Category Archives: Multiple myeloma

Friday things

Posted in budgeting, budgets, California, cancer, cash envelopes, frugalism, Multiple myeloma by

Yesterday was quite busy. I decided since my Velcade was rescheduled for 10am, I would go down to the gym first and then the library to pick up my hold. (Shogun) Then I went back to Winco for salad stuff, wine, oat milk, and yogurt. I spent about $60 and then got $40 cash to put into some cash envelopes.

Infusion was very busy, and I guess that’s why they needed me to come later. All 5 chairs were full, and some of these chemos are ALL day, and mine is only 20-30 minutes. They are always so nice, and oncology nurses are truly special people with the knowledge and skills they possess.

Finally, I stopped at Taco Tree for some tacos for myself and my daughter. She was almost out the door for work, but it all ended up ok. I took my Dex around noon, so hopefully I would get some sleep. Ha, no luck, I woke up at 2 am, and that was the end of sleeping. But I’m home today, so I can just chill.

I’m halfway through the budget month, and things are ok. There’s not a lot left over, but at least I’m not waiting for SNAP to come through. What a horrible thing these Republicans are doing to the people of this country who need it the most. Shameful. Even more shameful, throwing a Great Gatsby party at the gold mansion. Rump has probably NEVER read The Great Gatsby. Shameful, while millions of people are going without food or close to it. And then more shamefully, blaming Democrats for it because of the shutdown. Democrats are trying to save the ACA before rates skyrocket next year. Who cares about ordinary people? Certainly not rump.

Friday Things

Posted in budgets, California, cancer, cooking, frugalism, Halloween, Multiple myeloma, Myeloma by

Happy Halloween!!! Barclay loved to dress up for Halloween. We always took the kids to Auburn to trick or treat. It was fun! Those were the days, my friend, we thought they’d never end:(

I know I’m repeating myself, but this weather has been so nice this week. Sunny and temperatures in the mid 70s. Just lovely. I think the weekend is the same, and then next week starts to show rain again.

I watched Practical Magic the other night, and that is a fun movie to watch for Halloween. I’ve watched a couple of series on Prime. Margot is one and a few others. Nothing great, but it helps pass the evening hours.

I didn’t resubscribe to my Prime membership because my daughter offered to share her account. She pays way less being an educator. So that’s one less bill for me to deal with. Also, donating the Subaru has reduced my Allstate insurance, so that’s another savings.

I’m deciding in the next hour whether I’ll go down to the pool. I’d like to go, but there are some outside things I want to do while this weather is so nice. Plus, if I go to the pool, that’s kind of my energy output for the day, and then I don’t get a lot of other stuff done. Well, I still have an hour to decide.

I did pressure can pinto beans this week.

I ended up with 5 pints. It does take up the whole morning since pressure canning is time-consuming. I might do another round next week. We use the pintos the most.

I considered myself brave and went to Speedy to get the Santa Fe’s oil changed. Barclay always did this stuff, so it was kind of a big deal for me. Plus, I really dislike doing stuff like that, but, well, now I have to. Oil changes are so expensive now, like everything, I guess.

I need to go to Costco too, so I think I’ll plan that for next week. Next week is my Velcade injection, so I could do it after that. Also, this chemo will definitely give us a better picture of how much my numbers are going up. I looked back at what happened last time in MyQuest chart, and at this point my numbers started going from where they are now at 25, then to 30 something, and then they starting doubling. So this one will give us a better view of the trend.I don’t see Dr.L till December so we can figure it out for January. That is the exact time of when I changed treatments twice. It was in 2021 and then 2023. sigh:(

Frugal Friday and misc. stuff

Posted in Blood test, budgeting, budgets, California, cancer, decluttering, frugalism, Multiple myeloma, Myeloma, Uncategorized by

We ended up having a lot of rain!! But now it’s blue skies and the temperature is lovely. We should be having day temperatures in the 70s. We have some outside things to do, so that’s perfect. I need to paint the new gutter that S put up and tidy the patio up for winter.

I have a small pile to go to the thrift store and will probably do that on Sunday after the gym. I’m still going through different areas to find more things to add to the pile.

My son and his partner came over on Wednesday afternoon, along with the partner’s parents. They are lovely people, and I wish B could have met them. But they were here for the dad to check out my son’s Subaru. The dad is very mechanically minded. My son is giving( with my permission, as it is my name) the Subaru to him for free. They checked it out and will take it hopefully soon. As soon as that’s done I can take it off the insurance and that is going to save me over $700. I’ll call allstate as soon as it’s signed over.

