Category Archives: Myeloma

Simple Sunday

Posted in Blood test, home improvement, Myeloma, swimming, Walking by

Today is our town’s annual Pioneer Day. There’s a parade and lots of booths in the park. We live in town so we always walked down with the kids when they were young. Back then the firetrucks threw candy to the kids. They don’t do that anymore. It should be a nice day for everyone, not too hot.

Our heat wave starts Tuesday with temperatures about 100. Yikes. All our window coolers are in so we should be good to go.

Friday, my labs were canceled by Quest due to a glitch closing down the lab. I had to reschedule and the earliest was Wednesday. So I won’t know my kappa numbers till probably next Monday. Kind of a bummer when I’m anxious to know how not taking Dex affected my numbers.

We’ve lined up a handyman to come and put the plumbing in the wall for the shower. Hopefully, it’ll all be good. We will need to have the water off for a few days so we will use Rubi’s shower and bathroom. I might even sleep out there.

After swimming yesterday, I went over to the Paris Bakery and bought a mini strawberry cake for my daughter’s birthday.

Wow, it was delicious.

Not too much on the docket for today. I plan on going to the Auburn gym and then to the store to have my other knives sharpened. The butcher will only sharpen 3 at a time. Plus I wanted some cottage cheese and wine for the week.

I need to go into the new Costco this week to get coffee. We always buy Starbucks ground for camping then bring the rest home. That bag is just about gone so that needs to get done. I need to check my list and see what else we need but right now I can’t think of things, maybe some English muffins or?? Fruit?

Simple Sunday

Posted in California, camping, cooking, Lake tahoe, Myeloma, simple foods, Uncategorized by

I guess my daughter brought home a cold from work this week and now I have sniffles and a runny nose. It’s not terrible but still, my head feels like it has cotton in it. I’m not sure I’ll go to the Auburn gym then. I did walk this morning so at least I got some exercise in. This is probably the first time I’ve had a minor cold in maybe 3 years. I do get seasonal allergies which is what we all thought my daughter had but then by the next day you could tell it was more like a cold.

I want to swim tomorrow so I guess I’ll just have to wait and see how I feel then. I have Velcade Thursday so I don’t want to push it.

Yesterday I started drying oregano in the dehydrator, which still needs at least another day. I plan on doing a few batches as I use quite a bit of oregano in cooking. Then I’ll move on to thyme. I wish there was a way to keep cilantro but it doesn’t dry with any flavor, I’m not sure why exactly. I just looked up drying cilantro and it says you can and it will keep its flavor so I think since we have so much I’ll do ie batch to test it out. I recall I dried it in the oven and not the dehydrator so maybe that was the problem.

I decided not to go to the gym since I don’t want to be blowing my nose and then using weights:( I really dislike seeing people do this so I don’t want to be one of those people.:)

Yesterday I made a pot of minestrone for dinner it was quite good except the reason I was making it was to use up the zucchini we had and of course, I forgot to put in the zucchini. So maybe I’ll make a zucchini bread. My son brought up a dozen Noah’s bagels and they are delicious. He lives right near one so that will be fun for him. ( and us).

Our cooler weather is moving in and today looks like temperatures in the 70’s so we won’t need to use coolers. I think it’s supposed to be like this for the next week or so. Tahoe may end up cooler than we thought but we’ll be fine. We have the heater in Rubi. This is a shorter trip than we’re used to, only 3 nights but it’s a start. Then in June, we’re there for a week.

Frugal Friday

Posted in books, budgets, California, cancer, frugalism, Lake tahoe, Myeloma, travel, Uncategorized, Walking by

This week was fairly low spend. We did go to Paris Bakery one morning down in Roseville. It has delicious croissants and other baked goods. Also beautiful cakes. So that ended up $30 because we had fancy coffees which we almost never do and I brought home a pastry for my daughter to enjoy.

I did fill up the Santa Fe on Monday at Costco gas. That is the lowest price anywhere.

I popped into Winco and got a few groceries and some wine. Winco’s wine prices are the best around too. I like the Bogle chardonnay and Smoking Loon unoaked chardonnay. I think my total for wine and food was $57.

I think we’ll need to go to Costco next week as it’s time for more coffee. I plan on keeping that shop low spend as I don’t need a lot and I’m still working on eating down the freezers. With my son moving out food costs should go down although he will still be coming up here 2 days a week to work remotely and go into the office. So he’ll eat here when he’s here.

