Category Archives: husband

Stanford Medical Center

Posted in California, cancer, Death, husband by

We got home quite late last night after the worst drive I’ve ever had. We left around 1pm after B had labs done.

From there, it was bumper-to-bumper traffic all the way to Livermore. Then it started all over again. Traffic was so congested on the freeway that I was completely shocked. Was this normal Friday traffic? Then it continued even as we got on 5 north. Then apparently an accident kept traffic at a crawl ALL the way to Sacramento. It was horrendous.

But to go back to the beginning. The Medical Center is certainly state of the art. Beautiful and so big.

We did have a nice drive down with only 3 tiny slowdowns. We got to Palo Alto Stanford Medical Centre by 12:45. Since our appt was 2 we had lots of time to relax and regroup. Dr. Lee had his Resident doctor come in first to go over things and then he came in. He’s the surgeon who does the Hipec. So he planned out, first Barclay will do 3-4 rounds of the chemo. Then sometime in the third round a PET scan to see if the tumors are smaller. Then if the chemo has worked he will do a laparoscopy on his abdomen to look at the tumors with a camera. Depending on all that it might be surgery after that. It’s all a bit iffy at this point.

We left feeling positive and confident he is the leading expert in this field in N.California.

We headed over to the hotel and checked in. It was almost 4 by then and we we’re pretty tired so we rested a bit. Oh, we had stepped at Safeway to get something to snack on. We had seen a Mexican place on our way to the hotel so we shared a dinner there around 7. We were quite tired by then and just watched a little TV before lights out.

The next morning we headed back over and parked by 10 am. His appointment was at 11. But, then the appt was late and we only got in to see Dr. Neal’s NP at almost 12noon. I was definitely feeling annoyed as I wanted to get on the road. But after running through everything AGAIN with the NP, he went out and discussed things with Dr. Neal. So Dr. Neal is the leading expert on Peritoneal Mesothelioma. He was quite honest and straightforward that there is no cure and the best they can do is lengthen his life with the chemo and the Hipec if he’s eligible. I appreciated his candor. He talked about lots of other things but the main jist is 3-4 rounds chemo. Hopefully getting the tumors smaller and stabilized. He certainly wasn’t a warm and fuzzy kind of guy but more to the point. I liked him for that though especially when he said, it doesn’t matter where it came from the point is to go from here to help you live longer. He sees mesothelioma patients all the time so I guess he’d know.

So then we left feeling positive for the most part. I mean there is going to be some difficult times ahead but that’s then.

So then came the worst drive of my life home and I’m not kidding. But we got home safely at least.

Today, B has to go pick up about a zillion prescriptions. One of the prescriptions has a huge copay and we said no way are we bankrupting ourselves for this, so the patient advocate is filling out something for the financial aid? or grant? I ‘m not sure what, but I know we’re not doing it.

Today is just a regroup day and plan out next week with Barclay’s first chemo on Wednesday.

Simple Sunday

Posted in California, cancer, cooking, Flylady, husband, simple foods by

HAPPY FALL EQUINOX

Happy Birthday to B!!!! 74 years young today!!

Happy birthday to Bilbo and Frodo too!!

My son came over yesterday and we had a birthday dinner of tofu burgers and fries. Quite yummy. Then we watched Shrek 2. That’s my favorite with Puss in Boots.

Then this morning he made a huge brunch, also delicious.

I headed to the gym for a quick workout. I plan on making some brown rice for dinner and to use tomorrow too. I think I’ll also do some salmon. Then I have some salad stuff to use up.

Tomorrow I plan on going to the Roseville gym but I might wait till Tuesday. It depends on how much I get done today.

I think the Flylady zone is the bedroom so I usually do that and the Living zone together. Both don’t really require a lot: just dusting, watering plants, mirrors, and vacuuming. Plus just a general tidy up and putting things away that need to go elsewhere.

Thankful Thursday

Posted in California, camping, cancer, husband, Lake tahoe by

First off, we had a very successful doctor appt with the UCD lung cancer specialist. Even though Barclay does not have mesothelioma in his lungs but in his peritoneum it is treated the same way. She spent a whole hour with us going over all his scans etc. She is very proactive and scheduled another Pet scan and put in for chemo to start once approved by insurance.