My daughter and I went to Costco yesterday to finish shopping for the stuff I didn’t get last time. Most of it was non-perishables like the smoke alarms( wow, they were expensive even on sale), TP, and laundry soap. water, and a few other things. From there, we went to my favorite pizza place for a slice of New York pizza. It was fun. I also got the car washed since Quick Quack was just across the street. Costco ended up a little over $300 but I need to break down non food and also long term items and see what the total was.

My food budget for the month came in at about $350, so I’m really getting the hang of not buying so much. The Costco trip I’ll be putting on next month’s budget, which starts next week.

In not-so-happy news, my labs came back with a 4-point increase, so myeloma is definitely on the move. I checked in with Dr. L, and we decided to go one more month and see what the next increase is. I’m disappointed, but it was to be expected at some point. I just wish I could have had at least some period of time with things ‘normal’ after B died. Well, at least I’m asymptomatic which is good. Also the ratio of kappa / lambda was the same so that’s good. The plan will be to try to do biweekly,depending on how next month goes, and if that doesn’t work switch to darzalex fast pro. I’ve made it 20 years with Myeloma and know I’m one of the lucky ones. Still reality sucks that I have to deal with this. 😦

Five on Friday/Frugal Friday

Posted in budgeting, budgets, California, cancer, Credit cards, frugalism, husband, knee injury, Multiple myeloma, Myeloma, velcade, Walking by

Frugal-wise, I’m not in the Cotswolds like Mavis over at $100 a month. She probably should change the name of her blog. But she’s got the money, so why not enjoy it? Plus, she loves England.

Here in my neck of the woods, N. Ca, it’s been too hot to do much outside. The temps are much nicer in the coming week, but still some 90’s, and I saw it gets in the low 80’s, so that will be much nicer. I miss sitting outside in the mornings and afternoons.

Money-wise, just paying bills, and I had to pay the overpayment from SS. It’s ok, I’ll deal with it. It’s done, and I’m going forward. I just need to work the budget with the SS I’m getting. I’m still working on my credit card bill because I put the cremation on there. But I should be able to knock it down next month. I hate having a balance. But needs must.

After my Velcade shot, I stopped at Costco to pick up some lox for the bagels I bought at Noah’s. I also picked up some rose wine( my favorite) and a Gloria Ferrier champagne-type brut. I wanted Mumm rose, but they were out.

I gave my daughter $100 in cash to buy the paint for the studio. She’s really done a great job clearing it out and rearranging it to suit her. We might go get that today as long as she drives, since I’m on Dex. I don’t sleep well on Dex nights, and last night was no exception.

I also have a food bank donation to drop off and some more stuff for Goodwill.

I’ve almost finished most of my list of things to do related to B. If something comes up, it’ll be an outlier I don’t know about. I may take care of a few things today or not. It depends on my focusing on which Dex does affect. So we’ll see.

I’m still debating getting the next steroid shot for my knee. Mostly it’s ok. When I try and do a little extra walking or swimming, it acts up, but then I seem to recover the next day. The shot did help quite a bit, so there’s that.

Frugal Friday and other things

Posted in budgets, California, cancer, freezer cooking, Multiple myeloma, Myeloma, Walking by

This week we started the week out in Napa, so our RV space was $65 a night. A great price for full hookups. We spent $50 on pizza and wine, then $20 at the bakery, $40 at Trader Joe’s but $20 of that was for their seasonal candles, and $15 at the cheese station in Oxbow. So overall, a frugal getaway.

Yesterday was my doctor’s and we needed gas in the Santa Fe so we stopped at Costco on our way home. We went into Winco for salad packs, wine, and some Dave’s bread for sandwiches. We stopped at Celestino’s for a slice of NY pizza. It is the closest to NY pizza I’ve had in this area. That’s saying something.

My appt went well and he said it wasn’t the Velcade that caused my vomiting but the Dex. Dex causes lots of acid reactions in the stomach so he said to try and take only 4 next week. Then on top of that just as we were finishing walking this morning my knee( the one I fell on off the step ladder) completely gave out. WTF!!!! I didn’t fall but barely made it back to the car. So I vaguely remembered that dex causes muscle weakness. I messaged him to check that out and I guess I’ll just have to hobble around till it gets better. I made an appt with my PC for next week, but I’ll probably cancel that since I pretty much guess that the dex is the culprit. Since I had the fall I’m probably more susceptible there. Oh well, it’s always something. I planned on doing all the chores I didn’t get done this week today but that’s on hold now.