I’ve worked up the budget for June although I didn’t add in travel $. We’ll be in Tahoe twice. The end of May and mid June so I need to allow for gas and some food things. We generally don’t eat out in Tahoe because of the expense and we haven’t found a super great pizza place or Mexican. We do love Sprouts for sandwiches though. It used to be one of B’s accounts up there and has been around a long time. Great organic food. The Safeway is just up the road from the campground so we usually go there.

Tonight we’re going to do take out pizza so that’s pricey but we’ll only get 1 large as my son is still moving stuff to Sacramento and is down there tonight.

In other news, Dr. Laptalo said to drop the dex completely and let’s see what happens. I totally agreed. Of course, if my numbers go up substantially because dex helps boost the chemo then I’ll just have to consider the options. So I have 2 chemos scheduled before I see him again so that should give us a more accurate picture. I guess we’ll just have to wait and see.

Today was a no walk day, a no gym day and, a no swim day. So I want to go over to the pet bookstore and look for a few books. They’ve moved so it’s in a less convenient location than it was before. Speaking of walking, we haven’t had for months now, other people coming early to walk and then pow, yesterday we had 3 other people and OMG, AH showed up. It has been almost a year since he was there. I just about fell over. If you’re new to this blog and wonder what AH stands for, use your imagination. One thing though, he hadn’t gotten out of his car yet and previously he’d jump out and drag the dog out. So we wondered if the dog had died or was just too old now. I guess we’ll know next time we see him. Weird though.

Simple Sunday and Happy Mother’s Day

Posted in California, home stuff, knee injury, Myeloma, swimming, Uncategorized, Walking by

It’s a beautiful day here in N CA. The weather is just great. We just got back from our walk and the park was empty except for the many Canada goose families. Yesterday I did 1.6 miles so I’m getting close to my 2-mile goal. My knee did feel a little stressed after that but it seems to pass more quickly now. I’m also wearing my brace less and less.

A Happy Mother’s Day to all the moms out there of human kids or furry kids.

My son plans to do a lunch BBQ for us all and then head off to Sacramento to move more stuff into their apartment.

The week ahead looks good. I have my doctor appt on Thursday and I will want to discuss the dex stuff and my thinning hair from either dex or Velcade. I’ve lost almost 40% of my hair and it’s quite upsetting. I’m not sure if it’s dex or Velcade or both. I checked on the Facebook myeloma group and a few people did say it was a side effect of Velcade. But a couple of people said Dex. And then I vaguely remembered going to my primary care doctor years ago when I was in treatment(2015) for hair loss and I remember him saying probably dex. The biggest problem with dex is raising my blood pressure so that’s what I’ll focus on. Either lowering the dose or dropping it and see how my numbers go. Of course, I’ll see what his expert opinion is.

Other than that I plan on swimming and the gym and the library.

We haven’t heard from the people who were going to do the bathroom so I guess we’ll need to start over looking for someone to at least get the plumbing done. sigh:(….

Frugal Friday

Posted in Blood test, California, cancer, frugalism, home stuff, Myeloma by

It was a good week overall. We did the extra Costco trip for the tent for camping and the rest of the stuff on sale. Vitamins were on the list, laundry soap, Kerrygold butter, and misc. I think food came out to $200 and nonfood to $100. So not too bad really. I wanted to go to Trader Joe’s but it just didn’t work out time-wise. Probably next week or the week after I’ll add in a TJ’s trip.

My new Levi’s showed up and I like the lighter blue color. My oldest pair are now pretty ripped in the knee area but I’ll still keep them and maybe turn them into shorts.

We’ve been buying the stuff for the bathroom remodel but that’s separate from other bills. We plan on white subway tiles with a grey grout and the floor a waterproof vinyl. I wanted the small black and white octagons for the floor but after looking at them I decided that wasn’t quite what I wanted. We found some nice looking vinyl that looks like slate. Sunday we plan on going to Ikea for the bathroom vanity and medicine cabinet. It’ll all take some time but we’ll get there.

Tonight is a homemade pizza so not takeout. I’m trying to think if we had anything out and I don’t think so. Usually after swimming it’s too early to get something for lunch. Our favorite Mexican place doesn’t open till 11 am so I’m usually home way before that.

Next week is my colonoscopy so we might do lunch out earlier in the week. I’ll be glad when this is over.

I’m hoping to swim at least once next week before the procedure and also go to the gym once. We’ll see how it all goes.

My kappa light chains went up just a tiny bit(19.5) so a smidgen above high normal(19.4), so nothing to worry about. My next infusion isn’t until the end of May and I see my doctor before that so I can discuss lowering the dex again.

