze well so that might be a wash.

So this week:

I have a Costco rotisserie chicken to slice up, and I’ll do some potatoes or stuffing and a salad.

Tuesday- Still planning on burritos or tacos, maybe with leftover chicken. Maybe I’ll put together chicken enchiladas.

Wednesday- Something from the freezer to use, maybe spaghetti and sauce.

Thursday- Again, a freezer meal, maybe enchiladas or soup.

Friday- try again for a pizza

Saturday- TBD, it depends on what I have to use up.

Today, I was planning on the pool but decided to come home after labs and do stuff around here. I feel a little stretched thin, so it’s better I do home stuff to regroup. Monday used to be my home blessing day of tidying up areas that I didn’t get to during the week, so I think that’s what I’ll do. I also started a loaf of sourdough to bake this morning.

I’m glad the appeals court ruled against the orange, evil, cruel man. Time to help people, not hurt them. Honestly, what evil person takes food away from children?

Friday things

Posted in budgeting, budgets, California, cancer, cash envelopes, frugalism, Multiple myeloma by

Yesterday was quite busy. I decided since my Velcade was rescheduled for 10am, I would go down to the gym first and then the library to pick up my hold. (Shogun) Then I went back to Winco for salad stuff, wine, oat milk, and yogurt. I spent about $60 and then got $40 cash to put into some cash envelopes.

Infusion was very busy, and I guess that’s why they needed me to come later. All 5 chairs were full, and some of these chemos are ALL day, and mine is only 20-30 minutes. They are always so nice, and oncology nurses are truly special people with the knowledge and skills they possess.

Finally, I stopped at Taco Tree for some tacos for myself and my daughter. She was almost out the door for work, but it all ended up ok. I took my Dex around noon, so hopefully I would get some sleep. Ha, no luck, I woke up at 2 am, and that was the end of sleeping. But I’m home today, so I can just chill.

I’m halfway through the budget month, and things are ok. There’s not a lot left over, but at least I’m not waiting for SNAP to come through. What a horrible thing these Republicans are doing to the people of this country who need it the most. Shameful. Even more shameful, throwing a Great Gatsby party at the gold mansion. Rump has probably NEVER read The Great Gatsby. Shameful, while millions of people are going without food or close to it. And then more shamefully, blaming Democrats for it because of the shutdown. Democrats are trying to save the ACA before rates skyrocket next year. Who cares about ordinary people? Certainly not rump.

Simple Sunday

Posted in California, cancer, meal planning, Myeloma, velcade, Walking by

I woke up at my regular time, and the clocks were back an hour. Based on the light, I went out to walk at 5:50, which yesterday was 6:50. I liked it as no one else showed up. It’ll be this afternoon that I won’t like it at 4, when yesterday that was 5. But every year we go through this and adjust.

My son visited yesterday and took a big load of wood to the dump. He thinks maybe 2 more loads and it’ll be gone. A good accomplishment. I went to the store and picked up sandwiches for us all and that was nice.

Today, I’m not going into the Auburn gym because my daughter and I are going down to my son’s place to visit and go to the farmers’ market. He has a lovely park that is right near the American River, and it’s quite nice, so we’ll go over there too.

This week I have Velcade and then my new lowered Dex. I didn’t notice a big difference, but maybe the Dex wore off sooner. Dex affects my breathing, and I did notice that the night I took Dex. It’s just a matter of getting through it. 😦

I need to go to Costco too this week. I wanted to get some of their sale items. The chicken pot pies are on sale, which are good for an easy dinner. The Starbucks holiday coffee is on sale, too. Buying stuff when they have their sales is definitely a big savings.

Because of Velcade this week, I’ll probably only get to the pool and gym once. Also, I need to make an appointment for the Santa Fe as the service light switch isn’t working( it’s a computer chip, apparently.) I got it to scroll once, but then it stopped working again. So I need to do that this week. At least I don’t have any other appts.

We’re in for another beautiful day here in N Ca. The wet weather is expected to arrive by Wednesday. Also, I hope Prop 50 passes so we can redistrict some of these worthless Republicans.