She said that we should wait to see what the Stanford specialist says about everything but have the other in place. I really liked her and her approach. Very approachable and down to earth and incredibly smart.

I’m grateful we only have 2 weeks till we go to Stanford although it seems like a long time to wait.

I’m grateful for our lovely cooler weather and it’s just so nice.

I’m sad we have to cancel Tahoe but there’s not any way to go up that week since we’ll be in Palo Alto Thursday and Friday. I’m sad about it but we just aren’t in a position to go up for 2 nights and then come home. Hopefully, there will be another trip.

I’m grateful I had a good day with infusion and then going to the gym and library. Infusion was busy and I have so much respect for the nurses that have to take care of 5 patients at a time. They are super heroes for sure.

Thankful Thursday

Posted in California, cancer, Gratitude, home stuff, husband, Walking by

First for our great weather. Nice temperatures and we’ve been able to eat dinner on the patio again. So nice. Plus we’re sitting outside at wine time too.

Next, walking at the park and enjoying the fresh morning air. A few people are showing up but we’re generally almost done by then.

Finally, we have the appointment at Stanford set. It’s the end of September which seems very far ahead but that’s the best they could do with the specialist we’re seeing. He only sees patients Thursdays that’s that. We did ask to be put on a cancellation list. Our plan would be to drive to Palo Alto do the appointment and then spend the night in a hotel. There is no way I could drive 3 1/2 hours back and forth on the same day.

I’m not sure how the surgery etc will play out and how we will afford me staying somewhere but I’ll worry about that when the time comes.

Today is a home day for me and I just need to do house chores. I might make a loaf of bread in the bread maker. Not sourdough just regular sandwich bread but I’ll see how I feel.

Frugal Friday

Posted in books, bread, budgeting, budgets, California, cancer, cash envelopes, Credit cards, frugalism, husband, reading by

It’s been a frugal week for the most part. All the birthday gifts, cake, and food were budgeted in my envelopes, so that was good. I did go to Costco for the burgers, rolls, etc but that too I had in my Costco envelope as well.

We are stretched really thin with money this month due to a few extra things. I’ve done really well with my envelope cash system but bigger bills are still catching up with us and we still have a cc balance from two car registrations, and some other bills from June. I hate having to carry a balance so I’m putting anything extra towards that and thus a very stretched thin budget. We’ll get there but not as soon as I’d like.

We had a nice date lunch of pizza(cash from my dining-out envelope) and it’s always nice to get out of one’s box. This month is our 54th wedding anniversary and although we usually don’t do gifts or anything extravagant we will do a lunch out. At this point we’re planning a drive up to Tahoe to see the lake and get coffee at our favorite Tahoe House. With everything still up in the air with B it’s hard to feel very cheerful. He is and always will be the great love of my life.

I didn’t feel great this morning so decided not to go to either the pool or the gym. I’m not sure if it’s stress or just feeling low energy. So I made a loaf of bread and did a few random chores.

B did get an appointment( we just found out) for next Friday for a second biopsy. It’ll be done at UCD hospital again so I can wait in the cafeteria. That will be a Dex day but I can wait and take Dex when I get home so it should be fine. He also sent a very detailed message to the doctor about some of the PET scan results and about the CUP diagnosis( that we are theorizing will be the case.) That’s called cancer undiagnosed primary. We’ll see what her response is.

My daughter and I went to the Pet bookstore yesterday and I hit the jackpot with Craig Johnson books. There were 5 on the shelf. For some reason, even on eBay these go for a minimum of $5 a piece. And most are more. I also picked up 2 more in the Baldacci series I’m reading. It’s the Atlee Pine series. She’s a great character. I also picked up Cooking for Two from the Cooks Test Kitchen. I saw a recipe for manicotti which used lasagna noodles rolled up so I may make that tonight instead of pizza.

The weather is cooling off and that’s a relief but there are lots of fires going on. One over where blogger I read lives. Hope you’re safe Donna and Dale!

Well, that’s it from this blogger. Anyone on a limited budget and how do you plan things, like big expenses. Do you ever carry a CC balance even if you don’t want to because you have to.? I’m hoping by this time next year we will have our envelopes fully funded for the big expenses but it does take time. I’m also concerned about our house insurance going up because of the California Fair Plan. A lot of people have been posting on Next door neighbor about some serious increases.