Simple Sunday

Posted in Blood test, books, California, cancer, cooking, Flylady, Gardening, Myeloma, reading, Uncategorized by

Another week has gone by and it was an ok one with Vecade and Dex. I had a hard time again with Dex and my BP so when I see the Dr in May, I’ll tell him and ask that we reduce it further. Right now I’m on 16 mg down from 20mg but it’s still too much I think for me. My BP was high all day and then started going back down by afternoon and by 5 pm was 120/82 so back in a good range.

This morning we had our Sunday walk and it’s very light out now at 5;50 am. It was only us and the geese.

There are lots of babies!

Today, I’m skipping the Auburn gym and going to the nursery with my daughter. We need to get the tomato starts and some other things as well. We always enjoy going and looking at the flowers and everything. I plan on going down to Maheny tomorrow so I’m ok skipping today.

I have my labs at 8 am and then I’ll drive down and do a workout and drop off a couple of the books I read. The Hannah Kristen, “The Women” is a phenomenal book about the nurses in VietNam. She obviously did an amazing amount of research. I’m not sure I like how she developed the character after she returns from VN. It seems to me she could have taken the character in a different direction. I don’t want to spoil it in case you haven’t read it, but if you’ve read it, what do you think?

This week is not too busy which I always appreciate. I plan on going to the pool 2x and then maybe one other gym day. Next week is the dreaded colonoscopy so the week will be different.

Menu wise, I’m still working on it. I’m going to make some polenta for tonight to have with black beans and salad. The rest of the week, I’ll need to plan. I do have some zucchini to use so maybe a ratatouile over rice.

The Flylady zone is the living room and entry ways. My daughter recently redid the one entry with new plants and tidied it up so I won’t need to do that. I have the red geraniums from Costco I can plant in some pots to put by the other door.

I can’t believe May starts this week. May is one of my favorite months as my daughter was born and what a gift she was/is to us. I think I’ve mentioned this before but we had been married 15 years before we had her and used a fertility drug to stimulate an ovulation. It worked like a charm so to speak and we were pregnant. Wonderful memories and I loved being pregnant. She’ll be 39 in May. Where does the time go?

Simple Sunday

Posted in Blood test, books, California, camping, cooking, Flylady, library, meal planning, Myeloma, simple foods, travel, Uncategorized by

Our drive home yesterday was rainy part of the way. Traffic was not too bad and we made it home by 2pm. Everything was good at home and the house was tidy. Of course, it was mostly only my daughter home because my son was off camping with his partner. He got home Wednesday.

We woke at ‘camp time’. Err, later than normal. I woke at 6am which is normally our walk time. I just figured,’ Oh well’, tomorrow is another day. I planned on doing the kitchen zone, bathroom zone, and bedroom zone. They are all done now.

I also did not plan to go to the Auburn gym as I wanted to do the zone cleaning.

I planned some meals for the week. Spaghetti with sauce, turkey chili with home canned beans, a soup night, a pizza night, a fish night, and a taco/burrito night. I’m keeping my menu plans that I write out and will write a monthly one soon. The monthly one is really for reference only as I pretty much plan many of the same meals over and over. Occasionally, I like to do a new recipe but most of them don’t make the cut for regular rotations.

This week is a mellow week with no appts. I plan on the gym, library, and swimming. Next week I have Velcade/Dex, so not looking forward to the Dex again. BUT, GREAT NEWS!!! My numbers came back in the normal range even with a tiny drop. Kappa light chains at 18.6. I’m over the moon and will continue to persevere. If my numbers stay in range by fall, I might ask about going completely off Velcade, but for now, it is what it is.

Right now it’s still cloudy but the rest of the week looks sunny and beautiful. All the trees are leafed out and I’m sure more will be out this week with 70-degree weather. the wisteria is ready to burst into bloom. All the daffodils are done. But other things are starting to bloom, rosemary, apple trees, redbuds, and the cherry tree.

I’m off to make some banana bread and then look at what books I have left from the library to read.

Simple Sunday

Posted in Blood test, books, budgets, California, cooking, Flylady, Myeloma, reading, Uncategorized, Walking by

We had a nice early walk in the park before the Christians started showing up for the easter sunrise service they do in the park each year. It was cloudy and it was sprinkling rain. We finished up and left before the drizzle started.

It’s still cloudy out but not really cold. I went to the gym and now I’m home deciding what to do with the day. I’m in the entryway zone so I may sweep and tidy out both doors. I’ve done a little more reorganizing in the closet and took out a few things to go out to the garden shed. I have some more to do in there. Once the weather gets nicer I can go out to the shed and decide whether to keep or donate. I have a lot of canning jars for this summer that are in boxes. I know I’m not doing any jams so the 1/2 pints will stay boxed up. I may use them for salsas or sauces.