I need to write up a menu plan for the week and what house chores I need to focus on.

Friday Things

Posted in budgets, California, cancer, cooking, frugalism, Halloween, Multiple myeloma, Myeloma by

Happy Halloween!!! Barclay loved to dress up for Halloween. We always took the kids to Auburn to trick or treat. It was fun! Those were the days, my friend, we thought they’d never end:(

I know I’m repeating myself, but this weather has been so nice this week. Sunny and temperatures in the mid 70s. Just lovely. I think the weekend is the same, and then next week starts to show rain again.

I watched Practical Magic the other night, and that is a fun movie to watch for Halloween. I’ve watched a couple of series on Prime. Margot is one and a few others. Nothing great, but it helps pass the evening hours.

I didn’t resubscribe to my Prime membership because my daughter offered to share her account. She pays way less being an educator. So that’s one less bill for me to deal with. Also, donating the Subaru has reduced my Allstate insurance, so that’s another savings.

I’m deciding in the next hour whether I’ll go down to the pool. I’d like to go, but there are some outside things I want to do while this weather is so nice. Plus, if I go to the pool, that’s kind of my energy output for the day, and then I don’t get a lot of other stuff done. Well, I still have an hour to decide.

I did pressure can pinto beans this week.

I ended up with 5 pints. It does take up the whole morning since pressure canning is time-consuming. I might do another round next week. We use the pintos the most.

I considered myself brave and went to Speedy to get the Santa Fe’s oil changed. Barclay always did this stuff, so it was kind of a big deal for me. Plus, I really dislike doing stuff like that, but, well, now I have to. Oil changes are so expensive now, like everything, I guess.

I need to go to Costco too, so I think I’ll plan that for next week. Next week is my Velcade injection, so I could do it after that. Also, this chemo will definitely give us a better picture of how much my numbers are going up. I looked back at what happened last time in MyQuest chart, and at this point my numbers started going from where they are now at 25, then to 30 something, and then they starting doubling. So this one will give us a better view of the trend.I don’t see Dr.L till December so we can figure it out for January. That is the exact time of when I changed treatments twice. It was in 2021 and then 2023. sigh:(

Frugal Friday and misc. stuff

Posted in Blood test, budgeting, budgets, California, cancer, decluttering, frugalism, Multiple myeloma, Myeloma, Uncategorized by

We ended up having a lot of rain!! But now it’s blue skies and the temperature is lovely. We should be having day temperatures in the 70s. We have some outside things to do, so that’s perfect. I need to paint the new gutter that S put up and tidy the patio up for winter.

I have a small pile to go to the thrift store and will probably do that on Sunday after the gym. I’m still going through different areas to find more things to add to the pile.

My son and his partner came over on Wednesday afternoon, along with the partner’s parents. They are lovely people, and I wish B could have met them. But they were here for the dad to check out my son’s Subaru. The dad is very mechanically minded. My son is giving( with my permission, as it is my name) the Subaru to him for free. They checked it out and will take it hopefully soon. As soon as that’s done I can take it off the insurance and that is going to save me over $700. I’ll call allstate as soon as it’s signed over.

My daughter and I went to Costco yesterday to finish shopping for the stuff I didn’t get last time. Most of it was non-perishables like the smoke alarms( wow, they were expensive even on sale), TP, and laundry soap. water, and a few other things. From there, we went to my favorite pizza place for a slice of New York pizza. It was fun. I also got the car washed since Quick Quack was just across the street. Costco ended up a little over $300 but I need to break down non food and also long term items and see what the total was.

My food budget for the month came in at about $350, so I’m really getting the hang of not buying so much. The Costco trip I’ll be putting on next month’s budget, which starts next week.