Thankful Thursday

Posted in books, bread, California, cancer, cooking, Gratitude, husband, velcade, Walking by

No reports back on the biopsy. I thought for sure, we’d hear something yesterday. So waiting, waiting. Not that I’m expecting anything but bad news but at least we’ll know what the official diagnosis is. 😦

After that, no doctor appts until next Friday and that’s with his NP from his transplant team so I’m not sure how that will play out. The new oncologist appt isn’t until the week after that so it’s definitely a waiting game. Wait, Wait, Wait.

Things to be thankful for though:

We are getting LOTS of tomatoes and I plan on having my favorite tomato and mayonnaise sandwich later today.

I have Velcade this morning and I am always thankful for efficient and knowledgeable nurses. After that, I will go down to the library and pick up my hold.

I’m thankful we had some days of cooler weather but we’re on an upward swing again. It was nice and cool this morning walking. There were LOTS of people walking even at 6am. I guess it’s the summer crowd.

I’m thankful my son has a nice apartment and is staying cool especially since he just down with covid. It’s the first time he’s had it. I miss him being here so I can hover over him!!!:) But he’s a grown man and knows what to do.

I’m thankful the sourdough boule I made yesterday came out perfect. The last two were dismal and I had to throw them out. I read on the problem and I wasn’t letting my starter mature enough. So I’ve been feeding twice a day and it’s very active now. I plan on doing another one soon. Also, with the heat, proofing time and bulk fermentation are different because it’s warm, so that was a factor as well.

Simple Sunday

Posted in books, bread, California, Flylady, home stuff, husband by

So good to be home. It’s cool out and the gardens look great. Plus it’s quiet!!!

Our obnoxious unfriendly neighbor has been unusually quiet for about 6 weeks now. I know he’s over there because he has opened his workshop/garage, but no metal grinding. Usually, he’s grinding metal all day. We’re pretty sure he’s running some sort of business but we can’t tell what exactly. But it’s been blissful to have it so quiet, let’s hope I don’t jinx it.

I used the new shower and it’s not going all the way over to hot so it’s warmish. I guess we’ll have to have the handyman fix it this week. Plus there are some gaps in the grout in a few places. Update: B watched the Delta you tube video and fixed it. It was quite easy.

Today I just need to use the steam mop and that’s about it. Yesterday I did the kitchen zone, the bedroom zone and washed the bathroom windows. I might do my office area windows too. I made a loaf of sandwich bread yesterday too using Rhonda Hertzel’s bread recipe. It came out perfect. I’m feeding my sourdough so it’ll need a few days.

I browsed Goodwill looking for any Craig Johnson books but nada. They really are hard to find. I found an old library copy of The Secret Garden which I thought would be fun to re-read.

Today is Father’s Day, happy father’s Day to all you men out there from your Furry kids and human kids. I told my kids to plan Dad’s lunch or dinner.

What plans do you have for Father’s Day?

My father was never around so it was a nonexistent thing.

Rainy Saturday

Posted in books, California, cooking, home improvement, home stuff, husband, reading, Uncategorized, Walking by

We were able to get our walk in before the rain started. It’s supposed to rain all day and quite a bit. Well, we always need the rain maybe not the wind but certainly the rain.

Today is a home day and not a swim day. I plan on making a big pot of broccoli cheddar soup. I need to use the big bag I got from Costco. We’ll probably have that for dinner plus baked potatoes. I got the bakers at Costco too and plan on doing twice-baked potatoes. I usually start with 12-14 potatoes and then after I bake them, cut them in half and fill them with the cheese, and potato mixture. I usually end up with 12 half potatoes because I mound the filling. These do freeze great and are an easy meal with salad.

B got the new window in yesterday and it looks fresh and clean. We opted for no grids. All of the other windows( except the sunroom)have grids but as we replace the windows we are going for gridless windows.