B has gone to town to buy cat crunchies and go to the gym. We alternate buying the big bag of Science Diet cat food with our daughter. So $55 for that.

I also planned going to the pool tomorrow but now I’m not sure what I’ll do. Maybe the muscle pain will subside by then.

I have a freezer lasagna ready for dinner and we’ll have one of the salad packs.

I do plan on going to Costco next week mostly for their sale items. Lots of good deals next week. But I want to do a freezer challenge and eat down some of my stockpiles.

I’m still working on some Christmas ideas for us all and have gotten a few things like a tea sampler for both kids. ( They’re big tea drinkers). I still plan on a few gift cards and will do that next week if I can get out and walk:( bummer and it better get better soon.

I just finished an absolutely wonderful book called” Lessons in Chemistry”. I highly recommend it.

Thankful Thursday

Posted in California, camping, Lake tahoe, Multiple myeloma, travel, Walking by
  • the beautiful weather here in Tahoe and there are no crowds. Driving down to the Y was easy and relatively quick.
  • Excellent camp food. This morning I used up the last 2 bagels and the last 2 eggs and made egg bagels with cheese.
  • B’s work on getting the 2 new batteries hooked up to Rubi, so now we’re holding a charge overnight.
  • That there’s an Anytime Fitness gym right here in Zephyr Cove.!!!
  • For being able to walk over 3 miles yesterday and not have my knee hurt. OK, maybe a smidge.
  • I am grateful to be up here in the Fall, with no kids running around( a few couples with babies, which I don’t mind). Or riding bikes through camp spots!!! Really annoys me. Plus no parties because it’s darkish by 7pm and chilly. We had booked the last days at the end of the season but because of starting Velcade the days won’t line up.

This was this morning around 7:30 am. Look at that blue!!!!

Thankful Thursday

Posted in books, California, camping, cancer, Gratitude, Lake tahoe, Multiple myeloma, Myeloma, Walking by

I’m always grateful to be able to walk in the early morning even if it is only for 40 minutes. As soon as my knee is 100% I plan on upping my time to 50 minutes. I’d also like to add in doing some hiking. Since we’ll be in Tahoe this week I’ll add in some extra walking if my knee feels good enough. There’s the hike through the meadow near the campground and there’s Richardson Trail near the Y in South Lake.

In spite of having to start Chemo, I’m grateful that I know what to expect as opposed to a new drug. Still, it’s hard to have to add this in but I’m grateful I have the option.

I’m grateful for a supportive family that I know will pick up the slack with things I won’t be able to do on chemo/dex days. Being the planner I am, I’ll have lots of dinner ideas ready plus freezer food.

I’m grateful my husband is having a birthday tomorrow, turning 73!!! Wow, after all he’s gone through he’s a walking miracle thanks to science. We plan on getting a pizza and some sort of birthday cake.

I’m thankful the Roseville Library is accessible and has an excellent selection of books. Roseville Parks and Recreation is probably one of the nicest resources in our area. After the gym this morning I plan on going over to the library and loading up on books to take camping.

So it begins…

Posted in Blood test, cancer, Multiple myeloma, Myeloma, Uncategorized by

So I just heard from my oncologist and my kappa light chains went up another 20+ points. My ratio( between kappa and Lambda went up over 2 points). So he’s going to set up my first shot the first week of October. I’m assuming the same as before 3 weeks on one week off.

The sooner we start the sooner we’ll know if Velcade is going to work this time. If not it would be on to the next regiment of treatment which is Darzalex.

Thankful Thursday

Posted in Blood test, California, cancer, cooking, Gardening, Gratitude, home stuff, husband, Multiple myeloma, Myeloma, swimming, Uncategorized by

I’m glad the doctor app’t went as planned even though he was an hour late:(

I never complain because you never know who before you is in a dire situation. So we agreed that I’ll get my next set of labs before Tahoe and if the rise is 20pts or more , we’ll start in October. He wondered whether I wanted to do a Pet scan/ Ct to look for lytic lesions first. I said I didn’t think at this point it would matter. I do have old lytic lesions where I had rib fractures and on my skull but at this point it’s my numbers that are the indicator and he agreed. He seemed to think Velcade will be effective again so that’s positive. I’m still a little concerned as this will be my third time. He also agreed that we’d know in 3 months whether it’s working or not which is what I wanted to do. He also indicated that this time I could keep up a maintenance schedule when my numbers are backing the normal range. This was something I suggested 3 years ago but at that point, he wasn’t inclined. So maybe now since I am at this stage it would be helpful and I definitely agree.