In not-so-happy news, my labs came back with a 4-point increase, so myeloma is definitely on the move. I checked in with Dr. L, and we decided to go one more month and see what the next increase is. I’m disappointed, but it was to be expected at some point. I just wish I could have had at least some period of time with things ‘normal’ after B died. Well, at least I’m asymptomatic which is good. Also the ratio of kappa / lambda was the same so that’s good. The plan will be to try to do biweekly,depending on how next month goes, and if that doesn’t work switch to darzalex fast pro. I’ve made it 20 years with Myeloma and know I’m one of the lucky ones. Still reality sucks that I have to deal with this. 😦

Simple Sunday

Posted in budgeting, budgets, California, cancer, Uncategorized by

We’re back in nice fall weather again. Highs in the low 70s, just where it should be.

I had a great swim yesterday, and the pool was not busy. But I probably overdid it as my knee is just a bit sore this morning, so I’ll take it easy today.

After the pool, I went over to Winco and then Trader Joe’s. Maybe that’s why my knee is sore with all that walking. Anyway, I mostly wanted TJ’s eggs as I find them to be the best, even over Costco’s. So I picked some other things as well, a frozen quiche, salad packs, chips, and a few bottles of 3.50 TJ’s chardonnay. It used to be two buck chuck, but not any more. 😦 So for dinner we had greek salad and a broccoli cheddar quiche. It was good. I might make some soup for dinner and have that with some bread. It’s definitely soup season.

This morning, I’m not going to the gym as my daughter and I will go to Home Depot to get the gutter stuff. Plus, we need some deck stain and or sealant. I also want to get the car washed, so we can do that first.

This will be a busy appointment week for me, and as you know, I don’t like having a lot of appointments. It’s definitely going to mess up my swim/gym schedule. Oh well. I’m also planning on reducing my dex. I’ll ask Dr. L, but he was in favor of it last time. Plus, I believe there is research that says taking Dex doesn’t really add to OS or stop progression. So I’ll drop the dose by half and see how I feel and how my numbers get affected.

The news weighs heavily on me, and I just feel so sad about it all. Plus, I’m scared we’ve gotten to a place of no return with Frump and his allies. Democracy is in peril.

Frugal Friday

Posted in books, budgeting, budgets, California, cancer, frugalism, Uncategorized by

All the big Fall annual bills are accounted for. I put Allstate on payments and also the California Fair Plan. The AAA rider is still not paid, and I think I saw it was on auto, so I need to double-check that. I paid the property tax with cash from my envelopes so that was very positive. It’s not due technically till December but I figured i’d get it done.

Update: It does look like it’s autopay for October. I actually haven’t gotten the bill, so I’ll check the mail today. So I feel pretty good about having handled all this by myself, even though I don’t like doing it.

I also paid the motorcycle insurance for the year. They took Barclay off as the rider, so the insurance really is just on the bike if something happened to it.( I guess, they weren’t very clear about it.)

After accounting for all the monthly bills, there’s not a whole lot left, but I’ll manage. I’m planning on doing one more Costco shop because I couldn’t find the smoke alarms on sale last time. I spent $100 last time, so I still have a grocery $ budget. I’ll probably do that next week after I see Dr. L in Sacramento.

We had a horrendous amount of rain yesterday. It was like a hose turned on full. My daughter has been working on fixing the gutters so the water was coming down right in front of the door. Not good!! That should get fixed this weekend, and I think today is the last rainy day for a bit.

Today, I’m undecided if I’m going to the pool or not. I’m not crazy about driving in the rain. Plus, my sleep disturbances were elevated last night, and my blood oxygen was lower than normal. I generally don’t feel much different either way, but I have been tracking it since I got my Apple Watch last December. I just had a 10-day period of not elevated which is so weird because nothing is different. I’m glad it was like that but I still can’t figure out a common denominator. I haven’t heard yet from the sleep people for an appt so who knows when that will happen. If I’m inspired I will call them.:)

My son picked up 5 books at his favorite thrift store for me for my birthday, so I have a nice stack of books to read. That’s nice since I don’t feel pressured to go to the library. I started the Nelson DeMille, The Cuba Affair, and so far, I like his writing. I don’t know if I’ve read his stuff. I’ll check out some other titles.