We’re working our way through watching Inspector Lynley. We have the 3rd season to watch. It’s a great show and Lynley is a good character. I’m reading another Longmire book now. I am so impressed with the way he writes and how he brings in so much cultural stuff about the Cheyenne and Crow. Very different from Hillerman and the Southwest. In this one” As the Crow flies’, he takes part in a peyote ceremony. It was pretty accurate in his description. I’ve done peyote 3 times( B says, he thinks it was only 2) and it is a very mind altering/spiritual experience. Of course, I was in my 20’s and early 30’s and very much into the whole Native American thing. We also have had 2 teepees. The first one was given to us by a friend and it was painted with different Indian motifs. That one finally fell apart and we bought one from a company in Oregon. When we moved here we set it up and used it till it too finally deteriorated. We used to smudge our house and ourselves with sage as a way to cleanse negative energy. I haven’t done that for years but I still have some abalone shells that we used for that purpose. Longmire is in his early 50’s when he does peyote and also the character is very tuned into the whole spiritual side of the Native American, Cheyenne in his case. Anyway, I digress, they are great books!

Simple Sunday

Posted in bread, California, cancer, cooking, decluttering, husband, minimalism, swimming, Uncategorized, Walking by

So far we’ve made it through the ‘blizzard’ although we didn’t have the blizzard here but lots of rain and wind. Fortunately, we didn’t lose any trees. A friend from way back in the library days had 2 trees fall on their house. Yikes! I’d be breaking out. They live quite a ways up I 80 and I think the wind was worse up there. It looks like today is still stormy so I’m not going to go to the Auburn gym. Plus I’ve kind of felt ‘off’. It’s probably the residual of Dex and Velcade. My blood pressure was high yesterday even with taking my Lisinprol so I’m attributing that to dex too. It’s always something.

I have a loaf of sourdough in the oven and I’ll pull a frozen lasagna out for dinner. the other day I was able to get 4 lasagnas prepped. I think I have some salad stuff to use up too.

Yesterday, I cleaned out a few kitchen draws and probably will do a few other kitchen things today. I need to order propane too. That’s all done on line now so I can do it and pay that way.

I’ve been thinking about how having injured my knee in a split second of stepping off the step ladder wrong way. I think things like this do affect us in deeper ways than we realize. All of a sudden I couldn’t do what I had been doing at all. No walking, swimming, house stuff etc. It really did have an impact on me and with that some sadness of what was lost. I’m certainly much better now and am walking about a mile a day and swimming. But it’s not back to where it was and I’m not sure if it will ever get there realistically. But I’m grateful that I can see forward and keep trying. Yesterday, I used the PT band for a few exercises and it really stressed my knee out so today I’ll skip that part. The other thing I’ve noticed is my routines were more or less disrupted as I couldn’t do the same things such as swish and swipe daily. I’m back at it with more regularity but it definitely impacted me and one has to wonder how things will be in 5 years. I guess the whole point of minimizing and streamlining things was exactly the place I’m in now. My house can handle not getting dusted for a few days, or vacuumed because there’s less to take care of. Daily though, the dishes get done, counters cleared. laundry done, bed made, house tidied. My husband does the laundry daily. He also cleans the kitchen after dinner so it’s a good system. Because of this, I think I will start looking around the house to see what things are taking up space or require some maintenance and then probably get rid of them. I guess this really does comes down to Swedish Death cleaning.

Thankful Thursday

Posted in California, Gratitude, husband, Walking by

I’m thankful this week for :

  1. getting my last Velcade shot in this cycle. Now I will go to monthly. So I have 28 days till my next shot.
  2. good food and enjoying it.
  3. B for getting up part of the new fence that will block the view into our neighbor’s parking area. He hasn’t been there since his father( Leo) died in May? June? But he is going to sell and I just want to have where they park screened from view. I am weird about things like that.
  4. My PC doctor getting back to me about a referral for an MRI. This knee thing has gone on too long so now we need more info so the only way to do that is an MRI. The only other factor I can figure out is Dex is causing my knee muscles to weaken and not get stronger despite walking, swimming, etc. Dex is known to cause muscle issues and it does seem to correspond when I take the dex and the next few days when it wears off. At first with dex, you don’t feel the pain as much as it is a steroid but then as it wears off and I’m still doing my usual stuff the knee buckling, etc starts to happen.
  5. I didn’t walk this morning due to my knee but I hope to start again tomorrow. Walking is one thing that keeps me going and sane.:)