I’m thankful the weather is now Fall like. Beautiful days, cool evenings! I think there’s 1 day showing 90 but that’s it.

I am so thankful the indoor pool opened and it was not overly crowded. It probably depends on the day and the time. But after 3 months closed, it’s so nice to have it open and my drive time was 15 minutes less each way.

I’m so grateful to my daughter for being a wonderful gardener and planting all the tomatoes. I have another batch ready to go tomorrow. I dropped them in boiling water and took the skins off but I will still run thru the food mill to get the seeds out. She planted some late zucchini and now we’re getting just the right amount. I’ve made 2 more loaves to freeze for this fall/ winter.

As simple as it is, I am grateful for every day. I’m grateful to spend it with my husband and my kids( although my son is working full time and gone a lot, and my daughter writes full time and works at the library part time.) Still they’re around when we need them.

I’m grateful Barclay can do projects and improvements on our little abode.

Oh, that chess looking piece is my daughters anniversary present to us, a Peugot pepper mill. Believe me, if you love pepper you’ll want this. Why did I wait so long. It’s worth every penny.

I’m grateful for being able to make some freezer meals for when I don’t feel like cooking.

Thankful Thursday, Frugal Friday and Saturday sum-up.

Posted in budgeting, budgets, California, camping, cooking, LLS, Multiple myeloma, Myeloma, pets, travel by

THANKFUL THURSDAY

  1. I am thankful we had a safe drive home from Capitola and traffic was not too bad at all. We made it home in 4 hours with a stop for gas and something to eat.

2. I am grateful that B does the driving and set up and take down of Rubi.

3. I am thankful the weather was beautiful and we had some lovely days in our camp spot. With the influx of kids, bikes, and loud people, we left a day early and I’m grateful we have the sense to do that and not just say” Oh, we paid for the night, we should stay”. We do not enjoy it when kids are throwing balls in front of the trailer, riding bikes, etc, while their parents are loud with partying.

4. I am very grateful to my daughter for taking care of the house and yard. With the chickens and cats, it can be a lot.

5. I am so incredibly grateful that LLS opened funding for Myeloma and I got my application in. It’s pending, waiting for my doctor to fax his form.

FRUGAL FRIDAY

We spent very little this past week while camping. We didn’t eat out except for Gayles and that was just coffee and a danish. We ate the rest of our meals in camp. We went to the grocery store for a few things and that was it.

If you figure a week almost in Capitola, and we had just the cost of gas and some food, it’s a low budget getaway.

Overall, the budget has been good this month. But some things have caused some alarm. I’ll describe that in Saturday Sum up.

All the monthly bills are done. I’m working on keeping a zero balance in the bank account and it’s right where I want it for now.

It’s a huge savings for me to have my LLS grant since it covers all my insurance costs. I’ll be able to have a look back of 90 days so for reimbursement.

SATURDAY SUM UP

Well, that was the frugal stuff.

The night before we left my son notice some water(moisture) on part of the kitchen foundation. Of course, I freaked out and had B use the giant flashlight to look under there. There was a slow drip from the kitchen water pipe that will need to be fixed. Now part of the problem is our house foundation is not that great and as you go from the back to the kitchen area it gets very small to access. When we had this work done the person had to use a very long something to put those pipes in place. So now we’re facing a difficult challenge of getting a plumber to go under there. B is going to suit up and go in to try and clear some old pilings of dirt. But he isn’t a plumber that can weld the copper pipes. We put a call in to someone while we were in camp and we will try and set up an appt for next week to have him check it out. I tremble to think of this added expense.

The good news is the truck will go in next week to fix the AC and it’s covered by the extended warranty we bought. That expires in August so right in the nick of time.

Today, I’m going to pick up a Walmart order that has some camping stuff( toilet paper, and small propane bottles for the Weber). Plus I need to dust as the pine yellow pollen is coating everything in the house.

While we were gone a red fox chased and almost caught Ciri the cat. It was caught on Arlo and it’s scary to watch. It actually jumped the gate and chased her into the laundry rooms. We’re guessing it has a litter of kits nearby and that’s why it was so aggressive.