Next week I have my doctor appointment and also Velcade. The doctor’s appointment is on Wednesday, and I do plan on asking about a plan of action should my numbers go up. Knowing his style, he’ll probably say, let’s wait and see, which is probably ok since we won’t really know anything for a few weeks. Fingers crossed it doesn’t but I do need to be ready probably more emotionally than anything. Hopefully I’m just overreacting but still cancer is always there in some way.

Mujō (無常)

Posted in bread, budgeting, California, camping, cancer, Death, husband, Myeloma, simplicity, Uncategorized by

The transient and ever-changing nature of things. As with Wabi Sabi, impermanence of things and the beauty in the imperfect.

Mono no aware, Mono no aware (物の哀れ): 
This term translates to “the pathos of things” and is an aesthetic appreciation for the transient nature of life. It involves a gentle sadness or wistfulness at the passing of things and a deep sensitivity to their ephemeral nature. That’s exactly how I feel in my life. It feels somewhat ‘unreal’ Barclay is not here with me to laugh with, joke with, travel with and everything in between. But I do take comfort in he’s not suffering anymore. It was a very difficult painful last 3 months of his life. Well, now to fall.

Fall is in full swing, here in N. Ca, I get the feeling of Mono no aware and Mujo, and wabi Sabi all rolled up together. We’ve had rain and cloudy days, as well as Tahoe-like days with big, fluffy clouds. I’ve had a few twinkly fires already, since the house stays cool even if it’s nice outside.

Just to back track a little here:

Barclay and I practised Zen Buddhism for many years after our Quaker roots seemed to fade away. However, Quakerism and Buddhism are very similar in fact. Both embrace simplicity and a WAY of life. Of course, Quakerism is rooted in a Christian context, and Buddhism in Eastern philosophy as taught by Buddha.

Right now, the impermanence of life is very real for me and maybe somewhat depressing. I am trying to embrace the Mujo concept because it does help me get through the day and realize that life does go on, and it will for me what whatever time I have left. Some of that is on my mind because of my rising kappa light chains and thinking about having to change treatments by January if they continue to go up.

I know that things will change, and I need to change too. But for now, I’ll try and take comfort in Mujo and mono no aware.

On a brighter note, my kids put together a very nice birthday for me. My son came and took a huge load to the dump( which I wanted done). We got a Round Table pizza, and my daughter had gone to Safeway for some small squares of cake to share. I didn’t have any champagne that day to celebrate, but I will soon.Turning 73 is not much different than 72 for me. The real change for me was at 70. Then I felt like I was getting old. Now, I’m old and just keep trying to do the things I love like swimming, walking, the gym and I hope some day in the near future doing some camping again. If i could afford the camper type van that’s what I’d do. We still ( my daughter and I) are going to check things out sometime in the spring. A small tent trailer is very doable, but I like the idea of self contained. Time will tell. Also, If I got one I’d get a loan so that the payment would be what we were paying for rubi. And we’d have the trailer as our trade in.

Well, I’ve rambled on a bit here, so that’s it for me. I do have the day home today after going to the gym yesterday, so I’ll do some tidying and make some sourdough bread.

Simple Sunday

Posted in California, cancer, cooking, decluttering, home stuff, Pantry, simple foods, Uncategorized by

I didn’t sleep well last night. I’m not sure if it was the heat or what. So, I decided not to walk at 6am and will go to the gym to use the treadmill. Some days are just like that. Today is the last really hot day. Then it looks pretty nice after Tuesday.

Things are quiet around here, and I’m glad. After all the chainsawing last week and giant machinery, it’s welcome. This coming week looks OK. I’ll go pick up the sleep test in Roseville. I’ll need to Google it as I’m not sure where the location is. Then I return it a few days later. It would all be a lot easier if they just looked at my Apple Watch data, which says sleep apnea. sigh:( I’ll proceed with what the Dr. says, but I don’t even see him again till late October. The world of doctors and medical appointments really does suck.

I’ve done a little more decluttering, mostly paper stuff, but some odds and ends too. I have quite a few books to donate to either the library friends or the pet bookstore, whichever comes first.