We had a very nice older contractor come look at the bathroom. It was funny as he said his house was just as small and his bathroom is 6×6 too. So his assessment was to put in a basin on the floor and then tile up the walls. I think it makes more sense than putting in the unit. Plus we can keep the window size the same and not have to cut a different opening. He did say our budget was probably too small:( But we only have so much money and it’s not a lot so we’ll have to do what we can. I also was thinking of just leaving the dam thing alone and living with the tub as it is. We do have multiple grab bars that I use every time but??? I’m not sure that’s the answer either.

I had gotten the cookbook” Big Heart, Small Stove” by Erin French, the owner of the Lost Kitchen in Freedom Maine, and made 2 recipes. One was the lentil potato soup with a garden pistou and then her backyard biscuits. Both are excellent and it’s a beautiful book if you’re interested.

The handsome hubby enjoying his soup and biscuit.

There’s a few more recipes I’d like to try but most of her stuff is too fancy for me.

I’ve read a few more of Craig Johnson’s Longmire series and “boy howdy’ as he says, they are so good.

Thankful Thursday

Posted in Blood test, budgeting, budgets, California, camping, cancer, Gratitude, Myeloma, travel by

We just got back from Sacramento where it is all sunny and so pretty. When we hit Auburn the foothills were cloudy and we were starting to get some rain. I’m grateful B drove as I was on dex and had a bit of a headache probably due to higher blood pressure.

My doctor appt went well. All is pretty good and stable. My kappa light chains went back down to normal so I was very jazzed about that. I’m totally grateful to see those normal numbers. We’ll see what my next labs bring. I had my infusion yesterday so I’ll get labs next week. He’s on vacation so I may not get them till the following week. My blood pressure was way up due to dex but if it follows the same pattern as last month, it’ll go back to normal tomorrow so I’m grateful for that.

I’m grateful to the infusion nurses who are so kind and competent. They put up with a lot and have to deal with so many situations. I’m pretty sure it’s a very stressful job.

I’m grateful my budget is done for April. Overall, it looks good. We have property taxes and Allstate but I’ll put them on a card and pay as much as I can in April but it’ll definitely go into May.

I’m grateful B went to Costco for me yesterday. We got most of what we needed but there were a few things he forgot. Actually, not his fault because I didn’t check if we needed dishwasher pods and we did. So I added some other things on and we’ll do that next week.

I’m grateful we get to go to New Brighton in a few weeks but I did get a notice from them alerting us to the ground being saturated due to rain. Since all the pads are paved, It should be fine for us. Tent camping probably not. We have the whole week booked so that will be nice. Sometimes we leave early( like last time when the family with the monster children came in on Friday) and we left on Saturday. Too noisy, too many bikes and whatever street games they were playing:(

B bought some nice asparagus at Costco and I will pan grill them tonight with a quiche, I think. I have some mushrooms, spinach, and green onions to use.

Friday Things

Posted in cancer, cash envelopes, frugalism, Myeloma, swimming by

I plan to go down and swim today. I’m going to go about 45 minutes before the pool closes and try to do 15 minutes or so. I was going to go to the gym but decided that working out in the pool swimming would give me a ‘whole’ body workout.

Out internet is down. The modem stopped working yesterday( I think ATT was working on the lines and screwed it up). So this is courtesy of my hot spot. What a PITA and they won’t be here till Monday:(

I’m trying to work through being depressed about my Kappa numbers. It’s difficult to handle and even though I know ‘this too will pass’, it’s a bummer. There’s not much I can do until the next cycle and labs because we don’t know what they will do. But I will ask Dr.L to go every 2 weeks and see what that does. Still very disappointing.

Frugal wise, not much new. I need some new clothes but am holding off till I have more in my cash envelope. Probably in March, I’ll get what I need which is a new Polar fleece, 1 pair of Levi’s ( that’s pretty much all I wear besides my workout leggings), a new pair of Hokas, and a couple of T-shirts.

I went down to the Holiday and spent 60 on food. Mostly this was odd stuff like Bubbies pickles, rice noodles, greek yogurt, and a sourdough loaf from Truckee Sourdough. There must have been a few more things but I can’t remember now.

B got gas at Costco so that saved some money. We’ve been doing this regularly and it’s at least .50 a gallon cheaper there than Auburn.

Most all the money bills are done except water which is later in the month. So no extra spending overall. I used a gift card to get a coffee at Starbucks but that’s about it.

Here are the 2 books I got at the FOL Roseville.

This added up to $5 and I used personal spending money. The Linda McCarthy book was interesting to look through.

Well, I’m off to get ready for the day plus figure out what we’re doing for dinner.