Last night I cooked a crockpot meal, and it was good. I had 2 bags of cooked chicken, although it wasn’t a lot in each bag, and I had a bag of chopped peppers from who knows when. So I chopped up an onion, added a can of cream of mushroom soup that I had in the pantry and wanted to use, and a random pouch of onion soup. I added some taqereia sauce to add a little spice. I just cooked on low for a few hours because the chicken was already cooked. Then I boiled some egg noodles and added them. I liked it. It’s probably not my daughter’s favorite, but I use up a bunch of random things. So win-win.

This is my son’s chair he had in the barn, so I’m using that a my place to sit in B’s office. It’s very comfortable, although you wouldn’t guess that. I’m debating moving my Heywood desk in there. I guess I could try it, and if I don’t like it, move it back out. The Heywood is very heavy, though.

Frugal Friday

Posted in Blood test, budgeting, budgets, California, camping, cancer, decluttering, Walking by

My new budget starts next week. So far, groceries have come in under $400, so I think I’m getting the hang of buying less.

I went to Costco this week and spent $233 on food. Freezer and pantry stuff brought it down to @150. For the pantry, it was granola, which lasts months, butter for the freezer also will last 3 months, pulled pork will be for at least 4 dinners over a few months, tamales, the same as they will be used over the next 3 months, and coffee, which will be about a month. Non-food came in at $70, about for batteries, hair conditioner, TP, and paper plates were on sale, so I picked them up for easy clean-up dinners. All of that will last for months.

For wine, I bought my favorite Juliet Rose and a fancy bottle of Sonoma-Cutrer wine. That was around $40.

Overall, I was pleased. Then I bought 2 pizzas for the tree crew that were here. I’ll show the pictures below.

We just got our Allstate car renewal, and it went up $1000 ( fuck Allstate) because of the claim that the scammer did, saying my car door scratched his. It’s a long story, but suffice to say, my door did not scratch his, but it did touch his passenger door, so Allstate had to favor his claim. It was a scam to begin with because then he got the money, and of course, didn’t go to the body shop. I tried to explain the setup because he was extremely aggressive verbally, and never even got out of his car, but took a picture ( or someone did) of my license plate. My guess is someone else was waiting with him in the parking lot. Oh well, done is done, but that is going to cause me extreme stress trying to pay that. I guess the best I can do is do the payment plan at this point.

On a positive note, the tree crane was here and took the tree. It was quite the job, as you can see. It took all day and then the next to deal with it all.

I’d had other plans to meet a friend for coffee, but that went out the window dealing with this. I hate dealing with this stuff, but I don’t have a choice. The other tree, I guess we’ll just have to wait on because it wasn’t in their system, but I’m going to try and convince them, but that will also take a crane( I think).

It would have been too much to do both anyway. All the wood is gone now, and it looks good. They did a good job.

Today, I’m going to Auburn and will drop off a load at Goodwill. It’s mostly stuff from Rubi that I know I’m not going to use if we get a tent trailer eventually. I still have the bathroom in Rubi to sort out, though.

It’s been a stressful week with my ortho appt, labs, the tree, etc. BTW, the shot hurt like hell, and my knee was really sore from it, but yesterday it started feeling a lot better. So hopefully in the next two weeks I can increase my walking. It takes about 2 weeks for the steroid to take effect.

Also, on a positive note, my labs came back about the same. Kappa went up to 20.5ml/g, so a slight increase from 19.8. Really, in the big picture, that’s not much. My ratio, though, did go up a bit because the lambda went down. If the Kappa goes up, Lambda down, then the ratio goes up.

The heat is back, and 98 * is hot for us. I think today it’s supposed to go to 99*. I’ll have to turn the coolers on by 10. Our PGE bill did go down some, though, so there’s that, I guess.

On a sad note, it’s our 55th anniversary soon. It makes me sad. We did have a wonderful life, even with the ups and downs of it. I’m planning a day trip to Tahoe soon, just not sure when. Burning Man is happening, so the freeway has lots of crazies, which also means the Tahoe area has some overflow. I’m hoping next week sometime.